Guest guest Posted September 23, 2001 Report Share Posted September 23, 2001 Buffy, Welcome, welcome!!! Congratulations on the weight loss, and the recommitment! Now.... send those recipes. They both sound marvelous. Actually, I've started a folder at yahoogroups for recipes.... can you add them to it please!! Thanks! Hugs, Connie New here Hello everyone: I am new to the group but not to WW. I have been on since March and lost up to 27lbs. And then just stopped doing anything. So I have gained some back. But I decided today it is time to get my butt in gear where it was before. So I spend the day cooking. I made some great blueberry corn muffins- 3points a muffin. And a black bean pasta salad-4 points a cup. I am a single mom of one boy who is 10. And keeps me on my toes. He is very busy in Cub Scouts, church and sports. I live in WI and am not looking forward to winter. But I know it is coming so I must make the best of it. I am just looking forward to how thin I will be come summer. I like to cook and read and rollerblade. And once it is to cold for me outside I will be joining the gym. There is a location near my home and one in the building I work in. So I can always get there. Looking forward to meeting you all. Buffy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2001 Report Share Posted September 24, 2001 --Hi Buffy Welcome to the group ,you are going to love it here, am also practically new and i feel like im in a nice cyber family here,everyone here is very caring and supporting, im looking forward to getting to know you, Sara. - In Serious-Weight-Watchers@y..., BREWCITYGIRL@W... wrote: > Hello everyone: > I am new to the group but not to WW. I have been on since March and lost > up to 27lbs. And then just stopped doing anything. So I have gained some > back. But I decided today it is time to get my butt in gear where it was > before. So I spend the day cooking. I made some great blueberry corn > muffins- 3points a muffin. And a black bean pasta salad-4 points a cup. > > I am a single mom of one boy who is 10. And keeps me on my toes. He is > very busy in Cub Scouts, church and sports. > > I live in WI and am not looking forward to winter. But I know it is > coming so I must make the best of it. I am just looking forward to how > thin I will be come summer. > > I like to cook and read and rollerblade. And once it is to cold for me > outside I will be joining the gym. There is a location near my home and > one in the building I work in. So I can always get there. > > Looking forward to meeting you all. > > Buffy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2001 Report Share Posted September 24, 2001 Welcome to the group, Buffy! Congratulations on your loss. I'm glad you've decided to recommit, and glad you're here! I'm dreading winter as well. I'm in Minnesota. We had 9 feet of snow in our back yard....it was above our eves last year. UGH. I don't do the gyms yet...too self conscious, but love my tapes. I have yet to try rollerblading...it looks like fun, but I'll have to get some more weight off first so I don't hurt my knees! Lyn New here Hello everyone: I am new to the group but not to WW. I have been on since March and lost up to 27lbs. And then just stopped doing anything. So I have gained some back. But I decided today it is time to get my butt in gear where it was before. So I spend the day cooking. I made some great blueberry corn muffins- 3points a muffin. And a black bean pasta salad-4 points a cup. I am a single mom of one boy who is 10. And keeps me on my toes. He is very busy in Cub Scouts, church and sports. I live in WI and am not looking forward to winter. But I know it is coming so I must make the best of it. I am just looking forward to how thin I will be come summer. I like to cook and read and rollerblade. And once it is to cold for me outside I will be joining the gym. There is a location near my home and one in the building I work in. So I can always get there. Looking forward to meeting you all. Buffy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 , welcome again. If you have any specific questions, just ask. Helpful tips: hmmm....trying to think back to when I started: measure everything, get a kitchen scale if you can find one and weigh everything. Have snacks prepared in advance so you don't go crazy looking for food! Mark points on your food when you get home from the store. My favorite 2-point snack are chocolate chip granola bars. Small, but yummy. Lyn new here Hi, I am 29, mom of 2, married, from Ontario, Canada - wanting to lose 30 pounds (may not seem like much but it's a mountain to me!). I am one week into Weight Watchers point program and one minute into this group. I have read a few posts and am so glad to have found you guys. Any tips or helpful hints for a beginner? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Welcome, Tammy! I think that 123 program is excellent. Lots of people have lost tons...and it's really not all that different than WP. Good luck! Lyn new here Hi I am Tammy. I am a sahm to 7 children ages from 14 down to almost 3 week old. I have about 38 to 43 lbs. that I would like to lose. I have been riding an exercise bike and using a health rider. I also plan on roller skating soon. I am *very* serious about losing this weight. I am using the WW 123 program that is a couple years old, but it will work for me. I will be adjusting it some since I am nursing. Looking forward to meeting you all:) Have a great day!! ~*~Tammy~*~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 WoW Tammy! *7* children! *whew*. 2 boys are plenty for me, although if I was ever fortunate to be a sahm I wouldn't have minded more. Too old now though! I do have 7 pet rats that I consider my " babies " though, does that count? Welcome, and be sure to check out the WW site and http://www.healthdiscovery.net for lots of information. ~Kim in Utah Two children, 12 and 9, two parakeets, and 7 rats. Oh yeah, and one hubby (could count as a child eh?) Hi I am Tammy. I am a sahm to 7 children ages from 14 down to almost 3 week old. I have about 38 to 43 lbs. that I would like to lose. I have been riding an exercise bike and using a health rider. I also plan on roller skating soon. I am *very* serious about losing this weight. I am using the WW 123 program that is a couple years old, but it will work for me. I will be adjusting it some since I am nursing. Looking forward to meeting you all:) Have a great day!! ~*~Tammy~*~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2002 Report Share Posted January 20, 2002 Hi Kerry, And welcome...I too have gone to WW before, got to goal, never did maintenance and am back for the second round!! I'm doing it online also. I am loving it....lots of useful info and support here. Nice to *meet* you!! ~Carla~ From: imkerrycrow To: Serious-Weight-Watchers Sent: Sunday, January 20, 2002 3:50 PM Subject: New here I'm new to the group here, and wanted to introduce myself. I am a SERIOUS weight watcher, although currently only an online member as I have trouble getting to the meetings due to my work schedule. I also seem to find more motivation from the WW internet site than I ever did at meetings. I probably just never found the right leader. I have done WW a few times, but never followed through with getting to goal and maintenance. I have kept most of the weight off, but found this year that due to increased work stress and injury (back) the pounds were creeping back. I know WW works and this time I am determined to follow it through to the end, and do maintenance also. Since mid November I have lost 12 pounds and I have about 5 pounds to go to my WW goal, and 10 to my personal goal. (17 years ago I had gotten up to 200#, so I can empathize with those who have more to lose than I do.) This is the point where I have always gotten lazy and abandoned the program. I'm also struggling with a lower point range (18 - 23). So now is the time I need to seek all the support and motivation I can frow other WW members. Looking forward to meeting you all. Kerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 Welcome to the list . Fran > > i am erin and i am new to the list. i Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2005 Report Share Posted April 5, 2005 Welcome ! Joan -----Original Message-----From: jcribbs72616 Sent: Monday, March 28, 2005 11:45 PMTo: tae-bo_on Subject: New HereHello,I am new here and getting ready to start TaeBo.I bought 's earliest tapes. The set of 4 that include the introduction, the basic, the 8-minute and the advanced. If I can get through these, I will one day order the basic training. Hopefully.I was sent some question that I will answer so people will know a little about me.What is your name? JENNIFERHow old are you? I AM 47 AND HOPEP THIS IS NOT TOO OLD TO DO THESE TAPES. Where are you from? I AM FROM ARKANSAS AT PRESENT, ORIGINALLY FROM TEXAS AND GETTING READY TO MOVE TO ARKANSAS. MY HUSBAND JOBS TRANFERS FREQUENTLY. BUT IN MY HEART, I AM STILL A TEXAN.Tell us a bit about your family (spouse, kids, pets, etc.): I AM MARRIED WITH THREE GROWN CHILDREN. I CURRENTLY LIVE ALONE WITH 4 DOGS AND 4 CATS. HUSBAND IS STATIONED AT LANGLEY AIR FORCE BASE IN VIRGINIA. I PLAN ON MOVING UP THERE THIS SUMMER. I AM CURRENTLY GETTING OUR HOUSE READY TO SELL SO I CAN MAKE THE TRANSITION.How long have you been doing Tae-Bo? MY TAPES WERE MAILED MONDAY THE 8TH OF MARCH. I HAVENT' RECEIVED THEM YET.What tapes do you have? I PURCHASED THE ORIGINAL TAPES WITH INCLUDE THE INTRODUCTION, THE BASIC WORKOUT, THE 8-MINTUE WORKOUT AND THE ADVANCED WORKOUT. MY HUSBAND IS GOING TO BUY ME THE BILLY BANDS TO USE WITH THESE TAPES.What are your fitness/weightloss goals? I NEED TO LOSE 50-60 LBS SO I CAN WEAR A BATHING SUIT.What results have you had so far (both physical and metal)? I HAVE BEEN WORKING