Guest guest Posted June 21, 2008 Report Share Posted June 21, 2008 " Prednisone can weaken your immune system, making it easier for you to get an infection. Steroids can also worsen an infection you already have, or reactivate an infection you recently had. Before taking prednisone, tell your doctor about any illness or infection you have had within the past several weeks. " Yes it does. That is why you don't just jump off of Prednisone. You must gradually wean. The Adrenal gland must be working near 100% for you before you jump ship. While on Prednisone for any length of time, your Adrenals shut down, leaving you without a good working immune system. As you wean off Prednisone very very slowly, your Adrenal is waking up and taking over. So the last few months/weeks can be pretty tough. And even right after totally getting off of Prednisone, you're more vulnerable to infections because the Adrenal is not working 100% quite yet. llaci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2008 Report Share Posted June 21, 2008 I was disturbed to read this since so many people may have a systemic fungal infection and Prednisone is not indicated in this regard. People are not getting proper diagnoses of fungal infections and steroids are just thrown at them as a matter of course. Steroids are just a band-aid on a problem that might be greater and may cause more problems than they solve. If docs were following a responsible protocol for diagnosis, there would not be the possibility of all these subsequent complications like bone loss, diabetes, weight gain, etc. I am not a doctor, but read a lot of this stuff and common sense would tell anyone that the " root cause " needs to be addressed not just a tranquilizer and steroids and no competent investigation of the workplace, school or residence. But, they don't want to treat a mold exposure competently and aggressively so that worse things don't happen to your system causing cancer, leukemia or some auto immune disease. The mold/toxins can weaken your immune system so that it completely breaks down. It would seem that this is the worse possible scenario. It took me nearly 3 years to get a competent diagnosis, after going from doctor to doctor and back around the block again. Is this what " managed care " really means? Instead of treating " symptomatically " in my view, they need to treat the " whole enchilada " the exposed person and the environment which caused it. I chose not to take the steroids, as I felt it was a poor choice for me, and the " easy way out " for them. [Giving them a 'way out' was not in my vocabulary] I would not place my self at greater health risk, as I spent my life taking good care of myself. It turned out to be the best choice because they did not know what they were dealing with until there was a diagnosis and the steroids would have only " masked " the symptoms. I knew the mold made me sick, but the docs did not want to hear it, because then they would be forced to " treat it " with anti-fungals which gave me great relief. Shame on the medical profession, as it is easier to get anti-fungals for nail fungus for cosmetic purposes or " vanity medicine " as I call it. There is shame everywhere. On the disreputable IAQ people ( not the good ones who report honestly), on the docs, who brush off sick people (not the good ones who try to help), on the companies who fire and harass those who are sick in their workplaces, and on government, who fail to " put up their umbrella " over those who need protection. > > " Prednisone can weaken your immune system, making it easier for you to > get an infection. Steroids can also worsen an infection you already > have, or reactivate an infection you recently had. Before taking > prednisone, tell your doctor about any illness or infection you have > had within the past several weeks. " > > Yes it does. That is why you don't just jump off of Prednisone. You > must gradually wean. The Adrenal gland must be working near 100% for > you before you jump ship. While on Prednisone for any length of time, > your Adrenals shut down, leaving you without a good working immune > system. As you wean off Prednisone very very slowly, your Adrenal is > waking up and taking over. So the last few months/weeks can be pretty > tough. And even right after totally getting off of Prednisone, you're > more vulnerable to infections because the Adrenal is not working 100% > quite yet. > llaci > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2008 Report Share Posted June 23, 2008 Hello everyone I am new to this group. I was diagnosed with ABPA allergic broniopulminary aspergilosis in Oct 2007. I have been on prednisone ever since never gettin ght dosage below 30 mg without falling ill again. I also have asthma and severe allergies. The prednisone has cause Cushings syndrome and I have not been more miserable in my life. My asthma return seven years ago after a bout with pnemonia. I was asthma free for years. I was hospitalized amd given intense steroid therepy. Since than I can not count the times I have been ill and hospitalized and put on steriods over and over. My life has drastically changed. I cannot work any longer I have problem with mobility, cognitive thinking and resoning , emotional difficaultes depression, anxiety. My work performance gradually suffered as the yeas went by until now I am on unpaid medical leave and have lost almost everything. Noone can tell me where I encountered Aspergilosis. I cannot be tested correstly with so much steriods in me. The insurance company wont pay me long term disability because I dont have proper testing stating why I can not work. They are saying preexsisting because I took prednisone of asthma before. Well I am rambling on sorry for the abrasive introducion of myself. I just get livid when I see the word steriod it has permently altered my live. I am 48 and I feel 70 years old. I have gained 100 pounds god know what is happening to my intenal organs! Thank you Kimmy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2008 Report Share Posted June 23, 2008 -Welcome Kimmy, So sorry for your illness. Many of us here can relate in one way or another so you have come to a good place to share, get advice and ideas that can hopefully help you to regain some of your health. I too am 48, my mind and heart still want to feel 20 but my body has also been severly affected. I would suggest if you can afford it to see a naturopathic Dr. or do your own research regarding diet and try to get on sequestering agents such as charcoal, bentonite clay and cholestyramine, the last of which you have to get through a M.D. My Dr. also has me taking omega 3 fatty acid (Carlsons fish oil, the best, from health food store) and CoQ10. Try to keep your thoughts as positive as possible, I know its not easy at times. And walking or other forms of mild exercise help also. I force myself to walk- and I pray alot also. Hang in there. Sincerely, Laurie - In , " kim " <kmarie0308@...