Re: So Many Questions!

[Guest guest]

Hi, LarissaSorry about your two kids suffering with this. If you have good insurance, I would start with a naturopath. My daughter's naturopath is doing a huge allergy panel to see if she's allergic or intolerant to something that might contribute. My daughter was also given a probiotic powder from the naturopath and put on liquid magnesium. Also fish oil. I checked out a book from my library on probiotics. I would suggest reading about them. It tells you what probiotics are for what. Read anything on digestive health. I reserved another book from my library from Dr. Gershon. He's a neurobiologist from Columbia University. His book is called The Second Brain. It's about digestion and overall health. I'm amazed at the link between digestion and everything else in the body. Just read whatever you can and look at food allergies.

Another good book is "Is This Your Child" by Doris Rapp. It's about unrecognized allergies in children and adults. Good Luck!CharithSubject: So Many Questions!To: miralax Date: Tuesday, December 30, 2008, 5:46 PM

Hi everyone! I have so many questions for you guys and I hope I can

talk them out with you all! First of all, I have suffered with

chronic constipation my whole life, I have very little motility and

the only thing that helps? Coffee. I've been through 2 different GI

double blind studies and neither drug helped me.

My 3, almost 4, year old daughter has had constipation since she

started solids around 9 months old. Very very very dry stool, Xrays

showing total backups, etc. Before that she was breastfed and would

blow out 4 or 5 times a day. Her GI and Ped put her on Krystalose and

then Miralax. The Miralax helped, but I now know that this was the

cause of her DRASTIC behavior change. She never ever sleeps among

other things, but this is the worst part. She has been off of Miralax

for a year now but her behavior continues, not as bad as when she was

on it, but still noticeable. We've found that some fruit in large

quantities (and I'm talking a whole cantaloupe or several pearsa

day)keep her stool soft.

My 5 month old son could barely poop on his own since birth. He

passed meconium fine, but then would go weeks between BMs and would

only have one when we helped with a suppository. He is 100%

breastfed, too. We started him on a LITTLE bit of food, just the P

fruits, no cereal and his BMs have turned so hard. I actually had to

do some turd midwifery today, its so sad to see! All of the doctors

he has seen have told us that its normal, and he'll even out when he

starts solid. I know this is not true. We've moved onto babylax

enemas. I've stopped all solids and will continue to just breastfeed.

Now, my question is that I see everyone loves the Kirkman's chewable

probiotics. It is SO expensive and everyone here needs to take

probiotics I think, is there any other options? What about for an

infant? Any suggestions there? It is SO hard when doctors don't see

the severity of constipation! They have no idea! It doesn't help

that my husband, his mom, and his stepdad are all doctors and think

Miralax is as harmless as water. Please help!

Larissa

[Guest guest]

I have no idea when it comes to a five month old. My son is 11 and he has had severe constipation issues since about age 2. I feel so guilty, he has had constipation issues so long it has stretched his colon. He now does not have the urge to go until he is about 5 or 6 times more full than the average person, so he needs bulk, I give him benefiber 1 tsp 3x daily. I liked the way mineral oil worked (it makes it soft) and I used it on him for about a month, could cause harm, I was turned on to olive oil instead. I give him 1-2 teaspoons at night before bedtime. I also chop fresh garlic and give it to him about every 2-3 days. I make sure he drinks lots of water daily and also lots of watery foods, and yes a whole cantelope or a couple of cucumbers etc...Now, starting last night, I put him on 2 tsp flaxseed in one danactive yogurt. He was backed up because I backed of the routine during the holidays...WHAT WAS I THINKING?!?!

Anyway he went this morning, it had been about 5 or 6 days. As long as I stay with the routine, he generally goes every other day...I'm working towards every day but we are just not quite there yet. According to the docs, if we don't get his colon to shrink back down to size, it will be permanent, if it is not already. Doc says he is right at the age to loose elasticity in his colon. I have to make sure his poop does not get hard, that is why I give him the olive oil. I have been told that some kids have to take it with every meal. Cody does fine with just once a day. I worry about malabsorbtion with too much oil. I am really sorry to hear about the baby having trouble, I'm not sure what is safe and what is not for a baby. I know these days the pedi docs are not pushing water, maybe that will help if he will drink it, other than that, I have no idea. I'm sure there is someone else on this

group who can help you with that. Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE (2/08), Guilliam Barre Syndrome(3/08), Epstein Barr Virus-Mono(6/08), Environmental Allergies (mountain cedar & cats)(3/08), Eczema (since birth).

To: miralax Sent: Tuesday, December 30, 2008 7:46:18 PMSubject: So Many Questions!

Hi everyone! I have so many questions for you guys and I hope I can talk them out with you all! First of all, I have suffered with chronic constipation my whole life, I have very little motility and the only thing that helps? Coffee. I've been through 2 different GI double blind studies and neither drug helped me. My 3, almost 4, year old daughter has had constipation since she started solids around 9 months old. Very very very dry stool, Xrays showing total backups, etc. Before that she was breastfed and would blow out 4 or 5 times a day. Her GI and Ped put her on Krystalose and then Miralax. The Miralax helped, but I now know that this was the cause of her DRASTIC behavior change. She never ever sleeps among other things, but this is the worst part. She has been off of Miralax for a year now but her behavior continues, not as bad as when she was on it, but still noticeable. We've found that

some fruit in large quantities (and I'm talking a whole cantaloupe or several pearsa day)keep her stool soft. My 5 month old son could barely poop on his own since birth. He passed meconium fine, but then would go weeks between BMs and would only have one when we helped with a suppository. He is 100% breastfed, too. We started him on a LITTLE bit of food, just the P fruits, no cereal and his BMs have turned so hard. I actually had to do some turd midwifery today, its so sad to see! All of the doctors he has seen have told us that its normal, and he'll even out when he starts solid. I know this is not true. We've moved onto babylax enemas. I've stopped all solids and will continue to just breastfeed. Now, my question is that I see everyone loves the Kirkman's chewable probiotics. It is SO expensive and everyone here needs to take probiotics I think, is there any other options? What about for

an infant? Any suggestions there? It is SO hard when doctors don't see the severity of constipation! They have no idea! It doesn't help that my husband, his mom, and his stepdad are all doctors and think Miralax is as harmless as water. Please help!Larissa

[Guest guest]

Larissa,

when a child is that little they used to give Karyo syrup in their bottle, the sugar helps keep it soft......................doing enemas is needed sometimes but it can be a double edge sword...........they will inturn hold it all the more, because they know you are forcing them to do so.................the make MOM chewables, milk of magnesia, kid calm, even ex-lax chocoalte squares for a stool softener, you need to know what you're using, a stool softener or laxative, read the labels. Lactulose is given to children which is made from a milk sugar but Karyo syrup would be the most natural. It's worth a try...............lots of water, make it fun! Kirkman chewable probiotic comes with xylitol, which works like a laxative and works great...............

