my sadness

[Guest guest]

As you all know and some have helped out with, our ds

has been enduring a huge back-up. At first, the doc (naturopath) said it’s

gastritis caused by constipation. Which it probably was…ds missed one day

of school, came home early the next because he didn’t feel good. Went to

school and church the next day, then missed the next two days of school and all

activities. Pain was his biggest problem – doubled over, crying, begging

me and God to make it stop. We were giving the rememdies the doc suggested –

massive doses of Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and

slippery elm. It ended up where we up all night one night with his pain and

crying, so we went to get an xray at the chiro’s office – the doc

is an hour away, chiro is closer. Xray showed a mass in the middle of his belly

and his colon twisted. Called the doc, he told us to come right away. Got there

and another xray showed an incredible amount of back up – close to

impaction. Colon okay, not twisted. The whole time ds was in incredible pain…writhing,

crying, doubled over. Hard to do an xray that way. The only way out was to go

from the bottom up, not top down as we had been doing. Doc suggested an enema

and ds lost it right there – crying, screaming, begging no…doc sent

us home with instructions to do 3 suppositories a day. Ds had a terrible fit

each time…he would scream, cry and tense up. My dh had to hold him down

while I tried to get the suppository where it was supposed to go – pain still

continues, nothing is happening. TWELVE days of this and NOTHING. He’s

poo’ing little poops – nothing to write home about, though. When

does this end? This is our second major back up this year – I thought I

was doing everything right. Food, supplements, activity, toileting. Everything

I thought was right is not – I’m so confused and sad and in pain

because my child is in pain. What am I supposed to do? Doc says enema won’t

help if suppositories are doing nothing. He says if nothing happens by Monday,

surgery might have to happen. I’ve cried and cried today- trying not to

let my kid see me. Don’t want him worrying more than he is.

This constipation stuff SUCKS. I’d use stronger words

throughout, but out of respect for your poor eyes and brain, I’ll

refrain! J As whiny as it sounds,

this just isn’t fair. We’re seeing a holistic nutritionist later

this week – maybe she’ll have some answers. We’ve also

doubled his water intake – now I worry about hyponatreamia. Good God.

Thanks for listening. If you have any ideas, I’d be

willing to consider them.

Tracie

Oh! While waiting for xray to be read at doc’s office,

I showed him the miralax group. He was VERY impressed –he says he’s

going to join. Hope so!! He said he didn’t realize lay people could

generate so much information. Wouldn’t it be great to have a doc sharing

advice? Showed him the files, etc. Showed him the adverse reaction reports –

he had 3 questions:

1.

Are there reports pertaining to PEG, as opposed to EG?

2.

What is the molecular difference between PEG and EG?

3.

Are the adverse reports only on people who used PEG and

the other meds listed or is it a culmination of any kind of adverse

reaction to the medications listed?

[Guest guest]

I am so sorry your son is going through this and you also!! It is so hard!! When you say mass in the belly are you referring to stool in the intestines or an actual mass in the belly? When our son has been the worst/impacted we have used the liquid magnesium citrate(hospitals well use this also). It doesnt taste good, kinda bitter but sure works when nothing else well. Im not sure how old your son is and hopefully you could convince him to drink it. They do have grape flavor now(still a lil bitter). Has he been scoped? I can tell you that it has takin close to 4yrs to finally see some closer normalcy(with supplementing). The gut needs healing also and then things slowly start to work better. My son has hirschsprungs and I can say he is doing pretty darn good even with that. I feel my son not only has been struggling with the hirschprungs but had a double wammy

of gut issues of bacteria/fungal(antibiotics)/yeast/viral, once these started to clear up then improvements started to happen. Even his seizures are 99.9% improved from the mycotoxin clearup. I know this is hard and even seems traumatic at some times, but it well get better! We are all here for you!! Keep us updated!! Jennie<><

