Re: My Story, I am so very tired and this seems to simple to be the cause!

[Guest guest]

Oh my goodness darling, all our hearts are with you.

You are not alone in this..this mold and chemical

sensitivity is presently, breaking up my marriage as

well, and he is my best friend and soul mate. I

thought this was forever-we had the best love story

ever. We are still in the process of trying to save

it but it has taken such a toll on both of us and both

of us are ill (he denies it is from the mold) and have

such great needs and we just can't give it to

eachother. I walk around with such grief and a

heaviness in my heart, as I scramble around to find

yet another place to live, that might be " safe " . He

won't leave me, I'd have to leave him, but it is like

living with a zombie and the fact that he can't accept

that mold has a huge part in that makes me feel we are

doomed.

Hang in there. I am too bleary to adress your medical

symptoms but maybe someone else in the group can?

Pray and ask for help. That's what I do, a lot!

Michal

--- tenajsemaj <janetretzolk@...> wrote:

> Dear Friends,

> I will try to get to the point and try to make the

> last 3 years easy to

> follow, I am sure I will leave out some parts so

> please bare with me.

> My Nightmare started Oct. 15th, 2005

> On the other hand the life of my dreams had just

> began too.

> See, I was about to marry my soulmate and best

> friend. We decided to

> move in together in Oct. so we rented a house close

> to both of our work

> and my kids schools. My kids and i had been alone

> for a very long time

> and I was so very excited that God opened both of

> our eyes, so we saw

> that we loved each other totally. I have to remind

> you I was very

> independant and only would I even think of doing

> this if it was totally

> right. It was and still is.

> So Oct, we moved in, by Nov. we all got strep throat

> and so we were all

> put on the same medication, Z-pack. We started

> getting better. Well My

> husband, , my daughter Alli, she just turned 17

> and my son nie,

> age 12. I on the other hand had wierd things

> happening. Like 1. my

> finger nail fell off, and I chalked it up to false

> nails. Then both my

> big toe nails fell off. All that seemed a little

> funny and toe nails

> grew back but the finger nail never has.

> Ok so this was Nov. and and I were getting

> married Dec 24th in our

> home. We both decided to get physicals and total

> check ups before

> marriage and we even went to Christian Counseling to

> talk about mixing

> our families, he has 2 older children that live on

> thier own and I have

> one more who is married an her husband is in the

> Navy.

> Well we were in perfect health right before we moved

> in our home , we

> walked and ran, did alot of Charity Runs and I

> was working my way

> up to my first one.

> We both worked for the school district in

> transportation, he is a

> mechanic and I was a driver. I loved my Children on

> my Bus, I loved

> working with kids that are challenging.

> Well ofcouse this is Christmas Time also so we were

> shopping together to

> get everyone taken care of and and I were at a

> store and I started

> feeling this unbeliveable pain in my legs, I kept

> thinking I needed to

> sit down, and I told after a little while we

> had to go my legs

> were killing me. We went home I looked at them and

> it looked as if I had

> been beaten all over my lower legs. Me overcome by

> all the joy in my

> life and i had never been sick really thought and

> more about it . Even

> though we both were boggled.

> Dec. 21st 2005 I had taken my sister to the doctor

> and after we met

> to eat. Them I was taken her home when I had

> my first seizue , now

> I know to be temporal Lobe seizures and I black out

> but is a horrible

> feeling I had never felt before, I thought that the

> truck behind us hit

> us,and i was dioriented and started crying due to

> being overwelmed by

> the presurre in my head. well we pulled over and

> being sister was

> extreemly ill with cancer, I got out of the truck

> and pulled it

> together, and was stunned because I could not

> explain what happend. Then

> I was so tired driving her home seemed like the

> longest drive of my

> life.

> Ok so far I got strepthroat and my nails were

> falling off my blood

> vessels were breaking in my legs and I was having

> really weird spells.

> Still didnt go the the doctor.

> We got Married Dec 24th 2005, all of our kids were

> there and it was the

> best Christmas of my life. We were all so happy

> even my 12 year old son

> cried, when he handed us the rings. You just can't

> imagine how beautiful

> and strong our love was.

> New years eve, we had a Party, everyone was having a

> blast, and then I

> started feeling weird but didnt say anything, then

> my legs started

> hurting so bad I could not hold back the tears, I

> took Ibiprofen, and

> hoped it would work, looked at my legs and had a

> little bit of the red

> dots, within the hour my intire legs were covered in

> welpes and knots

> that were purple and broken blood vessels. Everyone

> was shocked, the

> party was winding down anyway and they all went

> home, Joking I had a

> disease. I just laid my bare legs on the cold floor

> for some sort of

> comfort and took benadril.

