Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 Hi, I am fairly new to the group. My husband was diagnosed with LBD in 2002. He had been doing fairly well on Seroquel. He has been falling some lately. Thusday AM he fell & could not move this time. He is bedridden now, can only move arms & hands , eat only a little soft food & drink liquids from a straw. I had the Dr. to call Hospice Friday Am. They signed him up today. It has been great to finally get some help. Has anyone had any thing like this to happen suddenly to your LO?? Is this the last stage??? No one around here knows anything about LBD. They says WHAT when I tell them what he has. What will happen in the near future?? Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 Laurie, my dad died well on exelon and we had hospice start in dec 2004, as dad was become more and more bedridden, he wanted to get up and use the bathroom but he couldnt get there in time, and we had floods, and patties all over the place. hospice was a Godsend for us, they bathed him, they kept his medications filled and they had meals on wheels deleivered while he was abble to eat for lunch so all i would have to do is cut up his food, all this came thru the social worker. it was wonderful. also call the elders affairs office for your county they have a lot of funded programs that can help, also the council of aging, in my county they are separtate entities but work together to get the most for their clients, good luck and hugs, sharon m -- Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall 7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration pneumonia and uti 8/05, died of blood pressure drop on 9/25/05, may he rest in peace with his mom and dad, a smile a day keeps the meanies away ---- wrote: Welcome to the board Laurie. You're in the right place to get some answers... With LBD there are many fluctuations. Although, what you described is a new one to me. Others here should be able to answer your question better. I will say that a lot of times a change in medications or a stay in a hospital for whatever reason can trigger these fluctuations. My mother who is very sensitive to drugs had a brain biopsy in February (that was before she was diagnosed with LBD - the neurologist thought she may have had something treatable, unfortunately that wasn't the case). But mom was bedridden after the biopsy for about a month. Sleeping 90% of the time. Many in the family thought she was dying. Then she 'woke up' from that LBD-coma like situation and back to where she was prior to the biopsy. Many here have seen their LOs very close to the end and as they say, they were wondering what dress to wear to the funeral, then their LO 'woke up'. It's roller coaster ride - that's for sure. Others will respond with more useful info - but in the meantime - welcome. Oh. And if you go to www.lbda.org there are brochures that you can print about LBD - I'd suggest your printing them for your husband's caregivers... ; loving daughter of Maureen of Boston, MA; finally diagnosed with LBD on 2/06 after also being diagnosed with everything from AD to Vascular Dementia caused by mini strokes to Binswengers...; was victim to rapid decline from Risperidone (or combination of Risperidone with other drugs OR possibly received another " bad drug " when she was observed/tested in a hospital in 10/05); in a NH since 11/05. Update: on antidepressant Celexa, 20mg (still teary, but not as weepy) and as of 4/21 on Exelon. > > Hi, I am fairly new to the group. My husband was diagnosed with LBD in > 2002. He had been doing fairly well on Seroquel. He has been falling > some lately. Thusday AM he fell & could not move this time. He is > bedridden now, can only move arms & hands , eat only a little soft > food & drink liquids from a straw. I had the Dr. to call Hospice > Friday Am. They signed him up today. It has been great to finally > get some help. Has anyone had any thing like this to happen suddenly > to your LO?? Is this the last stage??? No one around here knows > anything about LBD. They says WHAT when I tell them what he has. > What will happen in the near future?? > Laurie > Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 Is failure to eat and complaining that the food doesn't taste good, is chewy, rubbery, cold, hot, etc., an indication of going into late-stage LBD? My husband, who had a good appetite in January and who has been going downhill since then, will hardly eat more than 4-5 bites of food and says he is full. Although he can walk at times with support and most of the time is alert unless he hasn't slept the night before, the loss of appetite seems puzzling. Even