Subject: my sadnessTo: miralax Date: Sunday, December 7, 2008, 1:55 PM

As you all know and some have helped out with, our ds has been enduring a huge back-up. At first, the doc (naturopath) said it’s gastritis caused by constipation. Which it probably was…ds missed one day of school, came home early the next because he didn’t feel good. Went to school and church the next day, then missed the next two days of school and all activities. Pain was his biggest problem – doubled over, crying, begging me and God to make it stop. We were giving the rememdies the doc suggested – massive doses of Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm. It ended up where we up all night one night with his pain and crying, so we went to get an xray at the chiro’s office – the doc is an hour away, chiro is closer. Xray showed a mass in the middle of his belly and his colon twisted. Called the doc, he told us to come right away. Got there and another xray showed an incredible

amount of back up – close to impaction. Colon okay, not twisted. The whole time ds was in incredible pain…writhing, crying, doubled over. Hard to do an xray that way. The only way out was to go from the bottom up, not top down as we had been doing. Doc suggested an enema and ds lost it right there – crying, screaming, begging no…doc sent us home with instructions to do 3 suppositories a day. Ds had a terrible fit each time…he would scream, cry and tense up. My dh had to hold him down while I tried to get the suppository where it was supposed to go – pain still continues, nothing is happening. TWELVE days of this and NOTHING. He’s poo’ing little poops – nothing to write home about, though. When does this end? This is our second major back up this year – I thought I was doing everything right. Food, supplements, activity, toileting. Everything I thought was right is not – I’m so confused and sad and in pain because my child is in

pain. What am I supposed to do? Doc says enema won’t help if suppositories are doing nothing. He says if nothing happens by Monday, surgery might have to happen. I’ve cried and cried today- trying not to let my kid see me. Don’t want him worrying more than he is.

This constipation stuff SUCKS. I’d use stronger words throughout, but out of respect for your poor eyes and brain, I’ll refrain! J As whiny as it sounds, this just isn’t fair. We’re seeing a holistic nutritionist later this week – maybe she’ll have some answers. We’ve also doubled his water intake – now I worry about hyponatreamia. Good God.

Thanks for listening. If you have any ideas, I’d be willing to consider them.

Tracie

Oh! While waiting for xray to be read at doc’s office, I showed him the miralax group. He was VERY impressed –he says he’s going to join. Hope so!! He said he didn’t realize lay people could generate so much information. Wouldn’t it be great to have a doc sharing advice? Showed him the files, etc. Showed him the adverse reaction reports – he had 3 questions:

1. Are there reports pertaining to PEG, as opposed to EG?

2. What is the molecular difference between PEG and EG?

3. Are the adverse reports only on people who used PEG and the other meds listed or is it a culmination of any kind of adverse reaction to the medications listed?

[Guest guest]

Hellish - I sure feel sorry for your son having to endure all this!

Even so, I wish I could've gotten the doctor to sedate my l.o when she

needed an enema - she freaked out about it too!

>

> As you all know and some have helped out with, our ds has been

enduring a

> huge back-up. At first, the doc (naturopath) said it's gastritis

caused by

> constipation. Which it probably was.ds missed one day of school,

came home

> early the next because he didn't feel good. Went to school and

church the

> next day, then missed the next two days of school and all

activities. Pain

> was his biggest problem - doubled over, crying, begging me and God

to make

> it stop. We were giving the rememdies the doc suggested - massive

doses of

> Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and

slippery elm.

> It ended up where we up all night one night with his pain and

crying, so we

> went to get an xray at the chiro's office - the doc is an hour away,

chiro

> is closer. Xray showed a mass in the middle of his belly and his colon

> twisted. Called the doc, he told us to come right away. Got there and

> another xray showed an incredible amount of back up - close to

impaction.

> Colon okay, not twisted. The whole time ds was in incredible

pain.writhing,

> crying, doubled over. Hard to do an xray that way. The only way out

was to

> go from the bottom up, not top down as we had been doing. Doc

suggested an

> enema and ds lost it right there - crying, screaming, begging no.doc

sent us

> home with instructions to do 3 suppositories a day. Ds had a

terrible fit

> each time.he would scream, cry and tense up. My dh had to hold him down

> while I tried to get the suppository where it was supposed to go - pain

> still continues, nothing is happening. TWELVE days of this and

NOTHING. He's

> poo'ing little poops - nothing to write home about, though. When

does this

> end? This is our second major back up this year - I thought I was doing

> everything right. Food, supplements, activity, toileting. Everything I

> thought was right is not - I'm so confused and sad and in pain

because my

> child is in pain. What am I supposed to do? Doc says enema won't help if

> suppositories are doing nothing. He says if nothing happens by Monday,

> surgery might have to happen. I've cried and cried today- trying not

to let

> my kid see me. Don't want him worrying more than he is.

