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Cherie, With fungal issues, things start subsiding pretty quickly once you hit the target. . . It sounds like you should start getting better now that you've found the target - and the right bullets! The key to success is to stay at it until you get there.. . It's hard to do because we long to feel better - not do something that appears to make us feel worse, even if it's temporary. Hugs, Rogene

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Thanks Rogene!

I'm hanging in there! It's funny how you begin to think your not

doing the right thing but in reality....you are! I know that since I

took 4 Pearls this morning, that was too much. I will just have to

itch a bit and only take a couple. Do it slowly....

Cherie

>

> Cherie,

>

> With fungal issues, things start subsiding pretty quickly once

you hit the target. . . It sounds like you should start getting

better now that you've found the target - and the right bullets!

>

> The key to success is to stay at it until you get there.. . It's

hard to do because we long to feel better - not do something that

appears to make us feel worse, even if it's temporary.

>

> Hugs,

>

> Rogene

>

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  • 3 weeks later...

Hi Cherie,

I'm one of those people who can't detox. I'm not sure if the reason

why you itch is because the toxins are trying to come out through

your pores, or because you've still got the implants in your body,

or if you are like me where detoxing causes additional problems. I

have multiple chemical sensitivity and thanks to Lynn I discovered

that I become sensitive to foods or supplements because my body

recognizes them as an invader and goes into fight mode. I can

stagger foods and some supplements by taking them a few days a week

instead of every day and that doesn't seem to be a problem, but I

don't think I get the same benefits of those who can take certain

foods and supplements on a daily basis.

Sis

--- In , " cannst42 " <cannst42@...>

wrote:

>

> Hi Ladies!

>

> Not sure if anyone can help but this is my situation. Ever since

I

> tried detoxing last month, I have been itching. I had to stop the

diet

> and the caprylic acid due to my nose swelling up on me (my

tubinites

> are still swollen) 3 weeks ago. I have tried everything, benedryl

and

> Pearls cause my sinus to throb and it feels like sinus infection.

> Thought maybe it was something I'm eating, haven't determined

anything

> while I change what I eat. It's constanst body itching, all over.

I

> really, really, really regret trying to detox, it has made me ten

times

> worse than I was before I started. I know about oatmeal baths and

> things like that but what I am suppose to do when I am at work all

day,

> can't go and take a bath at work. I am very, very afraid to do

> anything that has anything to do with detoxing. My surgery is

still 2

> and a half weeks away, not sure if I can make it! I have tried

some

> liver detox and OH MY GOSH that made me itch more! It was

awful!!

> Need help or least support...unable to do this any longer!!!!!!!

>

> Cherie

>

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Hi Sis

Yes, I have definitley have discovered I cannot detox, it has ruined

me! I was told though it was very important to start trying to detox

before explant. Maybe that should be advised very carefully. The

thought of itching for the next 19 days is not settling well with me.

I cry everyday now......it sucks! I had not realized how good I was

actually doing until now.

Cherie

> >

> > Hi Ladies!

> >

> > Not sure if anyone can help but this is my situation. Ever since

> I

> > tried detoxing last month, I have been itching. I had to stop

the

> diet

> > and the caprylic acid due to my nose swelling up on me (my

> tubinites

> > are still swollen) 3 weeks ago. I have tried everything, benedryl

> and

> > Pearls cause my sinus to throb and it feels like sinus

infection.

> > Thought maybe it was something I'm eating, haven't determined

> anything

> > while I change what I eat. It's constanst body itching, all

over.

> I

> > really, really, really regret trying to detox, it has made me ten

> times

> > worse than I was before I started. I know about oatmeal baths and

> > things like that but what I am suppose to do when I am at work

all

> day,

> > can't go and take a bath at work. I am very, very afraid to do

> > anything that has anything to do with detoxing. My surgery is

> still 2

> > and a half weeks away, not sure if I can make it! I have tried

> some

> > liver detox and OH MY GOSH that made me itch more! It was

> awful!!

> > Need help or least support...unable to do this any longer!!!!!!!

> >

> > Cherie

> >

>

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Cherie,

I am so sorry you are having such a tough time with detox. I didn't detox too much before explant - pretty much just changed my diet.

Sounds like the liver detox was rough - I haven't tried that yet. I am a little scared of the herxing as well.