Jeanie

Subject: So Many Questions!To: miralax Date: Tuesday, December 30, 2008, 7:46 PM

Hi everyone! I have so many questions for you guys and I hope I can talk them out with you all! First of all, I have suffered with chronic constipation my whole life, I have very little motility and the only thing that helps? Coffee. I've been through 2 different GI double blind studies and neither drug helped me. My 3, almost 4, year old daughter has had constipation since she started solids around 9 months old. Very very very dry stool, Xrays showing total backups, etc. Before that she was breastfed and would blow out 4 or 5 times a day. Her GI and Ped put her on Krystalose and then Miralax. The Miralax helped, but I now know that this was the cause of her DRASTIC behavior change. She never ever sleeps among other things, but this is the worst part. She has been off of Miralax for a year now but her behavior continues, not as bad as when she was on it, but still noticeable. We've found that

some fruit in large quantities (and I'm talking a whole cantaloupe or several pearsa day)keep her stool soft. My 5 month old son could barely poop on his own since birth. He passed meconium fine, but then would go weeks between BMs and would only have one when we helped with a suppository. He is 100% breastfed, too. We started him on a LITTLE bit of food, just the P fruits, no cereal and his BMs have turned so hard. I actually had to do some turd midwifery today, its so sad to see! All of the doctors he has seen have told us that its normal, and he'll even out when he starts solid. I know this is not true. We've moved onto babylax enemas. I've stopped all solids and will continue to just breastfeed. Now, my question is that I see everyone loves the Kirkman's chewable probiotics. It is SO expensive and everyone here needs to take probiotics I think, is there any other options? What about for

an infant? Any suggestions there? It is SO hard when doctors don't see the severity of constipation! They have no idea! It doesn't help that my husband, his mom, and his stepdad are all doctors and think Miralax is as harmless as water. Please help!Larissa

[Guest guest]

gut check

http://enzymeuniversity.com/artman/publish/article_138.shtml---

Subject: Re: So Many Questions!To: miralax Date: Tuesday, December 30, 2008, 8:20 PM

Hi, LarissaSorry about your two kids suffering with this. If you have good insurance, I would start with a naturopath. My daughter's naturopath is doing a huge allergy panel to see if she's allergic or intolerant to something that might contribute. My daughter was also given a probiotic powder from the naturopath and put on liquid magnesium. Also fish oil. I checked out a book from my library on probiotics. I would suggest reading about them. It tells you what probiotics are for what. Read anything on digestive health. I reserved another book from my library from Dr. Gershon. He's a neurobiologist from Columbia University. His book is called The Second Brain. It's about digestion and overall health. I'm amazed at the link between digestion and everything else in the body. Just read whatever you can and look at food allergies. Another good book is "Is This Your Child" by Doris Rapp. It's about unrecognized

allergies in children and adults. Good Luck!Charith

From: larissaandlana <larissabrady@ gmail.com>Subject: So Many Questions!To: miralax@yahoogroups .comDate: Tuesday, December 30, 2008, 5:46 PM

Hi everyone! I have so many questions for you guys and I hope I can talk them out with you all! First of all, I have suffered with chronic constipation my whole life, I have very little motility and the only thing that helps? Coffee. I've been through 2 different GI double blind studies and neither drug helped me. My 3, almost 4, year old daughter has had constipation since she started solids around 9 months old. Very very very dry stool, Xrays showing total backups, etc. Before that she was breastfed and would blow out 4 or 5 times a day. Her GI and Ped put her on Krystalose and then Miralax. The Miralax helped, but I now know that this was the cause of her DRASTIC behavior change. She never ever sleeps among other things, but this is the worst part. She has been off of Miralax for a year now but her behavior continues, not as bad as when she was on it, but still noticeable. We've found that

some fruit in large quantities (and I'm talking a whole cantaloupe or several pearsa day)keep her stool soft. My 5 month old son could barely poop on his own since birth. He passed meconium fine, but then would go weeks between BMs and would only have one when we helped with a suppository. He is 100% breastfed, too. We started him on a LITTLE bit of food, just the P fruits, no cereal and his BMs have turned so hard. I actually had to do some turd midwifery today, its so sad to see! All of the doctors he has seen have told us that its normal, and he'll even out when he starts solid. I know this is not true. We've moved onto babylax enemas. I've stopped all solids and will continue to just breastfeed. Now, my question is that I see everyone loves the Kirkman's chewable probiotics. It is SO expensive and everyone here needs to take probiotics I think, is there any other options? What about for

an infant? Any suggestions there? It is SO hard when doctors don't see the severity of constipation! They have no idea! It doesn't help that my husband, his mom, and his stepdad are all doctors and think Miralax is as harmless as water. Please help!Larissa

[Guest guest]

