Guest guest Posted November 18, 2003 Report Share Posted November 18, 2003 Prayers are with you.. ((((((((((TESS)))))))))) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2003 Report Share Posted November 18, 2003 Prayers are with you ((((((((((STEPHANIE)))))))))) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2003 Report Share Posted November 18, 2003 sorry tess, i do not like this time of year either. the weather plays havoc with my life and although i have been working most of the year and feeling fulfilled. it relentlesly reminds me that i am a mess!! hope the rheumi can help. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2003 Report Share Posted November 18, 2003 Me too Tess. it's 2:15 here and the Vicodin isn't touching the pain. The damp cool weather here in S. CA is really causing me some misery. I've been all whiney and teary eyed too. I know this will pass, but does life have to be so awful now? Two years from now would be good for me. ((((Tess)))) > Hi...this has been a sad day. Not altogether sure why...I know I am > weary and disappointed that the ra monster is being a creep. There was > a message left by my rheumy's nurse to call her - I'm wondering if > they've got word on Humira. I feel happy and contented on many levels, > but the sadness has just permeated everything today. Any small > improvement from the prednisone taper has disappeared into red, blown-up > knuckles, and pockets of fluid. I walk like a pretzel shaped Quasimoto > the first couple hours of the day. These are the times I really wished > I had a hubby to hold me. > > Just needed to pour out some " whine. " > > Tess : ( : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 Lynn, Lots of our women had to work even if they were ill. They had to have an income and insurance. So, don't give up hope. We get better with time. Lynda At 08:15 PM 6/7/2007, you wrote: >Good evening ladies, > >Just getting a little depressed reading recent e-mails on the board. >As you all know I am still working full-time because I can not afford >to lose my job or my insurance. Yet I read how many of you are too >sick to work. I am trying to stay positive that I am recovering and >that as I recover my health won't get worse where I end up disabled. I >just need some positive support that there are others who are able to >work. > >I don't think it helps that my hip is aching something horrible and I >have had to take naproxsyn every day so my thyroid won't inflame. > >Sorry I am such a downer! > >Hugs, >Lynn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 Lynn, I think Patty and Lynda will agree that we have the biggest group of really sick women ever right now . . . The good news is that, if you're like everyone else, you're going to get much better too! It just takes time, discipline and patience! You're ahead because you have the support of the group . . . Patty, Lynda and I had to figure things out for ourselves. Mark your calender .. . A year from now, I'll bet you'll be telling us how well you are doing! Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 Rogene, All I can say is how true, how true, and amen to that. Lynda At 10:09 PM 6/7/2007, you wrote: >Lynn, > >I think Patty and Lynda will agree that we have the biggest group of >really sick women ever right now . . . > >The good news is that, if you're like everyone else, you're going to >get much better too! > >It just takes time, discipline and patience! > >You're ahead because you have the support of the group . . . Patty, >Lynda and I had to figure things out for ourselves. > >Mark your calender .. . A year from now, I'll bet you'll be telling >us how well you are doing! > >Hugs and prayers, > >Rogene > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 Hello Lynn ~ God Bless you ~ I am sorry you are having such a hard time. I know when you get everything back in balance you are gonna look back on these days, and say, whew, that was a scarey ride ! But at that time you will be feeling so much better, and you will be able to breathe and feel good. If I would have had detox of candida and heavy metals back then and not had these salines in me, my life would be alot different now. So, I took a detour and got an education, and gained a world full of friends along the way.......hey, I couldnt be more thankful ! ! Sending you lots of love, positive and healing energy, strength, hope, and many blessings ~ Dede Just remember, going thru and having all these emotions, helps you grow, and it releases endorphins, and that is a good thing ! Big Hugs ~ See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 Lynn, we will give you hope. Many of us have had some very severe health problems, and we are still here. My hip was so bad many years ago that my doctor had to inject me with an anti-inflammatory drug so that I could have some comfort. The same thing with my shoulders, but that is all history. I am in pain, but it is something that I can live with. Honey, you will not be disabled, but you might have more health problems. That is why we keep a journal of all of the things that have happened to us. Please do not be sad, we are all here to help you...love you........Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~```` Sad Good evening ladies,Just getting a little depressed reading recent e-mails on the board. As you all know I am still working full-time because I can not afford to lose my job or my insurance. Yet I read how many of you are too sick to work. I am trying to stay positive that I am recovering and that as I recover my health won't get worse where I end up disabled. I just need some positive support that there are others who are able to work. I don't think it helps that my hip is aching something horrible and I have had to take naproxsyn every day so my thyroid won't inflame. Sorry I am such a downer! Hugs, Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 Bindi ~ So well put..........this group is priceless ! ! ! See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 Lynn, I think it depends on the type of job you have. I had a stressful job with a lot of walking too. My profession is just a stressful one in nature, but never bothered me at all until this. Try to remember you are on the upswing, that keeps me going. My husband and mother notice it, because even though I have the spells, I am not passing out anymore. Last year at this time I was passing out for 2 days at a time. And I could barely walk across a room. I bet you have improved too, and you are just out of explant, so it will get better. Most of the women here say it takes a year or two, and we are just not there yet. When you are at work, try to just do what you can, and not stress on overdoing it. And take it one week at a time. And it is okay to be sad sometimes, who wouldn't be with all this junk! HUGS Nan PS my son grabbed the envelope I sent you with chocolate all over his hands, lucky kid to eat chocolate huh! LOL! --- In , " spinkscl " <spinkscl@...> wrote: > > Good evening ladies, > > Just getting a little depressed reading recent e-mails on the board. > As you all know I am still working full-time because I can not afford > to lose my job or my insurance. Yet I read how many of you are too > sick to work. I am trying to stay positive that I am recovering and > that as I recover my health won't get worse where I end up disabled. I > just need some positive support that there are others who are able to > work. > > I don't think it helps that my hip is aching something horrible and I > have had to take naproxsyn every day so my thyroid won't inflame. > > Sorry I am such a downer! > > Hugs, > Lynn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 Lynn, After not working for two years, I'm working again too, and though I don't have the energy I had before I got sick, I am definitely better. It's been a year and a half since explant, so I am not at the two year mark that most women say is the average length of time it takes to get better. I have more and more good days and less bad ones. I still have to be very careful with my health, and probably always will, but there's definitely hope! You'll get there. It takes time. I know how hard it is to believe you will get better when you feel crappy a lot of the time. It's so relentless. But you will. Back when I felt REALLY crappy I'd sometimes email this group, just like you are doing, seeking some ray of hope, and Rogene, Lynda, Patty, Lea (and Molly, when she was around) and others would always encourage me, and it really helped. This group is priceless. Bindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 Hi Lynn, We all get those days where we feel low. It's ok, and it'll pass. I know how scary all of this is, and I definitely have those days where I have to fight off the blues and where the unknown freaks me out. I have worked and gone to school during this illness, during times where I didn't feel all that great, and honestly it seemed to help keep my mind occupied. It made me feel more like a normal person to be in the working world. Sis --- In , " spinkscl " <spinkscl@...> wrote: > > Good evening ladies, > > Just getting a little depressed reading recent e-mails on the board. > As you all know I am still working full-time because I can not afford > to lose my job or my insurance. Yet I read how many of you are too > sick to work. I am trying to stay positive that I am recovering and > that as I recover my health won't get worse where I end up disabled. I > just need some positive support that there are others who are able to > work. > > I don't think it helps that my hip is aching something horrible and I > have had to take naproxsyn every day so my thyroid won't inflame. > > Sorry I am such a downer! > > Hugs, > Lynn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 Thanks for the encouragement Rogene. I truly try to stay positive but sometimes I break mentally and last night was one of those times. Today was better. I am a little pooped from working all week but I will be in bed early and I have the weekend to re-coop Love, Lynn > > Lynn, > > I think Patty and Lynda will agree that we have the biggest group of really sick women ever right now . . . > > The good news is that, if you're like everyone else, you're going to get much better too! > > It just takes time, discipline and patience! > > You're ahead because you have the support of the group . . . Patty, Lynda and I had to figure things out for ourselves. > > Mark your calender .. . A year from now, I'll bet you'll be telling us how well you are doing! > > Hugs and prayers, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 Lea, I guess I am just holding on to the hope that because I was properly explanted that I many of these health issues will subside instead of increase. Thanks for the support. Lynn > > Lynn, we will give you hope. Many of us have had some very severe