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Kristy, This make complete sense. I do still sign with her words that she has

been saying too. So it is good for us to drop those, and keep up with the

others. THANK you so much for this. Now I know what I have to do. We have not

stopped learning new ones yet, and I do think they are helping her with learning

words. I always get hung up on the ST telling us to not sign at all, and I

start to wonder if we are doing harm. I know it is one person's opinion, but I

am glad to hear others. Thanks to all for sharing. Diane

-------------- Original message from Kristy Colvin :

--------------

Diane

When the child has mastered the word completely they usually just drop the sign

and when they begin communicating their needs enough with words that they are

satisfied, they automatically quit signing. Tim quit signing around 4 or 5. I

wouldn't worry about it though.... it is a good thing that they know how to

sign! Most people wish they had the ability!

I promise, the signing definitely is increasing the vocabulary!

Kristy

mblessed5t wrote:

My daughter is starting to really communicate these days. Not in full

sentences, but if she want a banana, she will come up to me, tap me,

and then say nana. If she needs to go potty she will say pee pee.

Some of what she is saying is all so new this summer. It seems like

new words are popping out each day. And the part that is surprising

me is how intentional her communication is. She is 3 and 1/2. Like I

said, no sentences but lots of letting us know what she wants through

words. My question is, at what age did you all with older ones let go

completely of the sign, and let your child work more on the words? Or

did you? I find us moving further and further from the signing, and

more and more closer to the words. Would love to hear your thoughts.

Diane

Kristy Colvin

IMDSA President

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

International Mosaic Down Syndrome Association

PH:

Toll Free: 1-888-MDS-LINK

http://www.imdsa.org

http://www.mosaicmoments.today.com

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I just can't imagine a ST telling you not to sign! I would wonder where this ST

has trained at. I thought that all ST's understood the benefits of signing!

Also, research has shown that babies who are taught sign language have much

better communication skills and less frustration than babies who aren't. (these

are babies without speech delays!)

Keep signing!!!

Kristy

Grovers wrote:

Kristy, This make complete sense. I do still sign with her words that

she has been saying too. So it is good for us to drop those, and keep up with

the others. THANK you so much for this. Now I know what I have to do. We have

not stopped learning new ones yet, and I do think they are helping her with

learning words. I always get hung up on the ST telling us to not sign at all,

and I start to wonder if we are doing harm. I know it is one person's opinion,

but I am glad to hear others. Thanks to all for sharing. Diane

-------------- Original message from Kristy Colvin :

--------------

Diane

When the child has mastered the word completely they usually just drop the sign

and when they begin communicating their needs enough with words that they are

satisfied, they automatically quit signing. Tim quit signing around 4 or 5. I

wouldn't worry about it though.... it is a good thing that they know how to

sign! Most people wish they had the ability!

I promise, the signing definitely is increasing the vocabulary!

Kristy

mblessed5t wrote:

My daughter is starting to really communicate these days. Not in full

sentences, but if she want a banana, she will come up to me, tap me,

and then say nana. If she needs to go potty she will say pee pee.

Some of what she is saying is all so new this summer. It seems like

new words are popping out each day. And the part that is surprising

me is how intentional her communication is. She is 3 and 1/2. Like I

said, no sentences but lots of letting us know what she wants through

words. My question is, at what age did you all with older ones let go

completely of the sign, and let your child work more on the words? Or

did you? I find us moving further and further from the signing, and

more and more closer to the words. Would love to hear your thoughts.

Diane

Kristy Colvin

IMDSA President

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

International Mosaic Down Syndrome Association

PH:

Toll Free: 1-888-MDS-LINK

http://www.imdsa.org

http://www.mosaicmoments.today.com

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THANK YOU! These are great responses. Just what I needed to hear. The

reinforcements are GREAT! We are starting music therapy this year as well. So

that is great hear as well. Diane

-------------- Original message from " " :

--------------

I CAN! (Unforunately) NE GA RESA did that to me. This was the school!

I am not a speech therapist and I have no formal training as one;

however, I have 5 years research under my belt with this (neural

pathways) and I am a nurse and I recommend that simultanous signed

language and verbal speech be used. What the child does not catch

with verbal speech, he/she will catch with the signed language.

Afterall, aren't the " professionals " recommending sign language

for " all " babies as a mode of preverbal communication? <br>

The speech therapist is " hoping " that he/she will " eventually " drop

the signed language and " just be verbal " ; supporters of this belief

think that they won't talk if they sign. I " know " they will do both

if and when they can. <br>

For us, I aspire that we " all " will be fluent in two languages and

how " smart " is that? Likewise, how dumb is it to just " drop " a

language that you have begun to learn and be proficient in? That does

not sound right, does it? And my point precisely is this>>> " If it

does not sound right to drop the signed language, and the parent

feels as if it is wrong to do so, then you better stick with it. The

parent usualy knows what is best for their child. " <br>

My humble suggestion would be to locate a supportive speech

therapist, who incorporates the way you view things. (This method

also works with choosing doctors.)<br>

Stick with both verbal and signed language both. Your child will be

smarter and you will be happier. (And if you want to " light up " all

areas of the brain at once, then incorporate " music " into the

language. Music on an MRI has been shown to illuminate virtually all

areas of the brain.)<<I can provide the research if you want it? ---I

hope I have helped you. ALL the Best....

<br> P.S> I know I probably responded in the wrong place, under

Kristy's post, but I was in a hurry. Sorry.

> My daughter is starting to really communicate these days. Not in

full

> sentences, but if she want a banana, she will come up to me, tap

me,

> and then say nana. If she needs to go potty she will say pee pee.

> Some of what she is saying is all so new this summer. It seems like

> new words are popping out each day. And the part that is surprising

> me is how intentional her communication is. She is 3 and 1/2. Like

I

> said, no sentences but lots of letting us know what she wants

through

> words. My question is, at what age did you all with older ones let

go

> completely of the sign, and let your child work more on the words?

Or

> did you? I find us moving further and further from the signing, and

> more and more closer to the words. Would love to hear your

thoughts.