Please drink lot of water to flush your body. I am sorry I don't have more advice - I am by no means an expert on the detox.

Hugs and prayers, Lynn

Re: Any suggestions?

Hi SisYes, I have definitley have discovered I cannot detox, it has ruined me! I was told though it was very important to start trying to detox before explant. Maybe that should be advised very carefully. The thought of itching for the next 19 days is not settling well with me.I cry everyday now......it sucks! I had not realized how good I was actually doing until now.Cherie> >> > Hi Ladies!> > > > Not sure if anyone can help but this is my situation. Ever since > I > > tried detoxing last month, I have been

itching. I had to stop the > diet > > and the caprylic acid due to my nose swelling up on me (my > tubinites > > are still swollen) 3 weeks ago. I have tried everything, benedryl > and > > Pearls cause my sinus to throb and it feels like sinus infection. > > Thought maybe it was something I'm eating, haven't determined > anything > > while I change what I eat. It's constanst body itching, all over. > I > > really, really, really regret trying to detox, it has made me ten > times > > worse than I was before I started. I know about oatmeal baths and > > things like that but what I am suppose to do when I am at work all > day, > > can't go and take a bath at work. I am very, very afraid to do > > anything that has anything to do with detoxing. My surgery is > still 2 > > and a

half weeks away, not sure if I can make it! I have tried > some > > liver detox and OH MY GOSH that made me itch more! It was > awful!! > > Need help or least support...unable to do this any longer!!!!!! !> > > > Cherie> >>

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Cherie,

Epsom salts baths don't bother me and that's a gentler way of

detoxing. A healthy diet is crucial, too. While I haven't switched

to 100% organic, I do use organic milk and I pick up organics when I

can. Also, I stay away from household cleaning products because

they make me sick, even two years after explant. I'm sorry your

experiencing this terrible itching - I think it will ease up in time

but it's got to be awful.

Sis

> > >

> > > Hi Ladies!

> > >

> > > Not sure if anyone can help but this is my situation. Ever

since

> > I

> > > tried detoxing last month, I have been itching. I had to stop

> the

> > diet

> > > and the caprylic acid due to my nose swelling up on me (my

> > tubinites

> > > are still swollen) 3 weeks ago. I have tried everything,

benedryl

> > and

> > > Pearls cause my sinus to throb and it feels like sinus

> infection.

> > > Thought maybe it was something I'm eating, haven't determined

> > anything

> > > while I change what I eat. It's constanst body itching, all

> over.

> > I

> > > really, really, really regret trying to detox, it has made me

ten

> > times

> > > worse than I was before I started. I know about oatmeal baths

and

> > > things like that but what I am suppose to do when I am at work

> all

> > day,

> > > can't go and take a bath at work. I am very, very afraid to do

> > > anything that has anything to do with detoxing. My surgery is

> > still 2

> > > and a half weeks away, not sure if I can make it! I have tried

> > some

> > > liver detox and OH MY GOSH that made me itch more! It was

> > awful!!

> > > Need help or least support...unable to do this any

longer!!!!!! !

> > >

> > > Cherie

> > >

> >

>

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Cherie,

I would suggest seeing an allergist. They might be able to give you

something to calm your system and stop the itch.

I'm sorry you are miserable. I know what this is like since I have

had reactions like this to different things.

Is there anything else that could be continuing to set this off? I

suddenly became allergic to pool chemicals and then later to all

fingernail products... when I still had my implants.

Chemical sensitivities are not uncommon for many of us.

>

> Hi Ladies!

>

> Not sure if anyone can help but this is my situation. Ever since I

> tried detoxing last month, I have been itching. I had to stop the diet

> and the caprylic acid due to my nose swelling up on me (my tubinites

> are still swollen) 3 weeks ago. I have tried everything, benedryl and

> Pearls cause my sinus to throb and it feels like sinus infection.

> Thought maybe it was something I'm eating, haven't determined anything

> while I change what I eat. It's constanst body itching, all over. I

> really, really, really regret trying to detox, it has made me ten times

> worse than I was before I started. I know about oatmeal baths and

> things like that but what I am suppose to do when I am at work all day,

> can't go and take a bath at work. I am very, very afraid to do

> anything that has anything to do with detoxing. My surgery is still 2

> and a half weeks away, not sure if I can make it! I have tried some

> liver detox and OH MY GOSH that made me itch more! It was awful!!

