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Hi welcome to our group. Tell us more about yourself and little one. We all

know how hard it is finding this out. My daughter was 10 months when I found

out she had mds and triple x. It was very shocking and I went through so many

different emotions. Now it is 7 months later and I am so glad I found this

group. They have helped me put things in to perspective and answer so many

questions I had and still have. It seems like each milestone that are children

reach there are just so many questions. Along with the questions and the

anxious feelings there is also the greatest amount of joy as they reach them and

exceed all expectations. Please feel free to join in and ask questions or share

any information you may find out, we all are here to help each other.

Sue

Isabella 17 months mds

Kristy Colvin wrote:

Hi everyone

We have a new family joining us today. Here is what they had to say....

1 month ago my 7 mth old daughter was diagnosed with MDS. I am wanting to talk

with other people that have a loved one or that is diagnosed with this as well.

Welcome to our family! I am so glad you have joined us! Please tell us all about

your baby girl! What is her name? Please feel free to ask any questions you have

here. We will all be very happy to share our experiences!

Kristy

Mom to Arron 26, 23, Tim 22 MDS, Stevan 21 and Garrett 12

LEARN MORE ABOUT MDS: www.mosaicmoments.today.com

Kristy Colvin

IMDSA President

____________________________________________________

International Mosaic Down Syndrome Association

PH: 1-

Toll Free: 1-888-MDS-LINK

www.imdsa.com

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Guest guest

Welcome to all the new families. Feel free to jump in and ask any

question that you are seeking an answer to, BUT please remember that

sometimes the answer is not a positive one, or sometimes the answer

is not what you expected or were looking forward to hearing. Please

remember that when you ask a question, there are different levels of

expertise at hand here and some people have first hand experience

while others have first hand medical knowledge. You may get a variety

of responses that you may or may not have been prepared to hear.

PLEASE do not be offended by any of the responses you may see posted

here. This is a very loving group and we all have some information to

share and we all just want to provide you with the information which

we know and you have sought an answer to. <br> Again, A BIG HEARTFELT

WELCOME TO ALL. ALL THE BEST IN ALL YOU DO.

<br>

>

> Hi Everyone

> We have a new family joining us! Here is what they had to say...

>

> I have a daughter that was born on March 30, 2007 with the mosaic

type of Down Syndrome.

>

>

> Welcome to our family! I am so glad you have joined us. Please

tell us all about your daughter! Where do you live? We may have other

families in your area. Please feel free to ask any questions you may

have here. We will all be very happy to share our experiences with

you.

>

> Kristy Colvin

> IMDSA President

> Mom to Arron 26, 22, Tim 21 MDS, Stevan 20 and Garrett 11

> www.imdsa.com

>

>

>

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Guest guest

Hi Everyone!

We have a new family joining us today! Here is what they had to say...

 

I have a 5 year old son who was diagnosed with mosaic Down syndrome April 24,

2003. He was born 4/17/03.I would like to know more about this and to talk to

other parents of children like him.

Welcome to our family! I am so glad you have joined us! Please tell us all about

you and your son! Where do you live? We may have families in your area! Please

feel free to ask any questions you have here! We will all be happy to share our

experiences!

 

Kristy Colvin

IMDSA President

Mom to Arron 26, 23, Tim 22 MDS, Stevan 21 & Garrett 12

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

International Mosaic Down Syndrome Association

PH:

Toll Free: 1-888-MDS-LINK

www.imdsa.com

http://www.mosaicmoments.today.com

 

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