Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 This isn't something a lot of doctors test, though it's something more of them are starting to and more of them SHOULD test. I felt fatigued like nobody's business, and achy like I had the flu (but it clearly wasn't the flu because some of the more obvious symptoms were missing) - for well over a year. Finally, one of the rheumatologists I saw for my lower back problems did a Vitamin D test as one of his routine tests and it was 8 point something. A few weeks of a prescription strength supplement only got it part way to a low normal (I had to take two rounds of prescription supplements) but I was able to tell a notable difference even from that. Over the last couple of months, I started getting the same generic, flu like but no fever feeling - so I had my GP test my Vitamin D. Sure enough. It was back down to 20. I'm back on supplements and already slowly starting to feel better. Not sure why everyone ignores this particular vitamin... I wonder how many others of us have this problem. Dee On Thu, Oct 8, 2009 at 5:09 AM, staci_moorman wrote: > > > I put a post on here awhile back asking for reasons I would feel so much > better while I was pregnant. And then once I wasn't pregnant anymore my > symptoms returning. Someone suggested I have my Vitamin D levels checked and > sure enought they were extremely low! I have been taking Calcium with > Vitamin D and I can't believe how much that has helped! Thank you to whoever > it was that mentioned that and maybe someone reading this will discover the > same results! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 After my surgery with Dr Oro - and i found out my Vitamin D levels were half what the lowest level should be - i was started on a Vitamin D emulsion liquid drop that goes under the tongue at bedtime - while i haven't noticed a difference in pain levels - i did notice a huge difference in energy levels - which is not always a good thing when recovering from surgery! I had previously heard we should all get our vitamin D levels checked but my PCP looked at me like i was crazy and told me she had never in 20 yr checked that on anyone - Now - however - after seeing my levels from Dr Oro - she has added it to her tests that she runs on her patients! So - yep - we all need to get this checked! Have a blessed day - Terry Lynne (PS - update on surgery to follow) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2009 Report Share Posted October 14, 2009 Dr. Oz did a thing on it on Oprah (before he had his own show afew months ago). He recommended 15 minutes per day in the sun. You body makes vitamin D from sun exposure I recently heard him mention it again on his show, too. Sandy in Florida _____ From: [mailto: ] On Behalf Of Dee Amschler Sent: Thursday, October 08, 2009 11:49 AM To: Subject: Re: Vitamin D Importance: High This isn't something a lot of doctors test, though it's something more of them are starting to and more of them SHOULD test. I felt fatigued like nobody's business, and achy like I had the flu (but it clearly wasn't the flu because some of the more obvious symptoms were missing) - for well over a year. Finally, one of the rheumatologists I saw for my lower back problems did a Vitamin D test as one of his routine tests and it was 8 point something. A few weeks of a prescription strength supplement only got it part way to a low normal (I had to take two rounds of prescription supplements) but I was able to tell a notable difference even from that. Over the last couple of months, I started getting the same generic, flu like but no fever feeling - so I had my GP test my Vitamin D. Sure enough. It was back down to 20. I'm back on supplements and already slowly starting to feel better. Not sure why everyone ignores this particular vitamin... I wonder how many others of us have this problem. Dee On Thu, Oct 8, 2009 at 5:09 AM, staci_moorman <staci_moorman@ <mailto:staci_moorman%40yahoo.com> yahoo.com>wrote: > > > I put a post on here awhile back asking for reasons I would feel so much > better while I was pregnant. And then once I wasn't pregnant anymore my > symptoms returning. Someone suggested I have my Vitamin D levels checked and > sure enought they were extremely low! I have been taking Calcium with > Vitamin D and I can't believe how much that has helped! Thank you to whoever > it was that mentioned that and maybe someone reading this will discover the > same results! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2011 Report Share Posted June 9, 2011 Yes! We are doing much better! Thank Goodness we have good medical coverage as the PIP only covered $50,000. The hospital bill was $32,000 for only the surgery. OUCH! She'll need another surgery later on. Hurrah,! You survived! ABx are hard to tolerate when the body is toxic. I hope they worked for you! Lyme tests are notoriously inaccurate. Good that you tested via Igenex. It's the only lab that actually uses the strains of Lyme that are found in the various parts of the U.S.A. - the other labs typically use European strains. Also, the other labs typically don't report the values for all the specific bands. Some of the bands are Lyme specific (others can be due to other infections) - the CDC excludes the Lyme specific bands because there used to be a vaccination for Lyme, which is idiocy really since people would know whether or not the positive result was possibly due to being vaccinated. My son's CD57 test was 39 and his doctor thought that was fine. He was so wrong! Also, Lyme changes forms over time and the tests just cannot pick it up - the cystic form can be the most insidious as that gets into cartilage and Lyme is very difficult to eradicate in that from. Lyme bacteria have a 4+ week lifespan, so typically any antibiotics need to be given for at least 30 days. My son had very little tolerance for the antibiotics early on because he was so toxic - the toxin load increases while on