tonight, when he didn't eat the food at the NH, they brought him ice cream, and he ate a few bites saying it was good, and then would hardly eat the rest of it without me practically forcing it. When he was still home, he probably ate three times that much ice cream in an evening after having dinner. He is on Aricept, Celexa, Flomax, and Seroquil only when necessary. He also has been on an antibiotic for the continuing UTIs. Last week, before this loss of appetite really became bad, he had a day of high temp and vomiting. --- LadySmilingAtU2@... wrote: > Laurie, > my dad died well on exelon and we had hospice start > in dec 2004, as dad was become more and more > bedridden, he wanted to get up and use the bathroom > but he couldnt get there in time, and we had floods, > and patties all over the place. hospice was a > Godsend for us, they bathed him, they kept his > medications filled and they had meals on wheels > deleivered while he was abble to eat for lunch so > all i would have to do is cut up his food, all this > came thru the social worker. it was wonderful. > also call the elders affairs office for your county > they have a lot of funded programs that can help, > also the council of aging, in my county they are > separtate entities but work together to get the most > for their clients, good luck and hugs, sharon m > -- > Daugher of Leonard, diag May 2004, had lbd since > 1993, had hip surgery from fall 7/05, aspiration > pneumonia 7/05 with pulmonary embolyis, had > aspiration pneumonia and uti 8/05, died of blood > pressure drop on 9/25/05, > may he rest in peace with his mom and dad, > a smile a day keeps the meanies away > > ---- wrote: > Welcome to the board Laurie. You're in the right > place to get some > answers... With LBD there are many fluctuations. > Although, what you > described is a new one to me. Others here should be > able to answer your > question better. I will say that a lot of times a > change in medications > or a stay in a hospital for whatever reason can > trigger these > fluctuations. My mother who is very sensitive to > drugs had a brain > biopsy in February (that was before she was > diagnosed with LBD - the > neurologist thought she may have had something > treatable, unfortunately > that wasn't the case). But mom was bedridden after > the biopsy for about > a month. Sleeping 90% of the time. Many in the > family thought she was > dying. Then she 'woke up' from that LBD-coma like > situation and back to > where she was prior to the biopsy. Many here have > seen their LOs very > close to the end and as they say, they were > wondering what dress to > wear to the funeral, then their LO 'woke up'. It's > roller coaster ride - > that's for sure. Others will respond with more > useful info - but in > the meantime - welcome. Oh. And if you go to > www.lbda.org there are > brochures that you can print about LBD - I'd suggest > your printing them > for your husband's caregivers... > > ; loving daughter of Maureen of Boston, MA; > finally diagnosed > with LBD on 2/06 after also being diagnosed with > everything from AD to > Vascular Dementia caused by mini strokes to > Binswengers...; was victim > to rapid decline from Risperidone (or combination of > Risperidone with > other drugs OR possibly received another " bad drug " > when she was > observed/tested in a hospital in 10/05); in a NH > since 11/05. Update: > on antidepressant Celexa, 20mg (still teary, but not > as weepy) and as > of 4/21 on Exelon. > > > > > > Hi, I am fairly new to the group. My husband was > diagnosed with LBD > in > > 2002. He had been doing fairly well on Seroquel. > He has been > falling > > some lately. Thusday AM he fell & could not move > this time. He is > > bedridden now, can only move arms & hands , eat > only a little soft > > food & drink liquids from a straw. I had the Dr. > to call Hospice > > Friday Am. They signed him up today. It has been > great to finally > > get some help. Has anyone had any thing like this > to happen suddenly > > to your LO?? Is this the last stage??? No one > around here knows > > anything about LBD. They says WHAT when I tell > them what he has. > > What will happen in the near future?? > > Laurie > > > > > > > > > > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2006 Report Share Posted May 27, 2006 I am eager to see a reply on your question, jchristensen. (Sorry about using this name, as I don't know your first name.) My husband has cut back on his intake of food by at least half. He will always say he is full. He hasn't been into this Disease very long, that we know of, but is loosing weight, and gets full very