>

>

>

> This constipation stuff SUCKS. I'd use stronger words throughout,

but out of

> respect for your poor eyes and brain, I'll refrain! J As whiny as it

sounds,

> this just isn't fair. We're seeing a holistic nutritionist later

this week -

> maybe she'll have some answers. We've also doubled his water intake

- now I

> worry about hyponatreamia. Good God.

>

>

>

> Thanks for listening. If you have any ideas, I'd be willing to consider

> them.

>

>

>

> Tracie

>

>

>

> Oh! While waiting for xray to be read at doc's office, I showed him the

> miralax group. He was VERY impressed -he says he's going to join.

Hope so!!

> He said he didn't realize lay people could generate so much information.

> Wouldn't it be great to have a doc sharing advice? Showed him the files,

> etc. Showed him the adverse reaction reports - he had 3 questions:

>

> 1. Are there reports pertaining to PEG, as opposed to EG?

>

> 2. What is the molecular difference between PEG and EG?

>

> 3. Are the adverse reports only on people who used PEG and the

other

> meds listed or is it a culmination of any kind of adverse reaction

to the

> medications listed?

>

[Guest guest]

,

I'm so sorry.............have you ever had the barium enema to see what and where it's twisted? I have heard of another child that this happened to, he was autistic. they put him on Miralax and now has EE..................I feel your pain, thank God our situation never got to that level. I can relate though, it sucks when there's someone suffering and nothing you can do. Peppermint in hot water sooths the tummy if that helps. When we were little and had a tummy ache, my mom bought liquid peppermint and added it to hot water, just a dash, it does help.................Since you've tried everything under the sun.............you might want to look into Shaklee's herb-lax, you can put it in applesauce. Talk to someone before giving in case he has a serious condition, but it's always worked in our family for years.....

Directions

Adults and children 12 years of age and older: 4 tablets once or twice a day. Children under 12 years old, consult a doctor.

Key Ingredients

Senna, senna leaf, buckthorn, culver's root, licorice, fennel, anise, rhubarb, blue malva

Warnings

Ask a doctor before use if you have experienced nausea, abdominal pain, vomiting, or a sudden change in bowel habits that lasts over a period of 2 weeks. If pregnant or nursing, ask a health care professional before use. Stop use and ask a doctor: If you need to use a laxative for more than 1 week. If rectal bleeding or failure to have a bowel movement after use of this product. occurs which may indicate a serious condition.

http://www.shaklee.net/ahealthybargain/product/HerbLax?OVRAW=shaklee%20herblax & OVKEY=shaklee%20herblax & OVMTC=standard & OVADID=21315392021 & OVKWID=18249046521---

Subject: my sadnessTo: miralax Date: Sunday, December 7, 2008, 3:55 PM

As you all know and some have helped out with, our ds has been enduring a huge back-up. At first, the doc (naturopath) said it’s gastritis caused by constipation. Which it probably was…ds missed one day of school, came home early the next because he didn’t feel good. Went to school and church the next day, then missed the next two days of school and all activities. Pain was his biggest problem – doubled over, crying, begging me and God to make it stop. We were giving the rememdies the doc suggested – massive doses of Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm. It ended up where we up all night one night with his pain and crying, so we went to get an xray at the chiro’s office – the doc is an hour away, chiro is closer. Xray showed a mass in the middle of his belly and his colon twisted. Called the doc, he told us to come right away. Got there and another xray showed an incredible

