Guest guest Posted April 16, 2012 Report Share Posted April 16, 2012 other than a tummy ache, no? What is low protease? To: miralax Sent: Mon, April 16, 2012 1:07:37 PMSubject: Re: Toddler back pain She didn't have any discomfort with them? My son can't tolerate them at all. No matter the brand. Even a pinch makes him squirm and arch. Is that possible? Even low protease? > > > > > > > >>Oxypowder is made from PEG. the back pain could be kidney stones, push fresh > >>lemonade and lots of water, I would see if you could get an ultra-sound done to > >>rule out stones. People who take PEG have a higher chance to be prone to kidney > >>and galbladder stones (this is fact, not opinion) > >> > >> > >>You mention the aroma? could you elaborate? I've heard so many times that after > >>taking PEG the smell of the urine is similar to windex and just smells? > >> > >> > >>Also, It seems that with anything, moderation is the way to go, in my opinion, > >>the low oxalate diet, could just like anything, be too much, too quick. > >>(especially if one is giving PEG while doing the diet?) > >> > >> > >>Kirkman's Chewable probiotics works as a buffer for oxalate (love them!) > >>Magnesium (Kid Calm) works well, ex-lax, > >>Shaklee herblax all natural laxative has lots of ingredients you mentioned, > >>licorice root, alphalfa, etc. > >> > >> > >>Push water to flush the kidney's, Fresh lemonade to break down the oxalates. > >>(this was the ONLY thing that helped instantly from pain the feeling of having > >>to pee but can't) They wanted to do the refulux test with us, only to find out > >>they treat with antibioitcs, I said then why put the child through this horrific > >>test???????) If it's truly a problem, it will happen again.................... > >> > >> > >>jeanie > >> > >> > >> > >> > >> > >> > ________________________________ > > >>To: miralax > >>Sent: Sun, April 15, 2012 7:26:58 AM > >>Subject: Toddler back pain > >> > >> > >>My two year old is on miralax. Not steady though. Total maybe three months. I > >>want him off so badly. He is a very sensitive kid and so far oxypowder and > >>colosan and magnesium malate haven't been tolerated. He has reflux very > >>sensitive to any acid. I've had him on probiotics, flax , enzymes with very > >>little help. He has not been able to sleep since birth and it's killing me. He > >>has complained of his penis hurting and when he wakes at night he says "back > >>hurts" over and over. He also does a weird limp once in awhile and I know he has > >>bone pain becausE he GRabs his arm and legs and says ow. He pees sooooo much. > >>Saturates the bed. I don't know if it's reflux waking him or the burning pee so > >>we are scheduled for ph probe to see what's going on. He squirms all night and > >>can't get comfortable. It's Destroying me. Anyway any suggestions on what I > >>should try? He is so sensitive to the forms of magnesium. I ordered mini > >>minerals magnesium bc it is supposed to be gentle but I don think it will help > >>with constipation. Aloe juice we tried. Diet we tried. He is on a low oxalate > >>diet bc I believe his back pain and urinary issues are related to oxalates but I > >>can't honestly say its bc of miralax bc he had urinary issues as a baby too and > >>horrible sleeping. I know miralax isn't helping the issue and I want him off. I > >>notice when I stop miralax the nightwaking is horrible with his back being more > >>of a problem and I think this is "oxalate dumping" So another question for > >>you. A naturopathic nurse we are seeing mentioned a product called therazyme > >>chge powder. It contains: psyllium, fig, fennel, pumpkin, flax, guar gum, > >>rhubarb. It supposed to help constipation. Any thoughts? Interfere with low > >>oxalate diet? What do you think of ingredients for toddler? Any othe suggestions > >>besides magnesium? My 9 month old may have urinary reflux. She is not on > >>miralax. My son has some urinary issues as well. He has burning but urine comes > >>out clean so I believe this is oxalates. I suspect he had untreated Utis as a > >>baby bc i remember a foul smell and when I brought him in doctor would say if he > >>doesn't have a fever or vomiting it's not a uti. I was brushed off so many > >>times. With my daughter I was less scared of doctors and demanded catheter to > >>test. First uti eh had fever and vomiting. Second I went based on smell alone > >>and she had one with no other symptoms. I'm horrified for hi my son had > >>untreated issues. I just hate the mothers intuition is ignored. I need help > >>guys. Please!!!!By the way my son is gluten free and was casein free but no > >>improvement so I introduced a little goats milk and now we are on low oxalate. > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2012 Report Share Posted April 16, 2012 One thought comes to mind? Maybe too many probiotics? You can have too much.............To: miralax Sent: Mon, April 16, 2012 4:52:29 PMSubject: Re: Re: Toddler back pain I know, my daughter only had one bad uti, but had blood and protein in her urine and has 2 cousins with reflux. When her ultrasound showed her kidneys were in the 95th percentile for growth - same as her height, I decided to forego addtional testing, since all we would do is put her on probiotics and she already took them daily. Her first ped. urologist urged more testing and the radiologist who read the ultrasound agreed with me that chances were slim since her kidneys looked perfectly