quickly. Imogene Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with Parkinsonism, and Frontal Lobe Disease with Apathy In a message dated 5/27/2006 2:45:07 AM Central Daylight Time, jchristensen1953@... writes: Is failure to eat and complaining that the food doesn't taste good, is chewy, rubbery, cold, hot, etc., an indication of going into late-stage LBD? My husband, who had a good appetite in January and who has been going downhill since then, will hardly eat more than 4-5 bites of food and says he is full. Although he can walk at times with support and most of the time is alert unless he hasn't slept the night before, the loss of appetite seems puzzling. Even tonight, when he didn't eat the food at the NH, they brought him ice cream, and he ate a few bites saying it was good, and then would hardly eat the rest of it without me practically forcing it. When he was still home, he probably ate three times that much ice cream in an evening after having dinner. He is on Aricept, Celexa, Flomax, and Seroquil only when necessary. He also has been on an antibiotic for the continuing UTIs. Last week, before this loss of appetite really became bad, he had a day of high temp and vomiting. --- LadySmilingAtU2@... wrote: > Laurie, > my dad died well on exelon and we had hospice start > in dec 2004, as dad was become more and more > bedridden, he wanted to get up and use the bathroom > but he couldnt get there in time, and we had floods, > and patties all over the place. hospice was a > Godsend for us, they bathed him, they kept his > medications filled and they had meals on wheels > deleivered while he was abble to eat for lunch so > all i would have to do is cut up his food, all this > came thru the social worker. it was wonderful. > also call the elders affairs office for your county > they have a lot of funded programs that can help, > also the council of aging, in my county they are > separtate entities but work together to get the most > for their clients, good luck and hugs, sharon m > -- > Daugher of Leonard, diag May 2004, had lbd since > 1993, had hip surgery from fall 7/05, aspiration > pneumonia 7/05 with pulmonary embolyis, had > aspiration pneumonia and uti 8/05, died of blood > pressure drop on 9/25/05, > may he rest in peace with his mom and dad, > a smile a day keeps the meanies away > > ---- wrote: > Welcome to the board Laurie. You're in the right > place to get some > answers... With LBD there are many fluctuations. > Although, what you > described is a new one to me. Others here should be > able to answer your > question better. I will say that a lot of times a > change in medications > or a stay in a hospital for whatever reason can > trigger these > fluctuations. My mother who is very sensitive to > drugs had a brain > biopsy in February (that was before she was > diagnosed with LBD - the > neurologist thought she may have had something > treatable, unfortunately > that wasn't the case). But mom was bedridden after > the biopsy for about > a month. Sleeping 90% of the time. Many in the > family thought she was > dying. Then she 'woke up' from that LBD-coma like > situation and back to > where she was prior to the biopsy. Many here have > seen their LOs very > close to the end and as they say, they were > wondering what dress to > wear to the funeral, then their LO 'woke up'. It's > roller coaster ride - > that's for sure. Others will respond with more > useful info - but in > the meantime - welcome. Oh. And if you go to > www.lbda.org there are > brochures that you can print about LBD - I'd suggest > your printing them > for your husband's caregivers... > > ; loving daughter of Maureen of Boston, MA; > finally diagnosed > with LBD on 2/06 after also being diagnosed with > everything from AD to > Vascular Dementia caused by mini strokes to > Binswengers...; was victim > to rapid decline from Risperidone (or combination of > Risperidone with > other drugs OR possibly received another " bad drug " > when she was > observed/tested in a hospital in 10/05); in a NH > since 11/05. Update: > on antidepressant Celexa, 20mg (still teary, but not > as weepy) and as > of 4/21 on Exelon. > > > > > > Hi, I am fairly new to the group. My husband was > diagnosed with LBD > in > > 2002. He had been doing fairly well on Seroquel. > He has been > falling > > some lately. Thusday AM he fell & could not move > this time. He is > > bedridden now, can only move arms & hands , eat > only a little soft > > food & drink liquids from a straw. I had the Dr. > to call Hospice > > Friday Am. They signed him up today. It has been > great to finally > > get some help. Has anyone had any thing like this > to happen suddenly > > to your