Guest guest Posted August 2, 1999 Report Share Posted August 2, 1999 Thanks Everyone, Now I can go to my GP and at least be some what knowledgeable about what I want to ask him. Everyone on this list seems to be so willing to help. I greatly appreciate it. Thanks again!!! Judi Re: Introduction and question >> >> >From: allan moore <afmoore1@...> >> > >> >Yes, Nico, you sure can. If I remember correctly (its been several >> >years ago, so I'm hoping this is correct--right now I've got a little >> >brain fog that's intefering with my reception!) I was on Biaxin and >> >Flagyl concurrently for about three or four months. Cheney told me >> >that research from Duke had shown that Biaxin would take care of the >> >chlamydia pneumoniae bacteria BETWEEN the blood cells, but that to get >> >to the bacteria which had penetrated INSIDE the blood cells, you had to >> >use Flagyl, an antibiotic that is able to penetrate cell walls. This is >> >why I was on both antibiotics at the same time. Only one problem: >> >after being on such strong antibiotics for that length of time, I was >> >left with a terrible systemic yeast infection. Cheney treated me for >> >this with daily doses of Diflucan and probiotics (also for several >> >months, as I recall). I still take the probiotics, in fact, just to try >> >and " ward of " anything that might try to " set up shop " in my system! >> > >> >Sheri >> > >> >nico vde wrote: >> >> >> >> From: nico vde <nvdeynde@...> >> >> >> >> Dear Sheri, >> >> >> >> May I ask how long you have been treated with the antibiotics ? >> >> >> >> NICO. >> >> >> >> At 10:22 23-07-99 -0500, you wrote: >> >> >> >> >Mike, >> >> > Have you been tested for chlamydia pneumoniae? At one >> >> >time during the course of this disease I kept getting sinus >> >> >infections, which invariably traveled downward, going from >> >> >sinus to throat to chest and ending up in a bronchial >> >> >infection. Turned out after my blood was tested that I had >> >> >chlamydia pneumonia. Cheney treated me for it (with two >> >> >antibiotics--Biaxin & Flagyl) and I haven't had a bronchial >> >> >infection since. Its worth a try. >> >> > >> >> >Sheri >> >> > >> >> >--------------------------- ONElist Sponsor ---------------------------- >> >> > >> >> >ONElist: your connection to like-minds and kindred spirits. >> >> > >> >> >------------------------------------------------------------------------ >> >> >This list is intended for patients to share personal experiences with >> each >> >> other, not to give medical advice. If you are interested in any >> treatment >> >> discussed here, please consult your doctor. >> >> > >> >> >> >> --------------------------- ONElist Sponsor ---------------------------- >> >> >> >> Congratulations DALMATIANRESCUE. Our latest ONElist of the week. >> >> To see full story and submit YOUR ONElist story, go to >> >> /info/ootw_19.html >> >> >> >> ------------------------------------------------------------------------ >> >> This list is intended for patients to share personal experiences with >> each other, not to give medical advice. If you are interested in any >> treatment discussed here, please consult your doctor. >> > >> >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2003 Report Share Posted March 6, 2003 At 09.36 06/03/03, you wrote: >I thought 'd run this by you all before calling up Coker-Vann agin, or >bringing the results in to my doctor or whoever my next rheumatologist will >be. P.S. I realised from an answer in private, that I should have made clear that my regular doctor does not speak English, and this precludes the most obvious thing to do--having him call up Coker-Vann for an explanation. I'm hoping that if I find an " open-minded " rheumy, he will also speak English --though I have already translated the protocol and some other material. Thanks again, Maureen P.S. if anybody overseas wants to send a blood sample to the US for testing, and does not know where to get the required purple label for this type of shipment (non-hazardous biological material), I can send you a .gif file to print, regulation size. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2003 Report Share Posted March 7, 2003 At 09.36 06/03/03, I had written : >Oh, yes, the question: >Do the (C. pneumoniae) antibody tests differentiate between past and present >infection/exposure? Thank you to those who wrote in private to indicate that several doctors consider C. pneumoniae as playing a major role in rheumatic diseases. As for the question, I got the answer in the most obvious way (I was hoping to save the long distance call by writing you all ;-)), that is calling up the lab myself and asking Dr. Coker-Vann. (I would have had my doctor call but there is a language barrrier.) She explained that the kind of test she did is IgM, and that if it is positive it simply indicates active primary infection. It is the IgG that has the titer which stays awhile after treatment and slowly goes down. I found a nice article that explains the testing (tied to suspicions of C. pnumoniae having to do with artherioschlerosis) , and lo and behold, the hospital that did the test is 10 miles from me here in Florence Italy. So this is heartening--if all else fails I'll see if I can get treated for heart disease ;-)) Anyway, an excerpt from the article: " C. pneumoniae acute infection induces IgM and IgG antibody production, whereas in a secondary infection IgG and IgA antibody titers increase rapidly without an IgM response.