Re: To Tori, Jayn, Laurie, Jan and Stevie Best Wishes/Dena

[Guest guest]

Dena,

I for one need to continue hearing from you as our moms are near the same place

in this

journey from what I can gather. You have been kind and supportive, just what I

needed

when I joined the group.

I too was tempted to pack it in, but decided I need people like you too much to

let this

support go simply because of computer etiquette. I for one would rather read

correspondence leading up to a reply and find replies to snips redundant and

choppy to

read. So I am going to stay and do things my way etiquette or not. Please do

the same.

By the way, Mom's Tylenol has had to be upped to 1 g 3 times a day for pain,

likely in an

old shoulder replacement. It's hard to say where the pain is coming from or if

she is

crying on morning care because that is all she can do now. She can't fight back

anymore.

She is so rigid. I question if there might be a fracture from the huge bruise

and swelling in

her elbow she received 3 weeks ago to the arm that is affected, but don't know

how she

could even be xrayed with her rigidity and contractures. There is debate about

putting her

on a longer acting pain medication simply to hold her longer, into morning care,

with the

realization that could bring her down even more mentally. Her comfort is of

utmost

concern right now though.

, Oakville Ont.

Mom 92, 12 1/2 years " Parkinsons "

3 1/2 years ago LBD diagnosis, evident much longer in hindsight.

Encouraged to give up her licence 6 years ago.

Currently immobile, in tilt wheelchair, spoonfed pureed food. Spends most of

days behind

closed eyes.

Eltroxin, Tylenol 1g 3 times a day

Off Aricept since Feb./06

>

> Hi Everyone

>

> I have been away from my computer for a few days and

> was somewhat distress at all the talk about computer

> etiquette. I am one that can barely get around on the

> computer and I am definitely NOT computer savvy at

> all. My life is too crazy right now to try and learn

> new tricks, maybe at a later date I will be up for it.

> I have been a member for almost one year and I guess I

> am lucky I made it this long.

>

> I will decline to post again and just lurk and read

> unless I have urgent news. All of this is just too

> much for me to comprehend.

>

> I love you all and will continue to pray that your

> battles are fought will dignity and love.

>

> I did want to let Tori know that I am praying for her

> daughters surgery today. I hope her pin removal goes

> well and she is on the road to recovery very soon.

> Also to let Jayn in S. GA know that I will be praying

> for you on June 1st for your surgery. I will be

> asking God to heal your body quickly and completely,

>

> And finally to Laurie R. who just lost her husband I

> send my condolences. I thank God for his painless

> passing and know that he is at peace and free from the

> disease now.

>

> To others who may want to personally e-mail me. Please

> do so. I will keep you all in my prayers. Esp Jan and

> Stevie.

>

> Dena

> Mother (83) End Stages of LBD. Lived in my home for 10

> months now in NH for almost 3. Currently on Tylenol

> only for pain.

>

> __________________________________________________

>