Does anyone have any chronically constipated kids who are also nut allergic? My 9 year old son is severely nut allergic and the holistic doctor we went to didn't seem able to handle it. He even wrote a diet for my son that included nuts and banned gluten even though he is not at all allergic to gluten. I have been afraid to use any supplement he suggested due to his inability to safely manage a nut allergic kid. This doctor's saliva test also showed no nut allergy when all other allergy tests and anaphylaxis episodes show otherwise. So if anyone knows of safe fiber and digestive supplements for constipated nut allergic kids, I'd be grateful!Kim Sent from my Verizon Wireless BlackBerryFrom: deanna gentry Date: Tue, 30 Dec 2008 18:29:50 -0800 (PST)To: <miralax >Subject: Re: So Many Questions! I have no idea when it comes to a five month old. My son is 11 and he has had severe constipation issues since about age 2. I feel so guilty, he has had constipation issues so long it has stretched his colon. He now does not have the urge to go until he is about 5 or 6 times more full than the average person, so he needs bulk, I give him benefiber 1 tsp 3x daily. I liked the way mineral oil worked (it makes it soft) and I used it on him for about a month, could cause harm, I was turned on to olive oil instead. I give him 1-2 teaspoons at night before bedtime. I also chop fresh garlic and give it to him about every 2-3 days. I make sure he drinks lots of water daily and also lots of watery foods, and yes a whole cantelope or a couple of cucumbers etc...Now, starting last night, I put him on 2 tsp flaxseed in one danactive yogurt. He was backed up because I backed of the routine during the holidays...WHAT WAS I THINKING?!?! Anyway he went this morning, it had been about 5 or 6 days. As long as I stay with the routine, he generally goes every other day...I'm working towards every day but we are just not quite there yet. According to the docs, if we don't get his colon to shrink back down to size, it will be permanent, if it is not already. Doc says he is right at the age to loose elasticity in his colon. I have to make sure his poop does not get hard, that is why I give him the olive oil. I have been told that some kids have to take it with every meal. Cody does fine with just once a day. I worry about malabsorbtion with too much oil. I am really sorry to hear about the baby having trouble, I'm not sure what is safe and what is not for a baby. I know these days the pedi docs are not pushing water, maybe that will help if he will drink it, other than that, I have no idea. I'm sure there is someone else on this group who can help you with that. Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE (2/08), Guilliam Barre Syndrome(3/08), Epstein Barr Virus-Mono(6/08), Environmental Allergies (mountain cedar & cats)(3/08), Eczema (since birth).From: larissaandlana <larissabradygmail>To: miralax Sent: Tuesday, December 30, 2008 7:46:18 PMSubject: So Many Questions!Hi everyone! I have so many questions for you guys and I hope I can talk them out with you all! First of all, I have suffered with chronic constipation my whole life, I have very little motility and the only thing that helps? Coffee. I've been through 2 different GI double blind studies and neither drug helped me. My 3, almost 4, year old daughter has had constipation since she started solids around 9 months old. Very very very dry stool, Xrays showing total backups, etc. Before that she was breastfed and would blow out 4 or 5 times a day. Her GI and Ped put her on Krystalose and then Miralax. The Miralax helped, but I now know that this was the cause of her DRASTIC behavior change. She never ever sleeps among other things, but this is the worst part. She has been off of Miralax for a year now but her behavior continues, not as bad as when she was on it, but still noticeable. We've found that some fruit in large quantities (and I'm talking a whole cantaloupe or several pearsa day)keep her stool soft. My 5 month old son could barely poop on his own since birth. He passed meconium fine, but then would go weeks between BMs and would only have one when we helped with a suppository. He is 100% breastfed, too. We started him on a LITTLE bit of food, just the P fruits, no cereal and his BMs have turned so hard. I actually had to do some turd midwifery today, its so sad to see! All of the doctors he has seen have told us that its normal, and he'll even out when he starts solid. I know this is not true. We've moved onto babylax enemas. I've stopped all solids and will continue to just breastfeed. Now, my question is that I see everyone loves the Kirkman's chewable probiotics. It is SO expensive and everyone here needs to take probiotics I think, is there any other options? What about for an infant? Any suggestions there? It is SO hard when doctors don't see the severity of constipation! They have no idea! It doesn't help that my husband, his mom, and his stepdad are all doctors and think Miralax is as harmless as water. Please help!Larissa

[Guest guest]

Deanna,

How's the olive oil working for you? how do you get him to take it?

Jeanie

Subject: Re: So Many Questions!To: miralax Date: Tuesday, December 30, 2008, 8:29 PM

I have no idea when it comes to a five month old. My son is 11 and he has had severe constipation issues since about age 2. I feel so guilty, he has had constipation issues so long it has stretched his colon. He now does not have the urge to go until he is about 5 or 6 times more full than the average person, so he needs bulk, I give him benefiber 1 tsp 3x daily. I liked the way mineral oil worked (it makes it soft) and I used it on him for about a month, could cause harm, I was turned on to olive oil instead. I give him 1-2 teaspoons at night before bedtime. I also chop fresh garlic and give it to him about every 2-3 days. I make sure he drinks lots of water daily and also lots of watery foods, and yes a whole cantelope or a couple of cucumbers etc...Now, starting last night, I put him on 2 tsp flaxseed in one danactive yogurt. He was backed up because I backed of the routine during the holidays...WHAT WAS I THINKING?!?!

Anyway he went this morning, it had been about 5 or 6 days. As long as I stay with the routine, he generally goes every other day...I'm working towards every day but we are just not quite there yet. According to the docs, if we don't get his colon to shrink back down to size, it will be permanent, if it is not already. Doc says he is right at the age to loose elasticity in his colon. I have to make sure his poop does not get hard, that is why I give him the olive oil. I have been told that some kids have to take it with every meal. Cody does fine with just once a day. I worry about malabsorbtion with too much oil. I am really sorry to hear about the baby having trouble, I'm not sure what is safe and what is not for a baby. I know these days the pedi docs are not pushing water, maybe that will help if he will drink it, other than that, I have no idea. I'm sure there is someone else on this

group who can help you with that. Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE (2/08), Guilliam Barre Syndrome(3/08) , Epstein Barr Virus-Mono(6/ 08), Environmental Allergies (mountain cedar & cats)(3/08), Eczema (since birth).

From: larissaandlana <larissabrady@ gmail.com>To: miralax@yahoogroups .comSent: Tuesday, December 30, 2008 7:46:18 PMSubject: So Many Questions!

