Guest guest Posted March 14, 2000 Report Share Posted March 14, 2000 Debbie, I think your diabetes was caught early. The tendency of many women to get a form of diabetes during pregnancy, and at time stay diabetic may have been a cause in your case. I lost weight by severely restricting fat, and was forced off glyburide by repeated low sugars, to diet only. Starches like bread, starches, rice, corn and potato must be restricted. I found the morning sugar, preferably under 100, told me how well I had done the day before. Reading an hour after eating told me how each food afffeected my sugars, and 2 hours after eating told me how well I was dealing with it. I had good sugars on glyburidee, but i ate a fatty diet and ruined it. Sam diet only. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Dennis, When we hear that little word 'cancer' so many thoughts rush through our heads. Number one is usually "Will I die?" The answer is most likely "no". But it is about odds and right from the start you must try and improve yours. You can start by changing your diet and taking supplements such as vitamin E and selenium. Stop eating red meat and drinking alcohol. With your stats you could probably go on watchful waiting, which isn't doing nothing, but keeping an eye on your PSA doubling time and being monitored by your physician. You have oodles of time to make a decision on which route you will take. In the field of prostate cancer, where several treatment options are possible, it is considered the norm to ask for a second opinion and all the medical records should be made freely available to you to pass on to a second expert. See an oncologist, not a surgeon or radiologist, they usually are biased towards their own particular field, which when you think about it they wouldn't be doing it if they didn't believe in it themselves. But remember doctors don't know what they don't know and they are not the font of all knowledge, they are only human. Good doctors do not see it as a vote of no confidence to seek a second opinion. Good doctors will actually expect you to be interested enough in your own personal welfare to be taking a second opinion, even if it reaches the same conclusion as the first one. It is usually best to get a second opinion from outside the system that gave you the first one. Doctors trained in the same hospital will usually give you the same answers. And finally, which ever treatment you decide on remember Don Cooley's golden rule: "The doctor you choose is far more important than the treatment you choose". Good luck. Regards Thought I'd check in and introduce myself. I just joined the group because I was just dianosed with prostate cancer last Wednesday. I had three biopsies prior to this one that showed nothing so I was more than surprised. Since then I've been reading everthing I could get my hands on. But I've found that reading letters from people who are actually experiencing what I am is much more helpful. I'm 58 years old and thought I was in pretty good shape. Oh, well. Anyway, just wanted to say hi to everybody. Dennis Hough Minot, North Dakota, USA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Hi Dennis, Jim here. I am having prostate surgery this coming Tuesday. I am having the new laparoscopic surgery, 5 little incisions, and I will be hospitalized for 3 days and home on day 4. Catheter comes out day 7. I have been practicing my kegel exercises, and I hope that by 30 days out from surgery, to have the incontinence under control. I have posted an e-mail to the group about this surgery. if you have to have it done, this beats the usual radical prostitectomy all to hell. If you want more info, let me know. There are several places in the US who do it. I have talked to several guys who I know personally, and they said virtually no pain. One guys said he took a Tylenol because he had a headache, the others said they took a couple of pain pills and that was it. I'm telling you, don't go the usual radical prostetectomy. If there isn't a surgeon who does LRP in your area, go to one that does. Let me know if you want more info. I'll post an e-mail to the group when I get home on July 3, and I will give you all a detailed account of how it went. Wish me luck. Jim Hello > Thought I'd check in and introduce myself. I just joined the group > because I was just dianosed with prostate cancer last Wednesday. I > had three biopsies prior to this one that showed nothing so I was > more than surprised. Since then I've been reading everthing I could > get my hands on. But I've found that reading letters from people who > are actually experiencing what I am is much more helpful. I'm 58 > years old and thought I was in pretty good shape. Oh, well. Anyway, > just wanted to say hi to everybody. > Dennis Hough > Minot, North Dakota, USA > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Dennis I attended a wedding in Bismarke, North Dakota in May. By the sounds of it it rained for the first time for ages that wekend - but it was sunny and dry for the wedding. The odds are that you have no rush, if 3 biopsies have missed your tumour the chances are it is not a very agressive one. Before you do anything ask questions such as What is your Gleason score (a measure of the agressive nature) (It may well be worth getting an expert pathologist to have a second look at the biopsy to be sure) How near to the edge is the tumour. The speed of rise (Doubling time) of your PSA There seems to be a few options for you:- The operation - by the best man/woman and method you can get - the keyhole one is being successfully used Brachytherapy - the inclusion of radioactive Some have used cryotherapy Each has potential for side effects If your tumour is a "pussy cat" you may have many years before it affects you and you can avoid the side effects by very careful watch and wait, if it is a "tiger" and agessive action is required much sooner. In the right circumstances very careful waiting before treatment can be used. You are already on the right lines of reading a lot but try tro stick to the simple and well researched - much on the internet can be maybe in 10 years stuff. By all means come back to us with questions, most of us aren't medical - we are just further down the journey. -----Original Message-----From: Dhuffy Sent: 28 June 2003 17:04To: ProstateCancerSupport Subject: HelloThought I'd check in and introduce myself. I just joined the group because I was just dianosed with prostate cancer last Wednesday. I had three biopsies prior to this one that showed nothing so I was more than surprised. Since then I've been reading everthing I could get my hands on. But I've found that reading letters from people who are actually experiencing what I am is much more helpful. I'm 58 years old and thought I was in pretty good shape. Oh, well. Anyway, just wanted to say hi to everybody.Dennis HoughMinot, North Dakota, USA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Hi Welcome to the group, make sure you let us know all your details. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Good luck, Jim! We'll be thinking of you on Tuesday and waiting for your report. and On Sat, 28 Jun 2003 09:17:30 -0700 " misterhistory " wrote: Hi Dennis, Jim here. I am having prostate surgery this coming Tuesday. I am having the new laparoscopic surgery, 5 little incisions, and I will be hospitalized for 3 days and home on day 4. Catheter comes out day 7. I have been practicing my kegel exercises, and I hope that by 30 days out from surgery, to have the incontinence under control. I have posted an e-mail to the group about this surgery. if you have to have it done, this beats the usual radical prostitectomy all to hell. If you want more info, let me know. There are several places in the US who do it. I have talked to several guys who I know personally, and they said virtually no pain. One guys said he took a Tylenol because he had a headache, the others said they took a couple of pain pills and that was it. I'm telling you, don't go the usual radical prostetectomy. If there isn't a surgeon who does LRP in your area, go to one that does. Let me know if you want more info. I'll post an e-mail to the group when I get home on July 3, and I will give you all a detailed account of how it went. Wish me luck. Jim Hello > Thought I'd check in and introduce myself. I just joined the group > because I was just dianosed with prostate cancer last Wednesday. I > had three biopsies prior to this one that showed nothing so I was > more than surprised. Since then I've been reading everthing I could > get my hands on. But I've found that reading letters from people who > are actually experiencing what I am is much more helpful. I'm 58 > years old and thought I was in pretty good shape. Oh, well. Anyway, > just wanted to say hi to everybody. > Dennis Hough > Minot, North Dakota, USA > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Hi Dennis, Im Louisa, daughter of someone who has advanced prostate cancer. I am up here with him at the moment, having some time out with him. Which is nice.*hugs* I know there isnt a lot we can say, but it IS reassuring to know that people DO understand how you are feeling.My thoughts and prayers are with you.LouisaNew Zealand >From: "Dhuffy" >Reply-To: ProstateCancerSupport >To: ProstateCancerSupport >Subject: Hello >Date: Sat, 28 Jun 2003 16:04:29 -0000 > >Thought I'd check in and introduce myself. I just joined the group >because I was just dianosed with prostate cancer last Wednesday. I >had three biopsies prior to this one that showed nothing so I was >more than surprised. Since then I've been reading everthing I could >get my hands on. But I've found that reading letters from people who >are actually experiencing what I am is much more helpful. I'm 58 >years old and thought I was in pretty good shape. Oh, well. Anyway, >just wanted to say hi to everybody. >Dennis Hough >Minot, North Dakota, USA > Download MSN Messenger - talk to family and friends overseas! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 Thanks, Jim. Hope everything goes rally well for you on Thursday. Any information you can give me on that type of operation would be greatly appreciated. Dennis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 Thanks, , I'll definitely take all the questions you suggested when I meet with the doctor today. Right now I'm all questions. It's just good to have a group like this to share experiences with. Dennis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 Thanks, , I like the axiom about the doctor being more important that the treatment you choose. I'm definitely going to ask a lot of questions. And I'll ask for a second opinion. Dennis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 Thanks, , I was definitely happy to find this group. Right now I don't have any details except that I've got it. But I'll post what I find out. Dennis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 Thanks a lot Louisa. I'll take all the prayers I can get. And mine are surely with you and your father. Dennis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2003 Report Share Posted August 17, 2003 Hi Dennis, Jim here. Several weeks ago, after I told you of my Lrp at City of hope, you said you were coming out here to California, and were going to look into City of hope and the LRP treatment. Did you get out here, and was City Of Hope able to do anything for you? I go in tomorrow for my follow up visit to the Dr. after surgery. No problems of any kind. Surgery July 1, no pain, no incontinence, no problems, so it should be a walk in the office, and out the back door kind of visit. I hope you got out here and City Of Hope was able to help you. Again, anyone in this group wanting information on LRP, contact me and I'll help you or contact City Of Hope here in California. Jim Re: Hello > Thanks, Jim. > Hope everything goes rally well for you on Thursday. Any > information you can give me on that type of operation would be > greatly appreciated. > Dennis > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Hi Karie You have been hiding from us haven't you? Glad to see you are doing well how do you like all the rain we are getting here in Indiana? We have been getting a bunch of rain this year and last summer as well. I have a feeling the mosquitoes will be bad this year watch out for West Nile virus. I haven't had any trouble with my MS for a while and hope it stays that way. I really have not had any trouble since April 2003. I hope the Copaxone I take is actually doing it's job. It is too bad the Copaxone can't help to return balance back to me. I can only wish. I would like to purchase a 3 wheeled bike so I can bike ride again. I have checked the price of a 3 wheeled bike and they are not cheap. Bill HeLLO Hi Everyone!!!It is really me I am back, Okay I am feeling much better thank you all for your prayers and patience with my absentance.One thing lead to another. But I am back I am hoping to figure out what everyone has been up to? I know i have been away for a while hopfully you didn't forget me??I like the walking stick idea with the birth stones and names of your kids. Some people have to use them. they shouldn't feel bad about using them. so what what another thinks, as long as you stay active, with a help of a walking stick. that is alright, i think.well have a great Monday, Hugs and giggleskarie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Hey Karie! It's SO good to hear from you!!! I have been worried about you. How's your family? So did you get the email with my news? I'm moving to Alaska! We are selling our farm here and already have bought 40 acres with two cabins in Alaska. I can hardly wait to get started on my new adventure! hugs to you! Sharonkarie426 wrote: Hi Everyone!!!It is really me I am back, Okay I am feeling much better thank you all for your prayers and patience with my absentance.One thing lead to another. But I am back I am hoping to figure out what everyone has been up to? I know i have been away for a while hopfully you didn't forget me??I like the walking stick idea with the birth stones and names of your kids. Some people have to use them. they shouldn't feel bad about using them. so what what another thinks, as long as you stay active, with a help of a walking stick. that is alright, i think.well have a great Monday, Hugs and giggleskarie Sharon (list owner) "Happiness is not a destination. It is a method of life." -Burton Hills __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2005 Report Share Posted November 29, 2005 Dear Robin, Welcome to the group! Glad to have you aboard! You can learn a great deal about alternative MS treatments by visiting http://i.webring.com/hub?ring=multiplescleros1 With best wishes, Dudley Delany http://profiles.yahoo.com/dudley_delany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 robin.. Hi...I have been getting mail from the group for a few months.....The title seemed interesting...This group will discourage anything but natural treatments.........Don't give up Robin.........Try www.joolysjoint.com for ms chat. etc......... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 > > I am new. I have had MS for about a year and went on Rebif and > Baclofen in March. I have had my ups and down on all this and I saw > your group and am very interested in reading and posting and learning > about ways in how MS possibly will be cured. My neurologist Dr > Bharani works in conjunction with a lot of groups and a lot of Drs. > in Boston about all the trials and all the different alternative > therapies that are out there I just wanted to say hello and hope I > learn a lot. > > thank you! > Just want you to know that you are not alone! I have had MS for 3 years now. I have tried Copaxone and miscarried so quit. I currently observe the Dr. Roy L. Swank diet. Which helps me a lot. I also drink plenty of water and visit a chiropractor regularly. (where I also get massages) This not only helps with my symptoms, like numbness and fatigue but also helps reduce my stress. Currently the only perscription I take is solumedrol (An IV steroid series that lasts for 5 days, when I have a relaps. I have had two in three years. The first one I ignored until I had optic neuritis, this second one I took the steroids before it progessed to worse symptoms than numbness. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 --- Welcome Holly, you will find many wonderful people here.Im sorry to hear about your grandmother.I was wondering what meds she is on?The right meds combo can help alot.I hope things can get better for you all.My best to you Ron In LBDcaregivers , " holly " wrote: > > My name is Holly, my grandmother was diagnosid with LBD last week. > Before thaat I had never heard of it. She's a tough cookie....and she > wearing both my mother and I out. Last night was rough...she kept > haloring out our names every 15 minutes...this started at 10pm and went > on till 4:30 am. At times she would get stuck in the bed rails trying > to wander out at night, she instead in taking a shower at 0100 in the > morning. I work 12 hour shifts and get up to work at 5 am. At times I > wanted to yell at her...but I didn't. > > Sometimes she's ok ...mentally alert and can converse well with us. > Then there are nightd that she is soooo stuborn, lost in her time ( by > that I mean she'll ask me if I fed the pigs? ...we have no pigs) then > there are days that she takes of her diapers and runs around the house > naked.... > > My mother sometimes thinks that she makes things up or trying to fool > us... > > I am confused, frusterated and stressed..... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 HI Holly and welcome to the group. What meds is your grandmother taking? Courage Hello My name is Holly, my grandmother was diagnosid with LBD last week. Before thaat I had never heard of it. She's a tough cookie....and she wearing both my mother and I out. Last night was rough...she kept haloring out our names every 15 minutes...this started at 10pm and went on till 4:30 am. At times she would get stuck in the bed rails trying to wander out at night, she instead in taking a shower at 0100 in the morning. I work 12 hour shifts and get up to work at 5 am. At times I wanted to yell at her...but I didn't. Sometimes she's ok ...mentally alert and can converse well with us. Then there are nightd that she is soooo stuborn, lost in her time ( by that I mean she'll ask me if I fed the pigs? ...we have no pigs) then there are days that she takes of her diapers and runs around the house naked.... My mother sometimes thinks that she makes things up or trying to fool us... I am confused, frusterated and stressed..