amount of back up – close to impaction. Colon okay, not twisted. The whole time ds was in incredible pain…writhing, crying, doubled over. Hard to do an xray that way. The only way out was to go from the bottom up, not top down as we had been doing. Doc suggested an enema and ds lost it right there – crying, screaming, begging no…doc sent us home with instructions to do 3 suppositories a day. Ds had a terrible fit each time…he would scream, cry and tense up. My dh had to hold him down while I tried to get the suppository where it was supposed to go – pain still continues, nothing is happening. TWELVE days of this and NOTHING. He’s poo’ing little poops – nothing to write home about, though. When does this end? This is our second major back up this year – I thought I was doing everything right. Food, supplements, activity, toileting. Everything I thought was right is not – I’m so confused and sad and in pain because my child is in

pain. What am I supposed to do? Doc says enema won’t help if suppositories are doing nothing. He says if nothing happens by Monday, surgery might have to happen. I’ve cried and cried today- trying not to let my kid see me. Don’t want him worrying more than he is.

This constipation stuff SUCKS. I’d use stronger words throughout, but out of respect for your poor eyes and brain, I’ll refrain! J As whiny as it sounds, this just isn’t fair. We’re seeing a holistic nutritionist later this week – maybe she’ll have some answers. We’ve also doubled his water intake – now I worry about hyponatreamia. Good God.

Thanks for listening. If you have any ideas, I’d be willing to consider them.

Tracie

Oh! While waiting for xray to be read at doc’s office, I showed him the miralax group. He was VERY impressed –he says he’s going to join. Hope so!! He said he didn’t realize lay people could generate so much information. Wouldn’t it be great to have a doc sharing advice? Showed him the files, etc. Showed him the adverse reaction reports – he had 3 questions:

1. Are there reports pertaining to PEG, as opposed to EG?

2. What is the molecular difference between PEG and EG?

3. Are the adverse reports only on people who used PEG and the other meds listed or is it a culmination of any kind of adverse reaction to the medications listdd?

[Guest guest]

If it comes to it, I will ask for mag citrate. Even with the colors

and additives, it’s better than PEG!

From:

miralax [mailto:miralax ] On Behalf Of jeanie

ward

Sent: Friday, December 12, 2008 3:10 PM

To: miralax

Subject: RE: my sadness

Golytely is PEG, can't they give mag citrate or phosphate

soda?

From: Happel's <ctajcharter (DOT) net>

Subject: my sadness

To: miralax@yahoogroups .com

Date: Sunday, December 7, 2008, 3:55 PM

As you all know and some have helped out with, our ds has been

enduring a huge back-up. At first, the doc (naturopath) said it’s gastritis

caused by constipation. Which it probably was…ds missed one day of school,

came home early the next because he didn’t feel good. Went to school and

church the next day, then missed the next two days of school and all

activities. Pain was his biggest problem – doubled over, crying, begging me

and God to make it stop. We were giving the rememdies the doc suggested –

massive doses of Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths

and slippery elm. It ended up where we up all night one night with his pain

and crying, so we went to get an xray at the chiro’s office – the doc is an

hour away, chiro is closer. Xray showed a mass in the middle of his belly

and his colon twisted. Called the doc, he told us to come right away. Got

there and another xray showed an incredible amount of back up – close to

impaction. Colon okay, not twisted. The whole time ds was in incredible

pain…writhing, crying, doubled over. Hard to do an xray that way. The only

way out was to go from the bottom up, not top down as we had been doing.

Doc suggested an enema and ds lost it right there – crying, screaming,

begging no…doc sent us home with instructions to do 3 suppositories a day.

Ds had a terrible fit each time…he would scream, cry and tense up. My dh

had to hold him down while I tried to get the suppository where it was

supposed to go – pain still continues, nothing is happening. TWELVE days of

this and NOTHING. He’s poo’ing little poops – nothing to write home about,

though. When does this end? This is our second major back up this year – I

thought I was doing everything right. Food, supplements, activity, toileting.

Everything I thought was right is not – I’m so confused and sad and in pain

because my child is in pain. What am I supposed to do? Doc says enema won’t

help if suppositories are doing nothing. He says if nothing happens by

Monday, surgery might have to happen. I’ve cried and cried today- trying

not to let my kid see me. Don’t want him worrying more than he is.