ABx since the ABbx are killing things, so you get all the toxic debris. After being on the Shoemaker protocol for 9 months, his tolerance for ABx increased dramatically and then could handle the 30 days without becoming almost totally debilitated. There is a lot of debate as to the order in which you treat things and it can require many iterations through the various protocols. My son was negative on the VCS test, but the labs that Shoemaker recommends had lots of abnormal results. So he was also on the Cholestyramine for several months. Some people just don't test positive - Shoemaker says that the bar for positive is fairly high to avoid false positives, so a subset of individuals that are negative do have issues. He actually looks at 6 key factors in making a Dx - if 3/6 are positive, then he has a high level of certainty that toxins (from mold or Lyme or other biotoxin producing organisms) are the cause. The 6 factors he considers (with 3 out of these 6 being hormonal) are:1) Gene test2) Hormones in the brain (MSH) - this controls all your hormones3) Inflammatory marker (MMP9)4) Disruption of pituitary hormones: TSH, ACTH, adrenal5) Management of salt & Water (ADH/vasopressin, osmolality) - ADH is the hormone that tells your kidneys to excrete fluids. If it's low, you urinate all the time. If it's high, you often have high BP and bloating. 6) VCS test results This is really why most docs will not catch this because they would never consider that patients could have these hormonal disruptions without total failure of the glands/organs. All the codes and recommended labs for those tests are on his website: www.biotoxin.info/Lab_Tests The thing about mold and Lyme is that since each produces toxins, which trigger inflammation, exposure to one will often trigger the other. You can never totally eradicate the Lyme (our bodies actually have more cells that are non-human than we have human cells). So, if you have had Lyme and then get exposed to mold, a cascade of inflammatory reactions is triggered, which impacts the immune system and thus the Lyme will often surface again. Or, if you've had mold exposure and then get Lyme, your immune system is already in a state where it is incapable of handling the Lyme infection. And, this all has to do with genetic predisposition - 25% of the population has the genes that predispose being made ill due to the inability to recognize the mold toxins. The good news is that these things can be treated with both conventional and alternative therapies. My son had 30+ abnormalities out of the 40+ tests that Dr. Shoemaker recommends. We did not actually see Dr. Shoemaker, but Dr. Amy Derksen in Bellevue, WA. She primarily treats autistic patients, BUT she is extremely knowledgeable about Lyme, mold, food reactions, etc. She follows Dr. Shoemaker's research. Sorry for another long post, but I do hope the information helps. Hugs,~Bj > > > > > > >> > > > > > > Hello All-> > > > > > >> > > > > > > I wanted to share my experience with the high dosage of vitamin> > D.> > > > Last year I was diagnosed with Fibromyalgia due to severe pain & > > fatigue,> > > > mostly in the backs of my legs and upper neck and shoulders. At that> > time, I> > > > was given a prescription for an anti-depressant and two different> > narcotic> > > > pain medications. I went home very upset at the diagnosis and also that> > I> > > > was given pain medicine and just sent home to deal with it.> > > > > > >> > > > > > > Long story short, I never began the pain meds and started looking> > for> > > > a new doctor. Finally found a specialist and one of the first things he> > did> > > > was test my Vitamin D levels. My levels were very low. He started me on> > > > Photerol 50 by advanced medical labs. For the first 6 weeks I took two> > > > 50,000 IU capsules per week. After that I began taking just one per> > week. I> > > > am a very different person than I was just a year ago. I have lost> > 20lbs, I> > > > attend the gym at least 4 times per week. I just finished my first half> > > > marathon a couple of weeks ago.> > > > > > >> > > > > > > Vitamin D changed my life completely!> > > > > > >> > > > > > > Hope this helps!!> > > > > > >> > > > > > > Sandy> > > > > > >> > > > > >> > > > >> > > >> > > >> > > >> > >> >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 Hey there Bj, YES, I finished the triple ABx! And only by God's goodness! I came so close to throwing in the towel on several occasions. I am SO HOPING IT WORKED...  Wow Bj. Thanks for the detailed info re Lyme's/biotoxins/mold. I'm trying to do things in a systematic order (ie. get the gut cleared first) but it's hard to know in what order to tackle things! (I'm thinking maybe allergy identification is next. The skin prick tests revealed nothing food related, so I may do that blood test from US BioTek.) I've heard of Dr. Derksen before. In fact, I tried to get in with her last year but she wasn't accepting any new patients at the time. Anyways, I just need to be patient and not try to schedule/fix everything all at once!  This healing process will take a long time, so I just need to keep reminding myself of that.  How is your son's CD57 now, if you don't mind me asking? My LLMD says the goal is to get it up to >200. I didn't think my CD57 of 90 was so very bad, but what do I know... Is Lyme's the only thing that affects one's CD57 level?  You're explanation on the mold + Lyme's was very interesting to me. It makes sense. Come to think of it, I remember my health taking a nose dive back in '04 when I was a senior at college, living in a moldy, musty old house. A real health hazard. I'm wondering if mold might be a huge culprit here...  First thing's first though: clear the gut.  I will ask my LLMD if she is aware of the Shoemaker protocol.  