Hi everyone! I have so many questions for you guys and I hope I can talk them out with you all! First of all, I have suffered with chronic constipation my whole life, I have very little motility and the only thing that helps? Coffee. I've been through 2 different GI double blind studies and neither drug helped me. My 3, almost 4, year old daughter has had constipation since she started solids around 9 months old. Very very very dry stool, Xrays showing total backups, etc. Before that she was breastfed and would blow out 4 or 5 times a day. Her GI and Ped put her on Krystalose and then Miralax. The Miralax helped, but I now know that this was the cause of her DRASTIC behavior change. She never ever sleeps among other things, but this is the worst part. She has been off of Miralax for a year now but her behavior continues, not as bad as when she was on it, but still noticeable. We've found that

some fruit in large quantities (and I'm talking a whole cantaloupe or several pearsa day)keep her stool soft. My 5 month old son could barely poop on his own since birth. He passed meconium fine, but then would go weeks between BMs and would only have one when we helped with a suppository. He is 100% breastfed, too. We started him on a LITTLE bit of food, just the P fruits, no cereal and his BMs have turned so hard. I actually had to do some turd midwifery today, its so sad to see! All of the doctors he has seen have told us that its normal, and he'll even out when he starts solid. I know this is not true. We've moved onto babylax enemas. I've stopped all solids and will continue to just breastfeed. Now, my question is that I see everyone loves the Kirkman's chewable probiotics. It is SO expensive and everyone here needs to take probiotics I think, is there any other options? What about for

an infant? Any suggestions there? It is SO hard when doctors don't see the severity of constipation! They have no idea! It doesn't help that my husband, his mom, and his stepdad are all doctors and think Miralax is as harmless as water. Please help!Larissa

[Guest guest]

first of all, has he shown any reaction to nuts? or is the doctor just nuts? just kidding! but really, if he hasn't shown any reaction, their tests can have a positive/negative and may be incorrect..................I'd definetely go to a different doctor, isn't that like prescibing sugar to a diabetic? what is he thinking?

Jeanie

Subject: Re: So Many Questions!To: miralax Date: Tuesday, December 30, 2008, 9:32 PM

Does anyone have any chronically constipated kids who are also nut allergic? My 9 year old son is severely nut allergic and the holistic doctor we went to didn't seem able to handle it. He even wrote a diet for my son that included nuts and banned gluten even though he is not at all allergic to gluten. I have been afraid to use any supplement he suggested due to his inability to safely manage a nut allergic kid. This doctor's saliva test also showed no nut allergy when all other allergy tests and anaphylaxis episodes show otherwise. So if anyone knows of safe fiber and digestive supplements for constipated nut allergic kids, I'd be grateful!Kim Sent from my Verizon Wireless BlackBerry

From: deanna gentry Date: Tue, 30 Dec 2008 18:29:50 -0800 (PST)To: <miralax@yahoogroups .com>Subject: Re: So Many Questions!

I have no idea when it comes to a five month old. My son is 11 and he has had severe constipation issues since about age 2. I feel so guilty, he has had constipation issues so long it has stretched his colon. He now does not have the urge to go until he is about 5 or 6 times more full than the average person, so he needs bulk, I give him benefiber 1 tsp 3x daily. I liked the way mineral oil worked (it makes it soft) and I used it on him for about a month, could cause harm, I was turned on to olive oil instead. I give him 1-2 teaspoons at night before bedtime. I also chop fresh garlic and give it to him about every 2-3 days. I make sure he drinks lots of water daily and also lots of watery foods, and yes a whole cantelope or a couple of cucumbers etc...Now, starting last night, I put him on 2 tsp flaxseed in one danactive yogurt. He was backed up because I backed of the routine during the holidays...WHAT WAS I THINKING?!?!

Anyway he went this morning, it had been about 5 or 6 days. As long as I stay with the routine, he generally goes every other day...I'm working towards every day but we are just not quite there yet. According to the docs, if we don't get his colon to shrink back down to size, it will be permanent, if it is not already. Doc says he is right at the age to loose elasticity in his colon. I have to make sure his poop does not get hard, that is why I give him the olive oil. I have been told that some kids have to take it with every meal. Cody does fine with just once a day. I worry about malabsorbtion with too much oil. I am really sorry to hear about the baby having trouble, I'm not sure what is safe and what is not for a baby. I know these days the pedi docs are not pushing water, maybe that will help if he will drink it, other than that, I have no idea. I'm sure there is someone else on this

group who can help you with that. Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE (2/08), Guilliam Barre Syndrome(3/08) , Epstein Barr Virus-Mono(6/ 08), Environmental Allergies (mountain cedar & cats)(3/08), Eczema (since birth).

From: larissaandlana <larissabrady@ gmail.com>To: miralax@yahoogroups .comSent: Tuesday, December 30, 2008 7:46:18 PMSubject: So Many Questions!

Hi everyone! I have so many questions for you guys and I hope I can talk them out with you all! First of all, I have suffered with chronic constipation my whole life, I have very little motility and the only thing that helps? Coffee. I've been through 2 different GI double blind studies and neither drug helped me. My 3, almost 4, year old daughter has had constipation since she started solids around 9 months old. Very very very dry stool, Xrays showing total backups, etc. Before that she was breastfed and would blow out 4 or 5 times a day. Her GI and Ped put her on Krystalose and then Miralax. The Miralax helped, but I now know that this was the cause of her DRASTIC behavior change. She never ever sleeps among other things, but this is the worst part. She has been off of Miralax for a year now but her behavior continues, not as bad as when she was on it, but still noticeable. We've found that

some fruit in large quantities (and I'm talking a whole cantaloupe or several pearsa day)keep her stool soft. My 5 month old son could barely poop on his own since birth. He passed meconium fine, but then would go weeks between BMs and would only have one when we helped with a suppository. He is 100% breastfed, too. We started him on a LITTLE bit of food, just the P fruits, no cereal and his BMs have turned so hard. I actually had to do some turd midwifery today, its so sad to see! All of the doctors he has seen have told us that its normal, and he'll even out when he starts solid. I know this is not true. We've moved onto babylax enemas. I've stopped all solids and will continue to just breastfeed. Now, my question is that I see everyone loves the Kirkman's chewable probiotics. It is SO expensive and everyone here needs to take probiotics I think, is there any other options? What about for

an infant? Any suggestions there? It is SO hard when doctors don't see the severity of constipation! They have no idea! It doesn't help that my husband, his mom, and his stepdad are all doctors and think Miralax is as harmless as water. Please help!Larissa

[Guest guest]

It is working good. I just put it in a spoon and have him take it lake medicine. It doesn't taste real bad, the oil is just weird feeling in the mouth. He has his drink in hand when I give it to him. The olive oil is the secret to chopped garlic not burning or tasting bad, I just chop it up and put it in the spoon also, I use a small clove and make sure the garlic is completely covered by the olive oil, he just downs it. Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE (2/08), Guilliam Barre Syndrome(3/08), Epstein Barr Virus-Mono(6/08), Environmental Allergies (mountain cedar & cats)(3/08), Eczema (since birth).