> Diane

>

> Kristy Colvin

> IMDSA President

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> International Mosaic Down Syndrome Association

> PH:

> Toll Free: 1-888-MDS-LINK

> http://www.imdsa.org

> http://www.mosaicmoments.today.com

>

>

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Here is a study with " Jazz " music from " Hopkins " (well known).

Look what it says " music " does for " verbalization (story telling) " !!!

<br>

http://www.hopkinsmedicine.org/Press_releases/2008/02_26_08.html<br>

Here is one worth reading also. <br>

http://amenclinics.com/ac/bitn/bitn_detail.php?articleID=57

<br>

There ae images to the left that you can click on. You can alao click

another link once you click on a picture to view what the brain

activity is with other things such as music, signed language, second

language (these are different, as learning a " second " language "

activates more areas), and etc... You can also contact them if you do

not see what you want to see and they will e-mail you a link. They

have a mailing list also. <br>

<br>

> > My daughter is starting to really communicate these days. Not in

> full

> > sentences, but if she want a banana, she will come up to me, tap

> me,

> > and then say nana. If she needs to go potty she will say pee pee.

> > Some of what she is saying is all so new this summer. It seems

like

> > new words are popping out each day. And the part that is

surprising

> > me is how intentional her communication is. She is 3 and 1/2.

Like

> I

> > said, no sentences but lots of letting us know what she wants

> through

> > words. My question is, at what age did you all with older ones

let

> go

> > completely of the sign, and let your child work more on the

words?

> Or

> > did you? I find us moving further and further from the signing,

and

> > more and more closer to the words. Would love to hear your

> thoughts.

> > Diane

> >

> > Kristy Colvin

> > IMDSA President

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > International Mosaic Down Syndrome Association

> > PH:

> > Toll Free: 1-888-MDS-LINK

> > http://www.imdsa.org

> > http://www.mosaicmoments.today.com

> >

> >

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....Also, I have figured out (by watching people in general) that

usually those who are smarter listen more and talk less. Perhaps, we

are not giving credit where it is justly due here. :0) Has anyone

ever thought that our children are just listening to us more than

speaking because they are " learning " and " thinking " . Perhap those

extraordinary pathways in the brain are firing so much (rather than

less) that they are too busy to talk. Think about it. (Sorry for

jumping in here on your post, Angel. It actually was not in response

to anything you said or did not say. It was just a thought I realized

a long time ago.....I hope it helps some o us out there.):0)))

<br>

> >

> > My daughter is starting to really communicate these days. Not

in

> full

> > sentences, but if she want a banana, she will come up to me, tap

me,

> > and then say nana. If she needs to go potty she will say pee

pee.

> > Some of what she is saying is all so new this summer. It seems

like

> > new words are popping out each day. And the part that is

surprising

> > me is how intentional her communication is. She is 3 and 1/2.

Like

> I

> > said, no sentences but lots of letting us know what she wants

through

> > words. My question is, at what age did you all with older ones

let go

> > completely of the sign, and let your child work more on the

words?

> Or

> > did you? I find us moving further and further from the

signing, and

> > more and more closer to the words. Would love to hear your

thoughts.

> > Diane

> >

>

>

>

> ------------------------------------

>

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Oh Kristy, I love that comment. Yes, it might be a smidgen rude if we would

reply this way, but I have to at least tuck it away so I can at least " pretend "

to say it, (under my breath at the very least) when this happens again. Yes, it

has happened enough to know it will happen again. LOL. I love being able to

share this stuff with you all.

As for imagining how pretty she is comment....ugghhhh....dear oh dear. that one

kills me. We have had people say something similar, " It looks like she mostly

has it in her eyes. Mostly her right one. Otherwise she looks fine! " I

smiled, and walked away. The irony, it was before we knew she had MDS, so

perhaps they were more right than me. LOL. And to their defense, not that I am

defending this sort of bluntness, my geneticist did also mark that her one eye

had more of a feature than the other. I can not see it, as it is so small of a

difference. But obviously the other " professionals " out there in the world see

what he saw. LOL. Personally, I love her little features. How sad of a comment

on that. But I do get to walk away and laugh at the people who say these things.

And trust me, I do laugh. LOL Love, Diane

-------------- Original message from Kristy Colvin :

--------------

Diane

LOL That really made me laugh! It astounds me how incredibly rude people can be

and the fact that they have no idea how rude they actually are!

Over the years we have heard these kinds of comments and it never ceases to

amaze me!

I think it was Peg who said that someone told her " Imagine how pretty she would

be if she didn't have Ds! "

These kinds of people, unfortunately, will come in and out of your life for

ever. You just have to chalk it up to ignorance and try to have a snappy come

back already in place for those people. Like " Wow! You almost looked polite

until you opened your mouth! " LOL well....that is probably even more rude! It is

just a matter of educating!

Kristy>>>>shaking her head...

Grovers wrote:

, Yes, and ironically we had said that SO much before we even had a

different diagnosis. Okay, here is a kicker for you. The other day, we were at a

school event for my kids, and a mom approached me, and stared at Ellen, and

looked at me and then said, " Wow, she almost looks normal. " And then she walked

away. LOL. I did not get to say what I wanted to say. Which was, " Yeah, she is

almost normal! " OH DEAR! Anyway, your comment made me crack up. Yes, we have

enjoyed her all along, and to be honest, we just see Ellen. Exactly who she

is supposed to be. Love, Diane

-------------- Original message from " " :

--------------

Diane,I am so glad you are here and I am so glad that you have goten

these responses!!! :0) Are you beginning to see like we did that your

child is just a normal kid??? It just makes you sick in a way, huh?

(That you listened to them at all.)-Follow your gut from now on. :0)))

-- In MosaicDS , " Grovers " wrote:

>

> Yes yes yes and YES! I love this. I am so excited to read all of

ya alls experiences. To be honest, since we had a wrong diagnosis,

everyone was doing all of the wrong things for us as well.

Thankfully, my mommy gut kept kicking in, and I kept pushing some

ideas away. The first one was the non nursing idea. Immediately they

told me she won't nurse, and they told me they hope she will be able

to take a bottle. Well, I asked them if I could try, and she latched

RIGHT on perfectly. And did beautifully for a year and a half. They

also told me that she would have low muscle tone, and not to

introduce a straw too soon as whe would not be able to do it

correctly. Well, thankfully, my PT saw something different, and we

went right to it. She did beautifully again. Now remember, we had

no idea she had MDS, so we kept thinking she was going against the

odds. But now with her new diagnosis, EVERYTHING fits. I am SO

thrilled I asked this question. My confidence is growing so much.

