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Just want to thank everyone who responded to my pleas for help. Unfortunately,

the few suggestions for docotrs in Pittsburgh were all in the same group that

I've already seen. Said I needed a second decompression, then said no. At

first acknowledged the brain tumor, then dismissed it. No EDS doctors. Thank

you, but I'm sorry that I still feel things getting worse, and now may even lose

all insurance. And my family is tired of it all - they think Chiari and EDS is

no big deal. I'm losing my family, and that hurts the most.

I know that I could get better if someone would just ... I don't know, but TCI

wanted me within 2 weeks, back in 2004.

Been trying to get the right help since first decompression. I think this is

the dead end.

Been homebound and isolated for way too long.

Why do we have to suffer such hell?

Love each and every one of you,

Debbie

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Suspicious message? There’s an alert for that.

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