To: miralax Sent: Tuesday, December 30, 2008 9:33:43 PMSubject: Re: So Many Questions!

Deanna,

How's the olive oil working for you? how do you get him to take it?

Jeanie

From: deanna gentry <dkg116yahoo (DOT) com>Subject: Re: So Many Questions!To: miralax@yahoogroups .comDate: Tuesday, December 30, 2008, 8:29 PM

I have no idea when it comes to a five month old. My son is 11 and he has had severe constipation issues since about age 2. I feel so guilty, he has had constipation issues so long it has stretched his colon. He now does not have the urge to go until he is about 5 or 6 times more full than the average person, so he needs bulk, I give him benefiber 1 tsp 3x daily. I liked the way mineral oil worked (it makes it soft) and I used it on him for about a month, could cause harm, I was turned on to olive oil instead. I give him 1-2 teaspoons at night before bedtime. I also chop fresh garlic and give it to him about every 2-3 days. I make sure he drinks lots of water daily and also lots of watery foods, and yes a whole cantelope or a couple of cucumbers etc...Now, starting last night, I put him on 2 tsp flaxseed in one danactive yogurt. He was backed up because I backed of the routine during the holidays...WHAT WAS I THINKING?!?!

Anyway he went this morning, it had been about 5 or 6 days. As long as I stay with the routine, he generally goes every other day...I'm working towards every day but we are just not quite there yet. According to the docs, if we don't get his colon to shrink back down to size, it will be permanent, if it is not already. Doc says he is right at the age to loose elasticity in his colon. I have to make sure his poop does not get hard, that is why I give him the olive oil. I have been told that some kids have to take it with every meal. Cody does fine with just once a day. I worry about malabsorbtion with too much oil. I am really sorry to hear about the baby having trouble, I'm not sure what is safe and what is not for a baby. I know these days the pedi docs are not pushing water, maybe that will help if he will drink it, other than that, I have no idea. I'm sure there is someone else on this

group who can help you with that. Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE (2/08), Guilliam Barre Syndrome(3/08) , Epstein Barr Virus-Mono(6/ 08), Environmental Allergies (mountain cedar & cats)(3/08), Eczema (since birth).

From: larissaandlana <larissabrady@ gmail.com>To: miralax@yahoogroups .comSent: Tuesday, December 30, 2008 7:46:18 PMSubject: So Many Questions!

Hi everyone! I have so many questions for you guys and I hope I can talk them out with you all! First of all, I have suffered with chronic constipation my whole life, I have very little motility and the only thing that helps? Coffee. I've been through 2 different GI double blind studies and neither drug helped me. My 3, almost 4, year old daughter has had constipation since she started solids around 9 months old. Very very very dry stool, Xrays showing total backups, etc. Before that she was breastfed and would blow out 4 or 5 times a day. Her GI and Ped put her on Krystalose and then Miralax. The Miralax helped, but I now know that this was the cause of her DRASTIC behavior change. She never ever sleeps among other things, but this is the worst part. She has been off of Miralax for a year now but her behavior continues, not as bad as when she was on it, but still noticeable. We've found that

some fruit in large quantities (and I'm talking a whole cantaloupe or several pearsa day)keep her stool soft. My 5 month old son could barely poop on his own since birth. He passed meconium fine, but then would go weeks between BMs and would only have one when we helped with a suppository. He is 100% breastfed, too. We started him on a LITTLE bit of food, just the P fruits, no cereal and his BMs have turned so hard. I actually had to do some turd midwifery today, its so sad to see! All of the doctors he has seen have told us that its normal, and he'll even out when he starts solid. I know this is not true. We've moved onto babylax enemas. I've stopped all solids and will continue to just breastfeed. Now, my question is that I see everyone loves the Kirkman's chewable probiotics. It is SO expensive and everyone here needs to take probiotics I think, is there any other options? What about for

an infant? Any suggestions there? It is SO hard when doctors don't see the severity of constipation! They have no idea! It doesn't help that my husband, his mom, and his stepdad are all doctors and think Miralax is as harmless as water. Please help!Larissa

[Guest guest]

What about olive oil? Is it safe? Maybe instead of a fiber supplements, try more fruits??? I really don't know much about nut allergies, sorry. Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE (2/08), Guilliam Barre Syndrome(3/08), Epstein Barr Virus-Mono(6/08), Environmental Allergies (mountain cedar & cats)(3/08), Eczema (since birth).

To: miralax Sent: Tuesday, December 30, 2008 9:32:30 PMSubject: Re: So Many Questions!

Does anyone have any chronically constipated kids who are also nut allergic? My 9 year old son is severely nut allergic and the holistic doctor we went to didn't seem able to handle it. He even wrote a diet for my son that included nuts and banned gluten even though he is not at all allergic to gluten. I have been afraid to use any supplement he suggested due to his inability to safely manage a nut allergic kid. This doctor's saliva test also showed no nut allergy when all other allergy tests and anaphylaxis episodes show otherwise. So if anyone knows of safe fiber and digestive supplements for constipated nut allergic kids, I'd be grateful!Kim Sent from my Verizon Wireless BlackBerry

From: deanna gentry Date: Tue, 30 Dec 2008 18:29:50 -0800 (PST)To: <miralax@yahoogroups .com>Subject: Re: So Many Questions!

I have no idea when it comes to a five month old. My son is 11 and he has had severe constipation issues since about age 2. I feel so guilty, he has had constipation issues so long it has stretched his colon. He now does not have the urge to go until he is about 5 or 6 times more full than the average person, so he needs bulk, I give him benefiber 1 tsp 3x daily. I liked the way mineral oil worked (it makes it soft) and I used it on him for about a month, could cause harm, I was turned on to olive oil instead. I give him 1-2 teaspoons at night before bedtime. I also chop fresh garlic and give it to him about every 2-3 days. I make sure he drinks lots of water daily and also lots of watery foods, and yes a whole cantelope or a couple of cucumbers etc...Now, starting last night, I put him on 2 tsp flaxseed in one danactive yogurt. He was backed up because I backed of the routine during the holidays...WHAT WAS I THINKING?!?!

