Guest guest Posted October 12, 1999 Report Share Posted October 12, 1999 Debra, Great to hear from you! Sounds like one incredibly busy house!!! Take care, and good luck with the move. Janet Wife to Matt Mom to & (CHaRGEr) 7, nne 2 1/2 Mom to 16 months. Weymouth, Massachusetts, USA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 1999 Report Share Posted October 12, 1999 Hi Debra, This is Gwen from Va. I jsut read your email concerning your move to Va. and just wanted to say hi and welcome you. I am the Family Specialist for the Deafblind project here. I don't know if we met CHARGE conference or not but if I can be of any help please give me a call once yoy get settled. There are other families in that area who don't have access to the listserv that you may want to contact. Again welcome and good luck with moving. Gwen Together We Can 1- 700 E. lin St. Richmond, Va. 23284-3020 DW33333333@... wrote: > From: DW33333333@... > > I just wanted to write to say hi to everyone and to let you know that we > haven't dropped off the face of the earth, just out of soceity for awhile. > In the past 2 months my oldest daughter got married and then her husband lost > his job so they are back living at home (the two of them plus my grandaughter > makes 3 more at home for me to take care of) and she just informed me that > she is pregnant................... And my second oldest daughter had to move > back home as well as she cannot make ends meet on her own (with her son) so > that makes 2 more living at home. I am back to having " 9 " in the house > again..................... And we are trying to get everything packed for > our move to Virginia (yes all are going with us...................). > > Tryny has had 2 bouts with pneumonia in the last 2 months but is doing pretty > good with this one. He is still gaining weight (he is at 50 pounds now and > no signs of stopping) !!!!!!!!!! The doc's still don't know why, but he is > off the charts again (only this time the other way). But I have already > lined up 7 of his 13 specialists at the Childrens Hospital of Kings Daughters > in Norfolk Virginia, and they are waiting for him when we get there. > > Just wanted to let all know that we are still here and now maybe I can keep > up with what is going on. > > Debra > > > For information about the CHARGE Syndrome Foundation or to become a member please contact marion@.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 1999 Report Share Posted October 13, 1999 Debra, It's so good to hear from you, I've been wondering about you guys! I am just shaking my head at you with *9* in the house, that's amazing. I'd be looney!!! I'm glad Tryny is doing okay, but that boy is having one *heck* of a growth spurt, isn't he??? Give him a kiss from me... Mom to Kennedy 20 mos old CHARGEr, 10, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 Hello All From: DW33333333@... I just wanted to write to say hi to everyone and to let you know that we haven't dropped off the face of the earth, just out of soceity for awhile. In the past 2 months my oldest daughter got married and then her husband lost his job so they are back living at home (the two of them plus my grandaughter makes 3 more at home for me to take care of) and she just informed me that she is pregnant................... And my second oldest daughter had to move back home as well as she cannot make ends meet on her own (with her son) so that makes 2 more living at home. I am back to having " 9 " in the house again..................... And we are trying to get everything packed for our move to Virginia (yes all are going with us...................). Tryny has had 2 bouts with pneumonia in the last 2 months but is doing pretty good with this one. He is still gaining weight (he is at 50 pounds now and no signs of stopping) !!!!!!!!!! The doc's still don't know why, but he is off the charts again (only this time the other way). But I have already lined up 7 of his 13 specialists at the Childrens Hospital of Kings Daughters in Norfolk Virginia, and they are waiting for him when we get there. Just wanted to let all know that we are still here and now maybe I can keep up with what is going on. Debra --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 1999 Report Share Posted December 7, 1999 Debra, Keeping you in my thoughts and prayers. I am hoping you will be home soon. Give both Zakey and Tryny big hugs from us! Janet Wife to Matt Mom to & (CHaRGEr) 7, nne 2 1/2 Mom to 16 months. Weymouth, Massachusetts, USA <A HREF= " http://members.aol.com/jpm4189/page/index.htm " >Our Family Homepage</ A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 1999 Report Share Posted December 7, 1999 Debra, I hope everything goes well and you get Zakey home really soon. Sounds like a real fighter! Mom to Kennedy 22 mos old CHARGEr, 10, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 Hello All From: DW33333333@... Just wanted to update everyone about Zakey. My daughter (Steph) and I changed Zakey's trach today at the hospital and we passed with flying colors. So now the only thing holding him there is they are trying to ween him off the oxygen (he's only on 35% so hopefully only a day more). We want to get him home so badly. And I want both my boys at home (I have missed being with my Tryny so terribly these last 3 weeks). So keep good thoughts for us that we get Zakey home this week. They also replaced his g-tube and gave him a button (he kept pulling out the g-tube). He is so much like Tryny there as he did the same thing. And stubborn, he hates his diaper changed or turned on his right side. Boy dies he holler ( and this is the funny part: he never made a sound before the trach, even when he cried you couldn't hear anything but air, now he makes little squeeky noises and mouse sounds). Gotta go, I'll let everyone know when we get home. Debra --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2002 Report Share Posted March 15, 2002 Hi Joyce, Down 17.8 lbs. today for my first post-op visit. Only 10 days after surgery! Unbelieveable! I'm just so drained from the pneumonia and having quite a bit of loose stools. Having alot of accidents. I think my electrolyes are off. My vision is off. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2002 Report Share Posted March 15, 2002 Jackie: You did so well for only 10 days out and considering how long you were in the hospital and on the IV's.... I'm really happy for you. Now get that pneumonia under control so you can start to feel better..... My incision is huge so every time I see Dr. Roe I make it a point to call him Mr. 3 inch incision.... He just laughs and says he's going to take care of it when he fixes my hernia............. He never did tell me why mine ended up being so long. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2002 Report Share Posted March 15, 2002 great job on the weight loss girl Re: Hello all Hi Suzie, Well, went to doctor for first post op visit (10 days after surgery) Lost 17.8 lbs.! Got staples out. Also said that my incision was a little longer because he had to go for those huge gall stones (my jewels) he had to take out. (He gave them to me after surgery) They sure are big. Otherwise, my incision would have been even smaller. Some doctors still do large incision. Just depends on their preverence. Jackie To Subscribe to 's weekly FREE Newsletter send an email to GBCookbook-subscribe@... Quote Link to comment Share on other sites More sharing options...
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