OUT A LITTLE GETTING READY FOR MY TAPES. I USED TO BE IN EXCELLENT PHYSICAL CONDITION BUT THE LAST THREE YEARS I REALLY LET MYSELF GO AND GAINED WEIGHT. I AM READY TO DO SOMETHING ABOUT IT SINCE I AM FIXING TO MOVE NEAR THE OCEAN. I HAVE CLOTHES IN ALL SIZES AND REFUSE TO BUY LARGER CLOTHES ANY MRE.What do you like most about Tae-Bo? I WILL HAVE TO ANSWER THIS AFTER I GET STARTED WHEN MY TAPES ARRIVE. What do you like least about Tae-Bo? I WILL HAVE TO ANSWER THIS AFTER I GET STARTED WHEN MY TAPES ARRIVE. What other exercises/activities do you do? I DO FLOOR EXERCISES AT HOME AND ALSO RIDE A GAZELLE.What are your hobbies/interests? I READ AND WALK MY DOGS AND ALSO WORK NIGHTS AS A POLICE DISPATCHER..What would you like people to know about you? WELL, THERE IS NOT MUCH TO TELL AT THIS POINT. I AM JUST A MIDDLE AGED WOMAN NEEDING TO LOSE WEIGHT AND WOULD LIKE A SUPPORT GROUP.THANK YOU VERY MUCH, jENNIFER C.As Deb has said: "Fitness is a journey and it begins with the first step.""This isn't about weight loss, it's about enlightenment" - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2005 Report Share Posted May 12, 2005 Welcome, I really like the Power series, it lets you really concentrate on technique and building stength and will be a good foundation for more advanced tapes when you are ready to add them to your collections. Delana. -----Original Message-----From: tae-bo_on [mailto:tae-bo_on ]On Behalf Of shawndaddy32Sent: Wednesday, May 11, 2005 8:58 PMTo: tae-bo_on Subject: new hereI have been doing Taebo for about five weeks now at least 3 times a week. I'm doing the Energy, Strength, and Power series I bought last year. I did it for a while and quit for no good reason but I'm back on the horse. This looks like an excellent group any encouragement would be greatly appreciated.As Deb has said: "Fitness is a journey and it begins with the first step.""This isn't about weight loss, it's about enlightenment" - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 Are you outside the US? If not, new MD asap or go right to the pediatric neurosurgeon yourself...,.. what kind of MD leaves a kid in pain without checking all possibilties. My heart goes out to you and Maddy. from a mom to a mom, Randee In a message dated 2/1/2010 9:37:50 P.M. Central Standard Time, cedgecomb_1977@... writes: My daughter Maddy has Chiari Malformation and Hydrocephalus.My daughter Maddy has Chiari Malformation and Hydroc leg pain in both legs at the back between her hips and knees,she refuses to walk alot of the time. neck pain lower back pain,right around tailbone she walks on her toes half the time most recently arm pain in both arms between her shoulder and elbow she will pee then go again a few minutes later or will say she has to go but doesnt,she has been doing this for a couple months she said her legs dont hurt when she is curled up she has always had a problem with constipation her headaches are frontal at the forehead. She has been having these symptoms since about may but they didnt appear at once,they came one at a time. I feel in my heart she has this. She was discharged from the hospital toda,they didnt even address my concerns other then saying to have her see a urologist for urodynamic testing (which appt is in 3 months) and if she has a spastic bladder he will look into a tc. She is always in pain and her doc wont give her anything but tylenol and motrin. [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 I agree with Randee... If your child's pain is  not being controlled then the doctor is not really doing their job!! There are many doctors out there, there are people on this list from everywhere maybe they can help point you in a direction to get help!! Tommi www.caringbridge.org/visit/amandapeters Subject: Re: new here To: tetheredspinalcord Date: Tuesday, February 2, 2010, 6:01 AM  Are you outside the US? If not, new MD asap or go right to the pediatric neurosurgeon yourself..., .. what kind of MD leaves a kid in pain without checking all possibilties. My heart goes out to you and Maddy. from a mom to a mom, Randee In a message dated 2/1/2010 9:37:50 P.M. Central Standard Time, cedgecomb_1977@ yahoo.com writes: My daughter Maddy has Chiari Malformation and Hydrocephalus. My daughter Maddy has Chiari Malformation and Hydroc leg pain in both legs at the back between her hips and knees,she refuses to walk alot of the time. neck pain lower back pain,right around tailbone she walks on her toes half the time most recently arm pain in both arms between her shoulder and elbow she will pee then go again a few minutes later or will say she has to go but doesnt,she has been doing this for a couple months she said her legs dont hurt when she is curled up she has always had a problem with constipation her headaches are frontal at the forehead. She has been having these symptoms since about may but they didnt appear at once,they came one at a