Anyway he went this morning, it had been about 5 or 6 days. As long as I stay with the routine, he generally goes every other day...I'm working towards every day but we are just not quite there yet. According to the docs, if we don't get his colon to shrink back down to size, it will be permanent, if it is not already. Doc says he is right at the age to loose elasticity in his colon. I have to make sure his poop does not get hard, that is why I give him the olive oil. I have been told that some kids have to take it with every meal. Cody does fine with just once a day. I worry about malabsorbtion with too much oil. I am really sorry to hear about the baby having trouble, I'm not sure what is safe and what is not for a baby. I know these days the pedi docs are not pushing water, maybe that will help if he will drink it, other than that, I have no idea. I'm sure there is someone else on this

group who can help you with that. Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE (2/08), Guilliam Barre Syndrome(3/08) , Epstein Barr Virus-Mono(6/ 08), Environmental Allergies (mountain cedar & cats)(3/08), Eczema (since birth).

From: larissaandlana <larissabrady@ gmail.com>To: miralax@yahoogroups .comSent: Tuesday, December 30, 2008 7:46:18 PMSubject: So Many Questions!

Hi everyone! I have so many questions for you guys and I hope I can talk them out with you all! First of all, I have suffered with chronic constipation my whole life, I have very little motility and the only thing that helps? Coffee. I've been through 2 different GI double blind studies and neither drug helped me. My 3, almost 4, year old daughter has had constipation since she started solids around 9 months old. Very very very dry stool, Xrays showing total backups, etc. Before that she was breastfed and would blow out 4 or 5 times a day. Her GI and Ped put her on Krystalose and then Miralax. The Miralax helped, but I now know that this was the cause of her DRASTIC behavior change. She never ever sleeps among other things, but this is the worst part. She has been off of Miralax for a year now but her behavior continues, not as bad as when she was on it, but still noticeable. We've found that

some fruit in large quantities (and I'm talking a whole cantaloupe or several pearsa day)keep her stool soft. My 5 month old son could barely poop on his own since birth. He passed meconium fine, but then would go weeks between BMs and would only have one when we helped with a suppository. He is 100% breastfed, too. We started him on a LITTLE bit of food, just the P fruits, no cereal and his BMs have turned so hard. I actually had to do some turd midwifery today, its so sad to see! All of the doctors he has seen have told us that its normal, and he'll even out when he starts solid. I know this is not true. We've moved onto babylax enemas. I've stopped all solids and will continue to just breastfeed. Now, my question is that I see everyone loves the Kirkman's chewable probiotics. It is SO expensive and everyone here needs to take probiotics I think, is there any other options? What about for

an infant? Any suggestions there? It is SO hard when doctors don't see the severity of constipation! They have no idea! It doesn't help that my husband, his mom, and his stepdad are all doctors and think Miralax is as harmless as water. Please help!Larissa

[Guest guest]

He has been hospitalized 3 times for nut issues since he was 2 1/2 years old - two for ingestion and one just for touching a cookie with a nut in it. So yes he's truly allergic :/ and according to his MD allergist the nut allergy is getting worse. He grew out of egg and soy and oat allergies thank God. Sent from my Verizon Wireless BlackBerryFrom: jeanie ward Date: Tue, 30 Dec 2008 19:37:18 -0800 (PST)To: <miralax >Subject: Re: So Many Questions! first of all, has he shown any reaction to nuts? or is the doctor just nuts? just kidding! but really, if he hasn't shown any reaction, their tests can have a positive/negative and may be incorrect..................I'd definetely go to a different doctor, isn't that like prescibing sugar to a diabetic? what is he thinking?JeanieFrom: ktjackson421aol <ktjackson421aol>Subject: Re: So Many Questions!To: miralax Date: Tuesday, December 30, 2008, 9:32 PMDoes anyone have any chronically constipated kids who are also nut allergic? My 9 year old son is severely nut allergic and the holistic doctor we went to didn't seem able to handle it. He even wrote a diet for my son that included nuts and banned gluten even though he is not at all allergic to gluten. I have been afraid to use any supplement he suggested due to his inability to safely manage a nut allergic kid. This doctor's saliva test also showed no nut allergy when all other allergy tests and anaphylaxis episodes show otherwise. So if anyone knows of safe fiber and digestive supplements for constipated nut allergic kids, I'd be grateful!Kim Sent from my Verizon Wireless BlackBerryFrom: deanna gentry Date: Tue, 30 Dec 2008 18:29:50 -0800 (PST)To: <miralax@yahoogroups .com>Subject: Re: So Many Questions!I have no idea when it comes to a five month old. My son is 11 and he has had severe constipation issues since about age 2. I feel so guilty, he has had constipation issues so long it has stretched his colon. He now does not have the urge to go until he is about 5 or 6 times more full than the average person, so he needs bulk, I give him benefiber 1 tsp 3x daily. I liked the way mineral oil worked (it makes it soft) and I used it on him for about a month, could cause harm, I was turned on to olive oil instead. I give him 1-2 teaspoons at night before bedtime. I also chop fresh garlic and give it to him about every 2-3 days. I make sure he drinks lots of water daily and also lots of watery foods, and yes a whole cantelope or a couple of cucumbers etc...Now, starting last night, I put him on 2 tsp flaxseed in one danactive yogurt. He was backed up because I backed of the routine during the holidays...WHAT WAS I THINKING?!?! Anyway he went this morning, it had been about 5 or 6 days. As long as I stay with the routine, he generally goes every other day...I'm working towards every day but we are just not quite there yet. According to the docs, if we don't get his colon to shrink back down to size, it will be permanent, if it is not already. Doc says he is right at the age to loose elasticity in his colon. I have to make sure his poop does not get hard, that is why I give him the olive oil. I have been told that some kids have to take it with every meal. Cody does fine with just once a day. I worry about malabsorbtion with too much oil. I am really sorry to hear about the baby having trouble, I'm not sure what is safe and what is not for a baby. I know these days the pedi docs are not pushing water, maybe that will help if he will drink it, other than that, I have no idea. I'm sure there is someone else on this group who can help you with that. Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE (2/08), Guilliam Barre Syndrome(3/08) , Epstein Barr Virus-Mono(6/ 08), Environmental Allergies (mountain cedar & cats)(3/08), Eczema (since birth).From: larissaandlana <larissabrady@ gmail.com>To: miralax@yahoogroups .comSent: Tuesday, December 30, 2008 7:46:18 PMSubject: So Many Questions!Hi everyone! I have so many questions for you guys and I hope I can talk them out with you all! First of all, I have suffered with chronic constipation my whole life, I have very little motility and the only thing that helps? Coffee. I've been through 2 different GI double blind studies and neither drug helped me. My 3, almost 4, year old daughter has had constipation since she started solids around 9 months old. Very very very dry stool, Xrays showing total backups, etc. Before that she was breastfed and would blow out 4 or 5 times a day. Her GI and Ped put her on Krystalose and then Miralax. The Miralax helped, but I now know that this was the cause of her DRASTIC behavior change. She never ever sleeps among other things, but this is the worst part. She has been off of Miralax for a year now but her behavior continues, not as bad as when she was on it, but still noticeable. We've found that some fruit in large quantities (and I'm talking a whole cantaloupe or several pearsa day)keep her stool soft. My 5 month old son could barely poop on his own since birth. He passed meconium fine, but then would go weeks between BMs and would only have one when we helped with a suppository. He is 100% breastfed, too. We started him on a LITTLE bit of food, just the P fruits, no cereal and his BMs have turned so hard. I actually had to do some turd midwifery today, its so sad to see! All of the doctors he has seen have told us that its normal, and he'll even out when he starts solid. I know this is not true. We've moved onto babylax enemas. I've stopped all solids and will continue to just breastfeed. Now, my question is that I see everyone loves the Kirkman's chewable probiotics. It is SO expensive and everyone here needs to take probiotics I think, is there any other options? What about for an infant? Any suggestions there? It is SO hard when doctors don't see the severity of constipation! They have no idea! It doesn't help that my husband, his mom, and his stepdad are all doctors and think Miralax is as harmless as water. Please help!Larissa