LO?? Is this the last stage??? No one > around here knows > > anything about LBD. They says WHAT when I tell > them what he has. > > What will happen in the near future?? > > Laurie > > > > > > > > > > > Welcome to LBDcaregivers. > > > Yahoo! Groups Links > > > > > > > > __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com ------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2006 Report Share Posted May 27, 2006 June- My Father's appetite declined well more than a year before his death. Dad never had a great appetite. He loved his ice cream and sweets. Besides sweets, Dad loved to spice up the food he did ead with horseradish and hot peppers. The reason this happens for this is the taste buds deminish with the aging process (and I think also with LBD.) Everything tasted bland to them. Therefore, the elderly are prone to eat more sweets and spices and reject meat, potatoes and vegetaabe because they taste so bland. As I said, my Dad never had an appetite, but during the end stage there was a big decline in his already dimished appetite. His appearance changed from the weight loss. His cheek sunk in and his teeth looked much more prominent. Also, despite frequent turning, repositioning and a special bed, Dad developed blisters on both his heels. This occured from the lack of protein. We tried adding the powder protein to his ice cream and on top of his cereal, but it was too late. For the record, we used the powdered breakfast drink (not the died kind) mix you buy in the super market. Also, chocolate covered protein bars. Just leave them sitting next to his chair and maybe he will pick one up and nibble on it. I made sure it was not the low calorie kind, because my Dad needed all the extra calorie he could get. Another thought is the medication for your husband's UTI could affect his taste also. Try frequent, small feedings rather than 3 meals a day so he is not overwhelmed. I hope your husband will soon overcome his UTI. It is amazing how it affects the elderly and our LBD lo's. Gerry Wilmington, De. Daughter and caregiver of Dick Deverell, who died 9/11/05 after more than a 4 yr. battle with LBD. Re: Re: Last stages Is failure to eat and complaining that the food doesn't taste good, is chewy, rubbery, cold, hot, etc., an indication of going into late-stage LBD? My husband, who had a good appetite in January and who has been going downhill since then, will hardly eat more than 4-5 bites of food and says he is full. Although he can walk at times with support and most of the time is alert unless he hasn't slept the night before, the loss of appetite seems puzzling. Even tonight, when he didn't eat the food at the NH, they brought him ice cream, and he ate a few bites saying it was good, and then would hardly eat the rest of it without me practically forcing it. When he was still home, he probably ate three times that much ice cream in an evening after having dinner. He is on Aricept, Celexa, Flomax, and Seroquil only when necessary. He also has been on an antibiotic for the continuing UTIs. Last week, before this loss of appetite really became bad, he had a day of high temp and vomiting. --- LadySmilingAtU2@... wrote: > Laurie, > my dad died well on exelon and we had hospice start > in dec 2004, as dad was become more and more > bedridden, he wanted to get up and use the bathroom > but he couldnt get there in time, and we had floods, > and patties all over the place. hospice was a > Godsend for us, they bathed him, they kept his > medications filled and they had meals on wheels > deleivered while he was abble to eat for lunch so > all i would have to do is cut up his food, all this > came thru the social worker. it was wonderful. > also call the elders affairs office for your county > they have a lot of funded programs that can help, > also the council of aging, in my county they are > separtate entities but work together to get the most > for their clients, good luck and hugs, sharon m > -- > Daugher of Leonard, diag May 2004, had lbd since > 1993, had hip surgery from fall 7/05, aspiration > pneumonia 7/05 with pulmonary embolyis, had > aspiration pneumonia and uti 8/05, died of blood > pressure drop on 9/25/05, > may he rest in peace with his mom and dad, > a smile a day keeps the meanies away > > ---- wrote: > Welcome to the board Laurie. You're in the right > place to get some > answers... With LBD there are many fluctuations. > Although, what you > described is a new one to me. Others here should be > able to answer your > question better. I will say that a lot of times a > change in medications > or a stay in a hospital for whatever reason can > trigger these > fluctuations. My