Guest guest Posted October 8, 2008 Report Share Posted October 8, 2008 no it may mean his total IGE and or immune panel is weak so things didn't registar. have you ever pulled a total IGE or an immune panel? did you see a mainstream dr to have the testing done? opiate issues are also an issue and to test those it's called peptide testing many people also think they are gfcf and aren't as well, due to suppliments or meds they are on, topical things like lotions or paints or art project stuff being used ect....so that would be another possibility. companies are tricky at not listing things right and or hiding ingredients Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169 Confused Hello All--I am new to the bio-med area. My son (newly 4) was diagnosed PDD-NOS last year. We tried the GF/CF diet for three months and saw no changes -- except his appetite improved when we took him off it. I think he is apraxic but not sure. He stims quite a bit and has expressive speech delay but otherwise they tell me he is on the mild side. We're doing ABA (about 30-33 hours weekly)and he gets OT and ST in preschool.I had him tested by a DAN! doc who found nothing unusual -- except high yeast in stool. We got a prescript for MB-12 shots and Nystatin but I am confused about when to give -- especially considering all the probiotics and vitamins. I know to give the MB-12 at night. But what about the Nystatin and everything else? Also, my son didn't test positive for any allergies or celiac disease -- does this mean the GF/CF diet is a waste of time for him?Thanks for your advice--Anne No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.173 / Virus Database: 270.7.6/1714 - Release Date: 10/8/2008 7:01 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 Don't know about dosage of the supplements but we tested negative for all the allergy stuff...ALL of it.....However the casomorphins from gluten and casein are not true allergies. They are incompletely digested proteins that act like drugs and affect our kids brain chemistry. So you must restrict gluten and casein and soy (cause it's close to gluten chemically) until our kids guts heal. Then you can reintroduce it slowly if there is no allergy to it. People always think you must restrict only if you show allergy. NOT SO. GFCFSF is usually 1 1/2 to 4 years depending on the kid and how fast their gut heals. Then you can often go back to milk, gluten and soy. Good luck, and don't give up. You will see much more cognitive improvement the longer you do the gfcfsf. Gluten takes as long as 6 months to clear from the intestine, casein as long as 3 months. > > Hello All-- > > I am new to the bio-med area. My son (newly 4) was diagnosed PDD-NOS > last year. We tried the GF/CF diet for three months and saw no > changes -- except his appetite improved when we took him off it. I > think he is apraxic but not sure. He stims quite a bit and has > expressive speech delay but otherwise they tell me he is on the mild > side. We're doing ABA (about 30-33 hours weekly)and he gets OT and ST > in preschool. > > I had him tested by a DAN! doc who found nothing unusual -- except > high yeast in stool. We got a prescript for MB-12 shots and Nystatin > but I am confused about when to give -- especially considering all the > probiotics and vitamins. I know to give the MB-12 at night. But what > about the Nystatin and everything else? > > Also, my son didn't test positive for any allergies or celiac disease - > - does this mean the GF/CF diet is a waste of time for him? > > Thanks for your advice-- > > Anne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 My name is Ruth I am new here.. I heard that the diet helped falling down and staggering. You can e-mail me personally,and give me information that I need. I am confused as well.Ruth Re: Confused Don't know about dosage of the supplements but we tested negative for all the allergy stuff...ALL of it.....However the casomorphins from gluten and casein are not true allergies. They are incompletely digested proteins that act like drugs and affect our kids brain chemistry. So you must restrict gluten and casein and soy (cause it's close to gluten chemically) until our kids guts heal. Then you can reintroduce it slowly if there is no allergy to it. People always think you must restrict only if you show allergy. NOT SO. GFCFSF is usually 1 1/2 to 4 years depending on the kid and how fast their gut heals. Then you can often go back to milk, gluten and soy. Good luck, and don't give up. You will see much more cognitive improvement the longer you do the gfcfsf. Gluten takes as long as 6 months to clear from the intestine, casein as long as 3 months. > > Hello All-- > > I am new to the bio-med area. My son (newly 4) was diagnosed PDD-NOS > last year. We tried the GF/CF diet for three months and saw no > changes -- except his appetite improved when we took him off it. I > think he is apraxic but not sure. He stims quite a bit and has > expressive speech delay but otherwise they tell me he is on the mild > side. We're doing ABA (about 30-33 hours weekly)and he gets OT and ST > in preschool. > > I had him tested by a DAN! doc who found nothing unusual -- except > high yeast in stool. We