> Need help or least support...unable to do this any longer!!!!!!!

>

> Cherie

>

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Cherie,

I would see a naturopath. Less toxins to put into your system would be best.

Lynda

At 10:13 AM 10/27/2007, you wrote:

>Cherie,

>

>I would suggest seeing an allergist. They might be able to give you

>something to calm your system and stop the itch.

>

>I'm sorry you are miserable. I know what this is like since I have

>had reactions like this to different things.

>

>Is there anything else that could be continuing to set this off? I

>suddenly became allergic to pool chemicals and then later to all

>fingernail products... when I still had my implants.

>

>Chemical sensitivities are not uncommon for many of us.

>

>

>

>

> >

> > Hi Ladies!

> >

> > Not sure if anyone can help but this is my situation. Ever since I

> > tried detoxing last month, I have been itching. I had to stop the diet

> > and the caprylic acid due to my nose swelling up on me (my tubinites

> > are still swollen) 3 weeks ago. I have tried everything, benedryl and

> > Pearls cause my sinus to throb and it feels like sinus infection.

> > Thought maybe it was something I'm eating, haven't determined anything

> > while I change what I eat. It's constanst body itching, all over. I

> > really, really, really regret trying to detox, it has made me ten times

> > worse than I was before I started. I know about oatmeal baths and

> > things like that but what I am suppose to do when I am at work all day,

> > can't go and take a bath at work. I am very, very afraid to do

> > anything that has anything to do with detoxing. My surgery is still 2

> > and a half weeks away, not sure if I can make it! I have tried some

> > liver detox and OH MY GOSH that made me itch more! It was awful!!

> > Need help or least support...unable to do this any longer!!!!!!!

> >

> > Cherie

> >

>

>

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Cherie,

Have you went to an allergist yet?

If the detoxing caused this, I would think it would have passed by now since you stopped detoxing. I was nervous before surgery too but it turned out great. Dr. Huang took good care of me. You'll go to sleep and wake up so fast you won't even know you had surgery.

I am so sorry you are dealing with the itching. Do you have a rash too? Do you itch everywhere? If it were me, I would go to the doctor.

Hugs and prayers, Lynn

Any suggestions?

Hi ladies,I am still in the vicious circle of itching and horrible sinus pain. I am in need of some help or suggestions. I am discovering that the Prontix was not the problem, no matter what I take.....I itch. I take a pain pill for my sinus's, vitamins, eat and even drink water, I itch. I still have swollen turinates in my nose since I tried to detox, the anti-fungal cream has not helped. The swolleness has not gone down at all. All I do know is that while I was on the diet and taking caprylic acid (one month ago), I began to itch (not as bad as now and figured it was part of detoxing) and the inside of my nose swelled up. My nose swelling up really concerned me so I stopped. I stopped taking caprylic acid, I thought maybe that was causing this....but even after a month of not taking it....no relief what so ever. I am worried about what the anesthesia is going to do to me on the

13th....beginning to worry about having surgery. I am trying some hyrocortizone for my turbinates since the anti-fungal cream and neosporim didn't work. I am just trying everything right now out of total frustration. I am trying to just leave this all to God and been praying for a long time now for relief, a direction, a breakthrough. ...but I am only at a loss. It is sooo difficult to do this when your itching all the ime. I thought detoxing would help me but it has just messed me all up. Detoxing is something that I am very fearful at this point. It's funny how you think your helping yourself and doing the right thing.....only to discover that you've screwed everything up. I am in hopes that surgery will actually make a difference.Thanks for listening to me...Cherie

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Hi Lynn,

No, I do not a have any rashes and I itch all over. Going to my

currect doctor is a waste of time. He is useless!! I am changing my

primary care but it isn't effective until Dec. 1st. I have an HMO

that requires a referral and since I leave for Denver in a week, I

won't be able to get into see an allergist before that. I saw a

allergist a few years back and he was usuless also. He put me on

allergy shots that caused me to break into rash patches all over my

body. All he could tell me was that I was allergic to everything he

tested me for. I'm do not have trust in doctors right now. I will

wait and see how I do after surgery and then go from there. I went

to my doctors office about 3 weeks ago about my nose and saw the

nurse practitioner and all she told me was to put neosporm on it. See

what I mean?

