Guest guest Posted May 28, 2012 Report Share Posted May 28, 2012 If Doctor's are being told that this medication is inert and not absorbed and parents complain about side effects, the Doctor's in turn, think, "it must be coming from something else" Therefore, the parents / Physician's never make the connection and contact the FDA, leaving the numbers lower than they should be. If you feel you, or someone you know, has had an adverse reaction to a polyethylene glycol 3350 product, please contact the FDA to heighten their awareness at 1-800-FDA-1088 or conatact them online https://www.accessdata.fda.gov/scripts/medwatch/medwatch-online.htm Miralax ClearlaxGlycolaxColaceDulcolaxNuLytelyGoLyetlyPedialax (some versions) Movicol (UK) Jeanie............... the adverse reactions speak for themselves..................we need to help them make that connection. Please call................ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2012 Report Share Posted May 28, 2012 I'd also like to add Mupirocin aka Bactroban to that list. Contains PEG: http://www.drugs.com/pro/mupirocin.html My 4 year old had rages, sensory issues, etc. during the 10 mos she was on Miralax. After ~2 months of being off it these subsided. Then she had impetigo near her lips & we treated it with Mupirocin. Within 24 hours the monstrous behavior returned. That really " sealed the deal " so to speak. A real confirmation for us that it was the PEG causing it. As soon as we stopped the Mupirocin after a few days she got better again. Sara jeanie ward wrote: >If Doctor's are being told that this medication is inert and not absorbed and >parents complain about side effects, the Doctor's in turn, think, " it must be >coming from something else " Therefore, the parents / Physician's never make the >connection and contact the FDA, leaving the numbers lower than they should be. > >If you feel you, or someone you know, has had an adverse reaction to a >polyethylene glycol 3350 product, please contact the FDA to heighten their >awareness at 1-800-FDA-1088 or conatact them online >https://www.accessdata.fda.gov/scripts/medwatch/medwatch-online.htm > > >Miralax >Clearlax >Glycolax >Colace >Dulcolax >NuLytely >GoLyetly >Pedialax (some versions) >Movicol (UK) > >Jeanie............... the adverse reactions speak for >themselves..................we need to help them make that connection. Please >call................ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2012 Report Share Posted May 28, 2012 We have in the petition that PEG absorbed through the skin can cause systemic toxicity like that of ethylene glycol toxicity. I'd also like to add Mupirocin aka Bactroban to that list. Contains PEG: http://www.drugs.com/pro/mupirocin.htmlMy 4 year old had rages, sensory issues, etc. during the 10 mos she was on Miralax. After ~2 months of being off it these subsided. Then she had impetigo near her lips & we treated it with Mupirocin. Within 24 hours the monstrous behavior returned. That really "sealed the deal" so to speak. A real confirmation for us that it was the PEG causing it. As soon as we stopped the Mupirocin after a few days she got better again.Sara jeanie ward wrote:>If Doctor's are being told that this medication is inert and not absorbed and >parents complain about side effects, the Doctor's in turn, think, "it must be >coming from something else" Therefore, the parents / Physician's never make the >connection and contact the FDA, leaving the numbers lower than they should be. >>If you feel you, or someone you know, has had an adverse reaction to a >polyethylene glycol 3350 product, please contact the FDA to heighten their >awareness at 1-800-FDA-1088 or conatact them online >https://www.accessdata.fda.gov/scripts/medwatch/medwatch-online.htm >>>Miralax >Clearlax>Glycolax>Colace>Dulcolax>NuLytely>GoLyetly>Pedialax (some versions) >Movicol (UK) >>Jeanie............... the adverse reactions speak for >themselves..................we need to help them make that connection. Please >call................ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2012 Report Share Posted May 28, 2012 Is this stuff a white cream type? Is it in a blue tub? I had an infected burn from the oven a few months ago, my doc put something on it in the office and put a bandaid on it and it became infected, swollen, and hot. He said I reacted to it? ----- Forwarded Message ----To: miralax Sent: Mon, May 28, 2012 7:52:53 PMSubject: Re: Physician / FDA Awareness I'd also like to add Mupirocin aka Bactroban to that list. Contains PEG: http://www.drugs.com/pro/mupirocin.html My 4 year old had rages, sensory issues, etc. during the 10 mos she was on Miralax. After ~2 months of being off it these subsided. Then she had impetigo near her lips & we treated it with Mupirocin. Within 24 hours the monstrous behavior returned. That really "sealed the deal" so to speak. A real confirmation for us that it was the PEG causing it. As soon as we stopped the Mupirocin after a few days she got better again. Sara jeanie ward wrote: >If Doctor's