Thank you kindly, Steph    Yes! We are doing much better! Thank Goodness we have good medical coverage as the PIP only covered $50,000. The hospital bill was $32,000 for only the surgery. OUCH! She'll need another surgery later on. Hurrah,! You survived! ABx are hard to tolerate when the body is toxic. I hope they worked for you! Lyme tests are notoriously inaccurate. Good that you tested via Igenex. It's the only lab that actually uses the strains of Lyme that are found in the various parts of the U.S.A. - the other labs typically use European strains. Also, the other labs typically don't report the values for all the specific bands. Some of the bands are Lyme specific (others can be due to other infections) - the CDC excludes the Lyme specific bands because there used to be a vaccination for Lyme, which is idiocy really since people would know whether or not the positive result was possibly due to being vaccinated.  My son's CD57 test was 39 and his doctor thought that was fine. He was so wrong! Also, Lyme changes forms over time and the tests just cannot pick it up - the cystic form can be the most insidious as that gets into cartilage and Lyme is very difficult to eradicate in that from. Lyme bacteria have a 4+ week lifespan, so typically any antibiotics need to be given for at least 30 days. My son had very little tolerance for the antibiotics early on because he was so toxic - the toxin load increases while on ABx since the ABbx are killing things, so you get all the toxic debris. After being on the Shoemaker protocol for 9 months, his tolerance for ABx increased dramatically and then could handle the 30 days without becoming almost totally debilitated. There is a lot of debate as to the order in which you treat things and it can require many iterations through the various protocols. My son was negative on the VCS test, but the labs that Shoemaker recommends had lots of abnormal results. So he was also on the Cholestyramine for several months. Some people just don't test positive - Shoemaker says that the bar for positive is fairly high to avoid false positives, so a subset of individuals that are negative do have issues. He actually looks at 6 key factors in making a Dx - if 3/6 are positive, then he has a high level of certainty that toxins (from mold or Lyme or other biotoxin producing organisms) are the cause.  The 6 factors he considers (with 3 out of these 6 being hormonal) are:1) Gene test2) Hormones in the brain (MSH) - this controls all your hormones3) Inflammatory marker (MMP9)4) Disruption of pituitary hormones: TSH, ACTH, adrenal 5) Management of salt & Water (ADH/vasopressin, osmolality) - ADH is the hormone that tells your kidneys to excrete fluids. If it's low, you urinate all the time. If it's high, you often have high BP and bloating. 6) VCS test results This is really why most docs will not catch this because they would never consider that patients could have these hormonal disruptions without total failure of the glands/organs. All the codes and recommended labs for those tests are on his website: www.biotoxin.info/Lab_Tests The thing about mold and Lyme is that since each produces toxins, which trigger inflammation, exposure to one will often trigger the other. You can never totally eradicate the Lyme (our bodies actually have more cells that are non-human than we have human cells). So, if you have had Lyme and then get exposed to mold, a cascade of inflammatory reactions is triggered, which impacts the immune system and thus the Lyme will often surface again. Or, if you've had mold exposure and then get Lyme, your immune system is already in a state where it is incapable of handling the Lyme infection. And, this all has to do with genetic predisposition - 25% of the population has the genes that predispose being made ill due to the inability to recognize the mold toxins. The good news is that these things can be treated with both conventional and alternative therapies. My son had 30+ abnormalities out of the 40+ tests that Dr. Shoemaker recommends. We did not actually see Dr. Shoemaker, but Dr. Amy Derksen in Bellevue, WA. She primarily treats autistic patients, BUT she is extremely knowledgeable about Lyme, mold, food reactions, etc. She follows Dr. Shoemaker's research. Sorry for another long post, but I do hope the information helps. Hugs,~Bj    > > > > > > >> > > > > > > Hello All-> > > > > > >> > > > > > > I wanted to share my experience with the high dosage of vitamin > > D.> > > > Last year I was diagnosed with Fibromyalgia due to severe pain & > > fatigue,> > > > mostly in the backs of my legs and upper neck and shoulders. At that > > time, I> > > > was given a prescription for an anti-depressant and two different> > narcotic> > > > pain medications. I went home very upset at the diagnosis and also that > > I> > > > was given pain medicine and just sent home to deal with it.> > > > > > >> > > > > > > Long story short, I never began the pain meds and started looking > > for> > > > a new doctor. Finally found a specialist and one of the first things he> > did> > > > was test my Vitamin D levels. My levels were very low. He started me on > > > > Photerol 50 by advanced medical labs. For the first 6 weeks I took two> > > > 50,000 IU capsules per week. After that I began taking just one per> > week. I> > > > am a very different person than I was just a year ago. I have lost > > 20lbs, I> > > > attend the gym at least 4 times per week. I just finished my first half> > > > marathon a couple of weeks ago.> > > > > > >> > > > > > > Vitamin D changed my life completely! > > > > > > >> > > > > > > Hope this helps!!