Re: 11 year old son - mold & Lyme and vision distrubances - migraine-like

[Guest guest]

Sorry to here about you baby,

The closest good Dr on the wescoast is Dr Gray.  He's treating my 9 yr old.  She

is also being treated by Dr Crago in the same area for her chemical brain injury

from mold exposure.   He's great with Kids. and the air is great!!  He'll be

able to breathe here.

Let me know I can do to help

Mold Mother

a

[Guest guest]

Hi Deb,

Try Dr. Shoemaker. He has a website here

http://www.chronicneurotoxins.com/info/meetus.cfm

He treats Lyme disease and Toxic Mold exposure with the same medication. Its

called CSM (cholestyramine). He has had some tremendous results with this

medication.  Im not a Doctor but it sounds like its just what your son needs. I

have taken CSM due to my mold exposure and it has worked wonders for me no

doubt. Ok God Bless

Elias

[Guest guest]

Having Lyme and mold problems myself-I feel moved to share this with you: the

symptoms of headache and vision problems sound like Babesia-a coinfection of

Lyme. Has your son been tested? I had Babesia also, and had the same symptoms,

which kicked up when I was treated. My doctor treated the Babesia first,

because he said you can't get rid of Lyme without treating the coinfections

first. Don't know if he was correct or not.

As for his sensitivities, it is possible that as the infection was being killed

off, his liver got overloaded and any sensitivities, known or unknown, became

worse because his body cant get rid of the toxins fast enough. This is my

experience to this day-I have to take killing things or detoxing very slow...

Just a thought...

[Guest guest]

Where is Dr. Gray located? And Dr. Crago?

Thanks,

~Dana, mold mother and sufferer

>

> Sorry to here about you baby,

> The closest good Dr on the wescoast is Dr Gray.  He's treating my 9

yr old.  She is also being treated by Dr Crago in the same area for her

chemical brain injury from mold exposure.   He's great with Kids. and

the air is great!!  He'll be able to breathe here.

> Let me know I can do to help

> Mold Mother

> a

>

[Guest guest]

Our son had much the same reactions as your son after mold injury.

There are a few good docs around - many on this board like Shoemaker

in land, we went to in Houston and have seen Gray in AZ.

put our son on IVIG and his eye problems (and many other

neurological problems)have healed. He was 10 at the time of his

injury - it was a long haul back because of the extensive neurological

& immunological injury but I'd say he's 80-85% recovered. Stamina &

fatigue are still a struggle. Gray's approach is a bit of Marinkovich,

a bit of , a bit of Shoemaker and a bit of his own approach.

Our son is 20 now - when he was 10 I was afraid he'd never make it

this far.

Good luck-

Sherry

[Guest guest]

Dr. Micheal Gray is located in Benson, AZ...

[Guest guest]

Dr Gray is in Benson and Dr Crago is in south Tucson Arizona.   They are both

very good with kids. 

[Guest guest]

Hi again folks,

Thanks very much for all your kind responses. I have been desperately

depressed trying to figure out what is triggering these episodes and to

alleviate them.

My son's (Lyme) doctor had been pondering cholestyramine at one point,

but we never pursued it because there was always another emergency to

treat ... and his symptoms change in a whack-a-mole kind of manner.

I'll bring this up with her again.

I think his detoxification pathways probably are very stressed and the

latest medication he was taking - ceftin + septra - seemed to have

tipped him over the edge.

Besides this medication for aiding in the neurotoxin absorption, would

any of you be willing to share any other treatments that you or your

family members used that were helpful?

Interestingly, I am positive for Babesia (and am being treated), but my

son never had a positive titre for this.

He has recently had another (IGenex) Western Blot, CD57, and

coinfection panel done, and I will be interested to see if they have

changed since his removal from the moldy room. His panels have been

very static throughout the last year of treatment.

Thanks again, everyone, and if you have an specifics regarding your

successful treatments and would be willing to correspond, feel free to

send me email.

Deb

[Guest guest]

Hi Deb,

I can't seem to e-mail you off line.   As I mentioned earlier my duaghter is

going through treament.  Not a Dr but it sounds like your son is colonized with

mold  and he's becoming hyperreactive to it.  You mentioned you replaced a

wall?  Did you throw out everything else that was exposed??   You need to make

sure he's in a clean enviroment and remove all things with scents, chemicals,

all of them.  the more reactions he has the more damage he could be  done to his

brain and a few other important organs.  what ever he is reacting  to I would be

very careful if you know hes reacting to it get rid of it.

Very concerned about your son

a

Mold Mom

From: pinkfeet2000 <blacksav@...>

Subject: [] Re: 11 year old son - mold & Lyme and vision

distrubances - migraine-like

To:

Date: Sunday, July 27, 2008, 6:37 PM

Hi again folks,

Thanks very much for all your kind responses. I have been desperately

depressed trying to figure out what is triggering these episodes and to

alleviate them.

My son's (Lyme) doctor had been pondering cholestyramine at one point,

but we never pursued it because there was always another emergency to

treat ... and his symptoms change in a whack-a-mole kind of manner.

I'll bring this up with her again.

I think his detoxification pathways probably are very stressed and the

latest medication he was taking - ceftin + septra - seemed to have

tipped him over the edge.

Besides this medication for aiding in the neurotoxin absorption, would

any of you be willing to share any other treatments that you or your

family members used that were helpful?

Interestingly, I am positive for Babesia (and am being treated), but my

son never had a positive titre for this.

He has recently had another (IGenex) Western Blot, CD57, and

coinfection panel done, and I will be interested to see if they have

changed since his removal from the moldy room. His panels have been

very static throughout the last year of treatment.

Thanks again, everyone, and if you have an specifics regarding your

successful treatments and would be willing to correspond, feel free to

send me email.

Deb