Cherie

>

> Cherie,

>

> Have you went to an allergist yet?

>

> If the detoxing caused this, I would think it would have passed by

now since you stopped detoxing. I was nervous before surgery too but

it turned out great. Dr. Huang took good care of me. You'll go to

sleep and wake up so fast you won't even know you had surgery.

>

> I am so sorry you are dealing with the itching. Do you have a rash

too? Do you itch everywhere? If it were me, I would go to the

doctor.

>

> Hugs and prayers,

>

> Lynn

>

>

>

> Any suggestions?

>

> Hi ladies,

>

> I am still in the vicious circle of itching and horrible sinus

pain.

> I am in need of some help or suggestions. I am discovering that the

> Prontix was not the problem, no matter what I take.....I itch. I

take

> a pain pill for my sinus's, vitamins, eat and even drink water, I

> itch. I still have swollen turinates in my nose since I tried to

> detox, the anti-fungal cream has not helped. The swolleness has not

> gone down at all. All I do know is that while I was on the diet and

> taking caprylic acid (one month ago), I began to itch (not as bad

as

> now and figured it was part of detoxing) and the inside of my nose

> swelled up. My nose swelling up really concerned me so I stopped. I

> stopped taking caprylic acid, I thought maybe that was causing

> this....but even after a month of not taking it....no relief what

so

> ever. I am worried about what the anesthesia is going to do to me

on

> the 13th....beginning to worry about having surgery. I am trying

> some hyrocortizone for my turbinates since the anti-fungal cream

and

> neosporim didn't work. I am just trying everything right now out of

> total frustration.

>

> I am trying to just leave this all to God and been praying for a

long

> time now for relief, a direction, a breakthrough. ...but I am only

at

> a loss. It is sooo difficult to do this when your itching all the

> ime. I thought detoxing would help me but it has just messed me all

> up. Detoxing is something that I am very fearful at this point.

It's

> funny how you think your helping yourself and doing the right

> thing.....only to discover that you've screwed everything up. I am

> in hopes that surgery will actually make a difference.

>

> Thanks for listening to me...

> Cherie

>

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I do see Cherie. I have had the same experiences with my doctors!! My faith has faultered with medical care!! I don't even mention my implants anymore now that they are gone because if i do it confuses the hell out of the doctor - messes the whole visit up. I hope you can find a natural doctor when you get explanted, I think they will be able to offer better help.

You are in my prayers!! I do hope that this itching goes away with the awful implants.

Hugs, Lynn

Any suggestions?> > Hi ladies,> > I am still in the vicious circle of itching and horrible sinus pain. > I am in need of some help or suggestions. I am discovering that the > Prontix was not the problem, no matter what I take.....I itch. I take > a pain pill for my sinus's, vitamins, eat and even drink water, I > itch. I still have swollen turinates in my nose since I tried to > detox, the anti-fungal cream has not helped. The swolleness has not > gone down at all. All I do know is that while I was on the diet and > taking caprylic acid (one month ago), I began to itch (not as bad as > now and figured it was part of detoxing) and the inside of my nose > swelled up. My nose swelling up

really concerned me so I stopped. I > stopped taking caprylic acid, I thought maybe that was causing > this....but even after a month of not taking it....no relief what so > ever. I am worried about what the anesthesia is going to do to me on > the 13th....beginning to worry about having surgery. I am trying > some hyrocortizone for my turbinates since the anti-fungal cream and > neosporim didn't work. I am just trying everything right now out of > total frustration. > > I am trying to just leave this all to God and been praying for a long > time now for relief, a direction, a breakthrough. ...but I am only at > a loss. It is sooo difficult to do this when your itching all the > ime. I thought detoxing would help me but it has just messed me all > up. Detoxing is something that I am very fearful at this point. It's > funny how you

think your helping yourself and doing the right > thing.....only to discover that you've screwed everything up. I am > in hopes that surgery will actually make a difference.> > Thanks for listening to me...> Cherie>

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Thanks Lynn! Your very sweet!! Hope your doing well!

Hugs to you!

Cherie

> >

> > Cherie,

> >

> > Have you went to an allergist yet?