> > > > > > >> > > > > > > Sandy> > > > > > >> > > > > > > > > > >> > > >> > > >> > > >> > >> >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 do be careful tho when interpreting not only test results but also the meaning of Tests themselves the fact is that MSH and Vasopressin (AKA ADH) and POMC are main brain system " chemicals and their Multiple receptors located in the brani itself /as well as elsewhere/ mean these 'systems' are used by the brain and body to accomplish many different " Functions " . these tests simply can't be used to " prove " that someone has Lyme or Mold/biotoxin. for example: Vasoprsesni (ADH) is also a 'chemical' the hypothalamus releases directly in to our brain and Ventricular system (via the CSF fluid) which also connects to our Inner_ear. and both Vasoprsesin and MSH diretly affect our Eyes and 100 other body parts, not just our Optic Nerves and the major thing to know about these brain chemiicals as that they are also part of our HPA axis and our Stress System! so IOW ;whether you test abnormal via blood or VCS eye tests,, does not prove any one has Lyme. it proves that their MSH and etc are imbalanced. Basically what that proves is that your body's Stress-System has been affected (usualy upregulated in to stress mode either Chroncially OR acutely... and the stress-system's own chemicals OR its later 'Chronic massive upregulation and Falling (Fatiguing) levels can occur in any of the chemical Producing Cells In the brain or periphery. The body uses our senses as part of the Stress system sterss system keeps us alive and our Species alive (sex and procreation) all teh above uses our sense and their sensing of Patterns and Pattern Recognition Visual patterns and contrasts and depth perception sound patterns (voices music rader= depth percpetion:) Touch patterns and smell 'patterns' = recognizing safe smells and unsafe sources of specific smells our Senses use " Pattern recognition " 24/7 here is an interesting discussion on the eye and immune system ; but not in context of either mold or Lymes. http://www.bumc.bu.edu/ophthalmology/research-programs/andrew-w-taylor-phd/ > > > > > > > > > > > > > > > > > > Hello All- > > > > > > > > > > > > > > > > > > I wanted to share my experience with the high dosage of > > vitamin > > > > D. > > > > > > Last year I was diagnosed with Fibromyalgia due to severe pain & > > > > fatigue, > > > > > > mostly in the backs of my legs and upper neck and shoulders. At > > that > > > > time, I > > > > > > was given a prescription for an anti-depressant and two different > > > > narcotic > > > > > > pain medications. I went home very upset at the diagnosis and also > > that > > > > I > > > > > > was given pain medicine and just sent home to deal with it. > > > > > > > > > > > > > > > > > > Long story short, I never began the pain meds and started > > looking > > > > for > > > > > > a new doctor. Finally found a specialist and one of the first > > things he > > > > did > > > > > > was test my Vitamin D levels. My levels were very low. He started > > me on > > > > > > Photerol 50 by advanced medical labs. For the first 6 weeks I took > > two > > > > > > 50,000 IU capsules per week. After that I began taking just one per > > > > week. I > > > > > > am a very different person than I was just a year ago. I have lost > > > > 20lbs, I > > > > > > attend the gym at least 4 times per week. I just finished my first > > half > > > > > > marathon a couple of weeks ago. > > > > > > > > > > > > > > > > > > Vitamin D changed my life completely! > > > > > > > > > > > > > > > > > > Hope this helps!! > > > > > > > > > > > > > > > > > > Sandy > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2011 Report Share Posted June 13, 2011 Steph, If you have both Lymes and mold you really need to focus on both of these biotoxins together. It's rare to find a Lyme patient that does not have mold and thyroid issues and treating the Lyme infection itself is only a piece of the puzzle. It is interesting as one thing Dr. Derksen noted as she was treating my son is that she mentioned she should pay more attention to thyroid function for her autistic patients. We thought my son had mold but he also was treated for Lymes and mercy poisoning. Interestingly, I have talked to many people who thought they had one or the other and was told they had both. This has come up quiet often so just forwarding this oddity on to you. I am interested if you are parallel here, too. Fish oil is very effective for inflammation. The detox protocol my son was on was an old cholesterol lowering medicine – Cholestyramine aka CSM. By binding out the cholesterol, the toxins were also removed. At times he still experienced worsening of symptoms due to the increased circulation of the biotoxins. A low carb/anti-inflammatory diet can also help tremendously with the inflammation and reduce pain. He was on the CSM for two months before the doctor started the harsh ABxs. The biotoxins do interfere with the thyroid function by impacting receptors, etc. Mark Starr discusses this in his book Hypothyroidism Type II. Dr Derksen said that his levels of mercury were quiet high, much higher than her autistic patients. Fungal overgrowth is also extremely common. My personal opinion is that CFS and FM are not diseases in isolation but represent a constellation of symptoms - which of course overlap with those associated with Lyme disease, thyroid disease, etc. Make sure your doctor is testing the CD57 NK test and not the CD57 T test. NK (natural killer) cells form part of the innate immune system and are always "switched on" while T-cells form part of the adaptive immune response and need to be "switched on." Thus, Lymes may not be picked up on the T test. Dr. Derksen said the CD57 T test often gives a false negative. She said the CD57 NK test is the proper test for Lymes. A low result means Lymes and she treats all patients with values under 100 for Lymes - the exception is advanced Aids patients can also test low. So having an AI disease you will not test low – the CD56 NK test is for autoimmunity. She uses a lab in Austin, TX called Clinical Pathology Laboratories. I was somewhat concerned but relieved when my son's last test in Apr was 250. It has been a rough year for him. He is afraid to go near trees without a big hat and full body cover, now. I am a little freaked, too. I have found two ticks on my clothing in the last week. We do a tick check every day - it is kinda scary! Hope this helps,~Bj > > > > > > > > >> > > > > > > > > Hello All-> > > > > > > > >> > > > > > > > > I wanted to share my experience with the high dosage of> > vitamin> > > > D.