Re: Advice?

[Guest guest]

---Beth what nightly meds does she get?Im not sure about the ensure

thing, it may energize her. Ron

In LBDcaregivers , " Beth " wrote:

>

> The last 2 nights my aunt has got up to use the bathroom around 2 &

4,

> and when I put her back to bed she starts to talk talk talk, cry,

> laugh, just talking about nothing really. She has did this all

night

> long till morning, and hasn't went back to sleep. I just had her

> checked for a UTI it came back clean no infection. I give her

ensure

> in the evening, around 8 sometimes, could the ensure be wiring her

up.

> Or could it be something else? After she got up yesterday I bathed

> her, she ate some, she fell asleep, and didn't say much the rest of

> the day she laid around, and got up to eat some. Now again this

> morning she has quieted down after her bath, and is sleeping in her

> chair. She does have rls really bad and especially if we have a

> weather change like rain. We have had snow the last 2 so I don't

know

> if that could be making her hurt worse or not. She has a cough once

> and awhile, but nothing all day long or continuous and at night

once &

> awhile maybe once or twice. One time night before last she was hot

> then cold, but never said anything else about that. I know the flu

is

> going around, and the only one that could give it to her is my uncle

> since he is the only one that does go out. But he isn't sick and

> neither am I with it. I just wanted to know if anyone else's love

one

> may do this when they wake up to pee, and then start carrying on

> crying talking and won't go back to sleep? Right now as I said she

> fell asleep after I bathed her. She wouldn't eat drank almost a can

> of ensure. Any help would be appreciated!

>

> Thanks,

> Beth

>

[Guest guest]

The only thing she takes is sinemet one around 10pm. Nothing new been

on that for ages. We only give her 1 a day, because she can't take

anymore then that, and it has always seem to help her sleep better

since she was taken off all of it. It seems like once I get her up

to pee, it just aggravates her and upsets her. I wear depends on her,

but she wakes up asking to go. But once I take her, she gets angry,

and upset once I get her there, crying yelling and not wanting me to

change her if she did go in her depends. She asks to go, and then by

doing so it just makes her agitated. I don't know. She is sleeping

right now in her recliner. I listen to her chest don't hear anything

out of the norm, but I am not a dr, but I do count her breaths, and

it's only 18 or so every minute. I know more then that can mean they

are having trouble breathing. I ask her where she hurts, but she says

no then yes I hurt there so I can't go by that. I said does your

chest hurt yes, and then I ask her again no not right now. She isn't

wheezing or anything, just a cough maybe 3 times a day and maybe 2

times at night nothing constant, and it's dry. I am trying to

eliminiate things it could be. She was checked for UTI last week, and

I keep those UTI sticks on hand to check it myself, and they have been

ok also. She gets UTI alot, so I like to keep up on that.

> >

> > The last 2 nights my aunt has got up to use the bathroom around 2 &

> 4,

> > and when I put her back to bed she starts to talk talk talk, cry,

> > laugh, just talking about nothing really. She has did this all

> night

> > long till morning, and hasn't went back to sleep. I just had her

> > checked for a UTI it came back clean no infection. I give her

> ensure

> > in the evening, around 8 sometimes, could the ensure be wiring her

> up.

> > Or could it be something else? After she got up yesterday I bathed

> > her, she ate some, she fell asleep, and didn't say much the rest of

> > the day she laid around, and got up to eat some. Now again this

> > morning she has quieted down after her bath, and is sleeping in her

> > chair. She does have rls really bad and especially if we have a

> > weather change like rain. We have had snow the last 2 so I don't

> know

> > if that could be making her hurt worse or not. She has a cough once

> > and awhile, but nothing all day long or continuous and at night

> once &

> > awhile maybe once or twice. One time night before last she was hot

> > then cold, but never said anything else about that. I know the flu

> is

> > going around, and the only one that could give it to her is my uncle

> > since he is the only one that does go out. But he isn't sick and

> > neither am I with it. I just wanted to know if anyone else's love

> one

> > may do this when they wake up to pee, and then start carrying on

> > crying talking and won't go back to sleep? Right now as I said she

> > fell asleep after I bathed her. She wouldn't eat drank almost a can

> > of ensure. Any help would be appreciated!

> >

> > Thanks,

> > Beth

> >

>

[Guest guest]

Beth: My husband is on seroquel now. 1/2 pill at 3 pm and 1 whole at

bedtime but only 25 mg tablet. It has helped his Hallucinations considerably

but we still have trouble at night with bathroom calls. He also wears

depends but wakes up and has to go--he will lay there a bang his hand on the

bed and be very restless but if I try to get him up to use the urinal or

toilet he absolutely will not and it ends up in a battle. So if he is wet

when he wakes up, I tear the wet depends off and take off his wet pads. I

cover him with a velcro pad, cover him up and hope he goes back to sleep. I

take my blanket and go out on the couch so I don't have to listen to his

banging which goes on until he finally urinates. Sometimes he will get up

but he will not sit on the toilet or let me pull his underwear down to go.

Every few days things change and the approach I use has to change too. Good

luck. One gal told me she puts three layers of sheets and pads on the bed

and just peels them off as necessary during the night. That takes less time

so you are not up remaking beds all night. I thought that was a good idea.

Men of course, are a challenge as they are more like a fountain. Ain't we

got fun? Good luck!!! Leona

God whispers in your soul and speaks to your mind. Sometimes when you

don't have time to listen, He has to throw a brick at you. It's your

choice: Listen to the whisper, or wait for the brick.

