Guest guest Posted June 5, 2008 Report Share Posted June 5, 2008 Yes. I have MDS and I have had 5 babies. In our family, MDS is a dominant inherited trait. Why? P.S. Idid not know I had MDS until recently. > > Hi > > Does anyone in the group have a daughter with MDS who has had a baby? I used > to know some moms with girls the same age but when my computer broke so did the > access to my address book. I was so upset. > > Thank you so much to everyone who replied to my question about CVS prenatal > testing. Since we live in a small city babies would be flown to a larger > center if something is wrong. I feel it is worth the risk to know if the baby > is healthy. With my two boys I had an amino done and even though I almost > didn't do it the second time around, I was so relieved to know that I was > carrying a healthy baby. Thats all moms and grandmoms ever really want. > > Thanks for all the best wishes too. I will be a lot more excited after this > test is done and the results are in. Then we will have to have a party!!! > > Laraine(mom to CariAnn(MDS) who is expecting her first baby) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2008 Report Share Posted June 6, 2008 We all had the blood tests and he refuses to do the tissue test and says it is necessary: however, " I " want the tissue test and cannot seem to find someone to do it. He says we have the phenotype and based on the family history that it is a dominant inherited trait. I would love VCU to do it; do they take Medicaid? (Although, again, my geneticist says that the buccal smear is not good enough... ???) I still want it done. Perhaps with the " artifactual " DNA percentages, which I am not sure what " artifactual " even means in relation to DNA, he does not feel it is necessary. Maybe, he thinks it is " hidden mosaicism " since he cannot ind it in the blood. He obviously felt compelled to make MCG do a TWO THOUSAND blood cell count on Simeon; I thought that was " odd " . Can you help me get a buccal smear done (and covered by GA medicaid?<br> Apparently, the " clinical diagnosis " is good enough for him. <br> > > > > Hi > > > > Does anyone in the group have a daughter with MDS who has had a > baby? I used > > to know some moms with girls the same age but when my computer > broke so did the > > access to my address book. I was so upset. > > > > Thank you so much to everyone who replied to my question about CVS > prenatal > > testing. Since we live in a small city babies would be flown to a > larger > > center if something is wrong. I feel it is worth the risk to know > if the baby > > is healthy. With my two boys I had an amino done and even though I > almost > > didn't do it the second time around, I was so relieved to know that > I was > > carrying a healthy baby. Thats all moms and grandmoms ever really > want. > > > > Thanks for all the best wishes too. I will be a lot more excited > after this > > test is done and the results are in. Then we will have to have a > party!!! > > > > Laraine(mom to CariAnn(MDS) who is expecting her first baby) > > > > > > > > > Kristy Colvin > IMDSA President > ____________________________________________________ > International Mosaic Down Syndrome Association > PH: 1- > Toll Free: 1-888-MDS-LINK > www.imdsa.com > > > Quote Link to comment Share on other sites More sharing options...
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