> >

> > If the detoxing caused this, I would think it would have passed

by

> now since you stopped detoxing. I was nervous before surgery too

but

> it turned out great. Dr. Huang took good care of me. You'll go to

> sleep and wake up so fast you won't even know you had surgery.

> >

> > I am so sorry you are dealing with the itching. Do you have a

rash

> too? Do you itch everywhere? If it were me, I would go to the

> doctor.

> >

> > Hugs and prayers,

> >

> > Lynn

> >

> >

> >

> > Any suggestions?

> >

> > Hi ladies,

> >

> > I am still in the vicious circle of itching and horrible sinus

> pain.

> > I am in need of some help or suggestions. I am discovering that

the

> > Prontix was not the problem, no matter what I take.....I itch. I

> take

> > a pain pill for my sinus's, vitamins, eat and even drink water, I

> > itch. I still have swollen turinates in my nose since I tried to

> > detox, the anti-fungal cream has not helped. The swolleness has

not

> > gone down at all. All I do know is that while I was on the diet

and

> > taking caprylic acid (one month ago), I began to itch (not as bad

> as

> > now and figured it was part of detoxing) and the inside of my

nose

> > swelled up. My nose swelling up really concerned me so I stopped.

I

> > stopped taking caprylic acid, I thought maybe that was causing

> > this....but even after a month of not taking it....no relief what

> so

> > ever. I am worried about what the anesthesia is going to do to me

> on

> > the 13th....beginning to worry about having surgery. I am trying

> > some hyrocortizone for my turbinates since the anti-fungal cream

> and

> > neosporim didn't work. I am just trying everything right now out

of

> > total frustration.

> >

> > I am trying to just leave this all to God and been praying for a

> long

> > time now for relief, a direction, a breakthrough. ...but I am

only

> at

> > a loss. It is sooo difficult to do this when your itching all the

> > ime. I thought detoxing would help me but it has just messed me

all

> > up. Detoxing is something that I am very fearful at this point.

> It's

> > funny how you think your helping yourself and doing the right

> > thing.....only to discover that you've screwed everything up. I

am

> > in hopes that surgery will actually make a difference.

> >

> > Thanks for listening to me...

> > Cherie

> >

>

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Thanks Patty,

Ya know, I tried a liver detox a couple of weeks ago and OMG, I

itched even worse! I'm a bit leary of trying anything with regards

to my liver. I am in hopes that the explant will help.

Hugs to you!

Cherie

> >

> > Hi ladies,

> >

> > I am still in the vicious circle of itching and horrible sinus

> pain.

> > I am in need of some help or suggestions. I am discovering that

> the

> > Prontix was not the problem, no matter what I take.....I itch. I

> take

> > a pain pill for my sinus's, vitamins, eat and even drink water, I

> > itch. I still have swollen turinates in my nose since I tried to

> > detox, the anti-fungal cream has not helped. The swolleness has

> not

> > gone down at all. All I do know is that while I was on the diet

and

> > taking caprylic acid (one month ago), I began to itch (not as bad

> as

> > now and figured it was part of detoxing) and the inside of my

nose

> > swelled up. My nose swelling up really concerned me so I stopped.

I

> > stopped taking caprylic acid, I thought maybe that was causing

> > this....but even after a month of not taking it....no relief what

> so

> > ever. I am worried about what the anesthesia is going to do to me

> on

> > the 13th....beginning to worry about having surgery. I am trying

> > some hyrocortizone for my turbinates since the anti-fungal cream

> and

> > neosporim didn't work. I am just trying everything right now out

of

> > total frustration.

> >

> > I am trying to just leave this all to God and been praying for a

> long

> > time now for relief, a direction, a breakthrough....but I am only

> at

> > a loss. It is sooo difficult to do this when your itching all the

> > ime. I thought detoxing would help me but it has just messed me

> all

> > up. Detoxing is something that I am very fearful at this point.

> It's

> > funny how you think your helping yourself and doing the right

> > thing.....only to discover that you've screwed everything up. I

am

> > in hopes that surgery will actually make a difference.

> >

> > Thanks for listening to me...