> The next day the worst was overit just turened into

> bruises and the

> major part was over. and I decided to go see

> my doctor asap. Well

> school started back and I went back to work, and

> would be going to the

> doctor that afternoon, by midday run after I dropped

> all the children

> off I had another seizure on the bus. The crew from

> the bus barn came

> and got the Bus and Jame stook me to the Hospital,

> because we called the

> Doc and thats what she said to do,.They didnot have

> a flippin clue, gave

> mye steriods and migrian medication and sent me

> home, and refered me to

> a Nueroligist. Went to him got the EEG and thats

> when I learned about

> the seizures.

> After that I saw so many specialist I can't even

> begin to write but I

> was getting sicker and sicker. I had what they call

> a ( mini stroke on

> my left side ) I got minigitis, and pnoemonia,

> diaria so bad the

> hospitalized me, and My blood presser allthe sudden

> decided to start

> dropping extreeemly low. Everytime we turned around

> my fver spiked over

> 103- 104.5 and blood pressure 60/30 , My

> hematologist wants to do some

> type blood tranfusion.

> We went to doctors out of state looking for answers.

> I am getting weaker

> by the day, I am now on disability. I don't know if

> i will be able to

> move .

> The stress has eaten away at our new marriege, oh

> yea we did buy this

> house also, and found mold in my daughters closet

> coming fron the

> airconditioner unit, and in the dinning room, and

> had not called

> the health department or the insurance company

> either,

> Jan, 2008 I was on a medication that made me a

> zombie and I wasnt myself

> at all, stayed in my room didnt come down, I didnt

> care anymore, and I

> felt like a burden to mu husband and my kids. The

> med, was making say

> and do thing I don't do, I ended up overdosing,

> trying to get away, and

> was in a semi coma for 3 days .

> Like I said, Medication, I havebeen diagnosed with

> Lupus SlE and

> Sjeogrems, Rhynalds, seizures, lyme disease at one

> point, you name it

> auto immune I have been diangnoe.

> I am now alone, my husband left me, 2 weeks ago,

> because he said he

> could not handle it. Disapeared, doesnt call,

> nothing, took all the

> money and left I am pretty sick right now and I am

> praying alot. I walk

> and my blood vessels break, and when they do I seem

> to have small

> seizures.

> I am very sorry this is so long, I can't remmber

> thing I should.

> God Bless To everyone

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

[Guest guest]

I'm very sorry to hear that your husband ran. I can't even begin to

reason with this, it's not the way it's supposed to be. But it would

be a rough way to start a marriage. Sickness no matter what kind is

never easy to deal with, especially when the physicians don't seem

to be on your side or understand environmental illnesses. Everything

you mentioned and been misdiagnosed with is not unheard of. Over the

years I've had many that were diagnosed with all the same

conditions. I guess this just goes to show not only they don't

understand environmental illness, but also immune dysfunctions. I

can only imagine how long this has been going on.

Obviously there is something going haywire, not only in our blood

but throughout all our organs that they can't seem to get a grasp

on. There are many on this group going at it alone and my heart goes

out to all of them. It's hard enough even when you do have support

from loved ones.

If you would like to talk feel free to email me, that goes for

anybody here. Send me your number or I will send you mine.

Take care,

KC,

List Owner

>

> Dear Friends,

> I will try to get to the point and try to make the last 3 years

easy to

> follow, I am sure I will leave out some parts so please bare with

me.

> My Nightmare started Oct. 15th, 2005

> On the other hand the life of my dreams had just began too.

> See, I was about to marry my soulmate and best friend. We decided

to

> move in together in Oct. so we rented a house close to both of our

work

> and my kids schools. My kids and i had been alone for a very long

time

> and I was so very excited that God opened both of our eyes, so we

saw

> that we loved each other totally. I have to remind you I was very

> independant and only would I even think of doing this if it was

totally

> right. It was and still is.

> So Oct, we moved in, by Nov. we all got strep throat and so we

were all

> put on the same medication, Z-pack. We started getting better.

Well My

> husband, , my daughter Alli, she just turned 17 and my son

nie,

> age 12. I on the other hand had wierd things happening. Like 1. my

> finger nail fell off, and I chalked it up to false nails. Then

both my

> big toe nails fell off. All that seemed a little funny and toe

nails

> grew back but the finger nail never has.