Not that I was not listening to that little voice in me, but I was

starting to second guess again. Some how I have a feeling that will

be gone for me. THANK YOU! Love, Diane

> -------------- Original message from " "

: --------------

>

> I went to the weblink, but I stopped reading at " oral-motor

> deficiency " ;let me explain why. For years, all I have heard is

> this: " Children with Down Syndrome typically have problems with

> speech because of the low facial tone. " Several speech therapists

> proclaimed this,even in their reports, as the " probable reason " for

> lack of speech in my son. (this was before the Apraxia of Speech

> diagnosis.) I finally discovered along the way that two things were

> wrong with this statement when referencing my child: first, he does

> not have Down Syndrome, but rather he has MDS; second, he has no

> issues whatsoever with hypotonia in the facial or oral region.

> (LOL...I can tell this when he eats and then again when he sceams

and

> pitches fits....ROTFL ;0)That is when I started looking at other

> reasons. And then we pinpointed a couple of reasons: One, he has no

> need to talk; Two, he may have damage from a NG Tube or other

devices

> to his vocal cords. (Children with any diagnosis of of any type of

> DS, and typically it is just DS becaue of the missed diagnosis of

> MDS, sometimes get a NG tube at birth as a routine procedure. (Not

> all, but a lot, do because the doctors think all of the babies with

> this diagnosis cannot nurse or eat well....which is so not true for

> 100% of them.) I do know one thing that helps and here it is: when

I

> stopped worrying so much, things started improving. Don't get me

> wrong....this s a legitimate concern because speech is a

fundamental

> quality of everyday life and living is much more diffcult without

> speech. But when we realized he understands everything we say, half

> the worry was gone. (The failed audiograms were 100% wrong and they

> almost had me talked into piercing his eardrums...whew! glad we did

> not do that one!) Sometimes, he does not " want " to listen. (Typical

> child, especially typical with overexpression of the gene...the

> stubborn gene...lol)

>

>

>

> > > My daughter is starting to really communicate these days. Not

in

> full

> > > sentences, but if she want a banana, she will come up to me,

tap

> me,

> > > and then say nana. If she needs to go potty she will say pee

pee.

> > > Some of what she is saying is all so new this summer. It seems

> like

> > > new words are popping out each day. And the part that is

> surprising

> > > me is how intentional her communication is. She is 3 and 1/2.

> Like I

> > > said, no sentences but lots of letting us know what she wants

> through

> > > words. My question is, at what age did you all with older ones

> let go

> > > completely of the sign, and let your child work more on the

> words? Or

> > > did you? I find us moving further and further from the signing,

> and

> > > more and more closer to the words. Would love to hear your

> thoughts.

> > > Diane

> > >

> > > Kristy Colvin

> > > IMDSA President

> > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > > International Mosaic Down Syndrome Association

> > > PH:

> > > Toll Free: 1-888-MDS-LINK

> > > http://www.imdsa.org

> > > http://www.mosaicmoments.today.com

> > >

> > >

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I'm not sure which is worse: those types of comments or the all the free

parenting advice from all the parenting " experts " out there who seem to know

EXACTLY what to do to make your child behave the way they " should. " I always

want to say something like, " Oh, I'd really like to meet your Deaf Autistic

child sometime. Oh, you don't have one? I thought maybe you did and had

already successfully raised him/her to adulthood the way you seem to know how I

should handle my daughter. " Yes, I know, that too would be rude, but I get SICK

of all these people who've never been in my shoes telling me what I should and

shouldn't do with and for my daughter. It REALLY irks me when those " experts "

(I don't mean the professionals, either; I mean the people you meet on the

street) not only don't have a child with the same issues as mine, but they don't

have ANY children at all!

A.

Special Educator

Simon Kenton HS

11132 Madison Pk.

Independence, KY 41051

(859)960-0348

cynthia.jones@...

________________________________

From: MosaicDS on behalf of Grovers

Sent: Wed 7/30/2008 9:20 AM

To: MosaicDS

Subject: Re: Question

Oh Kristy, I love that comment. Yes, it might be a smidgen rude if we would

reply this way, but I have to at least tuck it away so I can at least " pretend "

to say it, (under my breath at the very least) when this happens again. Yes, it

has happened enough to know it will happen again. LOL. I love being able to

share this stuff with you all.

As for imagining how pretty she is comment....ugghhhh....dear oh dear. that one

kills me. We have had people say something similar, " It looks like she mostly

has it in her eyes. Mostly her right one. Otherwise she looks fine! " I smiled,

and walked away. The irony, it was before we knew she had MDS, so perhaps they

were more right than me. LOL. And to their defense, not that I am defending this

sort of bluntness, my geneticist did also mark that her one eye had more of a

feature than the other. I can not see it, as it is so small of a difference. But

obviously the other " professionals " out there in the world see what he saw. LOL.

Personally, I love her little features. How sad of a comment on that. But I do

get to walk away and laugh at the people who say these things. And trust me, I

do laugh. LOL Love, Diane

-------------- Original message from Kristy Colvin <kristy@...

<mailto:kristy%40imdsa.org> >: --------------

Diane

LOL That really made me laugh! It astounds me how incredibly rude people can be

and the fact that they have no idea how rude they actually are!

Over the years we have heard these kinds of comments and it never ceases to

amaze me!

I think it was Peg who said that someone told her " Imagine how pretty she would

be if she didn't have Ds! "

These kinds of people, unfortunately, will come in and out of your life for

ever. You just have to chalk it up to ignorance and try to have a snappy come

back already in place for those people. Like " Wow! You almost looked polite

until you opened your mouth! " LOL well....that is probably even more rude! It is

just a matter of educating!

Kristy>>>>shaking her head...