> > Cherie

> >

>

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Yes Rogene....I'm wild alright! I have never been normal. When I

was a teenager in the " 80 " s, I would itch horrbly after I took a

shower. My doctor at the time finally figured out that it was my

birth control pills. He had never heard of anyone allergic to

them.....but I was! I am one to have unusal things happen to them, I

think that's why my mother is not too surprised over my implant

illness. If it's bizarre, she know's I'll get it.

Hugs to you!

Cherie

>

> Cherie,

>

> You have the wildest case of reacting I've ever heard of! . . . I

wish there was something we could offer that would help . . .

>

> Hopefully once your implants are out, your body will quit reacting

to everything!

>

> Be sure to let your doctor know that you're reacting to everything

so they can be prepared for you.

>

> Hugs,

>

> Rogene

>

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Cherie,

Just be careful that you don't get Milk Thistle with silicone dioxide

in it. This is one of the supplements I had to throw away.

> >

> > Hi ladies,

> >

> > I am still in the vicious circle of itching and horrible sinus

> pain.

> > I am in need of some help or suggestions. I am discovering that

> the

> > Prontix was not the problem, no matter what I take.....I itch. I

> take

> > a pain pill for my sinus's, vitamins, eat and even drink water, I

> > itch. I still have swollen turinates in my nose since I tried to

> > detox, the anti-fungal cream has not helped. The swolleness has

> not

> > gone down at all. All I do know is that while I was on the diet and

> > taking caprylic acid (one month ago), I began to itch (not as bad

> as

> > now and figured it was part of detoxing) and the inside of my nose

> > swelled up. My nose swelling up really concerned me so I stopped. I

> > stopped taking caprylic acid, I thought maybe that was causing

> > this....but even after a month of not taking it....no relief what

> so

> > ever. I am worried about what the anesthesia is going to do to me

> on

> > the 13th....beginning to worry about having surgery. I am trying

> > some hyrocortizone for my turbinates since the anti-fungal cream

> and

> > neosporim didn't work. I am just trying everything right now out of

> > total frustration.

> >

> > I am trying to just leave this all to God and been praying for a

> long

> > time now for relief, a direction, a breakthrough....but I am only

> at

> > a loss. It is sooo difficult to do this when your itching all the

> > ime. I thought detoxing would help me but it has just messed me

> all

> > up. Detoxing is something that I am very fearful at this point.

> It's

> > funny how you think your helping yourself and doing the right

> > thing.....only to discover that you've screwed everything up. I am

> > in hopes that surgery will actually make a difference.

> >

> > Thanks for listening to me...

> > Cherie

> >

>

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  • 5 months later...
Guest guest

Sorry , if everyone covered this, I'm catching up on email, but I don't

think the biologics are metabolized in the liver b/c they're not ingested. I

could be wrong, though. Anyone else know the skinny?

[ ] any suggestions?

I have liver disease and can not take the miracle drugs.

I was on plaquenal for 18 months and developed severe rashes and

itching.

I went on sulfasalazene and needed to stop it today. Developed intense

skin rashes and itching .

I am allergic to all narcotics, same symptoms.

Must I allow this disease to progress or is there something else to try?

My Doctor is wonderful but fears my reactions to drugs.

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I have been told that drugs that alter the immune system can allow the hepatitis

to run amuck. There is a rebound issue and the liver disease increases.

The hepatitis is from my mother and world war 2 (believe it or not). My body

has developed immunities. They fear I will die from liver disease if I use

humira or the others. I have latent hepatitis A and B.

Two Doctors have told me they would rather see me 90 and alive in a wheel

chair than deceased.

I just wondered if anyone else has serious liver problems and if they found

solutions.

The RA issues are becoming very,very challenging.

To date after a year or so I become quite allergic to every drug I take.

Therefore Dr's claim I am most likely to experience the most side effects.

thank You

Fair <kalfoley@...> wrote:

Sorry , if everyone covered this, I'm catching up on email,

but I don't think the biologics are metabolized in the liver b/c they're not

ingested. I could be wrong, though. Anyone else know the skinny?

[ ] any suggestions?

I have liver disease and can not take the miracle drugs.

I was on plaquenal for 18 months and developed severe rashes and

itching.

I went on sulfasalazene and needed to stop it today. Developed intense

skin rashes and itching .

I am allergic to all narcotics, same symptoms.

Must I allow this disease to progress or is there something else to try?

