Re: took my fiest dose of CSM last night

[Guest guest]

If you're using the powder in the can mix it with some white grape or apple

juice. I used Crystal light and had no problems. I did have some bloating,

heartburn and constipation but all can be taken care of with antiacids and milk

of magnesia every night. 4 times a day is best. I started with 4 doses a day

followed the directions to the letter and never missed a dose. Imflamation

was so bad I could hardly walk, bend my fingers, it even hurt to put my elbows

on the bed at night. Without a doubt it saved my life!

Sue

ruff, I didn't sleep so been sleeping most of the day.

I've been sleeping alot sence the trip.

anyway bothered my stomach but maybe things well get better in a few

days. I'm going to have to work my way up to the 4 doses a day. but

just that first dose made a difference on the inflamation and burming

in the hands and feet. round two coming up:)..yuck

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[Guest guest]

I'm doing ok with it, better than the first dose. not bothering my

stomach as bad now. I might get 4 doses down tomarrow. spells of

felling better than worse.

>

>

> If you're using the powder in the can mix it with some white grape

or apple

> juice.

[Guest guest]

Forgive me, I haven't read your previous post on inflammation, but when you take

the

CSM, are you saying it makes the inflammation go down? I have been taking it

about a

month now and at first, it did the same for me, however, the last week or so, it

seems like

it makes inflammation worse in my feet.

Any comments on this please?

> >

> >

> > If you're using the powder in the can mix it with some white grape

> or apple

> > juice.

>

[Guest guest]

I've haven't been takeing it long enough, but yes, the first dose

seemed to bring down the inflamatin and swelling some, my feet

started itching instead of burning. their still a little swollen

now , nit mych and my hands are much better. I also had some bloating

and water retension going on that it brought down. however I'm

felling pretty pukey and if I throw up I dont know if I wekk be able

to continue take it. I haven't made it past two times a day and I

just dont know if I well. but so far I'm hanging in there.

[Guest guest]

What does your doctor say? There are a lot of variables you should

explain to him/her.

If you have been hypersensitized, you may be reacting to an ongoing exposure.

In a humid climate, you may be getting new exposure just from mold

that is coming from rotting leaves, etc. outdoors.

Thats why ts so important to avoid getting hypersensitized in the first place.

It took me a very long time to get to where I am now.

If you live in the humid summer areas, climate may superimpose its own

effects over whatever improvement you manage

during the winter and spring. In my experience, now that I am living

in one, its very hard to get away from mold. There are entire towns

that make me ill..they must be moldy.. thats the only explanation I

can come up with.

If you live in a humid summer/rotting fall area, you may want to

consider moving until you can get your reactivity down to the point

where you can live there again..

Or, accept that recovery may take longer there...

Stick with it, it may take a long time. For me, its a constant battle.

I become less reactive if I can AVOID RE-EXPOSURE - its hard - It

seems that at least now I need to KEEP ON taking cholestyramine, at a

low level and then kick it up whenever I feel as if I have been

re-exposed.

There are lots of different kinds of mold reactions.. its quite

varied.. That must be different kinds of mold.. I don't know, the

common denominator is moldiness.. sometimes I also react to some

chemicals.. solvents, gas fumes, etc.. but not always.. not all mold,

either!

(when I do, I can feel various signs in many different parts of my

body.. fatigue, ringing in my ears, GI issues, etc, etc.)

Its complicated..

I used to have the swollen legs and feet thing, a long time ago, at

the beginning, when it was really bad.

I still get painful sacs of flud at my joints when I get exposure..

that didn't go away.. but the continuous, constant bloating and

swelling did..

Thats also when I moved out of the moldy apartment.. that might have

had something to do with it....

They were also numb and cold.. do you have that? Do they cramp a lot?

I was lucky enough to hit on experiment with n-acetylcysteine,

acetyl-l-carnitine, and alpha-lipoic acid? (in addition to the more

common antioxidants, C, E, selenium, zinc) at that time, and even

though the other mold symptoms were very bad at that time, they seemed

to help my swollen feet and cramping when I had them..