are being told that this medication is inert and not absorbed and >parents complain about side effects, the Doctor's in turn, think, "it must be >coming from something else" Therefore, the parents / Physician's never make the >connection and contact the FDA, leaving the numbers lower than they should be. > >If you feel you, or someone you know, has had an adverse reaction to a >polyethylene glycol 3350 product, please contact the FDA to heighten their >awareness at 1-800-FDA-1088 or conatact them online >https://www.accessdata.fda.gov/scripts/medwatch/medwatch-online.htm > > >Miralax >Clearlax >Glycolax >Colace >Dulcolax >NuLytely >GoLyetly >Pedialax (some versions) >Movicol (UK) > >Jeanie............... the adverse reactions speak for >themselves..................we need to help them make that connection. Please >call................ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2012 Report Share Posted May 28, 2012 Just noticed it's PEG 400......... the smaller the molecule, the more easily absorbed. PEG 400 does have studies that show toxicity. The reason they don't consider PEG 3350 to be toxic is b/c of it's molecular size, being, they think it cannot penetrate the stomach / intestinal walls? 's Baby shampoo has PEG 80 but they probably think it won't penetrate the skin? (large controversy on this one too) ----- Forwarded Message ----From: Sara Jane To: miralax Sent: Mon, May 28, 2012 7:52:53 PMSubject: Re: Physician / FDA Awareness I'd also like to add Mupirocin aka Bactroban to that list. Contains PEG: http://www.drugs.com/pro/mupirocin.html My 4 year old had rages, sensory issues, etc. during the 10 mos she was on Miralax. After ~2 months of being off it these subsided. Then she had impetigo near her lips & we treated it with Mupirocin. Within 24 hours the monstrous behavior returned. That really "sealed the deal" so to speak. A real confirmation for us that it was the PEG causing it. As soon as we stopped the Mupirocin after a few days she got better again. Sara jeanie ward wrote: >If Doctor's are being told that this medication is inert and not absorbed and >parents complain about side effects, the Doctor's in turn, think, "it must be >coming from something else" Therefore, the parents / Physician's never make the >connection and contact the FDA, leaving the numbers lower than they should be. > >If you feel you, or someone you know, has had an adverse reaction to a >polyethylene glycol 3350 product, please contact the FDA to heighten their >awareness at 1-800-FDA-1088 or conatact them online >https://www.accessdata.fda.gov/scripts/medwatch/medwatch-online.htm > > >Miralax >Clearlax >Glycolax >Colace >Dulcolax >NuLytely >GoLyetly >Pedialax (some versions) >Movicol (UK) > >Jeanie............... the adverse reactions speak for >themselves..................we need to help them make that connection. Please >call................ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2012 Report Share Posted May 28, 2012 It's PEG 400 & 3350. She kept licking the area where we applied it which wasn't good! Ours was a clear, thick ointment, not white. jeanie ward wrote: >Just noticed it's PEG 400......... the smaller the molecule, the more easily >absorbed. PEG 400 does have studies that show toxicity. The reason they don't >consider PEG 3350 to be toxic is b/c of it's molecular size, being, they think >it cannot penetrate the stomach / intestinal walls? > >'s Baby shampoo has PEG 80 but they probably think it won't penetrate the >skin? (large controversy on this one too) > > >----- Forwarded Message ---- > >To: miralax >Sent: Mon, May 28, 2012 7:52:53 PM >Subject: Re: Physician / FDA Awareness > > >I'd also like to add Mupirocin aka Bactroban to that list. Contains PEG: >http://www.drugs.com/pro/mupirocin.html > >My 4 year old had rages, sensory issues, etc. during the 10 mos she was on >Miralax. After ~2 months of being off it these subsided. Then she had impetigo >near her lips & we treated it with Mupirocin. Within 24 hours the monstrous >behavior returned. That really " sealed the deal " so to speak. A real >confirmation for us that it was the PEG causing it. As soon as we stopped the >Mupirocin after a few days she got better again. > >Sara > >jeanie ward wrote: > >>If Doctor's are being told that this medication is inert and not absorbed and >>parents complain about side effects, the Doctor's in turn, think, " it must be >>coming from something else " Therefore, the parents / Physician's never make the > >>connection and contact the FDA, leaving the numbers lower than they should be. >> >>If you feel you, or someone you know, has had an adverse reaction to a >>polyethylene glycol 3350 product, please contact the FDA to heighten their >>awareness at 1-800-FDA-1088 or conatact them online >>https://www.accessdata.fda.gov/scripts/medwatch/medwatch-online.htm >> >> >>Miralax >>Clearlax >>Glycolax >>Colace >>Dulcolax >>NuLytely >>GoLyetly >>Pedialax (some versions) >>Movicol (UK) >> >>Jeanie............... the adverse reactions speak for >>themselves..................we need to help them make that connection. Please >>call................ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2012 Report Share Posted May 28, 2012 I'm going to check in the morning to find out what it was called. Thanks for sharingTo: miralax Sent: Mon, May 28, 2012 8:53:53 PMSubject: Re: Fw: Physician / FDA Awareness It's PEG 400 & 3350. She kept licking the area where we applied it which wasn't good! Ours was a clear, thick ointment, not white. jeanie ward wrote: >Just noticed it's PEG 400......... the smaller the molecule, the more easily >absorbed. PEG 400 does have studies that show toxicity. The reason they don't >consider PEG 3350 to be toxic is b/c of it's molecular size, being, they think >it cannot penetrate the stomach / intestinal walls? > >'s Baby shampoo has PEG 80 but they probably think it won't penetrate the >skin? (large controversy on this one too) > > >----- Forwarded Message ---- > >To: miralax >Sent: Mon, May 28, 2012 7:52:53 PM >Subject: Re: Physician / FDA Awareness > > >I'd also like to add Mupirocin aka Bactroban to that list. Contains PEG: >http://www.drugs.com/pro/mupirocin.html > >My 4 year old had rages, sensory issues, etc. during the 10 mos she was on >Miralax. After ~2 months of being off it these subsided. Then she had impetigo >near her lips & we treated it with Mupirocin. Within 24 hours the monstrous >behavior returned. That really "sealed the deal" so to speak. A real >confirmation for us that it was the PEG causing it. As soon as we stopped the >Mupirocin after a few days she got better again. > >Sara > >jeanie ward wrote: > >>If Doctor's are being told that this medication is inert and not absorbed and >>parents complain about side effects, the Doctor's in turn, think, "it must be >>coming from something else" Therefore, the parents / Physician's never make the > >>connection and contact the FDA, leaving the numbers lower than they should be. >> >>If you feel you, or someone you know, has had an adverse reaction to a >>polyethylene glycol 3350 product, please contact the FDA to heighten their >>awareness at 1-800-FDA-1088 or conatact them online >>https://www.accessdata.fda.gov/scripts/medwatch/medwatch-online.htm >> >> >>Miralax >>Clearlax >>Glycolax >>Colace >>Dulcolax >>NuLytely >>GoLyetly >>Pedialax (some versions) >>Movicol (UK) >> >>Jeanie............... the adverse reactions speak for >>themselves..................we need to help them make that connection. Please >>call................ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2012 Report Share Posted May 28, 2012 Interesting on the 's baby shampoo - I used a baby wash on my then infant daughter and she ended up with a really bad case of eczema which disappeared when I stopped using 's and started using Welleda exclusively. I use Welleda products on her to this day. The eczema never returned. To: "miralax " <miralax > Sent: Monday, May 28, 2012 9:16 PM Subject: Fw: Physician / FDA Awareness Just noticed it's PEG 400......... the smaller the molecule, the more easily absorbed. PEG 400 does have studies that show toxicity. The reason they don't consider PEG 3350 to be toxic is b/c of it's molecular size, being, they think it cannot penetrate the stomach / intestinal walls? 's Baby shampoo has PEG 80 but they probably think it won't penetrate the skin? (large controversy on this one too) ----- Forwarded Message ----From: Sara Jane To: miralax Sent: Mon, May 28, 2012 7:52:53 PMSubject: Re: Physician / FDA Awareness I'd also like to add Mupirocin aka Bactroban to that list. Contains PEG: http://www.drugs.com/pro/mupirocin.html My 4 year old had rages, sensory issues, etc. during the 10 mos she was on Miralax. After ~2 months of being off it these subsided. Then she had impetigo near her lips & we treated it with Mupirocin. Within 24 hours the monstrous behavior returned. That really "sealed the deal" so to speak. A real confirmation for us that it was the PEG causing it. As soon as we stopped the Mupirocin after a few days she got better again. Sara jeanie ward wrote: >If Doctor's are being told that this medication is inert and not absorbed and >parents complain about side effects, the Doctor's in turn, think, "it must be >coming from something else" Therefore, the parents / Physician's never make the >connection and contact the FDA, leaving the numbers lower than they should be. > >If you feel you, or someone you know, has had an adverse reaction to a >polyethylene glycol 3350 product, please contact the FDA to heighten their >awareness at 1-800-FDA-1088 or conatact them online >https://www.accessdata.fda.gov/scripts/medwatch/medwatch-online.htm > > >Miralax >Clearlax >Glycolax >Colace >Dulcolax >NuLytely >GoLyetly >Pedialax (some versions) >Movicol (UK) > >Jeanie............... the adverse reactions speak for >themselves..................we need to help them make that connection. Please >call................ Quote Link to comment Share on other sites More sharing options...
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