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 Wow, Jannis, you are simply amazing the way you handle your mother. I admire you the way you care for her. (((((hug)))) Gladys Stefany wrote: (((HUGS)))) Jannis My heart and prayers go out to you. Gladys -- Re: Hello I understand frustration with LO's. Just remember, though, that they have no control and the disease is the one controlling when things happen. This has been a really hard week for our family. Dad (primary caregiver, age 84) got up during the evening to check on something and he fell. When he fell, my mother came to a little, decided to get out of her bed and help him. She fell. Dad crawled to the phone and called 911, and then lost consciousness. EMSA came and took them both to the hospital, didn't call any of us, and we didn't find out until almost 8 hours later that they were in hospital. They kept them overnight for observation, and I had to miss three more days of work last week in addition to the 5 that I missed the end of the week before and the first of last week. My sister and I are both jeopardizing our jobs trying to take care of things. My dad refuses to accept even the IDEA of an NH. He is supported in that feeling by my two brothers, neither of whom are accepting any responsibility for Mom's care. My sister and I are worn to a frazzle. Mom is quickly going downhill. I don't know the progression of the disease, but it's my feeling that she's probably in the final stages. She eats no more than two or three spoonfuls of food per day, and often spits that out. She drinks less than a cup of water a day. She either sleeps or pulls the covers over her head and doesn't talk to anyone for probably 23 hours and 55 minutes of each day. As a family, we're opposed to feeding tubes or artificial hydration to prolong her life. She is in a living hell right now, having hallucinations and seeing things. Tonight she looked straight at me, and said, " Are you satan? " She knows my name, but she calls me by my entire name, and has no memory or connection that we are mother and daughter. She refuses to take anything from my hands, and my father is the only one who can give her the meds or even a drink of water. She used the portable commode and then kept checking to make sure my father flushed it. I asked her what made her think we wouldn't flush it.. what did she think we were going to do with it. Her response was, " Feed it back to me. " Last Saturday, she grabbed my sister's hand, and asked her if she was saved. My sister said, " Of course, Mom. You were there at my baptism. " That wasn't sufficient...my sister had to repeat a prayer for her salvation, and ask forgiveness for all acts of adultery and fornication! I was standing in the kitchen laughing my head off...when she came into the kitchen, she said, " Well, at least it was short...if it'd been YOU, you'd still be asking forgiveness... " At times, I feel guilty for laughing at some of the things that go on, but then I realized that my laughter was a cover for the pain. It hurts. I know that Mom's time is limited, and I still count each moment as precious. Jannis --------------------------------- Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 Thank you for your warm welcome. O copied and pasted a diagram that assists me to keep track of her meds: Morning Evening 1. Glucophage 500 mg Glucophage 500 mg 2. Metoprolol 100mg Metoprolol 100mg 3. Namenda 10mg Namenda 10mg 4. Colace 100mg Colace 100mg 5. Lantus (25 units) Lipitor 20mg 6. Amiodarone 200mg Seroquel 50 mg 7. Nexium 40 mg Coumdian 2.5mg 8. Reglan 10mg Cymbalta 60mg 9. Multi-Vitamin 10. Arricept 10mg **Regular Insulin (PRN) Refer to Sliding Scale ** **Ultram 50 mg as Needed** gaat wrote: HI Holly and welcome to the group. What meds is your grandmother taking? Courage Hello My name is Holly, my grandmother was diagnosid with LBD last week. Before thaat I had never heard of it. She's a tough cookie....and she wearing both my mother and I out. Last night was rough...she kept haloring out our names every 15 minutes...this started at 10pm and went on till 4:30 am. At times she would get stuck in the bed rails trying to wander out at night, she instead in taking a shower at 0100 in the morning. I work 12 hour shifts and get up to work at 5 am. At times I wanted to yell at her...but I didn't. Sometimes she's ok ...mentally alert and can converse well with us. Then there are nightd that she is soooo stuborn, lost in her time ( by that I mean she'll ask me if I fed the pigs? ...we have no pigs) then there are days that she takes of her diapers and runs around the house naked.... My mother sometimes thinks that she makes things up or trying to fool us... I am confused, frusterated and stressed..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 Thank you Gladys...Its been woderful finding such a great support group. Thank you Honestly I've learned so much more from this group then our PMD Gladys Stefany wrote: Oh, Holly..... You've come to there right place. Rest assured that your grandma is not doing these things on purpose and is not trying to fool you. I know you will find much support and knowledge here. My daughter helps me care for my mother and I hope she'll come out and introduce herself to you. Gladys -- Hello My name is Holly, my grandmother was diagnosid with LBD last week. Before thaat I had never heard of it. She's a tough cookie....and she wearing both my mother and I out. Last night was rough...she kept haloring out our names every 15 minutes...this started at 10pm and went on till 4:30 am. At times she would get stuck in the bed rails trying to wander out at night, she instead in taking a shower at 0100 in the morning. I work 12 hour shifts and get up to work at 5 am. At times I wanted to yell at her...but I didn't. Sometimes she's ok ...mentally alert and can converse well with us. Then there are nightd that she is soooo stuborn, lost in her time ( by that I mean she'll ask me if I fed the pigs? ...we have no pigs) then there are days that she takes of her diapers and runs around the house naked.... My mother sometimes thinks that she makes things up or trying to fool us... I am confused, frusterated and stressed..... Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 Thank you for the welcome...in the last 3 hours that I've been reading the groups situation, I no longer feel alone, I relate to many situations that people have gone through because we gone through as well, I have pore patients and understanding of my grandmother, and I now feel guilty that I was soooo upset at her. I've learned alot and the input is very valuable. I've already made changes after some suggestions from the group. And I enjoy the " Pity Party " adhd5464 wrote: Welcome to Lewyville! We are a wonderful place to vent, as well as have your questions answered. Probably all of us have had the night you had last night. We understand, and know how much you might have loved to have yelled, but didn't. I think that is where much of the caregiver builds their stress levels. Find out what is working for some in terms of keeping the LO in nights and days. there will be a plethora of answers, I am sure. I am mostly on the question side of this disease, but can give you empathy all day long. hang in, and vent often! Carol If you throw yourself a pity party, most of us will show up! We love to party! > > My name is Holly, my grandmother was diagnosid with LBD last week. > Before thaat I had never heard of it. She's a tough cookie....and she > wearing both my mother and I out. Last night was rough...she kept > haloring out our names every 15 minutes...this started at 10pm and went > on till 4:30 am. At times she would get stuck in the bed rails trying > to wander out at night, she instead in taking a shower at 0100 in the > morning. I work 12 hour shifts and get up to work at 5 am. At times I > wanted to yell at her...but I didn't. > > Sometimes she's ok ...mentally alert and can converse well with us. > Then there are nightd that she is soooo stuborn, lost in her time ( by > that I mean she'll ask me if I fed the pigs? ...we have no pigs) then > there are days that she takes of her diapers and runs around the house > naked.... > > My mother sometimes thinks that she makes things up or trying to fool > us... > > I am confused, frusterated and stressed..... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 Thank you Ruthie, its nice to know we're not alone ru_ellen wrote: Hello Holly, My name is Ruthie. (I'm Gladys' daughter) I also help my mother take care of my Grandmother. I can completely understand you wanting to yell. I was feeling that way myself today. I couldn't even figure out why she was mad but I was trying to help and she just started getting incredibly mad at me and throwing (for a person who does not know she has LBD or the symptoms would view as) a full blown temper tantrum. One night while I was here I did not sleep a bit because she was convinced the house was on fire and I had to keep her from calling the fire department. If you ever need someone to talk to who understands I am here and I know the wonderful people on this list are as well. It is good to get it out and also to know that you're not a lone. Ruthie > > My name is Holly, my grandmother was diagnosid with LBD last week. > Before thaat I had never heard of it. She's a tough cookie....and she > wearing both my mother and I out. Last night was rough...she kept > haloring out our names every 15 minutes...this started at 10pm and went > on till 4:30 am. At times she would get stuck in the bed rails trying > to wander out at night, she instead in taking a shower at 0100 in the > morning. I work 12 hour shifts and get up to work at 5 am. At times I > wanted to yell at her...but I didn't. > > Sometimes she's ok ...mentally alert and can converse well with us. > Then there are nightd that she is soooo stuborn, lost in her time ( by > that I mean she'll ask me if I fed the pigs? ...we have no pigs) then > there are days that she takes of her diapers and runs around the house > naked.... > > My mother sometimes thinks that she makes things up or trying to fool > us... > > I am confused, frusterated and stressed..... > Quote Link to comment Share on other sites More sharing options...
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