time. I feel in my heart she has this. She was discharged from the hospital toda,they didnt even address my concerns other then saying to have her see a urologist for urodynamic testing (which appt is in 3 months) and if she has a spastic bladder he will look into a tc. She is always in pain and her doc wont give her anything but tylenol and motrin. [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 The fact that Maddy has chiari and all the symptoms you are describing should warrant a spine MRI to rule out tethered cord asap - I don't see any reason you have to wait for the urodynamic testing to push for this -- I have had tc all my life with no bladder issues but lots of others (mainly pain, muscle atrophy, nerve damage). If a tethered cord is not clear on an MRI then urodynamic testing and other symptoms, etc become more important in order to diagnose tethered cord (eg occult tethered cord). The urodynamic testing is important, but meanwhile I wouldn't wait to push for an appt with a NS and get an MRI as well. Please know that a lot of MDs are not familiar with these conditions - where are you located? Good luck! Dee To: tetheredspinalcord From: Randeejae@... Date: Tue, 2 Feb 2010 07:01:43 -0500 Subject: Re: new here Are you outside the US? If not, new MD asap or go right to the pediatric neurosurgeon yourself...,.. what kind of MD leaves a kid in pain without checking all possibilties. My heart goes out to you and Maddy. from a mom to a mom, Randee In a message dated 2/1/2010 9:37:50 P.M. Central Standard Time, cedgecomb_1977@... writes: My daughter Maddy has Chiari Malformation and Hydrocephalus.My daughter Maddy has Chiari Malformation and Hydroc leg pain in both legs at the back between her hips and knees,she refuses to walk alot of the time. neck pain lower back pain,right around tailbone she walks on her toes half the time most recently arm pain in both arms between her shoulder and elbow she will pee then go again a few minutes later or will say she has to go but doesnt,she has been doing this for a couple months she said her legs dont hurt when she is curled up she has always had a problem with constipation her headaches are frontal at the forehead. She has been having these symptoms since about may but they didnt appear at once,they came one at a time. I feel in my heart she has this. She was discharged from the hospital toda,they didnt even address my concerns other then saying to have her see a urologist for urodynamic testing (which appt is in 3 months) and if she has a spastic bladder he will look into a tc. She is always in pain and her doc wont give her anything but tylenol and motrin. [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 She had a mri of her spine about 4 months ago and it was normal according to docs. I asked the doc is her cord was just too tight as well and he said no.I will keep push for a sooner appt. I was hoping they would have done it when she was inpatient yesterday as it is usually faster. We are in Fresno,CA ________________________________ To: tetheredspinalcord Sent: Tue, February 2, 2010 9:23:03 AM Subject: RE: new here The fact that Maddy has chiari and all the symptoms you are describing should warrant a spine MRI to rule out tethered cord asap - I don't see any reason you have to wait for the urodynamic testing to push for this -- I have had tc all my life with no bladder issues but lots of others (mainly pain, muscle atrophy, nerve damage). If a tethered cord is not clear on an MRI then urodynamic testing and other symptoms, etc become more important in order to diagnose tethered cord (eg occult tethered cord). The urodynamic testing is important, but meanwhile I wouldn't wait to push for an appt with a NS and get an MRI as well. Please know that a lot of MDs are not familiar with these conditions - where are you located? Good luck! Dee To: tetheredspinalcord From: Randeejae@... Date: Tue, 2 Feb 2010 07:01:43 -0500 Subject: Re: new here Are you outside the US? If not, new MD asap or go right to the pediatric neurosurgeon yourself...,.. what kind of MD leaves a kid in pain without checking all possibilties. My heart goes out to you and Maddy. from a mom to a mom, Randee In a message dated 2/1/2010 9:37:50 P.M. Central Standard Time, cedgecomb_1977@... writes: My daughter Maddy has Chiari Malformation and Hydrocephalus.My daughter Maddy has Chiari Malformation and Hydroc leg pain in both legs at the back between her hips and knees,she refuses to walk alot of the time. neck pain lower back pain,right around tailbone she walks on her toes half the time most recently arm pain in both arms between her shoulder and elbow she will pee then go again a few minutes later or will say she has to go but doesnt,she has been doing this for a couple months she said her legs dont hurt when she is curled up she has always had a problem with constipation her headaches are frontal at the forehead. She has