> Ok so this was Nov. and and I were getting married Dec 24th

in our

> home. We both decided to get physicals and total check ups before

> marriage and we even went to Christian Counseling to talk about

mixing

> our families, he has 2 older children that live on thier own and I

have

> one more who is married an her husband is in the Navy.

> Well we were in perfect health right before we moved in our home ,

we

> walked and ran, did alot of Charity Runs and I was working

my way

> up to my first one.

> We both worked for the school district in transportation, he is a

> mechanic and I was a driver. I loved my Children on my Bus, I loved

> working with kids that are challenging.

> Well ofcouse this is Christmas Time also so we were shopping

together to

> get everyone taken care of and and I were at a store and I

started

> feeling this unbeliveable pain in my legs, I kept thinking I

needed to

> sit down, and I told after a little while we had to go my

legs

> were killing me. We went home I looked at them and it looked as if

I had

> been beaten all over my lower legs. Me overcome by all the joy in

my

> life and i had never been sick really thought and more about it .

Even

> though we both were boggled.

> Dec. 21st 2005 I had taken my sister to the doctor and after we met

> to eat. Them I was taken her home when I had my first

seizue , now

> I know to be temporal Lobe seizures and I black out but is a

horrible

> feeling I had never felt before, I thought that the truck behind

us hit

> us,and i was dioriented and started crying due to being overwelmed

by

> the presurre in my head. well we pulled over and being sister was

> extreemly ill with cancer, I got out of the truck and pulled it

> together, and was stunned because I could not explain what

happend. Then

> I was so tired driving her home seemed like the longest drive of my

> life.

> Ok so far I got strepthroat and my nails were falling off my blood

> vessels were breaking in my legs and I was having really weird

spells.

> Still didnt go the the doctor.

> We got Married Dec 24th 2005, all of our kids were there and it

was the

> best Christmas of my life. We were all so happy even my 12 year

old son

> cried, when he handed us the rings. You just can't imagine how

beautiful

> and strong our love was.

> New years eve, we had a Party, everyone was having a blast, and

then I

> started feeling weird but didnt say anything, then my legs started

> hurting so bad I could not hold back the tears, I took Ibiprofen,

and

> hoped it would work, looked at my legs and had a little bit of the

red

> dots, within the hour my intire legs were covered in welpes and

knots

> that were purple and broken blood vessels. Everyone was shocked,

the

> party was winding down anyway and they all went home, Joking I had

a

> disease. I just laid my bare legs on the cold floor for some sort

of

> comfort and took benadril.

> The next day the worst was overit just turened into bruises and

the

> major part was over. and I decided to go see my doctor asap.

Well

> school started back and I went back to work, and would be going

to the

> doctor that afternoon, by midday run after I dropped all the

children

> off I had another seizure on the bus. The crew from the bus barn

came

> and got the Bus and Jame stook me to the Hospital, because we

called the

> Doc and thats what she said to do,.They didnot have a flippin

clue, gave

> mye steriods and migrian medication and sent me home, and refered

me to

> a Nueroligist. Went to him got the EEG and thats when I learned

about

> the seizures.

> After that I saw so many specialist I can't even begin to write

but I

> was getting sicker and sicker. I had what they call a ( mini

stroke on

> my left side ) I got minigitis, and pnoemonia, diaria so bad the

> hospitalized me, and My blood presser allthe sudden decided to

start

> dropping extreeemly low. Everytime we turned around my fver spiked

over

> 103- 104.5 and blood pressure 60/30 , My hematologist wants to do

some

> type blood tranfusion.

> We went to doctors out of state looking for answers. I am getting

weaker

> by the day, I am now on disability. I don't know if i will be able

to

> move .

> The stress has eaten away at our new marriege, oh yea we did buy

this

> house also, and found mold in my daughters closet coming fron the

> airconditioner unit, and in the dinning room, and had not

called

> the health department or the insurance company either,

> Jan, 2008 I was on a medication that made me a zombie and I wasnt

myself

> at all, stayed in my room didnt come down, I didnt care anymore,

and I

> felt like a burden to mu husband and my kids. The med, was making

say

> and do thing I don't do, I ended up overdosing, trying to get

away, and

> was in a semi coma for 3 days .

> Like I said, Medication, I havebeen diagnosed with Lupus SlE and

> Sjeogrems, Rhynalds, seizures, lyme disease at one point, you name

it

> auto immune I have been diangnoe.

> I am now alone, my husband left me, 2 weeks ago, because he said he

> could not handle it. Disapeared, doesnt call, nothing, took all the

> money and left I am pretty sick right now and I am praying alot. I

walk

> and my blood vessels break, and when they do I seem to have small

> seizures.

