Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 Jeanie, this brought tears to my eyes. --Lillu To: miralax Sent: Saturday, March 17, 2012 9:09 AM Subject: jaden jo I've been crying for 10.5 years about this mess, not just what it did to my daughter, but it's been like watching a building burn down with children inside and nobody will listen..............for 10 1/2 long years! I'm getting ready to retire now, I'm putting the papers in my living room away that have been sitting here, halfway to the ceiling for a decade, yes, I'm crying right now, and can't even type. But I've got to put this behind me, as my work is now done. My family needs me as I've had to set them aside to find the answers I needed to help my daughter and to help other families. This has taken more time than I'd like to admit away from my family, but I've learned a lot from this group. People say you can't save the world, but I sure did give it my best shot. These poor children need a voice. Until the experts admit they poisoned all these children and made a mistake, I will forever be sad. As for my daughter's residual reaction.............it's too hard to talk about, my soul aches and will to the day I die. Thank you everyone for being here for everyone in a crisis like this one...................my heart and prayers go out to all of you! Jeanie To: miralax Sent: Fri, March 16, 2012 9:55:42 PMSubject: No more rages My son's last dose of miralax was on either Sunday or Monday. He has been "rage free" since Wednesday. He has had 2-3 rages per day for I can't remember how long. This is absolutely unreal. Jeanne, i read the things you forwarded and I cried. I think I've been poisoning my son with miralax. He had two bizarre seizure like incidents and checked out fine with hospital and eeg but I'm really starting to think it may have been the miralax. Thank you to the person that led me to this forum (laurie?) and thanks to all who responded. To think if I had continued... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012  Me too, still crying............... Yvette No more rages My son's last dose of miralax was on either Sunday or Monday. He has been "rage free" since Wednesday. He has had 2-3 rages per day for I can't remember how long. This is absolutely unreal. Jeanne, i read the things you forwarded and I cried. I think I've been poisoning my son with miralax. He had two bizarre seizure like incidents and checked out fine with hospital and eeg but I'm really starting to think it may have been the miralax. Thank you to the person that led me to this forum (laurie?) and thanks to all who responded. To think if I had continued... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 What you have done Jeannie takes professional think tanks years and they get paid thousands of dollars. I love you for this labor of love. I cry often about this poison that has been dished out so happily and still cry when some people I know feed it to their kids. I am an adult, it is children and people like you who have truly suffered from it and hope this will work out and bring parents like you some peace. I see and feel what 2 months of it did to an overweight adult (me), I cannot imagine what pain parents are going through because they trusted their doctors would know everything necessary. Thank you to you and the others who have worked so very hard for all of us. RAe From: Lillu Sent: Saturday, March 17, 2012 9:01 AM To: miralax Subject: Re: jaden jo Jeanie, this brought tears to my eyes. --Lillu To: miralax Sent: Saturday, March 17, 2012 9:09 AMSubject: jaden jo I've been crying for 10.5 years about this mess, not just what it did to my daughter, but it's been like watching a building burn down with children inside and nobody will listen..............for 10 1/2 long years! I'm getting ready to retire now, I'm putting the papers in my living room away that have been sitting here, halfway to the ceiling for a decade, yes, I'm crying right now, and can't even type. But I've got to put this behind me, as my work is now done. My family needs me as I've had to set them aside to find the answers I needed to help my daughter and to help other families. This has taken more time than I'd like to admit away from my family, but I've learned a lot from this group. People say you can't save the world, but I sure did give it my best shot. These poor children need a voice. Until the experts admit they poisoned all these children and made a mistake, I will forever be sad. As for my daughter's residual reaction.............it's too hard to talk about, my soul aches and will to the day I die. Thank you everyone for being here for everyone in a crisis like this one...................my heart and prayers go out to all of you! Jeanie To: miralax Sent: Fri, March 16, 2012 9:55:42 PMSubject: No more rages My son's last dose of miralax was on either Sunday or Monday. He has been "rage free" since Wednesday. He has had 2-3 rages per day for I can't remember how long. This is absolutely unreal. Jeanne, i read the things you forwarded and I cried. I think I've been poisoning my son with miralax. He had two bizarre seizure like incidents and checked out fine with hospital and eeg but I'm really starting to think it may have been the miralax. Thank you to the person that led me to this forum (laurie?) and thanks to all who responded. To think if I had continued... Quote Link to comment Share on other sites More sharing options...
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