> > > > > > Last year I was diagnosed with Fibromyalgia due to severe pain & > > > > fatigue,> > > > > > mostly in the backs of my legs and upper neck and shoulders. At> > that> > > > time, I> > > > > > was given a prescription for an anti-depressant and two different> > > > narcotic> > > > > > pain medications. I went home very upset at the diagnosis and also> > that> > > > I> > > > > > was given pain medicine and just sent home to deal with it.> > > > > > > > >> > > > > > > > > Long story short, I never began the pain meds and started> > looking> > > > for> > > > > > a new doctor. Finally found a specialist and one of the first> > things he> > > > did> > > > > > was test my Vitamin D levels. My levels were very low. He started> > me on> > > > > > Photerol 50 by advanced medical labs. For the first 6 weeks I took> > two> > > > > > 50,000 IU capsules per week. After that I began taking just one per> > > > week. I> > > > > > am a very different person than I was just a year ago. I have lost> > > > 20lbs, I> > > > > > attend the gym at least 4 times per week. I just finished my first> > half> > > > > > marathon a couple of weeks ago.> > > > > > > > >> > > > > > > > > Vitamin D changed my life completely!> > > > > > > > >> > > > > > > > > Hope this helps!!> > > > > > > > >> > > > > > > > > Sandy> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > > >> > > > > >> > > > >> > > >> > > >> > > >> > >> >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2011 Report Share Posted June 14, 2011 Carol, Dr Shoemaker does NOT just use the six tests that I previously mentioned to Dx biotoxins or neurotoxin disorders. According to several people that actually saw him and was treated by him, he ran around 40 tests. MSH, ADH and VCS tests are just three of the many tests he uses and recommends. Co-infections are often culprits that go undetected so be sure to look for Bartonella or Babesia and/or Ehrlichia, which destroys red blood cells. Again, it is highly unlikely that these tests are being misused and misunderstood. Dr Shoemaker has done tremendous research on Lymes and mold and their affects on the brain. He has been using CSM -Cholestyramine, a cholesterol drug, off-label. It binds cholesterol, bile salts and biotoxins in the small intestine, the biotoxins cannot be reabsorbed, thus the biotoxins are excreted harmlessly via stool waste. Several people have mentioned that CSM was used by some of the NYC 911 clean-up crew to get biotoxins out of their bodies -one such person is a local professor friend who helped post 911. Dr Shoemaker and other Lyme experts agree that if they find low CD57 NK markers (and elevated C4-A markers in mold patients), and if symptoms are persistent beyond the initial antibiotic protocol that may indicate that a longer antibiotic treatment, possibly including intravenous antibiotic therapy. The Visual Contrast Sensitivity (VCS) test is a pattern recognition test that Dr Shoemaker uses to help determine how the nervous system is functioning. According to Dr ph Burrascano, another Lymes expert, at least 70-90% of patients whose VCS test is abnormal feel better with treatment, while 30% of patients who test normal from the VCS test feel better with neurotoxin treatment. Far too often, suffering patients have been left in the middle because many physicians feel that diagnostic tests for Lyme are unreliable, due to differences between strains of the bacteria, and the potential for co-infections. Essentially patients are ignored by doctors who insist that their long-term symptoms aren't the result of Chronic Lyme, but that of Fibromyalgia, Chronic Fatigue Syndrome, depression or IBS (irritable bowel syndrome). We thyroid patients understand this very well. People who cannot naturally eliminate biotoxins develop chronic illness. About 25% of patients with Lymes or mold disease are susceptible to biotoxin illnesses. Dr Shoemaker and other biotoxin experts have proven the toxins can be eliminated and good health can be restored. HTH, ~Bj > > > > > > > > > >> > > > > > > > > > Hello All-> > > > > > > > > >> > > > > > > > > > I wanted to share my experience with the high dosage of> > > vitamin> > > > > D.> > > > > > > Last year I was diagnosed with Fibromyalgia due to severe pain & > > > > > fatigue,> > > > > > > mostly in the backs of my legs and upper neck and shoulders. At> > > that> > > > > time, I> > > > > > > was given a prescription for an anti-depressant and two different> > > > > narcotic> > > > > > > pain medications. I went home very upset at the diagnosis and also> > > that> > > > > I> > > > > > > was given pain medicine and just sent home to deal with it.> > > > > > > > > >> > > > > > > > > > Long story short, I never began the pain meds and started> > > looking> > > > > for> > > > > > > a new doctor. Finally found a specialist and one of the first> > > things he> > > > > did> > > > > > > was test my Vitamin D levels. My levels were very low. He started> > > me on> > > > > > > Photerol 50 by advanced medical labs. For the first 6 weeks I took> > > two> > > > > > > 50,000 IU capsules per week. After that I began taking just one per> > > > > week. I> > > > > > > am a very different person than I was just a year ago. I have lost> > > > > 20lbs, I> > > > > > > attend the gym at least 4 times per week. I just finished my first> > > half> > > > > > > marathon a couple of weeks ago.> > > > > > > > > >> > > > > > > > > > Vitamin D changed my life completely!> > > > > > > > > >> > > > > > > > > > Hope this helps!!