got a prescript for MB-12 shots and Nystatin > but I am confused about when to give -- especially considering all the > probiotics and vitamins. I know to give the MB-12 at night. But what > about the Nystatin and everything else? > > Also, my son didn't test positive for any allergies or celiac disease - > - does this mean the GF/CF diet is a waste of time for him? > > Thanks for your advice-- > > Anne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 Are there supplements to help heal the gut? Re: Confused Don't know about dosage of the supplements but we tested negative for all the allergy stuff...ALL of it.....However the casomorphins from gluten and casein are not true allergies. They are incompletely digested proteins that act like drugs and affect our kids brain chemistry. So you must restrict gluten and casein and soy (cause it's close to gluten chemically) until our kids guts heal. Then you can reintroduce it slowly if there is no allergy to it. People always think you must restrict only if you show allergy. NOT SO. GFCFSF is usually 1 1/2 to 4 years depending on the kid and how fast their gut heals. Then you can often go back to milk, gluten and soy. Good luck, and don't give up. You will see much more cognitive improvement the longer you do the gfcfsf. Gluten takes as long as 6 months to clear from the intestine, casein as long as 3 months. > > Hello All-- > > I am new to the bio-med area. My son (newly 4) was diagnosed PDD-NOS > last year. We tried the GF/CF diet for three months and saw no > changes -- except his appetite improved when we took him off it. I > think he is apraxic but not sure. He stims quite a bit and has > expressive speech delay but otherwise they tell me he is on the mild > side. We're doing ABA (about 30-33 hours weekly)and he gets OT and ST > in preschool. > > I had him tested by a DAN! doc who found nothing unusual -- except > high yeast in stool. We got a prescript for MB-12 shots and Nystatin > but I am confused about when to give -- especially considering all the > probiotics and vitamins. I know to give the MB-12 at night. But what > about the Nystatin and everything else? > > Also, my son didn't test positive for any allergies or celiac disease - > - does this mean the GF/CF diet is a waste of time for him? > > Thanks for your advice-- > > Anne > McCain or Obama? Stay updated on coverage of the Presidential race while you browse - Download Now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2011 Report Share Posted March 21, 2011 I agree not sure what to do. :)Sender: Thyroiditis Date: Mon, 21 Mar 2011 18:59:38 -0700 (PDT)To: <Thyroiditis >ReplyTo: Thyroiditis Subject: Re: Re: Confused People are recommending Naturopaths over Endos? Aren't Endos the thyroid and hormone specialists? If we dont' know which tests to ask for to have our health asertained, which specialiast should be doing so and be familiar with these more detailed and advanced throid antibody/other related stuff tests? I feel pretty frustrated as to which type of physician/specialist to look for ?Maybe I should just move towards an immunologist if I'm also suffering from other autoimmune damage that I'm learning to manage/control/try to recover from? LightSubject: Re: ConfusedTo: Thyroiditis Date: Monday, March 21, 2011, 2:48 PM Hi ,TSH in itself is NOT significant; the important thing is to look at symptoms, FT3 and FT4, auto-antibody counts, other labs and tests. I would get a second opinion if all the Endo is offering is RAI.If you already have serious heart symptoms you need to be put on a beta-blocker to prevent permanent damage to your heart. First thing I would request (demand if need be) is an ultra sound to to rule out hyper-active nodules, sometimes these can NOT be felt on a throat exam, especially if they are very small (but still can be powerfully hyper-acting)? Sometimes diet changes can help, other times not so much. Were you checked for a copper deficiency, that can give you heart palps, sweating, etc. Proper copper metabolism interrelates and depends upon iron and zinc to work efficiently, all three these minerals MUST be in-balance. AF = adrenal fatigue and AI = autoimmune.It could be that your body is goingthrough Hashitoxicosis also sometimes called Thyrotoxicosis or T3-Toxicosis although T4 can be elevated in some patients. This can happen in some Hashis resulting from severe inflammation of the thyroid gland, which cause sporadic and high release of stored thyroid hormone. Usually, Hashitoxicosis happens in early stages of Hashis. Some scientists say the thyroid is trying to stop the AI attack.Try bugleweed, motherwort tincture and lemon balm for a few months. You can take these with an ATD (anti-thyroid drug), all of these helped to reduce my daughter's hyper symptoms. She takes 3,000 mgs PABA (para-aminobenzoic acid), sometimes called vitamin Bx, which is included as one of the B-complex vitamins depending who is talking. Anyway, it can weaken and alleviate hyper symptoms. Plus, a whole-food multi with extra vitamin C, Vitamin D, and EPO (evening primrose oil) and omega 3 (fish oil). We all take curcumin, a very effective anti-inflammatorythat can help with inflammation in AI thyroid disorders (Dr Kharrazian says in his book *Why Do I Still Have Thyroid Symptoms?