[Guest guest]

hi beth,

i am sitting here thinking of writing a few mintues ago to go low and go slow

like a turtle. first i bet your moms behind is very sore, you know how

diarrehea can burn and they are so senstiive to alot of things. also, there is

a product called fruiteze that helps keep constipation form hoappening,

i persnally have always had constipation issues and i take high dosages of

narcotics for pain nad i know i hate playing the constipation/diarrehea circle.

so what i think would do, if your mom allows you is to see if she has 'diaper

rash' from the diarrehea, you may have to spread her butt cheeks to see around

the 'hole' she may need some diaper rash ointment, also maybe the change to the

plus ensure was too fast, maybe you should mix the two and gradually work up to

the plus instead.

aspiration pneumonia,well thats is when they misswallow. what occupational

therapy did when we noticed dad was having swallowing issues like he wasnt

swallowing all his food, and then would take a deep breath in and start

vomitting because he inhaled food into his lungs. or he would gag for a while,

but what the occupational therapist had dad do, was every third bite, they would

make daddy clear his throat loudly nd swallow also after he drank something

also as the swallowing trouble starts you will notice it esp when drinking

becuase they will choke easily, then you wll have to add some thickener to the

liquids, but it will be obvious when you need to worry about it. just take

things as they come and enjoy the good days/hours/minutes as they happen, and

try hard to let the bad times roll off your shoulders,

we are here for you and everyone else, my daddy died in 2005 after severe

deciline from post hip surgery. i have been part of this group since may 2004

whendaddy was diagnosed and for personal health reasons i took a hiatus since

this past oct and just came back, this group will become family to you as well,

beucase we understand, and maybe cant solve since lbd is such a new disease, but

we can understand and listen and cry and laugh with you hugs. sharon

Beth wrote:

Hi Sharon my aunt has constant RLS pain, it's worse when the weather

changes into rain. We have had snow the last couple days, but she has

been wide awake after I take her to the bathroom, crying, laughing,

talking all through the night. I used an enema on her Sunday, and

gave her a laxative, and then she had the runs for a day or so. I

know it wore her out. She was checked for a UTI last week, and it was

ok. We have taken her to the ER in the past to check for pneumonia,

and they couldn't get a clear xray cause she is so humped over. I

have a stethescope that I listen, but I haven't heard anything odd,

more then usual rumblings. It says to tap around the stethescope, and

if you here a hollow sound lungs are clear, so far it has been that

way. My uncle has checked it also hasn't heard anything. She isn't

wheezing, she has a slight cough now and again, but not constant. I

have been asking her if she is hurting, and she says no, but I think I

got her worked up now she says she needs to go to the hospital. I

said why she said my stomach, I pressed on it slightly, but she didn't

yell or try to hit me. She just said leave me alone, I want to lay

down. I think maybe it could be from all the exertion from her

getting up and down going to the bathroom so much Sunday & Monday it

takes a toll on her she was worn out. She ate her breakfast late more

like brunch, and she just had some chicken & dumplings not all but

some. She has drank really well today, so I would think if she was

really sick at her stomach she would not eat, when most of the time

she doesn't when she isn't hungry. She isn't crying, she is laying

down, but she has been chatty alot. Through the night the last 2 she

has been non-stop. I know she has to pee, but when she gets up she

gets agitated, and angry cause she has to go, she gets combative. She

lays back down, but then just cries, and talks non-stop all night. I

ask her if things hurt, and when she says her legs I know that to be

true and right on cause she always has leg pain. I think with me

asking her so much are you hurting here or there, it makes her start

saying yes I hurt all over. Since I changed from regular ensure to

ensure plus I wonder if that is giving her added energy so she can't

relax. Anyone had that happen? How can I tell if she has aspiration

pneumonia? I check her breathing it's about 18 or 19 breaths every

minute. She isn't gasping or wheezing. She isn't flushed or really

warm. Sometimes at night she will say I can't breath, but her head

gets down in here pillow, and I raise it and she is fine. Thank you

for your reply, I just hate not knowing what to do to help her. I am

hoping it's just from all the bathroom trips from 2 days ago that has

her worked up or the plus ensure.

> > > >

> > > > The last 2 nights my aunt has got up to use the bathroom

around 2 &

> > > 4,

> > > > and when I put her back to bed she starts to talk talk talk, cry,

> > > > laugh, just talking about nothing really. She has did this all

> > > night

> > > > long till morning, and hasn't went back to sleep. I just had her

> > > > checked for a UTI it came back clean no infection. I give her

> > > ensure

> > > > in the evening, around 8 sometimes, could the ensure be wiring

her

> > > up.

> > > > Or could it be something else? After she got up yesterday I bathed

> > > > her, she ate some, she fell asleep, and didn't say much the

rest of

> > > > the day she laid around, and got up to eat some. Now again this

> > > > morning she has quieted down after her bath, and is sleeping

in her

> > > > chair. She does have rls really bad and especially if we have a

> > > > weather change like rain. We have had snow the last 2 so I don't

> > > know

> > > > if that could be making her hurt worse or not. She has a cough

once

> > > > and awhile, but nothing all day long or continuous and at night

> > > once &

> > > > awhile maybe once or twice. One time night before last she was hot

> > > > then cold, but never said anything else about that. I know the

flu

> > > is

> > > > going around, and the only one that could give it to her is my

uncle

> > > > since he is the only one that does go out. But he isn't sick and

> > > > neither am I with it. I just wanted to know if anyone else's love

> > > one

> > > > may do this when they wake up to pee, and then start carrying on

> > > > crying talking and won't go back to sleep? Right now as I said she

> > > > fell asleep after I bathed her. She wouldn't eat drank almost

a can

> > > > of ensure. Any help would be appreciated!

> > > >

> > > > Thanks,

> > > > Beth

> > > >

> > >

> >

> >

> >

> >

> >

> >