Grovers <diane_grover@... <mailto:diane_grover%40bellsouth.net> >

wrote:

, Yes, and ironically we had said that SO much before we even had a

different diagnosis. Okay, here is a kicker for you. The other day, we were at a

school event for my kids, and a mom approached me, and stared at Ellen, and

looked at me and then said, " Wow, she almost looks normal. " And then she walked

away. LOL. I did not get to say what I wanted to say. Which was, " Yeah, she is

almost normal! " OH DEAR! Anyway, your comment made me crack up. Yes, we have

enjoyed her all along, and to be honest, we just see Ellen. Exactly who she

is supposed to be. Love, Diane

-------------- Original message from " " <agirlnamedsuess@...

<mailto:agirlnamedsuess%40hotmail.com> >: --------------

Diane,I am so glad you are here and I am so glad that you have goten

these responses!!! :0) Are you beginning to see like we did that your

child is just a normal kid??? It just makes you sick in a way, huh?

(That you listened to them at all.)-Follow your gut from now on. :0)))

-- In MosaicDS <mailto:MosaicDS%40yahoogroups.com> , " Grovers "

wrote:

>

> Yes yes yes and YES! I love this. I am so excited to read all of

ya alls experiences. To be honest, since we had a wrong diagnosis,

everyone was doing all of the wrong things for us as well.

Thankfully, my mommy gut kept kicking in, and I kept pushing some

ideas away. The first one was the non nursing idea. Immediately they

told me she won't nurse, and they told me they hope she will be able

to take a bottle. Well, I asked them if I could try, and she latched

RIGHT on perfectly. And did beautifully for a year and a half. They

also told me that she would have low muscle tone, and not to

introduce a straw too soon as whe would not be able to do it

correctly. Well, thankfully, my PT saw something different, and we

went right to it. She did beautifully again. Now remember, we had

no idea she had MDS, so we kept thinking she was going against the

odds. But now with her new diagnosis, EVERYTHING fits. I am SO

thrilled I asked this question. My confidence is growing so much.

Not that I was not listening to that little voice in me, but I was

starting to second guess again. Some how I have a feeling that will

be gone for me. THANK YOU! Love, Diane

> -------------- Original message from " "

: --------------

>

> I went to the weblink, but I stopped reading at " oral-motor

> deficiency " ;let me explain why. For years, all I have heard is

> this: " Children with Down Syndrome typically have problems with

> speech because of the low facial tone. " Several speech therapists

> proclaimed this,even in their reports, as the " probable reason " for

> lack of speech in my son. (this was before the Apraxia of Speech

> diagnosis.) I finally discovered along the way that two things were

> wrong with this statement when referencing my child: first, he does

> not have Down Syndrome, but rather he has MDS; second, he has no

> issues whatsoever with hypotonia in the facial or oral region.

> (LOL...I can tell this when he eats and then again when he sceams

and

> pitches fits....ROTFL ;0)That is when I started looking at other

> reasons. And then we pinpointed a couple of reasons: One, he has no

> need to talk; Two, he may have damage from a NG Tube or other

devices

> to his vocal cords. (Children with any diagnosis of of any type of

> DS, and typically it is just DS becaue of the missed diagnosis of

> MDS, sometimes get a NG tube at birth as a routine procedure. (Not

> all, but a lot, do because the doctors think all of the babies with

> this diagnosis cannot nurse or eat well....which is so not true for

> 100% of them.) I do know one thing that helps and here it is: when

I

> stopped worrying so much, things started improving. Don't get me

> wrong....this s a legitimate concern because speech is a

fundamental

> quality of everyday life and living is much more diffcult without

> speech. But when we realized he understands everything we say, half

> the worry was gone. (The failed audiograms were 100% wrong and they

> almost had me talked into piercing his eardrums...whew! glad we did

> not do that one!) Sometimes, he does not " want " to listen. (Typical

> child, especially typical with overexpression of the gene...the

> stubborn gene...lol)

>

>

>

> > > My daughter is starting to really communicate these days. Not

in

> full

> > > sentences, but if she want a banana, she will come up to me,

tap

> me,

> > > and then say nana. If she needs to go potty she will say pee

pee.

> > > Some of what she is saying is all so new this summer. It seems

> like

> > > new words are popping out each day. And the part that is

> surprising

> > > me is how intentional her communication is. She is 3 and 1/2.

> Like I

> > > said, no sentences but lots of letting us know what she wants

> through

> > > words. My question is, at what age did you all with older ones

> let go

> > > completely of the sign, and let your child work more on the

> words? Or

> > > did you? I find us moving further and further from the signing,

> and

> > > more and more closer to the words. Would love to hear your

> thoughts.

> > > Diane

> > >

> > > Kristy Colvin

> > > IMDSA President

> > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > > International Mosaic Down Syndrome Association

> > > PH:

> > > Toll Free: 1-888-MDS-LINK

> > > http://www.imdsa.org <http://www.imdsa.org/>

> > > http://www.mosaicmoments.today.com <http://www.mosaicmoments.today.com/>

> > >

> > >

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, I was just laughing with you, as I curse this laptop on a

regular, daily basis. :0)

> > My daughter is starting to really communicate these days. Not in

> full

> > sentences, but if she want a banana, she will come up to me, tap

> me,

> > and then say nana. If she needs to go potty she will say pee pee.

> > Some of what she is saying is all so new this summer. It seems

like

> > new words are popping out each day. And the part that is

surprising

> > me is how intentional her communication is. She is 3 and 1/2.

Like

> I

> > said, no sentences but lots of letting us know what she wants

> through

> > words. My question is, at what age did you all with older ones

let

> go

> > completely of the sign, and let your child work more on the

words?

> Or

> > did you? I find us moving further and further from the signing,

and

> > more and more closer to the words. Would love to hear your

> thoughts.

> > Diane

> >

> > Kristy Colvin

> > IMDSA President

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > International Mosaic Down Syndrome Association

> > PH:

> > Toll Free: 1-888-MDS-LINK

> > http://www.imdsa.org <http://www.imdsa.org/>

<http://www.imdsa.org/ <http://www.imdsa.org/> >

> > http://www.mosaicmoments.today.com

<http://www.mosaicmoments.today.com/>

> <http://www.mosaicmoments.today.com/

<http://www.mosaicmoments.today.com/> >

> >

> >

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" Tubes " . When artificial tubes are placed in a child's ear, the

eardrums are punctured. Now, I do not know about anyone else here,

but I have never heard a good sound come from a busted Drumset. A set

of " Drums " is exactly the same way as one's ears for sound production

off the tympanic membrane.