This constipation stuff SUCKS. I’d use stronger words throughout, but

out of respect for your poor eyes and brain, I’ll refrain! J As whiny as it sounds, this just

isn’t fair. We’re seeing a holistic nutritionist later this week – maybe

she’ll have some answers. We’ve also doubled his water intake – now I worry

about hyponatreamia. Good God.

Thanks for listening. If you have any ideas, I’d be willing to

consider them.

Tracie

Oh! While waiting for xray to be read at doc’s office, I showed him

the miralax group. He was VERY impressed –he says he’s going to join. Hope

so!! He said he didn’t realize lay people could generate so much information.

Wouldn’t it be great to have a doc sharing advice? Showed him the files,

etc. Showed him the adverse reaction reports – he had 3 questions:

1.

Are there reports pertaining to PEG, as opposed to EG?

2.

What is the molecular difference between PEG and EG?

3.

Are the adverse reports only on people who used PEG and the other

meds listed or is it a culmination of any kind of adverse reaction

to the medications listdd?

[Guest guest]

They have clear form of citrate(no coloring). Most likely just a little preservative.

From: Happel's <ctajcharter (DOT) net>Subject: my sadnessTo: miralax@yahoogroups .comDate: Sunday, December 7, 2008, 3:55 PM

As you all know and some have helped out with, our ds has been enduring a huge back-up. At first, the doc (naturopath) said it’s gastritis caused by constipation. Which it probably was…ds missed one day of school, came home early the next because he didn’t feel good. Went to school and church the next day, then missed the next two days of school and all activities. Pain was his biggest problem – doubled over, crying, begging me and God to make it stop. We were giving the rememdies the doc suggested – massive doses of Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm. It ended up where we up all night one night with his pain and crying, so we went to get an xray at the chiro’s office – the doc is an hour away, chiro is closer. Xray showed a mass in the middle of his belly and his colon twisted. Called the doc, he told us to come right away. Got there and another xray showed an incredible

amount of back up – close to impaction. Colon okay, not twisted. The whole time ds was in incredible pain…writhing, crying, doubled over. Hard to do an xray that way. The only way out was to go from the bottom up, not top down as we had been doing. Doc suggested an enema and ds lost it right there – crying, screaming, begging no…doc sent us home with instructions to do 3 suppositories a day. Ds had a terrible fit each time…he would scream, cry and tense up. My dh had to hold him down while I tried to get the suppository where it was supposed to go – pain still continues, nothing is happening. TWELVE days of this and NOTHING. He’s poo’ing little poops – nothing to write home about, though. When does this end? This is our second major back up this year – I thought I was doing everything right. Food, supplements, activity, toileting. Everything I thought was right is not – I’m so confused and sad and in pain because my child is in

pain. What am I supposed to do? Doc says enema won’t help if suppositories are doing nothing. He says if nothing happens by Monday, surgery might have to happen. I’ve cried and cried today- trying not to let my kid see me. Don’t want him worrying more than he is.

This constipation stuff SUCKS. I’d use stronger words throughout, but out of respect for your poor eyes and brain, I’ll refrain! J As whiny as it sounds, this just isn’t fair. We’re seeing a holistic nutritionist later this week – maybe she’ll have some answers. We’ve also doubled his water intake – now I worry about hyponatreamia. Good God. Thanks for listening. If you have any ideas, I’d be willing to consider them. Tracie Oh! While waiting for xray to be read at doc’s office, I showed him the miralax group. He was VERY impressed –he says he’s going to join. Hope so!! He said he didn’t realize lay people could generate so much information. Wouldn’t it be great to have a doc sharing advice? Showed him the files, etc. Showed him the adverse reaction reports – he had 3 questions: 1. Are there reports pertaining to PEG, as opposed to EG? 2. What is the molecular difference between PEG and EG? 3. Are the adverse reports only on people who used PEG and the other meds listed or is it a culmination of any kind of adverse reaction to the medications listdd?