* that it helps modulate both sides of our -out-of-balance- immune system). Your symptoms could be caused by accelerated synthesis as in Graves' disease. Hashis can suddenly turn into Graves' - this has happened to two of my friends. The Graves' antibodies called TSHR (TSH Receptor) antibody, need to be tested aka TSI and TBII. The TSHR antibodies are complex as there is three subtypes – stimulating, binding (neutral) and blocking. Note: TSHR antibodies are present in most if not all Graves', about 50% of Hashitoxicosis and about 10% with Hashis (not counting Hashis that previously had Graves' and/or Hashitoxicosis and are now permanent Hashi hypo). Confusing, I know, it took me a few years to get it all straightened out. I hope this is helpful,~Bj> >> > Hello, I havnt been medicated for 4 months. Also I just read in stop the thyroid madness, p.62 "it is not uncommon to see a tsh of 0.009 or0.004 when optimal". I just found it in my book. Does anyone else read this book?> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2011 Report Share Posted March 22, 2011 BJ, this is such great info. Thank you for sharing this!Sent from my pager. Hi , TSH in itself is NOT significant; the important thing is to look at symptoms, FT3 and FT4, auto-antibody counts, other labs and tests. I would get a second opinion if all the Endo is offering is RAI. If you already have serious heart symptoms you need to be put on a beta-blocker to prevent permanent damage to your heart. First thing I would request (demand if need be) is an ultra sound to to rule out hyper-active nodules, sometimes these can NOT be felt on a throat exam, especially if they are very small (but still can be powerfully hyper-acting)? Sometimes diet changes can help, other times not so much. Were you checked for a copper deficiency, that can give you heart palps, sweating, etc. Proper copper metabolism interrelates and depends upon iron and zinc to work efficiently, all three these minerals MUST be in-balance. AF = adrenal fatigue and AI = autoimmune. It could be that your body is going through Hashitoxicosis also sometimes called Thyrotoxicosis or T3-Toxicosis although T4 can be elevated in some patients. This can happen in some Hashis resulting from severe inflammation of the thyroid gland, which cause sporadic and high release of stored thyroid hormone. Usually, Hashitoxicosis happens in early stages of Hashis. Some scientists say the thyroid is trying to stop the AI attack. Try bugleweed, motherwort tincture and lemon balm for a few months. You can take these with an ATD (anti-thyroid drug), all of these helped to reduce my daughter's hyper symptoms. She takes 3,000 mgs PABA (para-aminobenzoic acid), sometimes called vitamin Bx, which is included as one of the B-complex vitamins depending who is talking. Anyway, it can weaken and alleviate hyper symptoms. Plus, a whole-food multi with extra vitamin C, Vitamin D, and EPO (evening primrose oil) and omega 3 (fish oil). We all take curcumin, a very effective anti-inflammatory that can help with inflammation in AI thyroid disorders (Dr Kharrazian says in his book *Why Do I Still Have Thyroid Symptoms?* that it helps modulate both sides of our -out-of-balance- immune system). Your symptoms could be caused by accelerated synthesis as in Graves' disease. Hashis can suddenly turn into Graves' - this has happened to two of my friends. The Graves' antibodies called TSHR (TSH Receptor) antibody, need to be tested aka TSI and TBII. The TSHR antibodies are complex as there is three subtypes – stimulating, binding (neutral) and blocking. Note: TSHR antibodies are present in most if not all Graves', about 50% of Hashitoxicosis and about 10% with Hashis (not counting Hashis that previously had Graves' and/or Hashitoxicosis and are now permanent Hashi hypo). Confusing, I know, it took me a few years to get it all straightened out. I hope this is helpful, ~Bj > > > > Hello, I havnt been medicated for 4 months. Also I just read in stop the thyroid madness, p.62 "it is not uncommon to see a tsh of 0.009 or 0.004 when optimal". I just found it in my book. Does anyone else read this book? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2011 Report Share Posted March 22, 2011 the fact is that Modern THryoid treatment is literally in its infancy.. there is no " Perfect " doctor to help us.. which is why the internet is so great cuz you can read what the real doctors are learning about how the body systems work together --and affect each other in negative ways EXample: the " neuroimmunoendocrine system. btw just cuz the word ENdocrine is in that phrase does not mean that Endocrinologists know about the Nueroimmunoendocrine system! they do NOT. Endocrinologists staked the claim long ago that they should be the 'experts' when it comes to Thryoid and health. but the Endos have left most of us sick! that is why people are making their way to the Internet;; cuz the supposed 'experts' of thyroid 'treatment' have seriously missed the boat in all areas of science and 'practice' of medicine when it comes to " thyroid patients' of all types. it is ENDOS =and the fact that modern Conventional medical