> > > My daughter is starting to really communicate these days. Not

in

> full

> > > sentences, but if she want a banana, she will come up to me,

tap

> me,

> > > and then say nana. If she needs to go potty she will say pee

pee.

> > > Some of what she is saying is all so new this summer. It seems

> like

> > > new words are popping out each day. And the part that is

> surprising

> > > me is how intentional her communication is. She is 3 and 1/2.

> Like I

> > > said, no sentences but lots of letting us know what she wants

> through

> > > words. My question is, at what age did you all with older ones

> let go

> > > completely of the sign, and let your child work more on the

> words? Or

> > > did you? I find us moving further and further from the signing,

> and

> > > more and more closer to the words. Would love to hear your

> thoughts.

> > > Diane

> > >

> > > Kristy Colvin

> > > IMDSA President

> > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > > International Mosaic Down Syndrome Association

> > > PH:

> > > Toll Free: 1-888-MDS-LINK

> > > http://www.imdsa.org <http://www.imdsa.org/>

> > > http://www.mosaicmoments.today.com

<http://www.mosaicmoments.today.com/>

> > >

> > >

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One of my sons had tubes placed in his ear drums at the age of two.  He had

repeated ear infections, the fluid never drained.  He was practically non verbal

at two.  As soon as he got the tubes placed, he had an explosion of words.  The

Dr. who did the surgery said the fluid in the middle ear was so thick they had

to suction it out, it would not have cleared on its own.  So tubes can be very

helpful.  After his tubes were placed, he stopped having ear infections as

well.  So if someone is thinking about this surgery, there are positives as well

as negatives.

 

Luanne

Subject: Re: Question

To: MosaicDS

Date: Wednesday, July 30, 2008, 4:50 PM

" Tubes " . When artificial tubes are placed in a child's ear, the

eardrums are punctured. Now, I do not know about anyone else here,

but I have never heard a good sound come from a busted Drumset. A set

of " Drums " is exactly the same way as one's ears for sound production

off the tympanic membrane.

> > > My daughter is starting to really communicate these days. Not

in

> full

> > > sentences, but if she want a banana, she will come up to me,

tap

> me,

> > > and then say nana. If she needs to go potty she will say pee

pee.

> > > Some of what she is saying is all so new this summer. It seems

> like

> > > new words are popping out each day. And the part that is

> surprising

> > > me is how intentional her communication is. She is 3 and 1/2.

> Like I

> > > said, no sentences but lots of letting us know what she wants

> through

> > > words. My question is, at what age did you all with older ones

> let go

> > > completely of the sign, and let your child work more on the

> words? Or

> > > did you? I find us moving further and further from the signing,

> and

> > > more and more closer to the words. Would love to hear your

> thoughts.

> > > Diane

> > >

> > > Kristy Colvin

> > > IMDSA President

> > > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

> > > International Mosaic Down Syndrome Association

> > > PH:

> > > Toll Free: 1-888-MDS-LINK

> > > http://www.imdsa. org <http://www.imdsa. org/>

> > > http://www.mosaicmo ments.today. com

<http://www.mosaicmo ments.today. com/>

> > >

> > >

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Guest guest

My son has not had ear infections. All of us have had that

fluctuating fluid (noninfected) due to allergies. It comes and goes,

usually seasonally, and this is true for him as well. We had his

blood tested for infection and there was none.

I am glad I did not do this with him, as this was not his issue. For

some, it may be a good option, but I still have to disagree with

puncturing a drum, which also can let bacteria into the ear and cause

an infection (a draining infection, but nonetheless an infection). A

punctured drum is just as worthless (to me) a one that does not move.

(Then again, this is strictly my opinion an everyone has differing

views. I would opt for probiotics before tubes, if there was

aninfection.) I still believe that putting a hole in a drum

(especially repeatedly for when those tubes fall out) is dangerous

and not good. I have a niece with deafness from 11 sets of ear tubes.

> > > > My daughter is starting to really communicate these days. Not

> in

> > full

> > > > sentences, but if she want a banana, she will come up to me,

> tap

> > me,

> > > > and then say nana. If she needs to go potty she will say pee

> pee.

> > > > Some of what she is saying is all so new this summer. It

seems

> > like

> > > > new words are popping out each day. And the part that is

> > surprising

> > > > me is how intentional her communication is. She is 3 and 1/2.

> > Like I

> > > > said, no sentences but lots of letting us know what she wants

> > through

> > > > words. My question is, at what age did you all with older

ones

> > let go

> > > > completely of the sign, and let your child work more on the

> > words? Or

> > > > did you? I find us moving further and further from the

signing,

> > and

> > > > more and more closer to the words. Would love to hear your

> > thoughts.

> > > > Diane

> > > >

> > > > Kristy Colvin

> > > > IMDSA President

> > > > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

> > > > International Mosaic Down Syndrome Association

> > > > PH:

> > > > Toll Free: 1-888-MDS-LINK

> > > > http://www.imdsa. org <http://www.imdsa. org/>

> > > > http://www.mosaicmo ments.today. com

> <http://www.mosaicmo ments.today. com/>

> > > >

> > > >

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Guest guest

My oldest son almost 15 now without ds had horrible earinfections that would

drain. He basically had them for the first 1 1/2 year of his life. We finally

put him on low dose antibiotics for 8 months straight and he has never had

another problem since. He also started talking better and pronouncing his words

right. I am not really a big fan of the tubes myself but everyone has there own

options and opinions. I have just had to many friends constantly having to go

back in to have them repaired or put back in.

wrote: My son has not had ear

infections. All of us have had that

fluctuating fluid (noninfected) due to allergies. It comes and goes,

usually seasonally, and this is true for him as well. We had his

blood tested for infection and there was none.

I am glad I did not do this with him, as this was not his issue. For

some, it may be a good option, but I still have to disagree with

puncturing a drum, which also can let bacteria into the ear and cause

an infection (a draining infection, but nonetheless an infection). A

punctured drum is just as worthless (to me) a one that does not move.