> I am very sorry this is so long, I can't remmber thing I should.

> God Bless To everyone

>

>

>

>

>

[Guest guest]

Wow. Well there are several possibilities.

1) You have a genetic predisposition to have an autoimmune reaction to

the strep bacteria. Perhaps you have this along with an inability to

fight off strep very well either, so the combination would not be

good, and an ordinary strep throat could make your system go haywire.

Remember, people used to get rheumatic fever (heart ailments) from

strep, when they had an autoimmune reaction. Amoxicillin is a good

antibiotic to fight strep, I think, that is inexpensive. You might try

to find a doctor who would consider prescribing it, in doses high

enough to get into your nervous system.

2) The steroids sound like they made you much worse, which steroids

can do, because they suppress your immune system and then allow

infections to get worse

3) Its a possibility you have lyme but where do you live and is it an

area known for ticks, or did you go camping etc? It is also possible

you have some other tickborne disease, or a viral encephalitis or

infection.

4) You have *some* kind of ongoing infection, and then you may have a

hypersensitivity to mold, or you had a toxic mold in that house as

well. The combination could make you very ill. Are you still in that

home, if so, try a few weeks somewhere else, not in that home.

These are just some thoughts. As sick as you are, it doesn't mean you

can't get better, it just means you need to " think outside the box " to

figure out which of the above, alone or in combination, is causing

your body to collapse in various ways.

--- In , " tenajsemaj " <janetretzolk@...>

wrote:

>

> Dear Friends,

> I will try to get to the point and try to make the last 3 years easy to

> follow, I am sure I will leave out some parts so please bare with me.

> My Nightmare started Oct. 15th, 2005

> On the other hand the life of my dreams had just began too.

> See, I was about to marry my soulmate and best friend. We decided to

> move in together in Oct. so we rented a house close to both of our work

> and my kids schools. My kids and i had been alone for a very long time

> and I was so very excited that God opened both of our eyes, so we saw

> that we loved each other totally. I have to remind you I was very

> independant and only would I even think of doing this if it was totally

> right. It was and still is.

> So Oct, we moved in, by Nov. we all got strep throat and so we were all

> put on the same medication, Z-pack. We started getting better. Well My

> husband, , my daughter Alli, she just turned 17 and my son nie,

> age 12. I on the other hand had wierd things happening. Like 1. my

> finger nail fell off, and I chalked it up to false nails. Then both my

> big toe nails fell off. All that seemed a little funny and toe nails

> grew back but the finger nail never has.

> Ok so this was Nov. and and I were getting married Dec 24th in our

> home. We both decided to get physicals and total check ups before

> marriage and we even went to Christian Counseling to talk about mixing

> our families, he has 2 older children that live on thier own and I have

> one more who is married an her husband is in the Navy.

> Well we were in perfect health right before we moved in our home , we

> walked and ran, did alot of Charity Runs and I was working my way

> up to my first one.

> We both worked for the school district in transportation, he is a

> mechanic and I was a driver. I loved my Children on my Bus, I loved

> working with kids that are challenging.

> Well ofcouse this is Christmas Time also so we were shopping together to

> get everyone taken care of and and I were at a store and I started

> feeling this unbeliveable pain in my legs, I kept thinking I needed to

> sit down, and I told after a little while we had to go my legs

> were killing me. We went home I looked at them and it looked as if I had

> been beaten all over my lower legs. Me overcome by all the joy in my

> life and i had never been sick really thought and more about it . Even

> though we both were boggled.

> Dec. 21st 2005 I had taken my sister to the doctor and after we met

> to eat. Them I was taken her home when I had my first seizue , now

> I know to be temporal Lobe seizures and I black out but is a horrible

> feeling I had never felt before, I thought that the truck behind us hit

> us,and i was dioriented and started crying due to being overwelmed by

> the presurre in my head. well we pulled over and being sister was

> extreemly ill with cancer, I got out of the truck and pulled it

> together, and was stunned because I could not explain what happend. Then

> I was so tired driving her home seemed like the longest drive of my

> life.

> Ok so far I got strepthroat and my nails were falling off my blood

> vessels were breaking in my legs and I was having really weird spells.

> Still didnt go the the doctor.

> We got Married Dec 24th 2005, all of our kids were there and it was the

> best Christmas of my life. We were all so happy even my 12 year old son

> cried, when he handed us the rings. You just can't imagine how beautiful

> and strong our love was.