[Guest guest]

the cherry contains peg

From: Happel's <ctajcharter (DOT) net>Subject: my sadnessTo: miralax@yahoogroups .comDate: Sunday, December 7, 2008, 3:55 PM

As you all know and some have helped out with, our ds has been enduring a huge back-up. At first, the doc (naturopath) said it’s gastritis caused by constipation. Which it probably was…ds missed one day of school, came home early the next because he didn’t feel good. Went to school and church the next day, then missed the next two days of school and all activities. Pain was his biggest problem – doubled over, crying, begging me and God to make it stop. We were giving the rememdies the doc suggested – massive doses of Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm. It ended up where we up all night one night with his pain and crying, so we went to get an xray at the chiro’s office – the doc is an hour away, chiro is closer. Xray showed a mass in the middle of his belly and his colon twisted. Called the doc, he told us to come right away. Got there and another xray showed an incredible

amount of back up – close to impaction. Colon okay, not twisted. The whole time ds was in incredible pain…writhing, crying, doubled over. Hard to do an xray that way. The only way out was to go from the bottom up, not top down as we had been doing. Doc suggested an enema and ds lost it right there – crying, screaming, begging no…doc sent us home with instructions to do 3 suppositories a day. Ds had a terrible fit each time…he would scream, cry and tense up. My dh had to hold him down while I tried to get the suppository where it was supposed to go – pain still continues, nothing is happening. TWELVE days of this and NOTHING. He’s poo’ing little poops – nothing to write home about, though. When does this end? This is our second major back up this year – I thought I was doing everything right. Food, supplements, activity, toileting. Everything I thought was right is not – I’m so confused and sad and in pain because my child is in

pain. What am I supposed to do? Doc says enema won’t help if suppositories are doing nothing. He says if nothing happens by Monday, surgery might have to happen. I’ve cried and cried today- trying not to let my kid see me. Don’t want him worrying more than he is.

This constipation stuff SUCKS. I’d use stronger words throughout, but out of respect for your poor eyes and brain, I’ll refrain! J As whiny as it sounds, this just isn’t fair. We’re seeing a holistic nutritionist later this week – maybe she’ll have some answers. We’ve also doubled his water intake – now I worry about hyponatreamia. Good God. Thanks for listening. If you have any ideas, I’d be willing to consider them. Tracie Oh! While waiting for xray to be read at doc’s office, I showed him the miralax group. He was VERY impressed –he says he’s going to join. Hope so!! He said he didn’t realize lay people could generate so much information. Wouldn’t it be great to have a doc sharing advice? Showed him the files, etc. Showed him the adverse reaction reports – he had 3 questions: 1. Are there reports pertaining to PEG, as opposed to EG? 2. What is the molecular difference between PEG and EG? 3. Are the adverse reports only on people who used PEG and the other meds listed or is it a culmination of any kind of adverse reaction to the medications listdd?

[Guest guest]

I’m sorry to hear all the circumstances around your son’s

constipation. It’s so frustrating. In one of the articles I sent out a

little bit ago, there are estimates that 80% of Americans suffer from chronic

constipation and medical tests can be upwards of $3000 per year per person.

There’s a lot surrounding those statements and a lot more of opinion

surrounding those statements, but the bottom line is when it comes to the kids,

it needs to fixed – somehow.

We’ve been dealing with our son’s constipation since

he was born. He was on Miralax for 5 years before I realized what it was doing

to him. We decided to put him on it completely blind – trusting the

doctors and their ideas. Things went downhill fast for him – he’s

totally fine other than constipation and the side effects of it. We’re

still dealing with those issues – sensory, tics, autism spectrum

(possibly). This back-up we’re experiencing now is the worst yet. We’ve

decided on a radical approach to intervention but the decision came from the

frustration and pain of watching him suffer with this issue for too long. I

cannot imagine him dealing with this the rest of his life and the possibility of

a lifetime of drugs and their side-effects. His diet is near-perfect (he doesn’t

eat like a normal kid, which is good, but at this peer-charged age it’s

challenging) and he’s on supplements to help him go, all of which

inevitably stop working after a certain amount of time. It’s

time-consuming and expensive to continually reevaluate everything.

We’re going to a clinic in Mexico called International

Biocare Hospital (www.biocarehospital.com)

where they’ll do intensive alternative therapies to heal his gut and

remove the toxicities from his body (from years of backup and heavy metals from

vaccines). We’ll be gone up to 21 days but they have an 80% success rate.