(Then again, this is strictly my opinion an everyone has differing

views. I would opt for probiotics before tubes, if there was

aninfection.) I still believe that putting a hole in a drum

(especially repeatedly for when those tubes fall out) is dangerous

and not good. I have a niece with deafness from 11 sets of ear tubes.

> > > > My daughter is starting to really communicate these days. Not

> in

> > full

> > > > sentences, but if she want a banana, she will come up to me,

> tap

> > me,

> > > > and then say nana. If she needs to go potty she will say pee

> pee.

> > > > Some of what she is saying is all so new this summer. It

seems

> > like

> > > > new words are popping out each day. And the part that is

> > surprising

> > > > me is how intentional her communication is. She is 3 and 1/2.

> > Like I

> > > > said, no sentences but lots of letting us know what she wants

> > through

> > > > words. My question is, at what age did you all with older

ones

> > let go

> > > > completely of the sign, and let your child work more on the

> > words? Or

> > > > did you? I find us moving further and further from the

signing,

> > and

> > > > more and more closer to the words. Would love to hear your

> > thoughts.

> > > > Diane

> > > >

> > > > Kristy Colvin

> > > > IMDSA President

> > > > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

> > > > International Mosaic Down Syndrome Association

> > > > PH:

> > > > Toll Free: 1-888-MDS-LINK

> > > > http://www.imdsa. org <http://www.imdsa. org/>

> > > > http://www.mosaicmo ments.today. com

> <http://www.mosaicmo ments.today. com/>

> > > >

> > > >

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Guest guest

I think it is important to remember that the ear tubes are not a permanent

solution, but they do work when they are in! Tim had horrible ear infections and

had almost lost all of his hearing due to the fluid back up. He had 3 sets of

tubes and as long as they were in, the fluid drained. My youngest had tubes as

well. I think they are well worth putting in and do prevent hearing loss and a

lot of ear pain with the repeated infections.

Kristy

Shaffer wrote:

My oldest son almost 15 now without ds had horrible earinfections that

would drain. He basically had them for the first 1 1/2 year of his life. We

finally put him on low dose antibiotics for 8 months straight and he has never

had another problem since. He also started talking better and pronouncing his

words right. I am not really a big fan of the tubes myself but everyone has

there own options and opinions. I have just had to many friends constantly

having to go back in to have them repaired or put back in.

wrote: My son has not had ear infections.

All of us have had that

fluctuating fluid (noninfected) due to allergies. It comes and goes,

usually seasonally, and this is true for him as well. We had his

blood tested for infection and there was none.

I am glad I did not do this with him, as this was not his issue. For

some, it may be a good option, but I still have to disagree with

puncturing a drum, which also can let bacteria into the ear and cause

an infection (a draining infection, but nonetheless an infection). A

punctured drum is just as worthless (to me) a one that does not move.

(Then again, this is strictly my opinion an everyone has differing

views. I would opt for probiotics before tubes, if there was

aninfection.) I still believe that putting a hole in a drum

(especially repeatedly for when those tubes fall out) is dangerous

and not good. I have a niece with deafness from 11 sets of ear tubes.

> > > > My daughter is starting to really communicate these days. Not

> in

> > full

> > > > sentences, but if she want a banana, she will come up to me,

> tap

> > me,

> > > > and then say nana. If she needs to go potty she will say pee

> pee.

> > > > Some of what she is saying is all so new this summer. It

seems

> > like

> > > > new words are popping out each day. And the part that is

> > surprising

> > > > me is how intentional her communication is. She is 3 and 1/2.

> > Like I

> > > > said, no sentences but lots of letting us know what she wants

> > through

> > > > words. My question is, at what age did you all with older

ones

> > let go

> > > > completely of the sign, and let your child work more on the

> > words? Or

> > > > did you? I find us moving further and further from the

signing,

> > and

> > > > more and more closer to the words. Would love to hear your

> > thoughts.

> > > > Diane

> > > >

> > > > Kristy Colvin

> > > > IMDSA President

> > > > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

> > > > International Mosaic Down Syndrome Association

> > > > PH:

> > > > Toll Free: 1-888-MDS-LINK

> > > > http://www.imdsa. org <http://www.imdsa. org/>

> > > > http://www.mosaicmo ments.today. com

> <http://www.mosaicmo ments.today. com/>

> > > >

> > > >

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For some people, tht is a great option. CH did not have fluid back up

or infection, though. As for my niece, I am not certain how lon a

period of time elapsed between each set of tubes. However, I agree

that ELEVEN sets is extreme and we know it had to have occurred all

before the age of 5 or 6 because the eustachian tube growth changes

at that time. For CH, it was not right and I am glad I waited. He

claims to hear us (and he also claims to " ignore " us by signing

so...LOL)

<br>

> > > > > My daughter is starting to really communicate these days.

Not

> > in

> > > full

> > > > > sentences, but if she want a banana, she will come up to

me,

> > tap

> > > me,

> > > > > and then say nana. If she needs to go potty she will say

pee

> > pee.

> > > > > Some of what she is saying is all so new this summer. It

> seems

> > > like

> > > > > new words are popping out each day. And the part that is

> > > surprising

> > > > > me is how intentional her communication is. She is 3 and

1/2.

> > > Like I

> > > > > said, no sentences but lots of letting us know what she

wants

> > > through

> > > > > words. My question is, at what age did you all with older

> ones

> > > let go

> > > > > completely of the sign, and let your child work more on the

> > > words? Or

> > > > > did you? I find us moving further and further from the

> signing,

> > > and

> > > > > more and more closer to the words. Would love to hear your

> > > thoughts.

> > > > > Diane

> > > > >

> > > > > Kristy Colvin

> > > > > IMDSA President

> > > > > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

> > > > > International Mosaic Down Syndrome Association

> > > > > PH:

> > > > > Toll Free: 1-888-MDS-LINK

> > > > > http://www.imdsa. org <http://www.imdsa. org/>

> > > > > http://www.mosaicmo ments.today. com

> > <http://www.mosaicmo ments.today. com/>

> > > > >

> > > > >

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Guest guest

, Did his eardrums rupture and is that why it drained? That

is really the ultimate goal of tubes (to keep the drum ruptured so

any fluid/infection will drain out)....Yuck....I have seen it before

in patients and it is awful and awful smeling.

