Re: The roots of chronic fatigue

[Guest guest]

" Inspire a sudden recovery in malingers " - could mean that if there

are blood typing groups that could offer " hard evidence " of M.E. -

then, those who even " think " they could " pass themselves off " as sick

- would know that their blood work would not show the markers...

Those people certainly exist, and make everyone else vulnerable to the

broad brush of criticism.

" Malingerer " is a legal term of art...but a blood marker test, and

those other factors like irregular heart beat and chronic low blood

pressure do see like real HARD data possibilities, that sound good to

me. In other words, a blood test will chase-off the malingers.

[Guest guest]

I have read that an actual diagnosis of 'chronic fatigue syndrome'

in one's past makes it IMPOSSIBLE to buy insurance, if you try to purchase

individual insurance outside of an employer-based group. (and of course,

many people with mold illness, etc. lose their jobs so they

must try to do exactly that.)

Its similar to being a cancer survivor or heart patient in that respect.

They think that you are just going to be a bottomless pit that they might

have to pour money into so they don't want your business. If you do manage

to get a quote out of them they quote you what they consider to be a fair price

which is often far more than all but the richest of us can afford.

I have often thought that it is partly because they seem unwilling to actually

treat things like mold illness that they become expensive. People are

sick and they

go to their doctors and their doctors wont give them the tests they do need

(because they say insurance wont pay) but

they do want to cover their butts so they order the same other semi

useless tests over and

over again. (CBC, etc.)

God forbid that they would ever test MSH, MMP9, C4a, etc.

The insurance companies could probably save a HUGE amount of money as well as

actually perform a service to humanity (gasp) if they simply rolled

their sleeves

up and DEALT WITH THIS.

They have a huge financial incentive to do so, but they still don't.

One has to wonder,

WHY?

[Guest guest]

Sharon -

I have had CFS for many years now...the fibromyalgia thing I had for

about 5 years...Thank God, that part is diminished.

The CFS was never written up as M.E. as I hear others describe their

symptom index. I think it is a semantic difference among doctors who

diagnose. Some people's symptoms are respiratory or sinus related yet

they have CFS, which a lung doctor would likely never diagnose M.E.,

even though it might be present because it is out of his/her domain.

It was probably inappropriate to use that term in that report, because

it can be so offensive and hurtful, but the reality is, the defense

will always assert it in a workers comp claim. I have read hundreds

of Workers' Comp cases and where there is no solid injury like a bone,

or an eye patch, the " visual " thing is very hard to get by. The

earliest " exposure " cases were Anthrax cases, interestingly enough, in

the agricultural context.

People were convinced that I looked " so good " - for a very finite

amount of time per day, and I made very sure that I had makeup on and

lipstick and my hair was freshly washed. I did not want to look how I

felt. The " appearance " thing weighs in very heavily. They did not see

me in bed 16 hours a day, not always sleeping, but resting. Those few

hours " out " were precious.

You do know that Workers Comp. defendants hire private investigators

to check on whether someone claims a " back injury " is up on a ladder

painting his/her house. That example might prove a malingerer defense

resulting in denial of claims. I have no doubt that there were

investigators who sat in a car outside of my house and who

photographed me for their files. I know people who have been followed.

Unfortunately, people do take advantage. Some people try to trick the

system into conferring an undeserved benefit. And, that translates in

the system being more difficult to overcome. A blood test, with

markers, or sophisticated immune assays, which in my opinion, is very

underused is one of the only ways to overcome any scintilla of

" malingerer " description.

2008 ©

>

>

> Ginny,

>

> While I am pleased they are acknowledging CFS is real. There are

many on

> this board who do not fit classic CFS, yet carry many of the

symptoms. There

> was no need for that malingering comment in their paper. Makes me

think that

> if one does not fit neatly into a peg hole they are designing, then

these

> people will be deemed liars...yet again. It makes no sense that one

would use

> that term when advancing the understanding of CFS. It's like saying

if you

> don't have CFS, yet you are sick with unexplained symptoms, then you

must be a

> liar. I find this study somewhat dangerous from the tone it is

projecting.

>

> In a message dated 6/6/2008 1:20:58 P.M. Pacific Daylight Time,

> ginloi@... writes:

>

> " Inspire a sudden recovery in malingers " - could mean that if there

> are blood typing groups that could offer " hard evidence " of M.E. -

> then, those who even " think " they could " pass themselves off " as sick

> - would know that their blood work would not show the markers...

>

> Those people certainly exist, and make everyone else vulnerable to the

> broad brush of criticism.

>

> " Malingerer " is a legal term of art...but a blood marker test, and

> those other factors like irregular heart beat and chronic low blood

> pressure do see like real HARD data possibilities, that sound good to

> me. In other words, a blood test will chase-off the malingers.

>

>

>

>

>

>

> **************Get trade secrets for amazing burgers. Watch " Cooking

with

> Tyler Florence " on AOL Food.

> (http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002)

>

>

>

[Guest guest]

It's not profitable to find & treat fungal diseases b/c there are only

a few drugs in that class. Ex: giving antibiotics for sinusitis &

bronchitis w/o a culture to even see if their origin is bacterial.

Think Doug posted about this recently.

Hugs, Cheryl

They have a huge financial incentive to do so, but they still don't.

One has to wonder,

WHY?

[Guest guest]

There are not many good antifungals. The azoles are fungistatic not

fungicidal. Thus fungi have developed resistance over time. The

echinocandins are a new class but they haven't made an oral one yet

though they are trying. Fungi are very much more like our own cells

than bacteria, and so antifungals tend to be more toxic. It's not that

they don't want to make them, it just is harder to make effective safe

ones.

>

> It's not profitable to find & treat fungal diseases b/c there are only

> a few drugs in that class. Ex: giving antibiotics for sinusitis &

> bronchitis w/o a culture to even see if their origin is bacterial.

> Think Doug posted about this recently.

> Hugs, Cheryl

>

>

> They have a huge financial incentive to do so, but they still don't.

> One has to wonder,

> WHY?

>