> New years eve, we had a Party, everyone was having a blast, and then I

> started feeling weird but didnt say anything, then my legs started

> hurting so bad I could not hold back the tears, I took Ibiprofen, and

> hoped it would work, looked at my legs and had a little bit of the red

> dots, within the hour my intire legs were covered in welpes and knots

> that were purple and broken blood vessels. Everyone was shocked, the

> party was winding down anyway and they all went home, Joking I had a

> disease. I just laid my bare legs on the cold floor for some sort of

> comfort and took benadril.

> The next day the worst was overit just turened into bruises and the

> major part was over. and I decided to go see my doctor asap. Well

> school started back and I went back to work, and would be going to the

> doctor that afternoon, by midday run after I dropped all the children

> off I had another seizure on the bus. The crew from the bus barn came

> and got the Bus and Jame stook me to the Hospital, because we called the

> Doc and thats what she said to do,.They didnot have a flippin clue, gave

> mye steriods and migrian medication and sent me home, and refered me to

> a Nueroligist. Went to him got the EEG and thats when I learned about

> the seizures.

> After that I saw so many specialist I can't even begin to write but I

> was getting sicker and sicker. I had what they call a ( mini stroke on

> my left side ) I got minigitis, and pnoemonia, diaria so bad the

> hospitalized me, and My blood presser allthe sudden decided to start

> dropping extreeemly low. Everytime we turned around my fver spiked over

> 103- 104.5 and blood pressure 60/30 , My hematologist wants to do some

> type blood tranfusion.

> We went to doctors out of state looking for answers. I am getting weaker

> by the day, I am now on disability. I don't know if i will be able to

> move .

> The stress has eaten away at our new marriege, oh yea we did buy this

> house also, and found mold in my daughters closet coming fron the

> airconditioner unit, and in the dinning room, and had not called

> the health department or the insurance company either,

> Jan, 2008 I was on a medication that made me a zombie and I wasnt myself

> at all, stayed in my room didnt come down, I didnt care anymore, and I

> felt like a burden to mu husband and my kids. The med, was making say

> and do thing I don't do, I ended up overdosing, trying to get away, and

> was in a semi coma for 3 days .

> Like I said, Medication, I havebeen diagnosed with Lupus SlE and

> Sjeogrems, Rhynalds, seizures, lyme disease at one point, you name it

> auto immune I have been diangnoe.

> I am now alone, my husband left me, 2 weeks ago, because he said he

> could not handle it. Disapeared, doesnt call, nothing, took all the

> money and left I am pretty sick right now and I am praying alot. I walk

> and my blood vessels break, and when they do I seem to have small

> seizures.

> I am very sorry this is so long, I can't remmber thing I should.

> God Bless To everyone

>

>

>

>

>

[Guest guest]

We are all, here, sorry to hear of this sad story. Just know that you

can always get support from this group because we all have similar

stories. Mine is six years worth of mess and way to long to go into

but if you ever need more personal support email me and we can chat.

I too have been pretty ill lately and have made an appointment to see

two infectious disease doctors. One through my insurance and the

other through USC medical center. Anyway enough about me and back to

you. Stay strong and know that we are all here fighting this illness

to mold exposure. Know that it is real and you are not crazy and

those who choose to turn their backs and walk away just don't

understand or want to accept that this could be them.

Wishing you all the best,

Dana

[Guest guest]

>

> > Dear Friends,

> > I will try to get to the point and try to make the

> > last 3 years easy to

> > follow, I am sure I will leave out some parts so

> > please bare with me.

> > My Nightmare started Oct. 15th, 2005

> > On the other hand the life of my dreams had just

> > began too.

> > See, I was about to marry my soulmate and best

> > friend. We decided to

> > move in together in Oct. so we rented a house close

> > to both of our work

> > and my kids schools. My kids and i had been alone

> > for a very long time

> > and I was so very excited that God opened both of

> > our eyes, so we saw

> > that we loved each other totally. I have to remind

> > you I was very

> > independant and only would I even think of doing

> > this if it was totally

> > right. It was and still is.

> > So Oct, we moved in, by Nov. we all got strep throat

> > and so we were all

> > put on the same medication, Z-pack. We started

> > getting better. Well My

> > husband, , my daughter Alli, she just turned 17

> > and my son nie,

> > age 12. I on the other hand had wierd things

> > happening. Like 1. my

> > finger nail fell off, and I chalked it up to false

> > nails. Then both my

> > big toe nails fell off. All that seemed a little

> > funny and toe nails

> > grew back but the finger nail never has.

> > Ok so this was Nov. and and I were getting

> > married Dec 24th in our

> > home. We both decided to get physicals and total

> > check ups before

> > marriage and we even went to Christian Counseling to

> > talk about mixing

> > our families, he has 2 older children that live on

> > thier own and I have

> > one more who is married an her husband is in the

> > Navy.