been having these symptoms since about may but they didnt appear at once,they came one at a time. I feel in my heart she has this. She was discharged from the hospital toda,they didnt even address my concerns other then saying to have her see a urologist for urodynamic testing (which appt is in 3 months) and if she has a spastic bladder he will look into a tc. She is always in pain and her doc wont give her anything but tylenol and motrin. [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 We have to go back to the nsg this afternoon since she had a terrible night. They say well she looks good. I hate those words! I will keep you all posted. Thank you for the warm welcome to the group. ________________________________ To: tetheredspinalcord Sent: Tue, February 2, 2010 9:15:07 AM Subject: Re: new here I agree with Randee... If your child's pain is not being controlled then the doctor is not really doing their job!! There are many doctors out there, there are people on this list from everywhere maybe they can help point you in a direction to get help!! Tommi www.caringbridge. org/visit/ amandapeters From: Randeejaeaol (DOT) com <Randeejaeaol (DOT) com> Subject: Re: new here To: tetheredspinalcord@ yahoogroups. com Date: Tuesday, February 2, 2010, 6:01 AM Are you outside the US? If not, new MD asap or go right to the pediatric neurosurgeon yourself..., .. what kind of MD leaves a kid in pain without checking all possibilties. My heart goes out to you and Maddy. from a mom to a mom, Randee In a message dated 2/1/2010 9:37:50 P.M. Central Standard Time, cedgecomb_1977@ yahoo.com writes: My daughter Maddy has Chiari Malformation and Hydrocephalus. My daughter Maddy has Chiari Malformation and Hydroc leg pain in both legs at the back between her hips and knees,she refuses to walk alot of the time. neck pain lower back pain,right around tailbone she walks on her toes half the time most recently arm pain in both arms between her shoulder and elbow she will pee then go again a few minutes later or will say she has to go but doesnt,she has been doing this for a couple months she said her legs dont hurt when she is curled up she has always had a problem with constipation her headaches are frontal at the forehead. She has been having these symptoms since about may but they didnt appear at once,they came one at a time. I feel in my heart she has this. She was discharged from the hospital toda,they didnt even address my concerns other then saying to have her see a urologist for urodynamic testing (which appt is in 3 months) and if she has a spastic bladder he will look into a tc. She is always in pain and her doc wont give her anything but tylenol and motrin. [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 Also, have another radiologist look at the MRI. Like I said my daughter's ns is awesome and I think he specializes in hydrocephalus issues. He performed my daughter's surgery and she is doing amazing. He even gives you his cell phone to use at anytime and NEVER makes you feel like you have a dumb question. ________________________________ To: tetheredspinalcord Sent: Tue, February 2, 2010 12:30:57 PM Subject: Re: new here  She had a mri of her spine about 4 months ago and it was normal according to docs. I asked the doc is her cord was just too tight as well and he said no.I will keep push for a sooner appt. I was hoping they would have done it when she was inpatient yesterday as it is usually faster. We are in Fresno,CA ____________ _________ _________ __ From: Dee Allaert <deeinbchotmail (DOT) com> To: tetheredspinalcord@ yahoogroups. com Sent: Tue, February 2, 2010 9:23:03 AM Subject: RE: new here The fact that Maddy has chiari and all the symptoms you are describing should warrant a spine MRI to rule out tethered cord asap - I don't see any reason you have to wait for the urodynamic testing to push for this -- I have had tc all my life with no bladder issues but lots of others (mainly pain, muscle atrophy, nerve damage). If a tethered cord is not clear on an MRI then urodynamic testing and other symptoms, etc become more important in order to diagnose tethered cord (eg occult tethered cord). The urodynamic testing is important, but meanwhile I wouldn't wait to push for an appt with a NS and get an MRI as well. Please know that a lot of MDs are not familiar with these conditions - where are you located? Good luck! Dee To: tetheredspinalcord@ yahoogroups. com From: Randeejaeaol (DOT) com Date: Tue, 2 Feb 2010 07:01:43 -0500 Subject: Re: new here Are you outside the US? If not, new MD asap or go right to the pediatric neurosurgeon yourself..., .. what kind of MD leaves a kid in pain without checking all possibilties. My heart goes out to you and Maddy. from a mom to a mom, Randee In a message dated 2/1/2010 9:37:50 P.M. Central Standard Time, cedgecomb_1977@ yahoo.com writes: My daughter Maddy has Chiari Malformation and Hydrocephalus. My