Institutioens have been listenign to enods that have made us sick and left us sick either sick from being left Undiagnosed or Undertreated. (thanks to their insistence that only the TSH Lab Test matters ) and ignore all other available science and ignore patients Signs and SYmptoms and suffering. and those same endos have left most of us DIagnosed hYpot patients sick becuz of their insistence that we dismiss all signs and sytmposm and suffering and only dose their beloved T4-ONLY Rx based on TSH Lab Test results = Normal range.. Thyroid hormone t3 is made mostly by our LIVER and yet NO ENDOS have even informed their patients =or reminded other doctors and the " medical Institutions " of that fact.. hence the current " gold Standard " Hypothyroid Diagnosis and Treatment Protocols AKA rigid GUIDELINES that is causing widespread damage in the population -which Autoimmune Thryoid disease and thryoid cancer statistics are increasing every year and not decreasing and there are actual things we patietns (and future patietns!) could be doing to help prevent the Activiation of HYPOT and ATD based on Current medical science in the areas of Biochemistry and nutrition and " Neuroimmunoendocrinology " and other 'specialties. not to mention that ALL of our Cells /and all PARTS of each cell on the inside and the Ouside of said cell) have to be able to utilize all 5 thyroid Hormones once they float by OR the cell Converts them == but ENDOS do not " do " Any of the above ENDOS only 'do " thyroid GLANDS.. and then the ONLY look at T4 (Total or sometimes Free T4) and TSH.. they don't want to hear your signs and symptoms as they are not useful in any way to an ENDO when he is 'assessing' our 'thyroid status'... -Carol thyroid problems are caused by and affected by , imbalances in the neuroimmunoendocrine system including Autoimmune disease; there is already a lot of literature noting they realize that the IMbalance in the stress system (including the HPA Axis) means the Immune system is getting unbalanced and Activating common Autoimmune genes/ like Hashis/hypot. (and LIver conversion of t4 to t3 is directly affected by 'stressors' that slow the conversio of t4 to t3 and can also increase the conversion of t4 to Rt3. > > > > > > Hello, I havnt been medicated for 4 months. Also I just read in stop the thyroid madness, p.62 " it is not uncommon to see a tsh of 0.009 or 0.004 when optimal " . I just found it in my book. Does anyone else read this book? > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2011 Report Share Posted March 22, 2011 MMM.....thanks, that's a lot of info. Now I'm glad I'm in the middle of major immune system blood work, but am still apprehensive of the results I will get soon. I may look more for an immunologist, since there is someone who is supposed to be recommended thru my naturopathic school. Light Subject: Re: ConfusedTo: Thyroiditis Date: Tuesday, March 22, 2011, 10:07 AM the fact is that Modern THryoid treatment is literally in its infancy.. there is no "Perfect" doctor to help us..which is why the internet is so great cuz you can read what the real doctors are learning about how the body systems work together --and affect each other in negative waysEXample: the "neuroimmunoendocrine system.btw just cuz the word ENdocrine is in that phrase does not mean that Endocrinologists know about the Nueroimmunoendocrine system! they do NOT.Endocrinologists staked the claim long ago that they should be the 'experts' when it comes to Thryoid and health. but the Endos have left most of us sick! that is why people are making their way to the Internet;; cuz the supposed 'experts' of thyroid 'treatment' have seriously missed the boat in all areas of science and 'practice' of medicine when it comes to "thyroid patients' of all types.it is ENDOS =and the fact that modern Conventional medical Institutioens have been listenign to enods that have made us sick and left us sick either sick from being left Undiagnosed or Undertreated. (thanks to their insistence that only the TSH Lab Test matters ) and ignore all other available science and ignore patients Signs and SYmptoms and suffering. and those same endos have left most of us DIagnosed hYpot patients sick becuz of their insistence that we dismiss all signs and sytmposm and suffering and only dose their beloved T4-ONLY Rx based on TSH Lab Test results = Normal range.. Thyroid hormone t3 is made mostly by our LIVER and yet NO ENDOS have even informed their patients =or reminded other doctors and the "medical Institutions" of that fact..hence the current "gold Standard" Hypothyroid Diagnosis and Treatment Protocols AKA rigid GUIDELINES that is causing widespread damage in the population -which Autoimmune Thryoid disease and thryoid cancer statistics are increasing every year and not decreasingand there are actual things we patietns (and future patietns!) could be doing to help prevent the Activiation of HYPOT and ATD based on Current medical science in the areas of Biochemistry and nutrition and "Neuroimmunoendocrinology" and other 'specialties.not to mention that ALL of our Cells /and all PARTS of each cell on the inside and the Ouside of said cell) have to be able to utilize all 5 thyroid Hormones once they float by OR the cell Converts them==but ENDOS do not "do" Any of the above ENDOS only 'do" thyroid GLANDS.. and then the ONLY look at T4 (Total or sometimes Free T4) and TSH..they don't want to hear your signs and symptoms as they are not useful in any way to an ENDO when he is 'assessing' our 'thyroid status'...