mother who is very sensitive to > drugs had a brain > biopsy in February (that was before she was > diagnosed with LBD - the > neurologist thought she may have had something > treatable, unfortunately > that wasn't the case). But mom was bedridden after > the biopsy for about > a month. Sleeping 90% of the time. Many in the > family thought she was > dying. Then she 'woke up' from that LBD-coma like > situation and back to > where she was prior to the biopsy. Many here have > seen their LOs very > close to the end and as they say, they were > wondering what dress to > wear to the funeral, then their LO 'woke up'. It's > roller coaster ride - > that's for sure. Others will respond with more > useful info - but in > the meantime - welcome. Oh. And if you go to > www.lbda.org there are > brochures that you can print about LBD - I'd suggest > your printing them > for your husband's caregivers... > > ; loving daughter of Maureen of Boston, MA; > finally diagnosed > with LBD on 2/06 after also being diagnosed with > everything from AD to > Vascular Dementia caused by mini strokes to > Binswengers...; was victim > to rapid decline from Risperidone (or combination of > Risperidone with > other drugs OR possibly received another " bad drug " > when she was > observed/tested in a hospital in 10/05); in a NH > since 11/05. Update: > on antidepressant Celexa, 20mg (still teary, but not > as weepy) and as > of 4/21 on Exelon. > > > > > > Hi, I am fairly new to the group. My husband was > diagnosed with LBD > in > > 2002. He had been doing fairly well on Seroquel. > He has been > falling > > some lately. Thusday AM he fell & could not move > this time. He is > > bedridden now, can only move arms & hands , eat > only a little soft > > food & drink liquids from a straw. I had the Dr. > to call Hospice > > Friday Am. They signed him up today. It has been > great to finally > > get some help. Has anyone had any thing like this > to happen suddenly > > to your LO?? Is this the last stage??? No one > around here knows > > anything about LBD. They says WHAT when I tell > them what he has. > > What will happen in the near future?? > > Laurie > > > > > > > > > > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2006 Report Share Posted May 27, 2006 Hi, June, > Is failure to eat and complaining that the food > doesn't taste good, is chewy, rubbery, cold, hot, > etc., an indication of going into late-stage LBD? My > husband, who had a good appetite in January and who > has been going downhill since then, will hardly eat > more than 4-5 bites of food and says he is full. <snip> > He > also has been on an antibiotic for the continuing > UTIs. Last week, before this loss of appetite really > became bad, he had a day of high temp and vomiting. Mom is not in end-stage LBD, but she did have to have an antibiotic for very early cellulitis in an ankle. She is allergic to sulfa and penicillin, so the options are limited. The anitibiotic was, thankfully, for only a week, but after the first day and then for another several days following the last of the antibiotic she suffered more hallucinations than she had been and her appetite became almost nonexistent. She found nothing appetizing and sent back her food trasy nearly untouched. Now that she's off that antibiotic, her eating habits have returned to normal - for her. This means that sometimes she will eat everything they bring her and other times she just picks at it. She never has been much for a big dinner but does like a good breakfast, and since her weight is remaining stable, I don't worry about it. She does ask me to bring her snacks to have mid-afternoon when she gets hungery (latest demand was for Ritz crackers and chocolate cream sandwich cookies). jacqui Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2006 Report Share Posted May 27, 2006 Reply to those who answered my request re appetite decline: I went at dinnertime today at the NH, and he was in bad shape. He had been brought to the dining room and was very angry and verbally combative, not physically. He had drunk his juice, some coffee, and a little water, but they were giving him his medicine, which was liquid, and which he said burned his throat. He absolutely would not take a bite of food, which tonight looked pretty good. He finally ate one of the cookies they gave him, and one of the aides got him an ice cream bar, which he finally ate. Then, she got him another, and he ate part of it and let the rest melt. So, he didn't have anything good for him. He mentioned seeing a rabbit on the table. The last of the present antibiotic was yesterday, but he has not been eating very well all week. He