health problems, and we are still here. My hip was so bad many years ago that my doctor had to inject me with an anti-inflammatory drug so that I could have some comfort. The same thing with my shoulders, but that is all history. I am in pain, but it is something that I can live with. > > Honey, you will not be disabled, but you might have more health problems. That is why we keep a journal of all of the things that have happened to us. > > Please do not be sad, we are all here to help you...love you........Lea > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~```` > Sad > > > Good evening ladies, > > Just getting a little depressed reading recent e-mails on the board. > As you all know I am still working full-time because I can not afford > to lose my job or my insurance. Yet I read how many of you are too > sick to work. I am trying to stay positive that I am recovering and > that as I recover my health won't get worse where I end up disabled. I > just need some positive support that there are others who are able to > work. > > I don't think it helps that my hip is aching something horrible and I > have had to take naproxsyn every day so my thyroid won't inflame. > > Sorry I am such a downer! > > Hugs, > Lynn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 Lynn . . . We all have times when we get down . . . The main thing is that those times get further and further apart! Life will be good again! . . . You just have to work to get there! I'll be sending your Kefir Monday. Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 Thanks for the encouraging words. I hope what you say is true. I still have a mouth full of mercury. I sure hope you can get your salines out soon, very soon. You are so deserving. Love, Lynn > > Hello Lynn ~ > God Bless you ~ I am sorry you are having such a hard time. I know when > you get everything back in balance you are gonna look back on these days, and > say, whew, that was a scarey ride ! But at that time you will be feeling so > much better, and you will be able to breathe and feel good. > If I would have had detox of candida and heavy metals back then and not had > these salines in me, my life would be alot different now. So, I took a > detour and got an education, and gained a world full of friends along the > way.......hey, I couldnt be more thankful ! ! > Sending you lots of love, positive and healing energy, strength, hope, and > many blessings ~ Dede > Just remember, going thru and having all these emotions, helps you grow, and > it releases endorphins, and that is a good thing ! Big Hugs ~ > > > > ************************************** See what's free at http://www.aol.com. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 Well you can add yourself to that list of encouraging women Bindi, thank you! I don't mind waiting another year and some Hugs, Lynn > > Lynn, > After not working for two years, I'm working again too, and though I don't have the energy I had before I got sick, I am definitely better. It's been a year and a half since explant, so I am not at the two year mark that most women say is the average length of time it takes to get better. I have more and more good days and less bad ones. I still have to be very careful with my health, and probably always will, but there's definitely hope! > > You'll get there. It takes time. I know how hard it is to believe you will get better when you feel crappy a lot of the time. It's so relentless. But you will. Back when I felt REALLY crappy I'd sometimes email this group, just like you are doing, seeking some ray of hope, and Rogene, Lynda, Patty, Lea (and Molly, when she was around) and others would always encourage me, and it really helped. This group is priceless. > > > Bindi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 You are so right Sis. Even though it wears me out, when I am at work I don't worry about my health. It hits me when I get home how sick I really am. Thanks for the support Sis. Lynn > > > > Good evening ladies, > > > > Just getting a little depressed reading recent e-mails on the > board. > > As you all know I am still working full-time because I can not > afford > > to lose my job or my insurance. Yet I read how many of you are > too > > sick to work. I am trying to stay positive that I am recovering > and > > that as I recover my health won't get worse where I end up > disabled. I > > just need some positive support that there are others who are able > to > > work. > > > > I don't think it helps that my hip is aching something horrible > and I > > have had to take naproxsyn every day so my thyroid won't inflame. > > > > Sorry I am such a downer! > > > > Hugs, > > Lynn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 Please e-mail me personally with the cost of shipping and your personal address and I will send you money!! Thanks again. PS... I may need some help in getting them started once I get them Lynn > > Lynn . . . We all have times when we get down . . . The main thing is that those times get further and further apart! > > Life will be good again! . . . You just have to work to get there! > > I'll be sending your Kefir Monday. > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2007 Report Share Posted June 17, 2007 Hi Lynn, How are you feeling now? I know it's hard to hold down a full time job and be sick too. I have to work fulltime as well. I find it helpful when I read uplifting and positive e-mails on the board. Don't feel like you being a downer. We all get sad sometimes about our situations and that's okay. Just reach out and we're all here for you. Love & hugs, Tracispinkscl <spinkscl@...