-Carol thyroid problems are caused by and affected by , imbalances in the neuroimmunoendocrine systemincluding Autoimmune disease; there is already a lot of literature noting they realize that the IMbalance in the stress system (including the HPA Axis) means the Immune system is getting unbalanced and Activating common Autoimmune genes/ like Hashis/hypot.(and LIver conversion of t4 to t3 is directly affected by 'stressors' that slow the conversio of t4 to t3 and can also increase the conversion of t4 to Rt3.> > >> > > Hello, I havnt been medicated for 4 months. Also I just read in stop the thyroid madness, p.62 "it is not uncommon to see a tsh of 0.009 or 0.004 when optimal". I just found it in my book. Does anyone else read this book?> > > > > > > > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2011 Report Share Posted March 22, 2011 Hi my name is Lori I am a thyroid cancer survivor. I have had both sides removed did not require RAI. But now i am going thru some things i get dizzy, really hot and start sweating and feel nauseated and get lower back pains not knowing what it is. Has anyone else experienced this? It is really scary me lately. And i am not liking it. I have also found a small hard lump in my side of my lower neck and they say it is probably a cyst now nervous do you think i should insist on another ultrasound just encase of am worrying over nothing.LoriTo: Thyroiditis Sent: Sun, March 20, 2011 8:12:20 AMSubject: Re: Confused He wants to do RAI on my thyroid. I'm scared. Sender: Thyroiditis Date: Sun, 20 Mar 2011 08:16:58 GMTTo: <Thyroiditis >ReplyTo: Thyroiditis Subject: Re: Confused 0.0 means your thyroid is running too high. anything under .3 is too low. This is serious and I would do what your endo says. can cause a heart attack and heart failure if not taken care of. Sometimes endrocrinologists know what they are doing.----- ConfusedTo: Thyroiditis Date: Saturday, March 19, 2011, 5:26 PM Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much to talk about but would like to address a problem that is occuring right now. My question is:-f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your thyroid killed? My endo wants to do this because i am sweating so bad, slight increase in the heart rate, insomia. I have not been on meds for 4 months. I was on synthroid/cytomel stoppped it and switched to ERFA. after about a month my tsh dropped and has not moved for 4 months. Sincerely, ____________________________________________________________Grouponâ„¢ Official Site1 ridiculously huge coupon a day. Get 50-90% off your city's best!Groupon.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 hi Lori they removed your thyroid gland? what kind of Thyroid Homrone RX did they put you on? dosage? thyroid cancer pateitns should be on supressive doses of Thryoid HOrmones RX , have they tested your FREE t3 and FREE T4 and Reverse T3 tests? did they ever test you for Autoimmune THryoid Disease antibodies? =========== the Feelings of dizzy and hot and nausea and pain in back/near waist are common 'Adrenal Fatiuge " symtpoms and the adrenals and stress system work directly with our Thryoid hormone system (including our LIVER which makes our T3 thryoid hormones!) one stress hormone in particular , Vasopressin which is made by our Hypothalamus, is documetned to cause all of those sytmposm and Vasopressin /as part of the HPA Axis / tells the adrenals to make more cortisol! the thing to remember about 'Adrenal Fatiuge " as you read the good AF doctors websites,, is that AF is really actually about the brain's stress sensing and " stress directions to the entire stress-system VS only being about Adrenals or " Low cortisol " .] Please GOOGLE: Adrenal Fatigue + DR Lam and read all his webpsges= the only website that states outright that the other 'stress system parts are involved - DR WIlson (Who 'Coined the name " Adrenal Fatigue " has a good EZ to read and follow book that describes the 'lifestyle guidelines " that all AF patients have to do (when and what to eat , exercise and sleep guidelines and even shows us how the News or scary movies are affecting the " Adrenal fatiuge' (aka our entire stress-sysetm -Carol > > > > > >Subject: Confused > >To: Thyroiditis > >Date: Saturday, March 19, 2011, 5:26 PM > > > > > > > >Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much to > >talk about but would like to address a problem that is occuring right now. My > >question is: > > > >-f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your thyroid > >killed? My endo wants to do this because i am sweating so bad, slight increase > >in the heart rate, insomia. I have not been on meds for 4 months. I was on > >synthroid/cytomel stoppped it and switched to ERFA. after about a month my tsh > >dropped and has not moved for 4 months. > > > > > >Sincerely, > > > > > > > > > > > ____________________________________________________________ > Grouponâ„¢ Official Site > 1 ridiculously huge coupon a day. Get 50-90% off your city's best! > Groupon.