> > Well we were in perfect health right before we moved

> > in our home , we

> > walked and ran, did alot of Charity Runs and I

> > was working my way

> > up to my first one.

> > We both worked for the school district in

> > transportation, he is a

> > mechanic and I was a driver. I loved my Children on

> > my Bus, I loved

> > working with kids that are challenging.

> > Well ofcouse this is Christmas Time also so we were

> > shopping together to

> > get everyone taken care of and and I were at a

> > store and I started

> > feeling this unbeliveable pain in my legs, I kept

> > thinking I needed to

> > sit down, and I told after a little while we

> > had to go my legs

> > were killing me. We went home I looked at them and

> > it looked as if I had

> > been beaten all over my lower legs. Me overcome by

> > all the joy in my

> > life and i had never been sick really thought and

> > more about it . Even

> > though we both were boggled.

> > Dec. 21st 2005 I had taken my sister to the doctor

> > and after we met

> > to eat. Them I was taken her home when I had

> > my first seizue , now

> > I know to be temporal Lobe seizures and I black out

> > but is a horrible

> > feeling I had never felt before, I thought that the

> > truck behind us hit

> > us,and i was dioriented and started crying due to

> > being overwelmed by

> > the presurre in my head. well we pulled over and

> > being sister was

> > extreemly ill with cancer, I got out of the truck

> > and pulled it

> > together, and was stunned because I could not

> > explain what happend. Then

> > I was so tired driving her home seemed like the

> > longest drive of my

> > life.

> > Ok so far I got strepthroat and my nails were

> > falling off my blood

> > vessels were breaking in my legs and I was having

> > really weird spells.

> > Still didnt go the the doctor.

> > We got Married Dec 24th 2005, all of our kids were

> > there and it was the

> > best Christmas of my life. We were all so happy

> > even my 12 year old son

> > cried, when he handed us the rings. You just can't

> > imagine how beautiful

> > and strong our love was.

> > New years eve, we had a Party, everyone was having a

> > blast, and then I

> > started feeling weird but didnt say anything, then

> > my legs started

> > hurting so bad I could not hold back the tears, I

> > took Ibiprofen, and

> > hoped it would work, looked at my legs and had a

> > little bit of the red

> > dots, within the hour my intire legs were covered in

> > welpes and knots

> > that were purple and broken blood vessels. Everyone

> > was shocked, the

> > party was winding down anyway and they all went

> > home, Joking I had a

> > disease. I just laid my bare legs on the cold floor

> > for some sort of

> > comfort and took benadril.

> > The next day the worst was overit just turened into

> > bruises and the

> > major part was over. and I decided to go see

> > my doctor asap. Well

> > school started back and I went back to work, and

> > would be going to the

> > doctor that afternoon, by midday run after I dropped

> > all the children

> > off I had another seizure on the bus. The crew from

> > the bus barn came

> > and got the Bus and Jame stook me to the Hospital,

> > because we called the

> > Doc and thats what she said to do,.They didnot have

> > a flippin clue, gave

> > mye steriods and migrian medication and sent me

> > home, and refered me to

> > a Nueroligist. Went to him got the EEG and thats

> > when I learned about

> > the seizures.

> > After that I saw so many specialist I can't even

> > begin to write but I

> > was getting sicker and sicker. I had what they call

> > a ( mini stroke on

> > my left side ) I got minigitis, and pnoemonia,

> > diaria so bad the

> > hospitalized me, and My blood presser allthe sudden

> > decided to start

> > dropping extreeemly low. Everytime we turned around

> > my fver spiked over

> > 103- 104.5 and blood pressure 60/30 , My

> > hematologist wants to do some

> > type blood tranfusion.

> > We went to doctors out of state looking for answers.

> > I am getting weaker

> > by the day, I am now on disability. I don't know if

> > i will be able to

> > move .

> > The stress has eaten away at our new marriege, oh

> > yea we did buy this

> > house also, and found mold in my daughters closet

> > coming fron the

> > airconditioner unit, and in the dinning room, and

> > had not called

> > the health department or the insurance company

> > either,

> > Jan, 2008 I was on a medication that made me a

> > zombie and I wasnt myself

> > at all, stayed in my room didnt come down, I didnt

> > care anymore, and I

> > felt like a burden to mu husband and my kids. The

> > med, was making say

> > and do thing I don't do, I ended up overdosing,

> > trying to get away, and

> > was in a semi coma for 3 days .