> wrote: Good evening ladies,Just getting a little depressed reading recent e-mails on the board. As you all know I am still working full-time because I can not afford to lose my job or my insurance. Yet I read how many of you are too sick to work. I am trying to stay positive that I am recovering and that as I recover my health won't get worse where I end up disabled. I just need some positive support that there are others who are able to work. I don't think it helps that my hip is aching something horrible and I have had to take naproxsyn every day so my thyroid won't inflame. Sorry I am such a downer! Hugs, LynnNo hour of life is wasted that is spent in the saddle. ~Winston Churchill Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2007 Report Share Posted June 17, 2007 Hi Traci, I am feeling better. That post was from a few weeks ago. I seem to be getting stronger each week though and I have come to realize that if I didn't work I would probably get depressed. While somedays can by stressful and I come home worn out. But it does take my mind of my sickness when I am at work. Pre-explant there were days at work I didn't feel well enough to be there but those days are getting futher apart now. You are such an inspiration Traci!!! You are still riding horses and working. Good for you for not letting this illness beat you. Hugs, Lynn > Good evening ladies, > > Just getting a little depressed reading recent e-mails on the board. > As you all know I am still working full-time because I can not afford > to lose my job or my insurance. Yet I read how many of you are too > sick to work. I am trying to stay positive that I am recovering and > that as I recover my health won't get worse where I end up disabled. I > just need some positive support that there are others who are able to > work. > > I don't think it helps that my hip is aching something horrible and I > have had to take naproxsyn every day so my thyroid won't inflame. > > Sorry I am such a downer! > > Hugs, > Lynn > > > > > > > No hour of life is wasted that is spent in the saddle. ~Winston Churchill > > --------------------------------- > Now that's room service! Choose from over 150,000 hotels > in 45,000 destinations on Travel to find your fit. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2007 Report Share Posted June 19, 2007 Dear Lynn, It makes me so happy to hear that you are feeling better and better and that the bad days are further apart! You have the right attitude and are doing all the right things! Katy:) --- spinkscl <spinkscl@...> wrote: > Hi Traci, I am feeling better. That post was from a > few weeks ago. > I seem to be getting stronger each week though and I > have come to > realize that if I didn't work I would probably get > depressed. While > somedays can by stressful and I come home worn out. > But it does take > my mind of my sickness when I am at work. > Pre-explant there were > days at work I didn't feel well enough to be there > but those days are > getting futher apart now. > > You are such an inspiration Traci!!! You are still > riding horses and > working. Good for you for not letting this illness > beat you. > > Hugs, > Lynn > > > > Good evening ladies, > > > > Just getting a little depressed reading recent > e-mails on the > board. > > As you all know I am still working full-time > because I can not > afford > > to lose my job or my insurance. Yet I read how > many of you are too > > sick to work. I am trying to stay positive that I > am recovering and > > that as I recover my health won't get worse where > I end up > disabled. I > > just need some positive support that there are > others who are able > to > > work. > > > > I don't think it helps that my hip is aching > something horrible and > I > > have had to take naproxsyn every day so my thyroid > won't inflame. > > > > Sorry I am such a downer! > > > > Hugs, > > Lynn > > > > > > > > > > > > > > No hour of life is wasted that is spent in the > saddle. ~Winston > Churchill > > > > --------------------------------- > > Now that's room service! Choose from over 150,000 > hotels > > in 45,000 destinations on Travel to find > your fit. > > > > > Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new at http://mrd.mail./try_beta?.intl=ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 SAD-episodic ataxia type Kv1 potassium channelopathy/acidification and depression in the cerebellar cortex http://cardiovascres.oxfordjournals.org/cgi/content/abstract/65/3/751 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 Jeana, Can I talk to you privately, here is my e-mail cathleen.veloria@... Please write to me. I can clear this up. I am very sad to see you sad. please write me soon, CAthleen From: Jeana Boase <jmboase@...> Sent: Wed, January 19, 2011 5:42:04 AMSubject: ( ) Sad I am new to the group. My first post was the one about rule out as diagnosis. I have been too scared to post before, rightfully so after someone called it the prize to be had, the diagnosis that is. maybe I'm too soft but now I don't want to post anymore. I will continue to read and hope to gain knowledge but will not put myself out there. thanks, Jeana Quote Link to comment Share on other sites More sharing options...
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