Millie cannot last much longer.

[Guest guest]

Millie and I are alone in her room at Hospice. Rooms here are only

empty for a matter of hours. this is the height of our snowbird

season, so if a visitor needs Hospice they are here in Florida

instead of where they live the other 8 months of the year. Bed are at

a premium during season.

We seem to have outlasted all of the neighbors and maybe during a

slower time of year there is not so much demand.

There is a comedy of errors leading up to Millie's treatment.

she wouldn't have lasted four days here if we had not gotten her off

the Ativan and morphine as soon as we discovered it was being given

to her.

we know that for 99% of hospice patients that HAM is standard, and

not so much of a big deal. But with our LBD's, it is a tunnel of

terror instead of comfort measures.

i had spoken highly of hospice prior to our admittance, i just never

dreamed they wouldn't use the home hospice eval and stay the course

for LBD. Our LO's are LBD first, and terminal second.

Millie has been refusing to eat for a long time now. She would not

allow herself to be fed, and we were lucky she allowed us to give her

gatorade while we have been here.

Her ability to remember to swallow was fading, and her attention span

to meals was lacking as well.

she was always keen enough to be stubborn about many things. It did

not serve her well of late.

she took a major dive and things bottomed out very quickly.

i will explain more later. Millie is restless!

Carol