has been tested this last week with radium for the kidney that appeared to have kidney stones in it and was not functioning. They had gotten his last urine test report late yesterday, which showed most things as normal except amount voided and excess protein in the urine. I typed this info in the computer and came up with possibility of renal failure, which I have been suspecting for some time. His other symptoms are very dark circles under the eyes, sunken cheeks, complaining of his back and other muscles, seems to be tired, very irritable and cursing, etc. As I said before, two weeks ago he had two episodes of vomiting and high temp, and other days I have felt his forehead and it feels quite warm, so I think he may have a low-grade fever. He has been on an antibiotic almost constantly since the end of January, and everytime it runs out, by the second day or so, he is back in the same condition as before. We will not get the results of the radium test until Tuesday because of the holiday, but I am very concerned about the lack of eating. They said he only ate a piece of bacon for breakfast, in addition to drinking some fluids, and ate only a few bites at lunch. His urine output is quite a little less than his intake, too. --- Gerry Deverell wrote: > June- > My Father's appetite declined well more than a year > before his death. Dad never had a great appetite. > He loved his ice cream and sweets. > Besides sweets, Dad loved to spice up the food he > did ead with horseradish and hot peppers. > The reason this happens for this is the taste buds > deminish with the aging process (and I think also > with LBD.) Everything tasted bland to them. > Therefore, the elderly are prone to eat more sweets > and spices and reject meat, potatoes and vegetaabe > because they taste so bland. >> === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2006 Report Share Posted May 28, 2006 june, my fathers appetite fluctuated alot, but my logic was any food was ok, i kept a basket of goodies on his bedside table, cookies, fruit, puddings, candy, anything chips i figured some food was better than none and i know when i have been severely ill and in hosp sometimes you just dont want to eat, and if something struck your fancy that is all i wanted to eat, like watermelon craving i had in jan. all i wanted was som e watermelon. any thing with calories are good, we made alot of smoothies and milkshakes for dad, also i kept canned fruit in its own juice and yogurt. whatever my dad craved i let him eat and eat as much as he wanted he was not diabetic so i didnt have to worry about insulin/sugar. also towards the end dad forgot to chew, so we pureed everything, well the nursing home did, he couldnt chew and we had to remind him to swallow. the occupational therapist would give dad all teh ice cream he would eat when they were together, it was high fat, real dairy icecream to try to keep his weight constant. i hope thes few suggestions help, hugs, sharon m -- Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall 7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration pneumonia and uti 8/05, died of blood pressure drop on 9/25/05, may he rest in peace with his mom and dad, a smile a day keeps the meanies away ---- June Christensen wrote: Reply to those who answered my request re appetite decline: I went at dinnertime today at the NH, and he was in bad shape. He had been brought to the dining room and was very angry and verbally combative, not physically. He had drunk his juice, some coffee, and a little water, but they were giving him his medicine, which was liquid, and which he said burned his throat. He absolutely would not take a bite of food, which tonight looked pretty good. He finally ate one of the cookies they gave him, and one of the aides got him an ice cream bar, which he finally ate. Then, she got him another, and he ate part of it and let the rest melt. So, he didn't have anything good for him. He mentioned seeing a rabbit on the table. The last of the present antibiotic was yesterday, but he has not been eating very well all week. He has been tested this last week with radium for the kidney that appeared to have kidney stones in it and was not functioning. They had gotten his last urine test report late yesterday, which showed most things as normal except amount voided and excess protein in the urine. I typed this info in the computer and came up with possibility of renal failure, which I have been suspecting for some time. His other symptoms are very dark circles under the eyes, sunken cheeks, complaining of his back and other muscles, seems to be tired, very irritable and cursing, etc. As I said