> > Like I said, Medication, I havebeen diagnosed with

> > Lupus SlE and

> > Sjeogrems, Rhynalds, seizures, lyme disease at one

> > point, you name it

> > auto immune I have been diangnoe.

> > I am now alone, my husband left me, 2 weeks ago,

> > because he said he

> > could not handle it. Disapeared, doesnt call,

> > nothing, took all the

> > money and left I am pretty sick right now and I am

> > praying alot. I walk

> > and my blood vessels break, and when they do I seem

> > to have small

> > seizures.

> > I am very sorry this is so long, I can't remmber

> > thing I should.

> > God Bless To everyone

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

[Guest guest]

Wow, seems to be the prevelent responce. I have no idea about your condition but

I will throw out a couple of questions that come to mind. First I will say I can

sympathize with you on the spouse leaving. My wife did the same and of all

things is now finishing up her nursing school. (and shes going to be someones

nurse) Anyway Because as a locksmith I did lots of driving myself I wonder if

the constant sitting and driving might have something to do with the problem

with the legs?? I was wondering if you were drinking any alcohol. I ask that

because if you might be haveing any sort of chemical sensativity issue I

remember reading that it is one of the first indicators to MCS. Someone who

could drink before and can no longer tolerate it. That happened to me as well.

Other than that I cannot think of anything to suggest. I am at a loss. I hope

you get to the right doctor soon and get something figured out. Keep us

informed, I wish you the best.

Chris...

tenajsemaj <janetretzolk@...> wrote:

Dear Friends,

I will try to get to the point and try to make the last 3 years easy to

follow, I am sure I will leave out some parts so please bare with me.

My Nightmare started Oct. 15th, 2005

On the other hand the life of my dreams had just began too.

See, I was about to marry my soulmate and best friend. We decided to

move in together in Oct. so we rented a house close to both of our work

and my kids schools. My kids and i had been alone for a very long time

and I was so very excited that God opened both of our eyes, so we saw

that we loved each other totally. I have to remind you I was very

independant and only would I even think of doing this if it was totally

right. It was and still is.

So Oct, we moved in, by Nov. we all got strep throat and so we were all

put on the same medication, Z-pack. We started getting better. Well My

husband, , my daughter Alli, she just turned 17 and my son nie,

age 12. I on the other hand had wierd things happening. Like 1. my

finger nail fell off, and I chalked it up to false nails. Then both my

big toe nails fell off. All that seemed a little funny and toe nails

grew back but the finger nail never has.

Ok so this was Nov. and and I were getting married Dec 24th in our

home. We both decided to get physicals and total check ups before

marriage and we even went to Christian Counseling to talk about mixing

our families, he has 2 older children that live on thier own and I have

one more who is married an her husband is in the Navy.

Well we were in perfect health right before we moved in our home , we

walked and ran, did alot of Charity Runs and I was working my way

up to my first one.

We both worked for the school district in transportation, he is a

mechanic and I was a driver. I loved my Children on my Bus, I loved

working with kids that are challenging.

Well ofcouse this is Christmas Time also so we were shopping together to

get everyone taken care of and and I were at a store and I started

feeling this unbeliveable pain in my legs, I kept thinking I needed to

sit down, and I told after a little while we had to go my legs

were killing me. We went home I looked at them and it looked as if I had

been beaten all over my lower legs. Me overcome by all the joy in my

life and i had never been sick really thought and more about it . Even

though we both were boggled.

Dec. 21st 2005 I had taken my sister to the doctor and after we met

to eat. Them I was taken her home when I had my first seizue , now

I know to be temporal Lobe seizures and I black out but is a horrible

feeling I had never felt before, I thought that the truck behind us hit

us,and i was dioriented and started crying due to being overwelmed by

the presurre in my head. well we pulled over and being sister was

extreemly ill with cancer, I got out of the truck and pulled it

together, and was stunned because I could not explain what happend. Then

I was so tired driving her home seemed like the longest drive of my

life.

Ok so far I got strepthroat and my nails were falling off my blood

vessels were breaking in my legs and I was having really weird spells.

Still didnt go the the doctor.

We got Married Dec 24th 2005, all of our kids were there and it was the

best Christmas of my life. We were all so happy even my 12 year old son

cried, when he handed us the rings. You just can't imagine how beautiful

and strong our love was.

New years eve, we had a Party, everyone was having a blast, and then I

started feeling weird but didnt say anything, then my legs started

hurting so bad I could not hold back the tears, I took Ibiprofen, and

hoped it would work, looked at my legs and had a little bit of the red

dots, within the hour my intire legs were covered in welpes and knots

that were purple and broken blood vessels. Everyone was shocked, the

party was winding down anyway and they all went home, Joking I had a

disease. I just laid my bare legs on the cold floor for some sort of

comfort and took benadril.