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 , I so feel your questions... I am right there with you!!! Endo's are specialists but often only think of their own "wisdom" regarding which tests to look at and conventional medicine answers. Naturopaths look at the whole health of the body and try to feed health, preventative actions, and more natural solutions. A good naturopath with experience should run the right tests and suggest the right more natural interventions. However, some of them may not be especially good at thyroid issues... I went to an integrative medicine doctor- does have an MD and uses alternative medicine as well- yesterday and he wanted to do what I wanted done!! Yeah! will see how the relationship goes.... There are sites that give recommendations on doctors with reviews... but i am not finding the link right now. will see if I can find it. Also, google integrative medicine and your area...  People are recommending Naturopaths over Endos? Aren't Endos the thyroid and hormone specialists? If we dont' know which tests to ask for to have our health asertained, which specialiast should be doing so and be familiar with these more detailed and advanced throid antibody/other related stuff tests? I feel pretty frustrated as to which type of physician/specialist to look for ? Maybe I should just move towards an immunologist if I'm also suffering from other autoimmune damage that I'm learning to manage/control/try to recover from? Light Subject: Re: Confused To: Thyroiditis Date: Monday, March 21, 2011, 2:48 PM  Hi , TSH in itself is NOT significant; the important thing is to look at symptoms, FT3 and FT4, auto-antibody counts, other labs and tests. I would get a second opinion if all the Endo is offering is RAI. If you already have serious heart symptoms you need to be put on a beta-blocker to prevent permanent damage to your heart. First thing I would request (demand if need be) is an ultra sound to to rule out hyper-active nodules, sometimes these can NOT be felt on a throat exam, especially if they are very small (but still can be powerfully hyper-acting)? Sometimes diet changes can help, other times not so much. Were you checked for a copper deficiency, that can give you heart palps, sweating, etc. Proper copper metabolism interrelates and depends upon iron and zinc to work efficiently, all three these minerals MUST be in-balance. AF = adrenal fatigue and AI = autoimmune. It could be that your body is going through Hashitoxicosis also sometimes called Thyrotoxicosis or T3-Toxicosis although T4 can be elevated in some patients. This can happen in some Hashis resulting from severe inflammation of the thyroid gland, which cause sporadic and high release of stored thyroid hormone. Usually, Hashitoxicosis happens in early stages of Hashis. Some scientists say the thyroid is trying to stop the AI attack. Try bugleweed, motherwort tincture and lemon balm for a few months. You can take these with an ATD (anti-thyroid drug), all of these helped to reduce my daughter's hyper symptoms. She takes 3,000 mgs PABA (para-aminobenzoic acid), sometimes called vitamin Bx, which is included as one of the B-complex vitamins depending who is talking. Anyway, it can weaken and alleviate hyper symptoms. Plus, a whole-food multi with extra vitamin C, Vitamin D, and EPO (evening primrose oil) and omega 3 (fish oil). We all take curcumin, a very effective anti-inflammatory that can help with inflammation in AI thyroid disorders (Dr Kharrazian says in his book *Why Do I Still Have Thyroid Symptoms?* that it helps modulate both sides of our -out-of-balance- immune system). Your symptoms could be caused by accelerated synthesis as in Graves' disease. Hashis can suddenly turn into Graves' - this has happened to two of my friends. The Graves' antibodies called TSHR (TSH Receptor) antibody, need to be tested aka TSI and TBII. The TSHR antibodies are complex as there is three subtypes – stimulating, binding (neutral) and blocking. Note: TSHR antibodies are present in most if not all Graves', about 50% of Hashitoxicosis and about 10% with Hashis (not counting Hashis that previously had Graves' and/or Hashitoxicosis and are now permanent Hashi hypo). Confusing, I know, it took me a few years to get it all straightened out. I hope this is helpful, ~Bj > > > > Hello, I havnt been medicated for 4 months. Also I just read in stop the thyroid madness, p.62 "it is not uncommon to see a tsh of 0.009 or 0.004 when optimal". I just found it in my book. Does anyone else read this book? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Hey - I know this has been a long thread with many responses - haven't read all, but I do agree you could have a potentially worrying situation if you're having hyperthyroid symptoms and you have those test results. On the other hand, people who " kill off " their thyroids with RAI often have a hard time finding balance thereafter. I have a cousin who has hyperthyroidism and his doc gave him a low dose of thyroid so as to signal to his body to stop producing thyroid hormone - then I think they gradually had to increase it. That was the first time I had heard of that approach, but he said it worked - I don't think he was having hyper symptoms at all though. But maybe the ERFA didn't work at all for you and was sending your body into alarm mode to produce a lot of thyroid hormone?? Swings and swing symptoms can be common... this stuff is all so confusing. The only other suggestion I can think of - maybe controversial but I would probably try it if my only other option was RAI - is to maybe try some benign thyroid-suppressing supplements and goitrogenic foods to see if you feel improvement. This is the opposite approach of what I said above!! But at least for most people, these things in your system on a regular basis can suppress thyroid. So trying iron and calcium supplements - maybe even soy. I remember when I was swinging hyper briefly I took calcium and ate molasses and it seemed to help - calcium and magnesium are soothing to the nervous system anyway. Maybe try a calcium supplement in the morning and iron in the evening (something like Easy Iron from Puritans Pride is fairly easy to absorb) and up your soy intake - this is all just temporary and a last resort. I know some people here will say iron can *increase* thyroid production or conversion, but I was just at an Endo who said if I was taking iron he would have to check my levels more often for low thyroid. Certainly taking these supplements anywhere near a thyroid pill normally rends the pill useless. So it might be worth a try. Of course, you would need to first make sure if that your calcium and iron levels aren't already high or near the top before you try this. It's just a thought - please think all over carefully because both of what I've suggested here are controversial and I think you'd have to proceed slowly and carefully... > > Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much to talk about but would like to address a problem that is occuring right now. My question is: > > -f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your thyroid killed? My endo wants to do this because i am sweating so bad, slight increase in the heart rate, insomia. I have not been on meds for 4 months. I was on synthroid/cytomel stoppped it and switched to ERFA. after about a month my tsh dropped and has not moved for 4 months. > > Sincerely, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 " Endo's are specialists but often only think of their own " wisdom " regarding which tests to look at and conventional medicine answers. " truly that is a great perspective and one we seriously have to apply to All types and specialties of Doctors. yes, some doctors are starting to make headway and they now realize that both thryoid and 'adrenal fatigue' processes are complex. but the reality is that there does not yet exist 1* doctor who knows everything they need to know in order to get US well -in a timely and *UNdramatic fashion,, --he doesn't exist yet. i am talking about a doctor who needs to understand how the 'organ' level systems , and their various cells, and the various molecular/enzyme/Metabolic Pathways (chemistry 'reactions , oxidations andetc) work and affect each other UPstream and down stream. Note: Much of the Medical Science has already been discovered that could help us figure out our own specific 'issues' right now! but NO 'practicing " doctor has time to do all that Researching/learnign ! i say that becuz i have read the work of all the good " Thryoid " Doctors and " Adrenal Fatiuge " doctors and some CFS/FM and autistic doctors etc.. they all know good stuff; but they are parts of a complex WHole and who those various 'organ's and their cells and chemical reactions affect Other " organs " and Their cells and so forth (EG neuroimmunoendocrinology and the *entire stress-system.. it is GREAT:) to find a doctor who at least knows enough physiology and also admits that TSH test and SInthroid are not working for every patient.. but i just wanted new folks to clearly understand that our Doctors/of any type/ really don't know what they need to in order to understand each of our own unique combination of 'weaknesses' at the organ and/or cellular and/or molecular levels. IOW doctors (adn WE) are having to do a lot of " guessing " and " lets see how you feel if you start you on this supplement or this Rx at that dosage and schedule " there is progress; but many of us have spent so much time and energy trying to find 1 doctor who knew enough to figure out our issues and cure us quickly and without 'side effects'.. -Carol 2 Cases in point that even the GOOD thryoid and AF doctors are ignoring and should not be as they are on the front lines of our hypot and atd and AF problems: 1) Vasopressin : no practicing doctors are talking about Vasopressin as a hormone and neuropeptide and neurotransmitters =and its main roles in both HYpot and Adrenal Fatiuge. Vasopressin is also affected by our thoughts and stress-handling or Not 'stress-handling' and Vasopressin is in charge of tellin g our adrenal glands to make cortisol -espeicallyh when we have 'chronic stress'.. like having a thyroid problem or 'adrenal fatiuge' or low iron /ferritin our Good thryoid and AF doctors are