daughter Maddy has Chiari Malformation and Hydroc leg pain in both legs at the back between her hips and knees,she refuses to walk alot of the time. neck pain lower back pain,right around tailbone she walks on her toes half the time most recently arm pain in both arms between her shoulder and elbow she will pee then go again a few minutes later or will say she has to go but doesnt,she has been doing this for a couple months she said her legs dont hurt when she is curled up she has always had a problem with constipation her headaches are frontal at the forehead. She has been having these symptoms since about may but they didnt appear at once,they came one at a time. I feel in my heart she has this. She was discharged from the hospital toda,they didnt even address my concerns other then saying to have her see a urologist for urodynamic testing (which appt is in 3 months) and if she has a spastic bladder he will look into a tc. She is always in pain and her doc wont give her anything but tylenol and motrin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 I will send them an email about this right now. ________________________________ To: tetheredspinalcord Sent: Wed, February 3, 2010 11:47:39 AM Subject: Re: new here Also, have another radiologist look at the MRI. Like I said my daughter's ns is awesome and I think he specializes in hydrocephalus issues. He performed my daughter's surgery and she is doing amazing. He even gives you his cell phone to use at anytime and NEVER makes you feel like you have a dumb question. ____________ _________ _________ __ From: Edgecomb <cedgecomb_1977@ yahoo.com> To: tetheredspinalcord@ yahoogroups. com Sent: Tue, February 2, 2010 12:30:57 PM Subject: Re: new here She had a mri of her spine about 4 months ago and it was normal according to docs. I asked the doc is her cord was just too tight as well and he said no.I will keep push for a sooner appt. I was hoping they would have done it when she was inpatient yesterday as it is usually faster. We are in Fresno,CA ____________ _________ _________ __ From: Dee Allaert <deeinbchotmail (DOT) com> To: tetheredspinalcord@ yahoogroups. com Sent: Tue, February 2, 2010 9:23:03 AM Subject: RE: new here The fact that Maddy has chiari and all the symptoms you are describing should warrant a spine MRI to rule out tethered cord asap - I don't see any reason you have to wait for the urodynamic testing to push for this -- I have had tc all my life with no bladder issues but lots of others (mainly pain, muscle atrophy, nerve damage). If a tethered cord is not clear on an MRI then urodynamic testing and other symptoms, etc become more important in order to diagnose tethered cord (eg occult tethered cord). The urodynamic testing is important, but meanwhile I wouldn't wait to push for an appt with a NS and get an MRI as well. Please know that a lot of MDs are not familiar with these conditions - where are you located? Good luck! Dee To: tetheredspinalcord@ yahoogroups. com From: Randeejaeaol (DOT) com Date: Tue, 2 Feb 2010 07:01:43 -0500 Subject: Re: new here Are you outside the US? If not, new MD asap or go right to the pediatric neurosurgeon yourself..., .. what kind of MD leaves a kid in pain without checking all possibilties. My heart goes out to you and Maddy. from a mom to a mom, Randee In a message dated 2/1/2010 9:37:50 P.M. Central Standard Time, cedgecomb_1977@ yahoo.com writes: My daughter Maddy has Chiari Malformation and Hydrocephalus. My daughter Maddy has Chiari Malformation and Hydroc leg pain in both legs at the back between her hips and knees,she refuses to walk alot of the time. neck pain lower back pain,right around tailbone she walks on her toes half the time most recently arm pain in both arms between her shoulder and elbow she will pee then go again a few minutes later or will say she has to go but doesnt,she has been doing this for a couple months she said her legs dont hurt when she is curled up she has always had a problem with constipation her headaches are frontal at the forehead. She has been having these symptoms since about may but they didnt appear at once,they came one at a time. I feel in my heart she has this. She was discharged from the hospital toda,they didnt even address my concerns other then saying to have her see a urologist for urodynamic testing (which appt is in 3 months) and if she has a spastic bladder he will look into a tc. She is always in pain and her doc wont give her anything but tylenol and motrin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2012 Report Share Posted March 1, 2012 Hello again, I was talking with my partner this morning and I told him that I suspected he is on the spectrum. He told me that he can't be because it is a developmental disease and he is past that stage. He said that people can only be diagnosed as children so therefore he doesn't have it. This makes no sense to me. Help? > > > > Hi there, > > I recently joined the group too. I suspect my partner has aspergers, I tried talking to him about it but he got mad. > > > > I think it's great your husband got the diagnosis. How did it come about? Was he open to talking about it? > > > > Thanks. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2012 Report Share Posted March 1, 2012 I wonder if what your heard is what he said. Did you mirror your version back to him?--  Hello again, I was talking with my partner this morning and I told him that I suspected he is on the spectrum. He told me that he can't be because it is a developmental disease and he is past that stage. He said that people can only be diagnosed as children so therefore he doesn't have it. This makes no sense to me. Help? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2012 Report Share Posted March 1, 2012 > Hello again, > I was talking with my partner this morning and I told him that I suspected he is on the spectrum. He told me that he can't be because it is a developmental disease and he is past that stage. He said that people can only be diagnosed as children so therefore he doesn't have it. This makes no sense to me. Help? First, AS isn't a disease, it's a brain condition. Jus as you wouldn't say a congenitally deaf person is diseased, being on the autism spectrum isn't a disease. Just because someone wasn't diagnosed in childhood, doesn't mean they don't have AS. Many of us were adults long before AS was labelled … can we assume that nobody born before 1970 was Aspie? Of course not. Saying that, I'd suggest you don't push AS on your partner. He's already rejected the label, and there can be many reasons for this, from false knowledge of what AS is to some early history that causes him to reject the label, to the fact that he really isn't Aspie. You made the suggestion, he wasn't ready to hear it seriously … move on. But this doesn't mean that *you* can't think of him as Aspie, study up on AS, and assume he has it. --Liz ---------- Cartesian Bear at Zazzle: Shirts and Gifts: http://www.zazzle.com/cartesianbear?rf=238831668488066559 Zazzle Coupons: http://www.zazzle.com/coupons?rf=238831668488066559 Knit Suite: Mobile Apps for Knitters http://knitsuite.polymathsolution.com Gifts for Knitters: http://www.squidoo.com/gifts-for-knitters Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2012 Report Share Posted March 1, 2012 I did and I told him that I did not understand what he was saying. He told me that I need to do more research since it is a developmental disease and he is no longer developing. So therefore he does not have it. He then got mad and said that he does not have autism. Obviously he has looked into it, which is a positive. But I often find that he researches something and draws conclusions that are very different from what I determine. Then when I try to talk to him, he gets out his computer and gets sucked into minute details which, in my opinion, have nothing to do what we're talking about. I can try talking about it again when he gets home from work but I may leave it for a few days. I will try the mirroring and active listening. > > > ** > > > > > > Hello again, > > I was talking with my partner this morning and I told him that I suspected > > he is on the spectrum. He told me that he can't be because it is a > > developmental disease and he is past that stage. He said that people can > > only be diagnosed as children so therefore he doesn't have it. This makes > > no sense to me. Help? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2012 Report Share Posted March 1, 2012 Thanks Liz. This is very helpful. I won't worry about the title but instead how to live with it. I am studying up and developing a few strategies. It's hard because he seems unaware of what needs to be done unless I ask him. So I am trying to get tasks into his routine but it is hard. For example, he walked the dog before going to work for a few days, but then I thought he would just do it on the next day without me asking but no luck. > > > Hello again, > > I was talking with my partner this morning and I told him that I suspected he is on the spectrum. He told me that he can't be because it is a developmental disease and he is past that stage. He said that people can only be diagnosed as children so therefore he doesn't have it. This makes no sense to me. Help? > > First, AS isn't a disease, it's a brain condition. Jus as you wouldn't say a congenitally deaf person is diseased, being on the autism spectrum isn't a disease. > > Just because someone wasn't diagnosed in childhood, doesn't mean they don't have AS. Many of us were adults long before AS was labelled � can we assume that nobody born before 1970 was Aspie? Of course not. > > Saying that, I'd suggest you don't push AS on your partner. He's already rejected the label, and there can be many reasons for this, from false knowledge of what AS is to some early