normal too. I wish you the best with your research - it seems like it's becoming such a common ailment among kids - I wonder what is causing it. Carol Carol,My daughter has been on klAire labs peobiotics since birth. She got a uti. Ten they did the ultrasound to rule out issues. Everything was clear. Looked great. Then a week later another uti so they want to do the vcug. I'll let you know the results but the doctor suspects reflux even though her ultrasound was clear. So it helps in diagnosis but the ultrasound is not failsafe >> For the lower stages reflux, the new protocol is to treat with probiotics > instead of antibiotics, although there are many children still on > antibiotics, I'm sure. For my daughter, we were able to do ultrasound only, no > catheter, as the initial test for reflux, so it wasn't invasive. > > I had kidney pain the other day at the same time I had toe pain, so I knew > there was an inflammation issue probably related to acidity. I took the > tart cherry I sometimes use for joint pain and it helped both quickly. > > Carol> > > > > > > > > Oxypowder is made from PEG. the back pain could be kidney stones, push > fresh lemonade and lots of water, I would see if you could get an ultra-sound > done to rule out stones. People who take PEG have a higher chance to be > prone to kidney and galbladder stones (this is fact, not opinion) > > > You mention the aroma? could you elaborate? I've heard so many times that > after taking PEG the smell of the urine is similar to windex and just > smells? > > > Also, It seems that with anything, moderation is the way to go, in my > opinion, the low oxalate diet, could just like anything, be too much, too > quick. (especially if one is giving PEG while doing the diet?) > > > Kirkman's Chewable probiotics works as a buffer for oxalate (love them!)> Magnesium (Kid Calm) works well, ex-lax, > Shaklee herblax all natural laxative has lots of ingredients you > mentioned, licorice root, alphalfa, etc. > > > Push water to flush the kidney's, Fresh lemonade to break down the > oxalates. (this was the ONLY thing that helped instantly from pain the feeling of > having to pee but can't) They wanted to do the refulux test with us, only > to find out they treat with antibioitcs, I said then why put the child > through this horrific test???????) If it's truly a problem, it will happen > again....................> > > jeanie > > > > > ____________________________________> > To: miralax > Sent: Sun, April 15, 2012 7:26:58 AM> Subject: Toddler back pain> > > My two year old is on miralax. Not steady though. Total maybe three months. > I want him off so badly. He is a very sensitive kid and so far oxypowder > and colosan and magnesium malate haven't been tolerated. He has reflux > very sensitive to any acid. I've had him on probiotics, flax , enzymes > with very little help. He has not been able to sleep since birth and it's > killing me. He has complained of his penis hurting and when he wakes at night > he says "back hurts" over and over. He also does a weird limp once in awhile > and I know he has bone pain becausE he GRabs his arm and legs and says ow. > He pees sooooo much. Saturates the bed. I don't know if it's reflux waking > him or the burning pee so we are scheduled for ph probe to see what's > going on. He squirms all night and can't get comfortable. It's Destroying me. > Anyway any suggestions on what I should try? He is so sensitive to the forms > of magnesium. I ordered mini minerals magnesium bc it is supposed to be > gentle but I don think it will help with constipation. Aloe juice we tried. > Diet we tried. He is on a low oxalate diet bc I believe his back pain and > urinary issues are related to oxalates but I can't honestly say its bc of > miralax bc he had urinary issues as a baby too and horrible sleeping. I know > miralax isn't helping the issue and I want him off. I notice when I stop > miralax the nightwaking is horrible with his back being more of a problem and > I think this is "oxalate dumping" So another question for you. A > naturopathic nurse we are seeing mentioned a product called therazyme chge > powder. It contains: psyllium, fig, fennel, pumpkin, flax, guar gum, rhubarb. It > supposed to help constipation. Any thoughts? Interfere with low oxalate > diet? What do you think of ingredients for toddler? Any othe suggestions > besides magnesium? My 9 month old may have urinary reflux. She is not on > miralax. My son has some urinary issues as well. He has burning but urine comes > out clean so I believe this is oxalates. I suspect he had untreated Utis as > a baby bc i remember a foul smell and when I brought him in doctor would > say if he doesn't have a fever or vomiting it's not a uti. I was brushed off > so many times. With my daughter I was less scared of doctors and demanded > catheter to test. First uti eh had fever and vomiting. Second I went based > on smell alone and she had one with no other symptoms. I'm horrified for hi > my son had untreated issues. I just hate the mothers intuition is ignored. > I need help guys. Please!!!!By the way my son is gluten free and was casein > free but no improvement so I introduced a little goats milk and now we are > on low oxalate.