before, two weeks ago he had two episodes of vomiting and high temp, and other days I have felt his forehead and it feels quite warm, so I think he may have a low-grade fever. He has been on an antibiotic almost constantly since the end of January, and everytime it runs out, by the second day or so, he is back in the same condition as before. We will not get the results of the radium test until Tuesday because of the holiday, but I am very concerned about the lack of eating. They said he only ate a piece of bacon for breakfast, in addition to drinking some fluids, and ate only a few bites at lunch. His urine output is quite a little less than his intake, too. --- Gerry Deverell wrote: > June- > My Father's appetite declined well more than a year > before his death. Dad never had a great appetite. > He loved his ice cream and sweets. > Besides sweets, Dad loved to spice up the food he > did ead with horseradish and hot peppers. > The reason this happens for this is the taste buds > deminish with the aging process (and I think also > with LBD.) Everything tasted bland to them. > Therefore, the elderly are prone to eat more sweets > and spices and reject meat, potatoes and vegetaabe > because they taste so bland. >> === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Imogene- The posting regarding decreased appetite and the final stages of LBD was not from me. I believe it was from June. I told her about my Dad's lack of appetite and given her a couple of suggestions along with the reason why the elderly and probably our LBD LO's lose their appetite. My Dad died Sept. 11, 2005, so I am well experienced. I am also a RN. I think you received an abbreviated message that had my name attached to it. Thanks for being so empathetic and for the support. Gerry Wilmington, De. Re: Re: Last stages Gerry, this is so hard on you. I am very sorry. I do understand the combativeness is part of being ill. Most old folks don't get fever unless it is pretty bad, from what I understand. I hope they can correct the kidney problem, so that he will be comfortable again, and start eating. Stay strong, and continue to let your heart radiate with love. It covers a lot of abuse due to harsh verbal outburst. Sending my love Imogene Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with Parkinsonism, and Frontal Lobe Disease with Apathy, and possibly AD In a message dated 5/28/2006 5:39:40 AM Central Daylight Time, jchristensen1953@... writes: Reply to those who answered my request re appetite decline: I went at dinnertime today at the NH, and he was in bad shape. He had been brought to the dining room and was very angry and verbally combative, not physically. He had drunk his juice, some coffee, and a little water, but they were giving him his medicine, which was liquid, and which he said burned his throat. He absolutely would not take a bite of food, which tonight looked pretty good. He finally ate one of the cookies they gave him, and one of the aides got him an ice cream bar, which he finally ate. Then, she got him another, and he ate part of it and let the rest melt. So, he didn't have anything good for him. He mentioned seeing a rabbit on the table. The last of the present antibiotic was yesterday, but he has not been eating very well all week. He has been tested this last week with radium for the kidney that appeared to have kidney stones in it and was not functioning. They had gotten his last urine test report late yesterday, which showed most things as normal except amount voided and excess protein in the urine. I typed this info in the computer and came up with possibility of renal failure, which I have been suspecting for some time. His other symptoms are very dark circles under the eyes, sunken cheeks, complaining of his back and other muscles, seems to be tired, very irritable and cursing, etc. As I said before, two weeks ago he had two episodes of vomiting and high temp, and other days I have felt his forehead and it feels quite warm, so I think he may have a low-grade fever. He has been on an antibiotic almost constantly since the end of January, and everytime it runs out, by the second day or so, he is back in the same condition as before. We will not get the results of the radium test until Tuesday because of the holiday, but I am very concerned about the lack of eating. They said he only ate a piece of bacon for breakfast, in addition to drinking some fluids, and ate only a few bites at lunch. His urine output is quite a little less than his intake, too. --- Gerry Deverell wrote: Quote Link to comment Share on other sites More sharing options...
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