ignoring Vasopressin,, but the Old and modern *Conventional Medical science/research literature did and does {but one has to learn enough of the medical " Lingo " so that you can recognize the references to Vasopressin (AKA ADH!!) and thryoid and liver and sugar handling and " Adrenal Fatiuge " /stress systems.. in order to recognize the significance of that conventional medical literature and put the pieces together 2) Porphyrin Metabolic Pathway, the Heme Metabolic Pathway and the Cytochromes and Cytochrome P450 Metabolic Pathawys (and liver Detox Pathway 2) Metabolic Pathways (aka enzyme chemical reaction pathways that take place in all cells in the body ) and the above Pathways are all very important to Hypothyroid patients! and " Adrenal Fatiuge " patients as well and those are directly affected by what we eat and don't eat and when we do and don't eat :0 those pathways also rely on Ferritin and Iron being in Optimal amounts and Proper ratio to each other! but Ferritin levels are based on the supply of apoferritin and the Liver's ability to Make Ceruloplasmin --which is directly affected by the Adrneals production of Adrenaline and NOradrenaline (AKA Epineprhine and NOrepinephrine :/ > > > > > > > > Hello, I havnt been medicated for 4 months. Also I just read > > in stop the thyroid madness, p.62 " it is not uncommon to see a tsh > > of 0.009 or 0.004 when optimal " . I just found it in my book. Does > > anyone else read this book? > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 One more quick thought - one doc I went to told me that any time you take a thyroid med with T3 in it (Cytomel, Armour, ERFA), you will suppress your TSH. It does seem true when I look back over my test results over the years - I had to ignore my TSH when I was on those things because it was always low, but now that I'm on only Levoxyl (T4) again, it seems to be accurate for me. Still, your symptoms sound hyper... I guess you have to figure out if this is a pre- or post-Hypo swing or not. Why did you add T3 to your meds? > > Hey - I know this has been a long thread with many responses - haven't read all, but I do agree you could have a potentially worrying situation if you're having hyperthyroid symptoms and you have those test results. On the other hand, people who " kill off " their thyroids with RAI often have a hard time finding balance thereafter. > > I have a cousin who has hyperthyroidism and his doc gave him a low dose of thyroid so as to signal to his body to stop producing thyroid hormone - then I think they gradually had to increase it. That was the first time I had heard of that approach, but he said it worked - I don't think he was having hyper symptoms at all though. But maybe the ERFA didn't work at all for you and was sending your body into alarm mode to produce a lot of thyroid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 " have a cousin who has hyperthyroidism and his doc gave him a low dose of thyroid so as to signal to his body to stop producing thyroid hormone - then I think they gradually had to increase it " that is very interestnig; i had never heard of that before either.. only heard of that 'block and replace'. what type of RX did they give him? T4-only ? T3-only? -Carol BTW eating or taking IRon will actually add more fuel into the Metabolic Pathways that make our THryoid hormones! (the Steriod hormoens (All adernal and all Sex hormoens) and THryoid hromones and Vit D and Fatty Acids are made at the cellular level by the same Metabolic Pathways that take place in the Respective cells in teh body the Warning about Iron to THryodi patients is taking Iron Supplement at the same time as our THryoid RX SUpplement==they can bind to each other in the digestive tract/liver processing areas and not get into the body ,, type of problem.. A lot of people don't realize that the " Goitrogenic foods " will actually speed up 1 or both of the LIver's Detoxification Pathways 1 and 2 and if all parts of our LIver's DEtoxification Pathways 1 and 2 are not working properly??? you get a bad 'traffic jam' of " intermediate Metabolites " that in most cases are very Bad -Oxidative Stress/ Oxidative damaage' that causes many various Signs and Sytmposm... VERY complex and the " Practicing " Medical world is Just starting to learn about what the " research " parts of the medical world have been discovering about the body at the cellular/moleceular level -for the last 30 years or so :/ this Knowledge is NOT 'trickling down' into the Medical Schools and our " practicing physicians fast enough! > > > > Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much to talk about but would like to address a problem that is occuring right now. My question is: > > > > -f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your thyroid killed? My endo wants to do this because i am sweating so bad, slight increase in the heart rate, insomia. I have not been on meds for 4 months. I was on synthroid/cytomel stoppped it and switched to ERFA. after about a month my tsh dropped and has not moved for 4 months. > > > > Sincerely, > > > > > > > Quote Link to comment Share on other sites More sharing options...
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