[17] Elevated IgG and IgA antibody levels occasionally persist for a long time after primary infection and thus are considered as an indication of chronic infection. " Here is the article: http://www.medscape.com/viewarticle/417024 I will keep you all posted, Maureen in Italy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 It was formerly known as psittacosis or more commonly, " Parrot Fever " . Follow your doctor's advice. However, if you don't have birds, don't go into pet stores or zoos, the only other way to contract this disease is from pigeons or other outside carriers unless you moved into a house that was previously occupied by people who owned birds. What tests were done to determine that you had this? Were x-rays performed and read by a qualified pulmonologist? Let's hope that you haven't been misdiagnosed or maybe HAVE been. Have others in your building been diagnosed with pulmonary fibrosis? Barth S> I just found out that I have a bacteria infection called Chlamydia S> pneumoniae. Does anyone know anything about this? Is it related to S> mold exposure from a sick building? I have to be on antibiotics for S> months and my doctor says people are hospitalized sometimes with this S> infection. I'm researching it now but I thought I would ask if anyone S> knew about this infection. S> Sharon Hanson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Hi Sharon, Never heard about it but anti-biotics have no medical effect on toxic mold exposure. If you have been exposed to toxic mold you need anti-fungal medication asap. And CSM (cholesytramine) will help as well. Talk to your Doctor about it. Elias From: Sharon <shha2002@...> Subject: [] Chlamydia pneumoniae Date: Thursday, July 3, 2008, 6:30 PM I just found out that I have a bacteria infection called Chlamydia pneumoniae. Does anyone know anything about this? Is it related to mold exposure from a sick building? I have to be on antibiotics for months and my doctor says people are hospitalized sometimes with this infection. I'm researching it now but I thought I would ask if anyone knew about this infection. Sharon Hanson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 there has been some anti-biotics prescribed to me that caused a bad reaction,tell your doctors not to give you any mold drived abti- biotics.. and they can cause yeast infection or flair ups. I dont know but think it could be possable that exposure to certain fungi and certain anti-biotic use could cause a bad reaction in the body, kind of like two types of fungi that dont cohabitate. the invention of penicillin was mycotoxins killing bacteria. evrythings so mutated now, anything could be possable. > From: Sharon <shha2002@...> > Subject: [] Chlamydia pneumoniae > > Date: Thursday, July 3, 2008, 6:30 PM > > > > > > > > > > > > I just found out that I have a bacteria infection called Chlamydia > > pneumoniae. Does anyone know anything about this? Is it related to > > mold exposure from a sick building? I have to be on antibiotics for > > months and my doctor says people are hospitalized sometimes with this > > infection. I'm researching it now but I thought I would ask if anyone > > knew about this infection. > > > > Sharon Hanson > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 I was tested for chamydia after my exposure, I asked my family doctor ar that time who if he could do the special blood tests to detect mycotoxins in my blood, he said sure. this is what he tested for. well he was friends with the peoples who sold me that second moldy home and he was tring hard to find something to blame my illness on besides what it was. he's the reason I cant get any medical help here, only misdiagnoses. I guess sence I cant say nothing good about him I'm dont have nothing else to say. but at least I know I dont have any sexually transmitted diseases. really nice when your doctor tries to imply your something your not. not even close, but this is small town bs for ya. just a drop in the hat of what I've been threw. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 I'm sorry chlamydia pneumoniae is not a sexually transmitted disease. You get it by breathing in the bacteria. Sharon H. > > I was tested for chamydia after my exposure, I asked my family doctor > ar that time who if he could do the special blood tests to detect > mycotoxins in my blood, he said sure. this is what he tested for. > well he was friends with the peoples who sold me that second moldy home > and he was tring hard to find something to blame my illness on besides > what it was. he's the reason I cant get any medical help here, only > misdiagnoses. I guess sence I cant say nothing good about him I'm dont > have nothing else to say. but at least I know I dont have any sexually > transmitted diseases. really nice when your doctor tries to imply your > something your not. not even close, but this is small town bs for ya. > just a drop in the hat of what I've been threw. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 This is a bacteria infection and it releases two endotoxins when it is killed. I thought Shoemaker said in his first radio show that bacteria was more of a problem than fungi and toxins in a sick building that's why I thought some of you might know about it. Incidentally it is like mycoplasma pneumoniae in that it is on a cellular level. My exposure to mold was first from a medical procedure and than from a very sick building. I got a really bad respiratory infection during that time. I think this is where I may have picked up this infection. Sharon H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2008 Report Share Posted July 5, 2008 oh, sorry, my head was somewhere else. > > > > I was tested for chamydia after my exposure, I asked my family doctor > > ar that time who if he could do the special blood tests to detect > > mycotoxins in my blood, he said sure. this is what he tested for. > > well he was friends with the peoples who sold me that second moldy > home > > and he was tring hard to find something to blame my illness on > besides > > what it was. he's the reason I cant get any medical help here, only > > misdiagnoses. I guess sence I cant say nothing good about him I'm > dont > > have nothing else to say. but at least I know I dont have any > sexually > > transmitted diseases. really nice when your doctor tries to imply > your > > something your not. not even close, but this is small town bs for ya. > > just a drop in the hat of what I've been threw. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2008 Report Share Posted July 5, 2008 Shoemaker said in his first radio show that > bacteria was more of a problem than fungi and toxins in a sick > building that's why I thought some of you might know about it. I'm really glad this was stated again. After my exposure I have been off and on DOXYCYCLINE, the only antibiotic that I found has helped with my bacterial issues from the exposure. I had terrible boils around my eyes come often during exposure that no other antibiotic helped. I have also had Sporonox and other antifungals to help with other compromises from the exposure. So I think it is really important to realize that not only do we often need CSM, and antifungals, but really sick buildings have a hell of a lot of bacterial contaminants that compromise us as well. I might add that when one gets ill from a sick building and the the immune system has crashed, one can find out that you have many hidden viral issues which suddenly " spring " up. Thank you Sharon for your comment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2008 Report Share Posted July 5, 2008 Thanks to you salzberlver3 for validating what I was trying to say. I crashed recently and had to go back on steroids and replacement thyroid as well. It's still not helping with the fatigue and now with this diagnosis and the antibiotics I'm told that I could herx. The funny thing is I took some chlorine dioxide (the Miracle Mineral Supplement (MMS))one day before going for a nap and low and behold I experienced a lift. Chlorine dioxide kills all pathogens. I'm not sure I believe that it is the cure all but I do think it reduces your burden. I believe MMS is good for bacteria infections and many people with Lyme disease are having luck with it. My problems is because this disease has three life cycles, you have to stay on either antibiotic or the MMS for a long period of time. I can't tolerate the taste anymore. The other thing I want to mention is that I belong to a website where the parents believe their children have autism from Lyme disease. They are doing some incredible work I can tell you. One woman posted about a new drug that was reversing mental retardation in adults and some behavioral issues in autistic kids. She wasn't treating her children with it but she wanted to point out that it was an antibacterial and the reason it was successful is because it was curing a bacteria infection. > > Shoemaker said in his first radio show that > > bacteria was more of a problem than fungi and toxins in a sick > > building that's why I thought some of you might know about it. > > I'm really glad this was stated again. After my exposure I have been > off and on DOXYCYCLINE, the only antibiotic that I found has helped > with my bacterial issues from the exposure. I had terrible boils > around my eyes come often during exposure that no other antibiotic > helped. I have also had Sporonox and other antifungals to help with > other compromises from the exposure. So I think it is really important > to realize that not only do we often need CSM, and antifungals, but > really sick buildings have a hell of a lot of bacterial contaminants > that compromise us as well. I might add that when one gets ill from a > sick building and the the immune system has crashed, one can find out > that you have many hidden viral issues which suddenly " spring " up. > Thank you Sharon for your comment. > Quote Link to comment Share on other sites More sharing options...
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