> wrote: > > Hello everyone I am new to this group. I was diagnosed with ABPA > allergic broniopulminary aspergilosis in Oct 2007. I have been on > prednisone ever since never gettin ght dosage below 30 mg without > falling ill again. I also have asthma and severe allergies. The > prednisone has cause Cushings syndrome and I have not been more > miserable in my life. > My asthma return seven years ago after a bout with pnemonia. I was > asthma free for years. I was hospitalized amd given intense steroid > therepy. Since than I can not count the times I have been ill and > hospitalized and put on steriods over and over. My life has > drastically changed. I cannot work any longer I have problem with > mobility, cognitive thinking and resoning , emotional difficaultes > depression, anxiety. My work performance gradually suffered as the > yeas went by until now I am on unpaid medical leave and have lost > almost everything. > Noone can tell me where I encountered Aspergilosis. I cannot be > tested correstly with so much steriods in me. The insurance company > wont pay me long term disability because I dont have proper testing > stating why I can not work. They are saying preexsisting because I > took prednisone of asthma before. > Well I am rambling on sorry for the abrasive introducion of myself. I > just get livid when I see the word steriod it has permently altered > my live. I am 48 and I feel 70 years old. I have gained 100 pounds > god know what is happening to my intenal organs! > > Thank you > Kimmy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 So sorry for all that you have gone through and are going through. Do you have anyway of doing ozone therapy for your pathogens or Rife or MMS or even salt/vitc protocols? Do not give up though it may be very hard. I have been sick for close to 4 decades. I should not be here and I am tired of fighting but it is worth it. Have you joined groups that have what you have? Any ideas from them? I know what it is like to be broke and sick. Just ideas. I know that ozone does well with fungus. I have fungus battles. Maybe someone in the ozone groups or rife groups lives near you and you could try it? Do research on it when your brain can handle it. I know that one too although I think you did a good job in expressing yourself and explaining. I know that MMS is cheap and has been quite effective for many. Never give up reach out cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 Yes, today's medicine is 'symptom management'. All it does is make you 'happier about being sick', i.e. make sickness less painful, even if it worsens it. It's not the doctor's fault. This is what they are taught in medical schools now. Books are paid for and many times written by pharmacy industry. > > I was disturbed to read this since so many people may have a systemic > fungal infection and Prednisone is not indicated in this regard. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 I was just diagnosed with bacterial bronchitis (probably brought on by my defogging for gnats) and was put on antibiotics plus a very low dose packet of prednisolone to help give my antibiotics a kick start. llaci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2008 Report Share Posted June 27, 2008 OH MY GAWD. this posting about Prednisone weakening the immune system really hit home with me. i posted here on the 18th that i had been taking Prednisone for about a week to possibly help with my hair loss. the side effects that the doctor (dermatologist) told me were weight gain and swollen cheeks. i got more side effects out of the pharmacist when i had the prescription filled--weight gain, mood changes, insomnia. earlier this week (after being on it for a couple of weeks now), i just felt something was amiss. i've probably gained a couple of pounds, but didn't care going in because i know i can always lose it. my sleeping patterns have also changed in that my eyes will pop open every couple of hours. arghhhh! then there's the irritability! and i had even told a couple of good friends that i FEEL weaker like my strength has been zapped by 10-15%. at this point, weighing what it's doing to me, taking this drug is so not worth it. i have my follow-up appointment next week, but after reading this posting, i'm going to call him tomorrow and tell him i do not want to continue taking it. thank u all for sharing!!! > > " Prednisone can weaken your immune system, making it easier for you to > get an infection. Steroids can also worsen an infection you already > have, or reactivate an infection you recently had. Before taking > prednisone, tell your doctor about any illness or infection you have > had within the past several weeks. " > > Yes it does. That is why you don't just jump off of Prednisone. You > must gradually wean. The Adrenal gland must be working near 100% for > you before you jump ship. While on Prednisone for any length of time, > your Adrenals shut down, leaving you without a good working immune > system. As you wean off Prednisone very very slowly, your Adrenal is > waking up and taking over. So the last few months/weeks can be pretty > tough. And even right after totally getting off of Prednisone, you're > more vulnerable to infections because the Adrenal is not working 100% > quite yet. > llaci > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2008 Report Share Posted June 30, 2008 had my follow-up appt with the dermatologist today. basically because i'm having these side effects (i also recently had numbness on my right hand/forearm for a few minutes every other day), he agreed with me that i probably should stop taking Prednisone altogether. unfortunately, he didn't offer any other alternatives, even when i inquired if there is anything i could apply topically. the last thing he said is to take a " wait and see " (if my hair grows back) approach. argh. :-( the interesting thing is that he didn't think the hair follicle/root was dead. anyone here who's experienced hair loss and it has since grown back? what did u do? > > > > " Prednisone can weaken your immune system, making it easier for you to > > get an infection. Steroids can also worsen an infection you already > > have, or reactivate an infection you recently had. Before taking > > prednisone, tell your doctor about any illness or infection you have > > had within the past several weeks. " Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.