Oh, and also I started taking lots of fish oil around then..too..as

" the fat " to make the bile flow, an hour after the cholestyramine..

Ask your doctor..

If I were you, I would not give up on cholestyramine.

I know that for me, the issues I get from exposures are much worse without it.

Its a very real danger.

On Fri, Aug 8, 2008 at 2:45 AM, semco_semco_semco

<semco_semco_semco@...> wrote:

> Forgive me, I haven't read your previous post on inflammation, but when you

> take the

> CSM, are you saying it makes the inflammation go down? I have been taking it

> about a

> month now and at first, it did the same for me, however, the last week or

> so, it seems like

> it makes inflammation worse in my feet.

>

> Any comments on this please?

>

[Guest guest]

They were also numb and cold.. do you have that?

Yes, but not all the time.

Do they cramp a lot?

Not as much, but yes, They SWELL and I get these electrical explosions.

They got better for a while, but they are now getting worse again. It seems

like within 30

minutes of taking the CSM, my feet start swelling more and the pain worsens.

I have been taking alpha-lipolic acid since November, but have been advised NOT

to take

the fish oil.

What is this experiement with acetylcystein, acetyl-I-carnitine? What are these

things?

I am taking a Natures Own Women's vitimine because I understand that CSM

depletes your

body of certain vitimines.

Recently, my triglicerides shot up to almost 2000.

I am afraid to call my doctor's office. He is very impatient and so is his

staff. I am pretty

much on my own. He wants me to start this diet that makes absolutely no sense.

It is a

diet book written by him several years ago and doesn't even mention mold or

toxins. The

instructions were not to eat anything grown underground, flour, wheat, barley,

etc,

however, the book has recipes for such things as potato salad, shrimp bread,

other

recipes call for flour as an ingredient or ginger root.

Very mixed messages and I simply want to feel better. I don't know what to do

at this

point. I am still taking the CSM, but again, it seems to make me feel worse

now.

Food has something to do with all this, hot food, not spicy, but temperature,

sometimes I

get relief after eating a hot meal.

Mornings are agony, afternoons are better, evenings are dark zones.

[Guest guest]

You should talk to Dr. Shoemaker. I am not a doctor and have no idea what to

tell you on this.

Most doctors have not been told anything about mold and they also often have

an arrogance that comes with making a lot of money to do what works for

maybe 90% of the time, but when they encounter a situation that is

different, they often don't know and wont admit it.

[Guest guest]

ok, thought I'd share this, I didn't want to take the previcid

(spelling) and forgive me if I dont give the proper names on these two

prescriptions,I posted what they were, sometimes takes me awhile to get

the names soaked into my head. anyway, so I tried takeing only the CSM

and sorbatol. didn't do to well on my stomach. I had to stop for a day.

yesterday I took the previcid and later started back on the csm and

sorbital, so far it has helped with the stomach. I knew I was probably

going to have to take it but had to try it without first.

--- In , LiveSimply <quackadillian@...>

wrote:

>

> You should talk to Dr. Shoemaker. I am not a doctor and have no idea

what to

> tell you on this.

>

> Most doctors have not been told anything about mold and they also

often have

> an arrogance that comes with making a lot of money to do what works

for

> maybe 90% of the time, but when they encounter a situation that is

> different, they often don't know and wont admit it.

>

>

>

[Guest guest]

Hang in there with the CSM!! I took it as directed and but up with the

bloating and other problems that went away after a week or two. Hope it works as

well for you as it did for me. I still take it daily. I get tired of drinking

it but it keeps me well.

Good luck!

Sue

I'm doing ok with it, better than the first dose. not bothering my

stomach as bad now. I might get 4 doses down tomarrow. spells of

felling better than worse.

>

>

> If you're using the powder in the can mix it with some white grape

or apple

> juice.

**************Looking for a car that's sporty, fun and fits in your budget?

Read reviews on AOL Autos.

(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017

)