> > > > > My daughter is starting to really communicate these days.

Not

> > in

> > > full

> > > > > sentences, but if she want a banana, she will come up to

me,

> > tap

> > > me,

> > > > > and then say nana. If she needs to go potty she will say

pee

> > pee.

> > > > > Some of what she is saying is all so new this summer. It

> seems

> > > like

> > > > > new words are popping out each day. And the part that is

> > > surprising

> > > > > me is how intentional her communication is. She is 3 and

1/2.

> > > Like I

> > > > > said, no sentences but lots of letting us know what she

wants

> > > through

> > > > > words. My question is, at what age did you all with older

> ones

> > > let go

> > > > > completely of the sign, and let your child work more on the

> > > words? Or

> > > > > did you? I find us moving further and further from the

> signing,

> > > and

> > > > > more and more closer to the words. Would love to hear your

> > > thoughts.

> > > > > Diane

> > > > >

> > > > > Kristy Colvin

> > > > > IMDSA President

> > > > > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

> > > > > International Mosaic Down Syndrome Association

> > > > > PH:

> > > > > Toll Free: 1-888-MDS-LINK

> > > > > http://www.imdsa. org <http://www.imdsa. org/>

> > > > > http://www.mosaicmo ments.today. com

> > <http://www.mosaicmo ments.today. com/>

> > > > >

> > > > >

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Guest guest

yes, it was gross but he would feel better imediately.

wrote: , Did his eardrums

rupture and is that why it drained? That

is really the ultimate goal of tubes (to keep the drum ruptured so

any fluid/infection will drain out)....Yuck....I have seen it before

in patients and it is awful and awful smeling.

> > > > > My daughter is starting to really communicate these days.

Not

> > in

> > > full

> > > > > sentences, but if she want a banana, she will come up to

me,

> > tap

> > > me,

> > > > > and then say nana. If she needs to go potty she will say

pee

> > pee.

> > > > > Some of what she is saying is all so new this summer. It

> seems

> > > like

> > > > > new words are popping out each day. And the part that is

> > > surprising

> > > > > me is how intentional her communication is. She is 3 and

1/2.

> > > Like I

> > > > > said, no sentences but lots of letting us know what she

wants

> > > through

> > > > > words. My question is, at what age did you all with older

> ones

> > > let go

> > > > > completely of the sign, and let your child work more on the

> > > words? Or

> > > > > did you? I find us moving further and further from the

> signing,

> > > and

> > > > > more and more closer to the words. Would love to hear your

> > > thoughts.

> > > > > Diane

> > > > >

> > > > > Kristy Colvin

> > > > > IMDSA President

> > > > > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

> > > > > International Mosaic Down Syndrome Association

> > > > > PH:

> > > > > Toll Free: 1-888-MDS-LINK

> > > > > http://www.imdsa. org <http://www.imdsa. org/>

> > > > > http://www.mosaicmo ments.today. com

> > <http://www.mosaicmo ments.today. com/>

> > > > >

> > > > >

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Guest guest

Every day I say my work computer cannot possibly get any slower -- and every day

it proves me wrong! LOL!

A.

Special Educator

Simon Kenton HS

11132 Madison Pk.

Independence, KY 41051

(859)960-0348

cynthia.jones@...

________________________________

From: MosaicDS on behalf of

Sent: Wed 7/30/2008 5:46 PM

To: MosaicDS

Subject: Re: Question

, I was just laughing with you, as I curse this laptop on a

regular, daily basis. :0)

> > My daughter is starting to really communicate these days. Not in

> full

> > sentences, but if she want a banana, she will come up to me, tap

> me,

> > and then say nana. If she needs to go potty she will say pee pee.

> > Some of what she is saying is all so new this summer. It seems

like

> > new words are popping out each day. And the part that is

surprising

> > me is how intentional her communication is. She is 3 and 1/2.

Like

> I

> > said, no sentences but lots of letting us know what she wants

> through

> > words. My question is, at what age did you all with older ones

let

> go

> > completely of the sign, and let your child work more on the

words?

> Or

> > did you? I find us moving further and further from the signing,

and

> > more and more closer to the words. Would love to hear your

> thoughts.

> > Diane

> >

> > Kristy Colvin

> > IMDSA President

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > International Mosaic Down Syndrome Association

> > PH:

> > Toll Free: 1-888-MDS-LINK

> > http://www.imdsa.org <http://www.imdsa.org/> <http://www.imdsa.org/

<http://www.imdsa.org/> >

<http://www.imdsa.org/ <http://www.imdsa.org/> <http://www.imdsa.org/

<http://www.imdsa.org/> > >

> > http://www.mosaicmoments.today.com <http://www.mosaicmoments.today.com/>

<http://www.mosaicmoments.today.com/ <http://www.mosaicmoments.today.com/> >

> <http://www.mosaicmoments.today.com/ <http://www.mosaicmoments.today.com/>

<http://www.mosaicmoments.today.com/ <http://www.mosaicmoments.today.com/> > >

> >

> >

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Guest guest

Every week of computer use/Internet use deserves a " scan

disc " and " defragment " run. Have you done these recently?

> > > My daughter is starting to really communicate these days. Not

in

> > full

> > > sentences, but if she want a banana, she will come up to me,

tap

> > me,

> > > and then say nana. If she needs to go potty she will say pee

pee.

> > > Some of what she is saying is all so new this summer. It seems

> like

> > > new words are popping out each day. And the part that is

> surprising

> > > me is how intentional her communication is. She is 3 and 1/2.

> Like

> > I

> > > said, no sentences but lots of letting us know what she wants

> > through

> > > words. My question is, at what age did you all with older ones

> let

> > go

> > > completely of the sign, and let your child work more on the

> words?

> > Or

> > > did you? I find us moving further and further from the signing,

> and

> > > more and more closer to the words. Would love to hear your

> > thoughts.

