Re: Gene Related to Common Form of Dementia Discovered (FTD)

[Guest guest]

Sharon M., and Courage, I too have some moments. For a spell about three

years ago, I was falling all over the place, I had seizures that were not

seizures, as we know them. At least MRI showed nothing. My brain was in good

shape

on that. There was no evidence of Epilepsy. No reason for the seizures. The

doctor said I have essential tremor, and put me on Neurontin. I am now taking

800mg 3 times a day. Although I still run into doorways, I don't fall

anymore, and I don't have seizures anymore.

But, I do have a problem of looking right at an object, and not being able

to name it.

I will say, " That thing you sit on, " for chair. It will come to me in a few

minutes, but I usually work for it. Some things just pop in my head days

later.

Is it stress? Is it depression? Is it old age? Is it serious? I don't know.

When I forgot who our dear Donna R. was it floored me. She is our moderator,

and the precious person that sent me the LBD DVD. I was baffled for days.

THAT scared me. I even asked around who she was.

Another problem that concerns me is reaching for a cabinet on the wrong side

of the room. I do that a lot. Then wonder why I was reaching on the opposite

side than I should have.

I too, am keeping notes. Some say we caregivers get the " dementia of

caregivers "

I guess I sure have it.

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with

Parkinsonism.

In a message dated 7/19/2006 1:49:28 PM Central Daylight Time,

LadySmilingAtU2@... writes:

courage,

i can totally relate, as i have had some lbd symptoms myslef, like 3

unexplained falls in teh past 4 months, and several memory issues of things i

should know, like my oldest dog, i couldnt remember her name, i have had her

for

14 years, adn i had to pull out her akc papers to look up her name, and then

grasping for words i should know, i am scared, going to talk to my md next

appt, whenever i make that appt. scary, hugs, sharon m

--

Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from

fall 7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration

pneumonia and uti 8/05, died of blood pressure drop on 9/25/05,

may he rest in peace with his mom and dad,

a smile a day keeps the meanies away

---- gaat wrote:

My first impluse was to want to get tested but then immediately followed

by " do I really want to know? " , especially since there aren't any

treatments?

I'm going to assume that I get this darned disease (all of my medical

conditions have mirrored my mother's as hers mirrored her mother who

also had dementia) but I'm going to live like I won't get it. I don't

want to waste my life worrying about something that I can't prevent

today.

Courage

------------------------

[Guest guest]

My first impluse was to want to get tested but then immediately followed

by " do I really want to know? " , especially since there aren't any

treatments?

I'm going to assume that I get this darned disease (all of my medical

conditions have mirrored my mother's as hers mirrored her mother who

also had dementia) but I'm going to live like I won't get it. I don't

want to waste my life worrying about something that I can't prevent

today.

Courage