> > > > > > > > > >> > > > > > > > > > Sandy> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > >> > > > >> > > > >> > > > >> > > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2011 Report Share Posted June 15, 2011 re: the tests i mentioned in my post below and the point i am making: again don't assume just cuz a doctor/s saying a Test tests for 1 specific thing , is really the Only thing or any of the SPecific things the tests are " labeled " to test for (Sorry had to use the word Test a lot :^/ IOW there is a LOT of 'shorthand " going on by doctors when Communicating the science RE a lab test and also what its results prove or don't prove. ! ,, where it turns out they are not being 'exact' or specific enough in their communication re: science. ****** Another completely separate example to illustrate what i mean: the TTG test /suddenly popular gluten related test / turns out that our body makes this TTG enzyme for a number of reasons, (including candida related procesess)and etc.. YET Drs are 'labeling' and calling it and advertising it as a " Gluten Test " !!! and they are NOT mentiioning the fact our body SHould make this enzyme and list ALl the reasons it does make TTG ... (That is simply inaccurate and will cause False Positives and also cause some people who have high TTG to NTO get the treatmetns they need!) ********* when GOOGLING for DR SHoemaker this site always comes up on the first page: http://www.chronicneurotoxins.com/ this is DR Shomeakers site http://www.chronicneurotoxins.com/info/meetus.cfm Meet Us Ritchie C. Shoemaker, MD, is a m +++++++++++++++++++++++++++++++++++ and they are VERy unprecise in their language RE: what the VCR test specifically tests and proves... as they have been also about MSH etc most people think that if you do bad on this test that you MUST have Biotoxins , etc. that simply is not accurate or true because the tests That *I* mentioned are merely testing things we have /Should have in our bodies and ALL of which get affected by stress. of any type. i personally saw my Vision and Vasoprsesin (and MSH and acth) Signs and Symtpoms change and be cured WHILE taking PS + Rhodiola. yet here is DR SHomaker's V site http://www.chronicneurotoxins.com/learnmore/genqnas.cfm charging money and talking about Protocls/ Cures ALL based on someone failing the Eye test!!! http://www.chronicneurotoxins.com/info/research.cfm " Our Research Our research led to the discovery of a diagnosis and treatment paradigm for chronic, biotoxin-induced illness. The paradigm includes multiple system symptoms, a deficit in the ability to detect visual patterns (measured by the VCS test) and treatment with a non-absorbable polymer (CSM) to bind toxins and increase their elimination rate. " NOTE: you will note that i did Not tell any one they did not have lymes nor that they shojld not see DR SHoemkaer nor they did not have a MOld problem or etc.. i AM saying: the VCS test and DR Shoemakers work and WORDS on his tests and interpretations are not accurate. (NOTE: i am /was VERy interested in Molds becuz that was 1 of my Biggest symptosm as a HYPOT/ hashis/ Adrenal Fatigue as a child in the midwest (many people had slightly or high ly moldy basements and even 1st and 2nd floors) i WAS overwhelmed by them.. and my ability to not even notice anytning but their smell (Vs getting massive sytmposm signs like the old days) has improved almost to the point of cure. *********** tho i now will add that here in 2011 there IS another school of thought on things LIke Molds ** where some people exposed /in the same environment/ get super sick and Some are AOK and *never get sick* there is a school of thought that is related to CNS and Central Nervous system hypersensitivity (arousal is not a great description cuz it makes it sound like your endogenous chemicasl would be High) *********** Here is another Doctors/school of thought Looking at things like MOLD and our MSH/ Stress hormoen! http://www.usmoldphysician.com/articles/mshhormonebasics.html MSH or Melanocyte-Stimulating Hormone Basics (Please allow 20 seconds for file to load) *********** Warning: YOu will note the " Header " at the top of the page also mentions LYme and Babsia and also CFS and FM (Which i had) i have ZERO idea NO IDEA if this site has any thing useful or pertinent to say abuot Lymes or Babesia ! However Warning: it does appear that he does not think much of DR Shoemaker also: this website and DR do know a thing or 2 as i can tell fro his pages on MSH AND the fact that HE KNOWS the ADRenals make ADH! NO other AF or other Alternative DR has ever stated this Fact =-i learned this via reading actual medical texts. http://www.usmoldphysician.com/articles/moldtoxinshurtbody.html i do know that he is including very correct info about what MSH does in the body and all its rols in our CNS and body " Damage to Adrenal glands (Makes Cortisol, DHEA and ADH***) " > > > > > > > > > > > > > > > > > > > > > > Hello All- > > > > > > > > > > > > > > > > > > > > > > I wanted to share my experience with the high dosage > of > > > > vitamin > > > > > > D. > > > > > > > > Last year I was diagnosed with Fibromyalgia due to severe > pain & > > > > > > fatigue, > > > > > > > > mostly in the backs of my legs and upper neck and > shoulders. At > > > > that > > > > > > time, I > > > > > > > > was given a prescription for an anti-depressant and two > different > > > > > > narcotic > > > > > > > > pain medications. I went home very upset at the diagnosis > and also > > > > that > > > > > > I > > > > > > > > was given pain medicine and just sent home to deal with > it. > > > > > > > > > > > > > > > > > > > > > > Long story short, I never began the pain meds and > started > > > > looking > > > > > > for > > > > > > > > a new doctor. Finally found a specialist and one of the > first > > > > things he > > > > > > did > > > > > > > > was test my Vitamin D levels. My levels were very low. He > started > > > > me on > > > > > > > > Photerol 50 by advanced medical labs. For the first 6 > weeks I took > > > > two > > > > > > > > 50,000 IU capsules per week. After that I began taking > just one per > > > > > > week. I > > > > > > > > am a very different person than I was just