> > > Diane

> > >

> > > Kristy Colvin

> > > IMDSA President

> > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > > International Mosaic Down Syndrome Association

> > > PH:

> > > Toll Free: 1-888-MDS-LINK

> > > http://www.imdsa.org <http://www.imdsa.org/>

<http://www.imdsa.org/ <http://www.imdsa.org/> >

> <http://www.imdsa.org/ <http://www.imdsa.org/>

<http://www.imdsa.org/ <http://www.imdsa.org/> > >

> > > http://www.mosaicmoments.today.com

<http://www.mosaicmoments.today.com/>

> <http://www.mosaicmoments.today.com/

<http://www.mosaicmoments.today.com/> >

> > <http://www.mosaicmoments.today.com/

<http://www.mosaicmoments.today.com/>

> <http://www.mosaicmoments.today.com/

<http://www.mosaicmoments.today.com/> > >

> > >

> > >

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Share on other sites

Guest guest

Yeah, the computer is just a little older and is starting to slow down. I will

admit, I probably don't do those as often as I should, but I do run them.

What's really frustrating is when I'm working on something important and it

needs to be finished quickly and my computer runs like an old man!

A.

Special Educator

Simon Kenton HS

11132 Madison Pk.

Independence, KY 41051

(859)960-0348

cynthia.jones@...

________________________________

From: MosaicDS on behalf of

Sent: Sat 8/2/2008 9:59 AM

To: MosaicDS

Subject: Re: Question

Every week of computer use/Internet use deserves a " scan

disc " and " defragment " run. Have you done these recently?

> > > My daughter is starting to really communicate these days. Not

in

> > full

> > > sentences, but if she want a banana, she will come up to me,

tap

> > me,

> > > and then say nana. If she needs to go potty she will say pee

pee.

> > > Some of what she is saying is all so new this summer. It seems

> like

> > > new words are popping out each day. And the part that is

> surprising

> > > me is how intentional her communication is. She is 3 and 1/2.

> Like

> > I

> > > said, no sentences but lots of letting us know what she wants

> > through

> > > words. My question is, at what age did you all with older ones

> let

> > go

> > > completely of the sign, and let your child work more on the

> words?

> > Or

> > > did you? I find us moving further and further from the signing,

> and

> > > more and more closer to the words. Would love to hear your

> > thoughts.

> > > Diane

> > >

> > > Kristy Colvin

> > > IMDSA President

> > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > > International Mosaic Down Syndrome Association

> > > PH:

> > > Toll Free: 1-888-MDS-LINK

> > > http://www.imdsa.org <http://www.imdsa.org/> <http://www.imdsa.org/

<http://www.imdsa.org/> >

<http://www.imdsa.org/ <http://www.imdsa.org/> <http://www.imdsa.org/

<http://www.imdsa.org/> > >

> <http://www.imdsa.org/ <http://www.imdsa.org/> <http://www.imdsa.org/

<http://www.imdsa.org/> >

<http://www.imdsa.org/ <http://www.imdsa.org/> <http://www.imdsa.org/

<http://www.imdsa.org/> > > >

> > > http://www.mosaicmoments.today.com <http://www.mosaicmoments.today.com/>

<http://www.mosaicmoments.today.com/ <http://www.mosaicmoments.today.com/> >

> <http://www.mosaicmoments.today.com/ <http://www.mosaicmoments.today.com/>

<http://www.mosaicmoments.today.com/ <http://www.mosaicmoments.today.com/> > >

> > <http://www.mosaicmoments.today.com/ <http://www.mosaicmoments.today.com/>

<http://www.mosaicmoments.today.com/ <http://www.mosaicmoments.today.com/> >

> <http://www.mosaicmoments.today.com/ <http://www.mosaicmoments.today.com/>

<http://www.mosaicmoments.today.com/ <http://www.mosaicmoments.today.com/> > > >

> > >

> > >

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I have to agree here! Trey had an ear infection so bad about 4 years ago that

this white pus looking stuff started to ooze out, I barely pushed on the outside

of his ear and I hear (more like felt) a pop, and he just looked at me like

" Wow! Thanks.... " and went to sleep for about 4 hours. And 's right, it

smell something awful!

Now I'm dealing with Austin having his 2nd ear infection in almost 6 years!

Right ear this time, lovely time giving him the liquid Zithromax! (NOT!!!) It

took me & my X mother in law to hold him down and give it to him today....more

fun tomorrow LOL

 

Blessings Abound,

(Becky) Rowe

Family Assistance Coordinator

www.imdsa.org

IMDSA Conference July 10-12, 2009

Mom to Trey (8 ADHD) & Austin (5 MDS)

Re: Question

yes, it was gross but he would feel better imediately.

<agirlnamedsuess@ hotmail.com> wrote: , Did his eardrums rupture

and is that why it drained? That

is really the ultimate goal of tubes (to keep the drum ruptured so

any fluid/infection will drain out)....Yuck. ...I have seen it before

in patients and it is awful and awful smeling.

> > > > > My daughter is starting to really communicate these days.

Not

> > in

> > > full

> > > > > sentences, but if she want a banana, she will come up to

me,

> > tap

> > > me,

> > > > > and then say nana. If she needs to go potty she will say

pee

> > pee.

> > > > > Some of what she is saying is all so new this summer. It

> seems

> > > like

> > > > > new words are popping out each day. And the part that is

> > > surprising

> > > > > me is how intentional her communication is. She is 3 and

1/2.

> > > Like I

> > > > > said, no sentences but lots of letting us know what she

wants

> > > through

> > > > > words. My question is, at what age did you all with older

> ones

> > > let go

> > > > > completely of the sign, and let your child work more on the

> > > words? Or

> > > > > did you? I find us moving further and further from the

> signing,

> > > and

> > > > > more and more closer to the words. Would love to hear your

> > > thoughts.

> > > > > Diane

> > > > >

> > > > > Kristy Colvin

> > > > > IMDSA President

> > > > > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

> > > > > International Mosaic Down Syndrome Association

> > > > > PH:

> > > > > Toll Free: 1-888-MDS-LINK

> > > > > http://www.imdsa. org <http://www.imdsa. org/>

> > > > > http://www.mosaicmo ments.today. com

> > <http://www.mosaicmo ments.today. com/>

> > > > >

> > > > >

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