[Guest guest]

we use epsom salt baths as part of our daughters therapy for autism/sensory processing disorder. It does work and she seems to crave the "soak baths" but I was told to never introduce soap into the bath with epsom salts--something about the alkaloids in the soap alter the process. So it's just a soak/play bath and there is a specific dosage per body weight by the autism therapy stds for it to work properly, and it has to be for at least 20 minutes in our therapy sessions for my daughter. I can try and find the article and give you the info or the link if anyone wants to read it.

RE: So Many Questions!

I am not Deanna but I started Olive Oil with my daughter yesterday….like I said before-my daughter always poops daily HOWEVER she has been going MORE….and they seemed pretty big and bulky….I have been giving her 1 tsp Extra Virgin Olive Oil after lunch and right before her nap. I have also increased her water intake by having her drink it with a straw-she seems to like this….but anyway-both yesterday and today she had at least 2 large BM’s each day and she said they did not hurt. I plan to continue with the olive oil and extra water intake to see how this goes. We also cut out the banana intake and rice…and I have added a bit more pear juice, steamed veggies, etc. But I think Olive Oil is def. working for us and she does not mind the taste either-says it is oily in her mouth-that is all.

Hope this helps someone else!

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.1/1869 - Release Date: 12/30/2008 12:06 PM

[Guest guest]

We have sensory stuff here as well and I have heard about it

from other parents-would love that article!

Thanks

J

From:

miralax [mailto:miralax ] On Behalf Of

Melton

Sent: Wednesday, December 31, 2008 4:01 PM

To: miralax

Subject: Re: So Many Questions!

we

use epsom salt baths as part of our daughters therapy for autism/sensory

processing disorder. It does work and she seems to crave the " soak baths "

but I was told to never introduce soap into the bath with epsom

salts--something about the alkaloids in the soap alter the process. So it's

just a soak/play bath and there is a specific dosage per body weight by the

autism therapy stds for it to work properly, and it has to be for at least 20

minutes in our therapy sessions for my daughter. I can try and find the article

and give you the info or the link if anyone wants to read it.

-----

Original Message -----

From: Doan

To: miralax

Sent: Wednesday, December

31, 2008 12:48 PM

Subject: RE: So

Many Questions!

I am not the Epsom salt expert-but I

have heard it works, (it worked for us) and the package says natural laxative

(my dh just buys it at costco I believe-a bunch at a time but you can get it

just about anywhere) I pour about 1-2 cups in the bath at night for a warm bath

and have my daughter soak in it for a good 20-30 min. I have also heard it

releases toxins in the body…

I don’t know anything about this

site but here is some info you could read up on and do your own

research…..we don’t ever drink it or use it any other way than in

the bath….warm baths are also supposed to help but the added Epsom salts

(magnesium sulfate) is what has done more for us than just the bath water

itself.

http://www.puristat.com/constipation/epsomsalt.aspx

From:

miralax [mailto:miralax ] On Behalf Of ktjackson421@...

Sent: Wednesday, December 31, 2008 9:38 AM

To: miralax

Subject: Re: So Many Questions!

So the epsom salt bath helps? Anybody know how that works?

Sent from my Verizon Wireless BlackBerry

From:

" Doan "

Date: Wed, 31 Dec 2008 08:48:49 -0800

To: <miralax >

Subject: RE: So Many Questions!

I use Extra Virgin Olive Oil-and it is a

good brand….my daughter likes the taste-McEvoy Ranch Certified Organic.

In three days we have seen some MAJOR BM

movements in our house with the following :

-1tsp Olive Oil before her nap

-Increased water/fluids/pear juice (I

have her drinking water through a straw at mealtime and she MUST drink it all)

-Grapefruit Seed Extract (not liquid) in

the tablet form-1-3x a day-we have been using grapefruit seed extract to

naturally cause yeast die off-You can’t just give your child GSE 2-3x a

day on their first dose-we have built up to this over several weeks but I am

not being very consistent

-Increased our probiotics and Ester C

-Warm Epsom Salt Baths (Natural Laxative)

I hope these suggestions help someone.