a year ago. I > have lost > > > > > > 20lbs, I > > > > > > > > attend the gym at least 4 times per week. I just finished > my first > > > > half > > > > > > > > marathon a couple of weeks ago. > > > > > > > > > > > > > > > > > > > > > > Vitamin D changed my life completely! > > > > > > > > > > > > > > > > > > > > > > Hope this helps!! > > > > > > > > > > > > > > > > > > > > > > Sandy > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2011 Report Share Posted June 15, 2011 forogt this CNS hypersensitivity /loop problem that DR Pall talks about http://onlinelibrary.wiley.com/doi/10.1002/9780470744307.gat091/abstract Multiple Chemical Sensitivity: Toxicological Questions and Mechanisms 1. L. Pall PhD this is also the NO ONOO and Fibromyaliga DR who talks about NMDA " can act indirectly to increase NMDA activity and the toxic effects of members of each of these classes can be lowered by using NMDA antagonists. " etc and a group talking about how to treat Biotoxins: http://www.mecfsforums.com/index.php?topic=982.0 btw NMDA and Vasopressin affect each other and us! and Vasopressin is affectedin HYPOTS and any one with any " STress " as its the Hypothalamus/ HPA axis STRESS SYSETM hormone and neuropeptide http://www.google.com/#sclient=psy & hl=en & source=hp & q=NMDA+%2B+Vasopressin+ & aq=f & \ aqi= & aql= & oq= & pbx=1 & bav=on.2,or.r_gc.r_pw. & fp=9dd7129c70b71d22 & biw=757 & bih=480 > > > > > > > > > > > > > > > > > > > > > > > > Hello All- > > > > > > > > > > > > > > > > > > > > > > > > I wanted to share my experience with the high dosage > > of > > > > > vitamin > > > > > > > D. > > > > > > > > > Last year I was diagnosed with Fibromyalgia due to severe > > pain & > > > > > > > fatigue, > > > > > > > > > mostly in the backs of my legs and upper neck and > > shoulders. At > > > > > that > > > > > > > time, I > > > > > > > > > was given a prescription for an anti-depressant and two > > different > > > > > > > narcotic > > > > > > > > > pain medications. I went home very upset at the diagnosis > > and also > > > > > that > > > > > > > I > > > > > > > > > was given pain medicine and just sent home to deal with > > it. > > > > > > > > > > > > > > > > > > > > > > > > Long story short, I never began the pain meds and > > started > > > > > looking > > > > > > > for > > > > > > > > > a new doctor. Finally found a specialist and one of the > > first > > > > > things he > > > > > > > did > > > > > > > > > was test my Vitamin D levels. My levels were very low. He > > started > > > > > me on > > > > > > > > > Photerol 50 by advanced medical labs. For the first 6 > > weeks I took > > > > > two > > > > > > > > > 50,000 IU capsules per week. After that I began taking > > just one per > > > > > > > week. I > > > > > > > > > am a very different person than I was just a year ago. I > > have lost > > > > > > > 20lbs, I > > > > > > > > > attend the gym at least 4 times per week. I just finished > > my first > > > > > half > > > > > > > > > marathon a couple of weeks ago. > > > > > > > > > > > > > > > > > > > > > > > > Vitamin D changed my life completely! > > > > > > > > > > > > > > > > > > > > > > > > Hope this helps!! > > > > > > > > > > > > > > > > > > > > > > > > Sandy > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2011 Report Share Posted June 17, 2011 Carol, Thanks for the info. If my son or any of my family ever get biotoxin illness again, I'll be sure to look at your posts more closely. FWIW, probiotics was not a cure all for us although I think they did help a little bit. Like thyroid drugs, some work and some don't; CSM works for some people and really glad it did such a great job for us along with all the other herbs and supplements. To wellness, ~Bj > > > > > > > > > > > > > > > > > > > > > > > > > > Hello All- > > > > > > > > > > > > > > > > > > > > > > > > > > I wanted to share my experience with the high dosage > > > of > > > > > > vitamin > > > > > > > > D. > > > > > > > > > > Last year I was diagnosed with Fibromyalgia due to severe > > > pain & > > > > > > > > fatigue, > > > > > > > > > > mostly in the backs of my legs and upper neck and > > > shoulders. At > > > > > > that > > > > > > > > time, I > > > > > > > > > > was given a prescription for an anti-depressant and two > > > different > > > > > > > > narcotic > > > > > > > > > > pain medications. I went home very upset at the diagnosis > > > and also > > > > > > that > > > > > > > > I > > > > > > > > > > was given pain medicine and just sent home to deal with > > > it. > > > > > > > > > > > > > > > > > > > > > > > > > > Long story short, I never began the pain meds and > > > started > > > > > > looking > > > > > > > > for > > > > > > > > > > a new doctor. Finally found a specialist and one of the > > > first > > > > > > things he > > > > > > > > did > > > > > > > > > > was test my Vitamin D levels. My levels were very low. He > > > started > > > > > > me on > > > > > > > > > > Photerol 50 by advanced medical labs. For the first 6 > > > weeks I took > > > > > > two > > > > > > > > > > 50,000 IU capsules per week. After that I began taking > > > just one per > > > > > > > > week. I > > > > > > > > > > am a very different person than I was just a year ago. I > > > have lost > > > > > > > > 20lbs, I > > > > > > > > > > attend the gym at least 4 times per week. I just finished > > > my first > > > > > > half > > > > > > > > > > marathon a couple of weeks ago. > > > > > > > > > > > > > > > > > > > > > > > > > > Vitamin D changed my life completely! > > > > > > > > > > > > > > > > > > > > > > > > > > Hope this helps!! > > > > > > > > > > > > > > > > > > > > > > > > > > Sandy > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2011 Report Share Posted June 18, 2011 i am glad you are all better! i would also like to see how Existing brain /stress hormone tests could be used to help our HYPOT/ Hashis and Adrenal Fatigue populations including the noninvasive ones like the VCR eye test and Also the color vision