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2012 Report Share Posted April 18, 2012 You mean skip the test and have her on daily preventative antibiotics? The thing is she had two in one month. So it may be severe reflux. If she gets another one and I don't detect it (bc last time I went solely based on a weird smell) then she could get kidney damage. I don't know it's a tough one. What If he gets a third one should I get the test done then? And how would I know the extent of her kidney reflux or if it's a problem to begin with. It's all so tough > > > > For the lower stages reflux, the new protocol is to treat with probiotics > > instead of antibiotics, although there are many children still on > > antibiotics, I'm sure. For my daughter, we were able to do ultrasound only, > >no > > > > catheter, as the initial test for reflux, so it wasn't invasive. > > > > I had kidney pain the other day at the same time I had toe pain, so I knew > > there was an inflammation issue probably related to acidity. I took the > > tart cherry I sometimes use for joint pain and it helped both quickly. > > > > Carol > > > > > > > > In a message dated 4/15/2012 1:00:19 P.M. Eastern Daylight Time, > > dreamjeanie@ writes: > > > > > > > > > > Oxypowder is made from PEG. the back pain could be kidney stones, push > > fresh lemonade and lots of water, I would see if you could get an ultra-sound > > > done to rule out stones. People who take PEG have a higher chance to be > > prone to kidney and galbladder stones (this is fact, not opinion) > > > > > > You mention the aroma? could you elaborate? I've heard so many times that > > after taking PEG the smell of the urine is similar to windex and just > > smells? > > > > > > Also, It seems that with anything, moderation is the way to go, in my > > opinion, the low oxalate diet, could just like anything, be too much, too > > quick. (especially if one is giving PEG while doing the diet?) > > > > > > Kirkman's Chewable probiotics works as a buffer for oxalate (love them!) > > Magnesium (Kid Calm) works well, ex-lax, > > Shaklee herblax all natural laxative has lots of ingredients you > > mentioned, licorice root, alphalfa, etc. > > > > > > Push water to flush the kidney's, Fresh lemonade to break down the > > oxalates. (this was the ONLY thing that helped instantly from pain the feeling > >of > > > > having to pee but can't) They wanted to do the refulux test with us, only > > to find out they treat with antibioitcs, I said then why put the child > > through this horrific test???????) If it's truly a problem, it will happen > > again.................... > > > > > > jeanie > > > > > > > > > > ____________________________________ > > From: yahummer314 <jfranz1015@> > > To: miralax > > Sent: Sun, April 15, 2012 7:26:58 AM > > Subject: Toddler back pain > > > > > > My two year old is on miralax. Not steady though. Total maybe three months. > > I want him off so badly. He is a very sensitive kid and so far oxypowder > > and colosan and magnesium malate haven't been tolerated. He has reflux > > very sensitive to any acid. I've had him on probiotics, flax , enzymes > > with very little help. He has not been able to sleep since birth and it's > > killing me. He has complained of his penis hurting and when he wakes at night > > > he says " back hurts " over and over. He also does a weird limp once in awhile > > and I know he has bone pain becausE he GRabs his arm and legs and says ow. > > He pees sooooo much. Saturates the bed. I don't know if it's reflux waking > > him or the burning pee so we are scheduled for ph probe to see what's > > going on. He squirms all night and can't get comfortable. It's Destroying me. > > > Anyway any suggestions on what I should try? He is so sensitive to the forms > > of magnesium. I ordered mini minerals magnesium bc it is supposed to be > > gentle but I don think it will help with constipation. Aloe juice we tried. > > Diet we tried. He is on a low oxalate diet bc I believe his back pain and > > urinary issues are related to oxalates but I can't honestly say its bc of > > miralax bc he had urinary issues as a baby too and horrible sleeping. I know > > miralax isn't helping the issue and I want him off. I notice when I stop > > miralax the nightwaking is horrible with his back being more of a problem and > > > I think this is " oxalate dumping " So another question for you. A > > naturopathic nurse we are seeing mentioned a product called therazyme > >chge > > > > powder. It contains: psyllium, fig, fennel, pumpkin, flax, guar gum, rhubarb. > >It > > > > supposed to help constipation. Any thoughts? Interfere with low oxalate > > diet? What do you think of ingredients for toddler? Any othe suggestions > > besides magnesium? My 9 month old may have urinary reflux. She is not on > > miralax. My son has some urinary issues as well. He has burning but urine > >comes > > > > out clean so I believe this is oxalates. I suspect he had untreated Utis as > > a baby bc i remember a foul smell and when I brought him in doctor would > > say if he doesn't have a fever or vomiting it's not a uti. I was brushed off > > so many times. With my daughter I was less scared of doctors and demanded > > catheter to test. First uti eh had fever and vomiting. Second I went based > > on smell alone and she had one with no other symptoms. I'm horrified for hi > > my son had untreated issues. I just hate the mothers intuition is ignored. > > I need help guys. Please!!!!By the way my son is gluten free and was casein > > free but no improvement so I introduced a little goats milk and now we are > > on low oxalate. > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.