They deal mostly with cancer, but also other autoimmune diseases and chronic

illnesses. We know two families that have had enormous success and one of those

families knows an Amish family who’s child went from non-verbal autism to

having a few social “idiosyncracies” with this treatment. It’s

a huge step and leap of faith, but we’re done with chronic constipation.

We just want him to poop! J

Doc said sedation just to protect ds from the trauma of either

digital extraction, enema or whatever else may need to happen in a hospital

setting. However, he had his 5th water bottle enema in 2 days and we

finally got some stool going . Not all of it, but a start to give him some hope.

I think we may have to one more enema, but at least he’s not freaking out

about it – he’s seen that it can help.

From: miralax

[mailto:miralax ] On Behalf Of missyjroy

Sent: Saturday, December 13, 2008 5:36 PM

To: miralax

Subject: Re: my sadness

>

> From: Happel's <ctajcharter (DOT) net>

> Subject: my sadness

> To: miralax@yahoogroups .com

> Date: Sunday, December 7, 2008, 3:55 PM

>

> As you all know and some have helped out with, our ds has been

enduring a

> huge back-up. At first, the doc (naturopath) said it's gastritis

caused by

> constipation. Which it probably was.ds missed one day of school,

came home

> early the next because he didn't feel good. Went to school and

church the

> next day, then missed the next two days of school and all

activities. Pain

> was his biggest problem - doubled over, crying, begging me and God

to make

> it stop. We were giving the rememdies the doc suggested - massive

doses of

> Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and

slippery elm.

> It ended up where we up all night one night with his pain and

crying, so we

> went to get an xray at the chiro's office - the doc is an hour

away, chiro

> is closer. Xray showed a mass in the middle of his belly and his

colon

> twisted. Called the doc, he told us to come right away. Got there

and

> another xray showed an incredible amount of back up - close to

impaction.

> Colon okay, not twisted. The whole time ds was in incredible

pain.writhing,

> crying, doubled over. Hard to do an xray that way. The only way out

was to

> go from the bottom up, not top down as we had been doing. Doc

suggested an

> enema and ds lost it right there - crying, screaming, begging

no.doc sent us

> home with instructions to do 3 suppositories a day. Ds had a

terrible fit

> each time.he would scream, cry and tense up. My dh had to hold him

down

> while I tried to get the suppository where it was supposed to go -

pain

> still continues, nothing is happening. TWELVE days of this and

NOTHING. He's

> poo'ing little poops - nothing to write home about, though. When

does this

> end? This is our second major back up this year - I thought I was

doing

> everything right. Food, supplements, activity, toileting.

Everything I

> thought was right is not - I'm so confused and sad and in pain

because my

> child is in pain. What am I supposed to do? Doc says enema won't

help if

> suppositories are doing nothing. He says if nothing happens by

Monday,

> surgery might have to happen. I've cried and cried today- trying

not to let

> my kid see me. Don't want him worrying more than he is.

>

>

>

> This constipation stuff SUCKS. I'd use stronger words throughout,

but out of

> respect for your poor eyes and brain, I'll refrain! J As whiny as

it sounds,

> this just isn't fair. We're seeing a holistic nutritionist later

this week -

> maybe she'll have some answers. We've also doubled his water

intake - now I

> worry about hyponatreamia. Good God.

>

>

>

> Thanks for listening. If you have any ideas, I'd be willing to

consider

> them.

>

>

>

> Tracie

>

>

>

> Oh! While waiting for xray to be read at doc's office, I showed him

the

> miralax group. He was VERY impressed -he says he's going to join.

Hope so!!

> He said he didn't realize lay people could generate so much

information.

> Wouldn't it be great to have a doc sharing advice? Showed him the

files,

> etc. Showed him the adverse reaction reports - he had 3 questions:

>

> 1. Are there reports pertaining to PEG, as opposed to EG?

>

> 2. What is the molecular difference between PEG and EG?

>

> 3. Are the adverse reports only on people who used PEG and

the other

> meds listed or is it a culmination of any kind of adverse reaction

to the

> medications listdd?

>