We can’t believe the results around here!!!

From:

miralax [mailto:miralax ] On Behalf Of

Hudson

Sent: Wednesday, December 31, 2008 4:51 AM

To: miralax

Subject: Re: So Many Questions!

can it be regular olive oil or does it need to be EVOO

?

Kathy

RE:

So Many Questions!

I am not Deanna but I started Olive Oil

with my daughter yesterday….like I said before-my daughter always poops

daily HOWEVER she has been going MORE….and they seemed pretty big and

bulky….I have been giving her 1 tsp Extra Virgin Olive Oil after lunch

and right before her nap. I have also increased her water intake by

having her drink it with a straw-she seems to like this….but anyway-both

yesterday and today she had at least 2 large BM’s each day and she said

they did not hurt. I plan to continue with the olive oil and extra water intake

to see how this goes. We also cut out the banana intake and rice…and I

have added a bit more pear juice, steamed veggies, etc. But I think Olive Oil

is def. working for us and she does not mind the taste either-says it is oily

in her mouth-that is all.

Hope this helps someone else!

No virus found in this incoming message.

Checked by AVG - http://www.avg.com

Version: 8.0.176 / Virus Database: 270.10.1/1869 - Release Date: 12/30/2008

12:06 PM

[Guest guest]

they also have an epsom salt gel thru kirkmans--

RE: So Many Questions!> > > > I am not Deanna but I started Olive Oil with my daughter yesterday..like I> said before-my daughter always poops daily HOWEVER she has been going> MORE..and they seemed pretty big and bulky..I have been giving her 1 tsp> Extra Virgin Olive Oil after lunch and right before her nap. I have also> increased her water intake by having her drink it with a straw-she seems to> like this..but anyway-both yesterday and today she had at least 2 large BM's> each day and she said they did not hurt. I plan to continue with the olive> oil and extra water intake to see how this goes. We also cut out the banana> intake and rice.and I have added a bit more pear juice, steamed veggies,> etc. But I think Olive Oil is def. working for us and she does not mind the> taste either-says it is oily in her mouth-that is all.> > > > Hope this helps someone else!> > > > > > _____ > > > No virus found in this incoming message.> Checked by AVG - http://www.avg.com > Version: 8.0.176 / Virus Database: 270.10.1/1869 - Release Date: 12/30/2008> 12:06 PM>

[Guest guest]

will do--I'll hunt it down tonight or tomorrow and post it

RE: So Many Questions!

I am not Deanna but I started Olive Oil with my daughter yesterday….like I said before-my daughter always poops daily HOWEVER she has been going MORE….and they seemed pretty big and bulky….I have been giving her 1 tsp Extra Virgin Olive Oil after lunch and right before her nap. I have also increased her water intake by having her drink it with a straw-she seems to like this….but anyway-both yesterday and today she had at least 2 large BM’s each day and she said they did not hurt. I plan to continue with the olive oil and extra water intake to see how this goes. We also cut out the banana intake and rice…and I have added a bit more pear juice, steamed veggies, etc. But I think Olive Oil is def. working for us and she does not mind the taste either-says it is oily in her mouth-that is all.

Hope this helps someone else!

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.1/1869 - Release Date: 12/30/2008 12:06 PM

[Guest guest]

here is the link

it's a pdf file--I hope it helps others with SPD and those on the spectrum

www.treatingautism.co.uk/cms/file/173

RE: So Many Questions!

I am not Deanna but I started Olive Oil with my daughter yesterday….like I said before-my daughter always poops daily HOWEVER she has been going MORE….and they seemed pretty big and bulky….I have been giving her 1 tsp Extra Virgin Olive Oil after lunch and right before her nap. I have also increased her water intake by having her drink it with a straw-she seems to like this….but anyway-both yesterday and today she had at least 2 large BM’s each day and she said they did not hurt. I plan to continue with the olive oil and extra water intake to see how this goes. We also cut out the banana intake and rice…and I have added a bit more pear juice, steamed veggies, etc. But I think Olive Oil is def. working for us and she does not mind the taste either-says it is oily in her mouth-that is all.

Hope this helps someone else!

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.1/1869 - Release Date: 12/30/2008 12:06 PM

[Guest guest]

this is the original article I learned from for the SPD therapy

http://www.sensory-processing-disorder.com/The_SPD_Companion-Epsom-Salts-Baths.html

RE: So Many Questions!

I am not Deanna but I started Olive Oil with my daughter yesterday….like I said before-my daughter always poops daily HOWEVER she has been going MORE….and they seemed pretty big and bulky….I have been giving her 1 tsp Extra Virgin Olive Oil after lunch and right before her nap. I have also increased her water intake by having her drink it with a straw-she seems to like this….but anyway-both yesterday and today she had at least 2 large BM’s each day and she said they did not hurt. I plan to continue with the olive oil and extra water intake to see how this goes. We also cut out the banana intake and rice…and I have added a bit more pear juice, steamed veggies, etc. But I think Olive Oil is def. working for us and she does not mind the taste either-says it is oily in her mouth-that is all.

Hope this helps someone else!

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.1/1869 - Release Date: 12/30/2008 12:06 PM

[Guest guest]

, That's a good site. Do you know if those colon cleansing products are good quality? If not, can anyone

recommend a good colon/liver cleanse product?

TIA,

Kathy

RE: So Many Questions!

I am not the Epsom salt expert-but I have heard it works, (it worked for us) and the package says natural laxative (my dh just buys it at costco I believe-a bunch at a time but you can get it just about anywhere) I pour about 1-2 cups in the bath at night for a warm bath and have my daughter soak in it for a good 20-30 min. I have also heard it releases toxins in the body…

I don’t know anything about this site but here is some info you could read up on and do your own research…..we don’t ever drink it or use it any other way than in the bath….warm baths are also supposed to help but the added Epsom salts (magnesium sulfate) is what has done more for us than just the bath water itself.

http://www.puristat.com/constipation/epsomsalt.aspx