Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 Hi welcome to our group. Tell us more about yourself and little one. We all know how hard it is finding this out. My daughter was 10 months when I found out she had mds and triple x. It was very shocking and I went through so many different emotions. Now it is 7 months later and I am so glad I found this group. They have helped me put things in to perspective and answer so many questions I had and still have. It seems like each milestone that are children reach there are just so many questions. Along with the questions and the anxious feelings there is also the greatest amount of joy as they reach them and exceed all expectations. Please feel free to join in and ask questions or share any information you may find out, we all are here to help each other. Sue Isabella 17 months mds Kristy Colvin wrote: Hi everyone We have a new family joining us today. Here is what they had to say.... 1 month ago my 7 mth old daughter was diagnosed with MDS. I am wanting to talk with other people that have a loved one or that is diagnosed with this as well. Welcome to our family! I am so glad you have joined us! Please tell us all about your baby girl! What is her name? Please feel free to ask any questions you have here. We will all be very happy to share our experiences! Kristy Mom to Arron 26, 23, Tim 22 MDS, Stevan 21 and Garrett 12 LEARN MORE ABOUT MDS: www.mosaicmoments.today.com Kristy Colvin IMDSA President ____________________________________________________ International Mosaic Down Syndrome Association PH: 1- Toll Free: 1-888-MDS-LINK www.imdsa.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 Welcome to all the new families. Feel free to jump in and ask any question that you are seeking an answer to, BUT please remember that sometimes the answer is not a positive one, or sometimes the answer is not what you expected or were looking forward to hearing. Please remember that when you ask a question, there are different levels of expertise at hand here and some people have first hand experience while others have first hand medical knowledge. You may get a variety of responses that you may or may not have been prepared to hear. PLEASE do not be offended by any of the responses you may see posted here. This is a very loving group and we all have some information to share and we all just want to provide you with the information which we know and you have sought an answer to. <br> Again, A BIG HEARTFELT WELCOME TO ALL. ALL THE BEST IN ALL YOU DO. <br> > > Hi Everyone > We have a new family joining us! Here is what they had to say... > > I have a daughter that was born on March 30, 2007 with the mosaic type of Down Syndrome. > > > Welcome to our family! I am so glad you have joined us. Please tell us all about your daughter! Where do you live? We may have other families in your area. Please feel free to ask any questions you may have here. We will all be very happy to share our experiences with you. > > Kristy Colvin > IMDSA President > Mom to Arron 26, 22, Tim 21 MDS, Stevan 20 and Garrett 11 > www.imdsa.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Hi Everyone! We have a new family joining us today! Here is what they had to say... I have a 5 year old son who was diagnosed with mosaic Down syndrome April 24, 2003. He was born 4/17/03.I would like to know more about this and to talk to other parents of children like him. Welcome to our family! I am so glad you have joined us! Please tell us all about you and your son! Where do you live? We may have families in your area! Please feel free to ask any questions you have here! We will all be happy to share our experiences! Kristy Colvin IMDSA President Mom to Arron 26, 23, Tim 22 MDS, Stevan 21 & Garrett 12 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK www.imdsa.com http://www.mosaicmoments.today.com Quote Link to comment Share on other sites More sharing options...
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