The next day the worst was overit just turened into bruises and the

major part was over. and I decided to go see my doctor asap. Well

school started back and I went back to work, and would be going to the

doctor that afternoon, by midday run after I dropped all the children

off I had another seizure on the bus. The crew from the bus barn came

and got the Bus and Jame stook me to the Hospital, because we called the

Doc and thats what she said to do,.They didnot have a flippin clue, gave

mye steriods and migrian medication and sent me home, and refered me to

a Nueroligist. Went to him got the EEG and thats when I learned about

the seizures.

After that I saw so many specialist I can't even begin to write but I

was getting sicker and sicker. I had what they call a ( mini stroke on

my left side ) I got minigitis, and pnoemonia, diaria so bad the

hospitalized me, and My blood presser allthe sudden decided to start

dropping extreeemly low. Everytime we turned around my fver spiked over

103- 104.5 and blood pressure 60/30 , My hematologist wants to do some

type blood tranfusion.

We went to doctors out of state looking for answers. I am getting weaker

by the day, I am now on disability. I don't know if i will be able to

move .

The stress has eaten away at our new marriege, oh yea we did buy this

house also, and found mold in my daughters closet coming fron the

airconditioner unit, and in the dinning room, and had not called

the health department or the insurance company either,

Jan, 2008 I was on a medication that made me a zombie and I wasnt myself

at all, stayed in my room didnt come down, I didnt care anymore, and I

felt like a burden to mu husband and my kids. The med, was making say

and do thing I don't do, I ended up overdosing, trying to get away, and

was in a semi coma for 3 days .

Like I said, Medication, I havebeen diagnosed with Lupus SlE and

Sjeogrems, Rhynalds, seizures, lyme disease at one point, you name it

auto immune I have been diangnoe.

I am now alone, my husband left me, 2 weeks ago, because he said he

could not handle it. Disapeared, doesnt call, nothing, took all the

money and left I am pretty sick right now and I am praying alot. I walk

and my blood vessels break, and when they do I seem to have small

seizures.

I am very sorry this is so long, I can't remmber thing I should.

God Bless To everyone

[Guest guest]

My heart goes out to all of you w/unsupportive spouses. Gosh, I

never realized how many of us are dealing w/not only this horrible

illness, but w/spouses that aren't there for us. My husband won't

leave either, but yet I'm living in this house that has stolen my

life from me & I'm so angry. I'm on disability, also. Was a working

RN until moving into this house. Have had several mold inspections,

to confirm my suspicions; watching our belongings deteriorate before

my eyes & seeing symptoms in not only my kids, but in my (in denial)

spouse, also. He's finally getting work done on the house (new

windows & doors to replace all the leaky ones, new appliances,etc.),

but I can't help but wonder if the new things will get ruined, too.

I'm pushing hard to move, once all this work is done, but then again,

I don't know if I'll ever get over the lack of support. I'm doing my

best to get well, mostly for my kids' sake, but once I do(God

willing), I don't know what will be left of my marriage. Enough

about me...I just wanted everyone else going through this(feeling

very alone), that you're not alone & we are all here for each other!

Just wish it was the person that claims to love us!

Hugs, Cheryl

[Guest guest]

Sorry for the losses of spouses, loves, etc. My husband and I really

had a difficult time during this illness. It is 10 years for us. Six

moves in 10 years. One summer I just left and went to Florida because

I was so disappointed even though my husband did try to gut a place

and make it safe and moved me many times. He also eventually had

seizures and had the chemical problem but not as bad as I do. I did

return after about three months and it did help us become closer. Of

course there are difficult times especially since he is out of work

right nfor about six months now. But we have figured out how to work

with each other and understand each others difficulties. I have

trouble with cooking odors, fragrances, etc. He has trouble with the

newspaper and house plants. So he does the cooking most of the time.

I read the paper outside or away from him. And I move the plants

around like never have them in the bedroom when we sleep. It was very

hard for us to understand in the beginning he would turn on the ac

when I first started having trouble and I would turn it off saying it

hurt my lungs. We both started having trouble with shampoos, etc. at

the same time. I try not to talk about this illness much but he

understands my need to read this site and others and do my writing,

etc. I hope in time some of you that have lost your spouses will get

back together again or will eventually meet someone that understands

this way of life which takes a love of understanding. Bless you all,

and I am always open to discussion. It has been a long ten years.