history that causes him to reject the label, to the fact that he really isn't Aspie. You made the suggestion, he wasn't ready to hear it seriously � move on. > > But this doesn't mean that *you* can't think of him as Aspie, study up on AS, and assume he has it. > > --Liz > > ---------- > Cartesian Bear at Zazzle: Shirts and Gifts: http://www.zazzle.com/cartesianbear?rf=238831668488066559 > Zazzle Coupons: http://www.zazzle.com/coupons?rf=238831668488066559 > > Knit Suite: Mobile Apps for Knitters http://knitsuite.polymathsolution.com > > Gifts for Knitters: http://www.squidoo.com/gifts-for-knitters > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2012 Report Share Posted March 2, 2012 This is a very Aspie response in my opinion. The going to his computer and focusing on minute details. If he does have Asperger's then he WILL see/understand things very differently than you. Maybe have him go over some of the research he has done and ask him to explain why he has drawn the conclusions he has drawn. Most Aspies are very logical, even if the logic does not make sense to us. Once I can have my husband explain his thought processes to me, I can usually have a better understanding of the WHY behind his actions which usually helps. If he is like my husband...If you push him, he will withdraw. Usually I schedule a talk with my husband when it is something he really does not want to hear. It gives him time to prepare so he doesn't feel cornered. You can do your research and then present him with what you find. My husband was the same way because he felt that Asperger's was a diagnosis that would be treated like a form of mental retardation. I was able to bring him to lectures, read books and show him examples of why I thought he was an Aspie. We did have decide to agree to disagree for awhile when he first rejected the idea. I just believed that he had it and learned how I could change MY behavior to make things better. > > > > > ** > > > > > > > > > Hello again, > > > I was talking with my partner this morning and I told him that I suspected > > > he is on the spectrum. He told me that he can't be because it is a > > > developmental disease and he is past that stage. He said that people can > > > only be diagnosed as children so therefore he doesn't have it. This makes > > > no sense to me. Help? > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2012 Report Share Posted March 2, 2012 > This is a very Aspie response in my opinion. The going to his computer and focusing on minute details. If he does have Asperger's then he WILL see/understand things very differently than you. Maybe have him go over some of the research he has done and ask him to explain why he has drawn the conclusions he has drawn. Most Aspies are very logical, even if the logic does not make sense to us. I was thinking that too when I read her post. Depending on how threatened he feels about being associated with the AS label, he may also hyperfocus on the details that support his position, making a logical case *against* an AS diagnosis. But then, that's a common reaction of those in denial (about anything), whether they be Aspie or NS. > If he is like my husband...If you push him, he will withdraw. Usually I schedule a talk with my husband when it is something he really does not want to hear. It gives him time to prepare so he doesn't feel cornered. You can do your research and then present him with what you find. My husband was the same way because he felt that Asperger's was a diagnosis that would be treated like a form of mental retardation. I was able to bring him to lectures, read books and show him examples of why I thought he was an Aspie. We did have decide to agree to disagree for awhile when he first rejected the idea. I just believed that he had it and learned how I could change MY behavior to make things better. In my experience, this approach seems to work best. Until a person is ready to examine certain aspects of their behavior, they are only likely to become defensive (and perhaps even angry) if others continue to push the subject. Best, ~CJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2012 Report Share Posted March 2, 2012 There are many roads to the mountain, and we all seem to choose our own path and get there at our own time. His time table might not be yours Well said, . I know that this was a problem in my own marriage, as my husband and I were not on the same time table with respect to my ability to become "less Aspie like". Of course, back in those days neither one of us was aware of AS. From his NT perspective, he regarded me as self-centered, willful, disrespectful, and a spouse who did not really value the marriage. Any behavioral 'improvements' that I was able to make were simply too little, too late for him. Best, ~CJ Quote Link to comment Share on other sites More sharing options...
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