My Doctor is wonderful but fears my reactions to drugs.

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  • 1 month later...
Guest guest

If you apply for disability go to _www.allsup.com_ (http://www.allsup.com)

they are great to deal with and I don't think they are as expensive as an

attorney. Check it out.

I know the frustration. I was a teacher and now suffer with the MCS. I

can't even stand next to someone in a store with perfume on. Had a service tech

here a few weeks ago to check our dishwasher by the time he left I was very

sick. The smell of tobacco on his clothes left me sick through the following

day. Next yr. I'll be sure request a nonsmoker to service my appliances. I know

I couldn't work anywhere but from home. Even it I tutored from home people

bring different odors with them. My own brother walks in the house with his

clothes drenched with Tide which give me a HORRIBLE headache. I would be

wonderful if the world was fragrance free. I've even heard of some high schools

and

workplaces that forbid fragrances.

Hi,

My name is le and I've been dealing with toxic mold since my

landlord neglected to fix the roof. Lately, it's just gotten really

overwhelming. I am seeing a doctor that I hope may be able to help

and the whole legal thing with the lawyer isn't easy either. In any

case, I have moved to the drier climate of Los Angeles and am trying

to get my life back together. I went through a lot of effort to find

work and currently teach dance and work at a coffee shop. I am

currently looking for more teaching and/or writing jobs, but it

hasn't been easy to find something right away. I would really like to

quit my coffee shop job. I like the people, but the

place.....chemicalsplace.....chemicals<WBR>, dust, mold or whatever

very ill. I can't be in a place where the door isn't open or in a

place with carpet....and even then, I can still get sick. I am so

sensitive and I don't know what to do. I am so frustrated. I just

don't want to go to work to be sick anymore. I have been trying to

look for work options, but I feel ill a lot. I'm also trying to

figure out what options I might have since I am so limited. Dancing

has helped me so much through this, but I've been so frustrated and

impatient to get out of my current situation. A friend of mine

suggested applying for disability, so I'm thinking about that option.

What does everyone else do for work out of curiousity? Any

suggestions? Thanks and best wishes to you all:)

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002)

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Hi,

My name is le and I've been dealing with toxic mold since my

landlord neglected to fix the roof. Lately, it's just gotten really

overwhelming. I am seeing a doctor that I hope may be able to help

and the whole legal thing with the lawyer isn't easy either. In any

case, I have moved to the drier climate of Los Angeles and am trying

to get my life back together. I went through a lot of effort to find

work and currently teach dance and work at a coffee shop. I am

currently looking for more teaching and/or writing jobs, but it

hasn't been easy to find something right away. I would really like to

quit my coffee shop job. I like the people, but the

place.....chemicals, dust, mold or whatever it is....is making me

very ill. I can't be in a place where the door isn't open or in a

place with carpet....and even then, I can still get sick. I am so

sensitive and I don't know what to do. I am so frustrated. I just

don't want to go to work to be sick anymore. I have been trying to

look for work options, but I feel ill a lot. I'm also trying to

figure out what options I might have since I am so limited. Dancing

has helped me so much through this, but I've been so frustrated and

impatient to get out of my current situation. A friend of mine

suggested applying for disability, so I'm thinking about that option.

What does everyone else do for work out of curiousity? Any

suggestions? Thanks and best wishes to you all:)

le

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if your still able to work and damce, you have a lot still in your

favor, get a job somewhere that has very clean air if you can find

one as the condiction seems to continue to get worse if you dont take

immediate actions to avoid many chemical's exc. not just mold. a

doctor cant help you much if your still exposeing yourself to things

that are aggervateing your condiction. avoidance is very important

too.

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Hi,

Sorry to here of all your troubles. I can't believe you are still

able to dance! I used to be a gymnast and dancer and since my

exposure I have so much pain, I'm unable to dance anymore and miss it

like crazy. I've also been out of work since 2003 and have applied

for disability but just to warn you it is not easy to get and it

takes a long time. My case is still pending after five years and

probably won't resolve until next year. The average time, estimated,

to get disability is five to seven years. So, I'm not sure if that

would be a good option for you or not?

It sounds like you are in the same position as a lot of us here, are.