and 3/d " stereo' Vision tests! that also provide clues to how the eyes/brain (and energy and " LIVER " zang fu system is doing RE: vision and the 'stress system' (Really all of our senses and the 'stress system) EUstress and Distress they are discovering more and more about Human Visual System ! (And as well as modern doctors making 'connections' RE the old time medical knowledge like TCM! anyway; VISION and PIGMENTS in the body are very tied together remember Pigments are part of our MSH/MCR sysstem adn MSH is our STress hormone of the HPA Axis and ACTH (the thing that tells the adrenals to make cortisol and etc) also can work on 1 of the MSH cell receptor/s (the MCR-1s ) etc http://www.photobiology.info/Musio.html NOTE the mention of Vasopressin and HIstamine (in humans the AMines including catecholamins and Histamine are the " mediators " of Vasopressin ) and ofcourse Vasopressin is TYipcally 2 high in HYPOTS and also should be high to increase the HPA Axis and the adrenals productio of cortisol :0 AND they also mention : cholinergic aceteylcholine is used by both our SNS and Parasympathetic Nervous systems ofcourse read the entire page for All the " Pigment " related items and functions (just remember our Pigments are part of our MSH/system which is also our Evolutionary Stress system that predates the existence of the HPA Axis ! " A human melanopsin has been found to be expressed in a subset of retinal ganglion cells named ipRGCs (intrinsically photosensitive retinal ganglion cells), which act as photoreceptors, but do not participate in the classic photoreceptive tasks culminating in image formation and spatial vision (Provencio et al., 2000). Without doubt, the melanopsin discovery, added to later identifications of non-visual photoreceptor cells and pigments, has radically changed our concept on vision ( and Hankins, 2007; Hankins et al., 2008). .... Furthermore, the activity of brain NVP systems has been examined in insects by means of pharmacological analysis. In the locust, Locusta migratoria, paired ***vasopressin-like immunoreactive neurons (VPLI) of the suboesophageal ganglion receive synaptic excitation from extraocular photoreceptors via cholinergic descendent interneurons " -Carol PPS HYPOThryodisim also affects our OPSINS! (which doe the Colors/sensing but also more than that > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello All- > > > > > > > > > > > > > > > > > > > > > > > > > > > > I wanted to share my experience with the high dosage > > > > of > > > > > > > vitamin > > > > > > > > > D. > > > > > > > > > > > Last year I was diagnosed with Fibromyalgia due to severe > > > > pain & > > > > > > > > > fatigue, > > > > > > > > > > > mostly in the backs of my legs and upper neck and > > > > shoulders. At > > > > > > > that > > > > > > > > > time, I > > > > > > > > > > > was given a prescription for an anti-depressant and two > > > > different > > > > > > > > > narcotic > > > > > > > > > > > pain medications. I went home very upset at the diagnosis > > > > and also > > > > > > > that > > > > > > > > > I > > > > > > > > > > > was given pain medicine and just sent home to deal with > > > > it. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Long story short, I never began the pain meds and > > > > started > > > > > > > looking > > > > > > > > > for > > > > > > > > > > > a new doctor. Finally found a specialist and one of the > > > > first > > > > > > > things he > > > > > > > > > did > > > > > > > > > > > was test my Vitamin D levels. My levels were very low. He > > > > started > > > > > > > me on > > > > > > > > > > > Photerol 50 by advanced medical labs. For the first 6 > > > > weeks I took > > > > > > > two > > > > > > > > > > > 50,000 IU capsules per week. After that I began taking > > > > just one per > > > > > > > > > week. I > > > > > > > > > > > am a very different person than I was just a year ago. I > > > > have lost > > > > > > > > > 20lbs, I > > > > > > > > > > > attend the gym at least 4 times per week. I just finished > > > > my first > > > > > > > half > > > > > > > > > > > marathon a couple of weeks ago. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Vitamin D changed my life completely! > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hope this helps!! > > > > > > > > > > > > > > > > > > > > > > > > > > > > Sandy > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2012 Report Share Posted August 2, 2012 Does anyone else have trouble taking Vitamin D. I have tried sublingqual, gel, drops etc. Ranging from 1000 - 5000. (my dr wanted me to take 50 thousand) When I take it I feel like my thyroid just swells up. I just feel unwell. Also get headaches. My last reading six month ago was 26. I know Vitamin D is important. Just can't seem to find the right dose. Frustrated:(I do fine with my monthly B12 shots. Wondering if others have similar issues with D?_,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2012 Report Share Posted August 3, 2012 Some vitamin D is made from fish oil so there may be iodine in the vitamin D and the iodine can stimulate thyroid activity. Sent from my BlackBerry® smartphone with SprintSpeed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2012 Report Share Posted August 8, 2012 Are you taking the D3 with a bit of fat? Dr Wm of HeartSccanBlog has found that his patients seem to absorb it better that way. I take mine with Vitamin K2 as well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2012 Report Share Posted August 8, 2012 Here is an acronym for how I remembered the fat soluble vitamins in nursing school:"All Dogs Eat Kibble"Vitamins A, D, E, & K These require fat for absorptionSent from my iPhone Are you taking the D3 with a bit of fat? Dr Wm of HeartSccanBlog has found that his patients seem to absorb it better that way. I take mine with Vitamin K2 as well. Quote Link to comment Share on other sites More sharing options...
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