There's not a lot you can do. Most of us are unable to work at all

because we are too sick. So if you are still able to work even part

time then you're probably not as bad off but I can say that you are

in the right place to get information and support. Wish there was

more positive answers for you but wish you all the best.

Dana

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  • 1 year later...

I'm so sorry you're going through all of this, Sue. Social Security Disability

(SSD) is a horribly long process. Have you applied for Supplemental Security

Income (SSI)? That one will sometimes go through quicker than SSD. You can find

the application for that at the ssa.gov website, too. SSI is based on your

household income. I will keep you in my prayers. Please keep us posted. We

care.....

Doreen :)

Last Nov I found out that my drs office hadn't sent medical records in like

requested so my disability payments were put on hold. So I haven't been paid

since then because it has been so hard getting everyone on the same page.  So

everything was turned in last Tuesday.  Last Thurseday I heard back from the

review.  I was denied.  I was heart broken until I realized the most important

visits to the dr wasn't sent to the Insurance company to review, now I am

pissed. 

I am going to loss everything!!!  My house, everything.  I will have to fins

homes for my pets and place for my daughter and I to live.  Just because the

medical records person is imcompantent.  I have had no money since Nov, No bills

have been paid.  I have lost my COBRA coverage because it wasn't paid today.  I

have been eating just because my parents bought us food.

I have an appointment with a lawyer and do plan on appealling but that will

take 45 days just for insurance company to make a decision.  So by the time they

make a decision I will have been on the streets for a month.

Does aanyone have any suggestion.  I did go sign up for food stamps and

medicaid, so I will have food and medicine but nothing else.

Suw

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> Does aanyone have any suggestion.  I did go sign up for food stamps and

medicaid, so I will have food and medicine but nothing else.

>

coabode.com is a website that tries to link up single mothers with other single

mothers to share housing expenses. You might see if they have anyone in your

area who is looking for housing (which would help you keep your house) or

looking for a housemate.

J.

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Sue,

First, feel free to email me privately with any questions you may have.

I highly recommend Carolyn Magure's website for applying for Social

Security Disability. She also has extensive writings on the " But You

Don't Look Sick " Boards in both the Social Security and Working forums.

The website is www.BDYLS.com/boards page down and click on Social

Security area. There are about 25 sticky postings from Carolyn on the

in's and out's of a successful SS disability application.

Important for you. There is also information on Long Term Disability

insurance, and how to deal with problems like you are having. There

are solutions. It may involve getting a attorney. But do not feel

like it can not be fixed.

So, correct me if I am wrong, but the problems you are having is with

Long Term Disability Insurance, not SSDI? I am surprised that your

insurance company did not insist that you apply for Social Security

Disability! If you haven't already applied you need to do that ASAP!

Done correctly it should not take years for a application to be

approved. Mine only took 2 months. It's a matter on being able to

give SSA what they need to make a positive determination. I have

written several posted on this list, and you should be able to look

them up.

Now, each State should have a Insurance Ombudsman, or at least some

sort of Overview of Insurance to help consumers with problems with

their insurance company. I know the one in California and am fairly

good and tracking down who to go to in just about any other State.

I am appauded for you for the way the insurance company (and your

doctor's office) is treating you!

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I'd talk to an attorney to see if you can sue the doctor for damages because his

office failed to provide complete and correct medical records in a timely

manner.

-

>

> Last Nov I found out that my drs office hadn't sent medical records in like

requested so my disability payments were put on hold. So I haven't been paid

since then because it has been so hard getting everyone on the same page.  So

everything was turned in last Tuesday.  Last Thurseday I heard back from the

review.  I was denied.  I was heart broken until I realized the most important

visits to the dr wasn't sent to the Insurance company to review, now I am

pissed. 

> I am going to loss everything!!!  My house, everything.  I will have to fins

homes for my pets and place for my daughter and I to live.  Just because the

medical records person is imcompantent.  I have had no money since Nov, No bills

have been paid.  I have lost my COBRA coverage because it wasn't paid today.  I

have been eating just because my parents bought us food.

> I have an appointment with a lawyer and do plan on appealling but that will

take 45 days just for insurance company to make a decision.  So by the time they

make a decision I will have been on the streets for a month.

> Does aanyone have any suggestion.  I did go sign up for food stamps and

medicaid, so I will have food and medicine but nothing else.

>

> Suw

>

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