Re: Question for Jeanine

[Guest guest]

Hi Brain, I dont think he would comment much until he reviews all the

test results. we couldn't stick around that long. I suffered through a

lot of mostly perfume insults getting there and was on the verge of

what I call toxic overload and wasn't functioning the greatest. I

ewalize there were things I left out while putting my medical history

together that he probably needed to know, aways forget something,never

fails. he tested my memory,I guess ,thats what you might call it.

he said bless your heart for dragging yourself here which is basicly

what I did. I know the brain functions play a hudge role but like any

other organ da,age there may be a point where you can recover and a

point where you don't. I did not get any fast proper medical attention

after my exposure which may of helped alot. if certain areas of the

brain are not so damaged that they can regain functions that well help

but some might be beyond that. with time people find ways to work

around certain brain damage and I've done that the best I could.

forceomg myself the read and read again has helped to some extent. what

can help me at this point I dont know. I wanted to ask Shoemaker

questions about this but I just up to it and I really do have a problem

with people being distracting to my thought process weather they are

even talking or not, it's a little aggervateing. I can do ok if 1

persons there and they dont talk and just listen but if they interupt

me I lose my thought and sometimes I cant get it back. amd even if they

just listen and I do all the talking I often go off on different

subjects and end up not even makeing the point and forgeting what it

was. sometimes just someone asking me a question is really hard,delayed

thought process,sometime no thought process. it's just pretty strange

I could rin my mouth all day and go over the same subject several times

without realizeing I did. I really thing alot well depend on level of

damage and of corse nit getting fast proper medical attention didn't

help. I think in my case some of the damage may not enable me to get

those functions back on track but I don't knowm I don't know if that

can be deturmind by the scans either so it might just be a try and see

thing.

--- In , <brianc8452@...>

wrote:

>

> I was wondering if Dr. Shoemaker was able to give you any answers or

maybe any hope for improvement.  I have read many of your messages and

know you are very ill.  If he can help you, maybe it would give others

some hope.  Please let us know if there is anything you can share.

>

[Guest guest]

My cognitive damage is very similar to yours.  I didn't get proper medical care

either.  Maybe this will give you some hope---after trying many different things

and not getting any relief, I assumed I would never get better...and then I got

Lamisil.  After a few weeks on Lamisil, I started noticing some definite

improvement in my symptoms.  I am not back to my old self but my cognitive

problems have decreased since I took Lamisil.  I hope it helps you too.

[Guest guest]

really, thats interesting, did you suffer liver and/or stomach damage?

did lamisil have any side effects? yes, I think severeal will agree

that they had the same type symptoms who suffered limbic system effects

and/or damage. ehay kind of shape our your sinuses in, did you have

seizures? any eye problems? dud lamisil help everything? all your

symptoms?

did you have any immune realated problems? where you colonized or did

you have RAD and olfactory damage? that route or was you more affected

to the limbic system through the BBB route? are you still reactive to

chemicals, mikds/myco's ect.? sorry for all the questions but it's hard

to get a idea of what may help someone and if it may help you. sounds

worth a try but I thought I just read something about possable liver

effects with lamisil. is it just a all around antifungal for all types

of fungi? and it's only 4 bucks at walmart? no prescription?

--- In , <brianc8452@...>

wrote:

>

> My cognitive damage is very similar to yours.  I didn't get proper

medical care either.  Maybe this will give you some hope---after trying

many different things and not getting any relief, I assumed I would

never get better...and then I got Lamisil.  After a few weeks on

Lamisil, I started noticing some definite improvement in my symptoms. 

I am not back to my old self but my cognitive problems have decreased

since I took Lamisil.  I hope it helps you too.

>

[Guest guest]

Brain, did you take anything along with the lamisil?

--- In , <brianc8452@...>

wrote:

>

> My cognitive damage is very similar to yours.  I didn't get proper

medical care either.  Maybe this will give you some hope---after trying

many different things and not getting any relief, I assumed I would

never get better...and then I got Lamisil.  After a few weeks on

Lamisil, I started noticing some definite improvement in my symptoms. 

I am not back to my old self but my cognitive problems have decreased

since I took Lamisil.  I hope it helps you too.

>

[Guest guest]

How long have you been on Lamusil?

--- In , <brianc8452@...>

wrote:

>

then I got Lamisil.  After a few weeks on Lamisil, I started noticing

some definite improvement in my symptoms.  I am not back to my old self

but my cognitive problems have decreased since I took Lamisil.  I hope

it helps you too.

>

[Guest guest]

No, just Lamisil.  I really didn't think it would help, so I was surprised when

it did.

[] Re: Question for Jeanine

Brain, did you take anything along with the lamisil?

--- In , <brianc8452@ ...>

wrote:

>

> My cognitive damage is very similar to yours.  I didn't get proper

medical care either.  Maybe this will give you some hope---after trying

many different things and not getting any relief, I assumed I would

never get better...and then I got Lamisil.  After a few weeks on

Lamisil, I started noticing some definite improvement in my symptoms. 

I am not back to my old self but my cognitive problems have decreased

since I took Lamisil.  I hope it helps you too.

>

[Guest guest]

I actually took Lamisil for several months and my doctor checked my liver (with

blood tests) every month or two.  I knew there was some risk to my liver, but it

made such a big difference with my cognitive problems that I decided it was

worth it to keep using it as long as I could (and my liver tests were

okay during those months that I was taking it).  Recently, my doctor stopped

giving me prescriptions for it.  I ran out of it a few weeks ago, so I am hoping

that my cognitive problems don't get worse again..  Time will tell.  It still

surprises me that it worked so well--because I had tried to many other things

and never got any relief.  I decided to share my experience in case it will help

others.

[Guest guest]

My doctor did blood tests every month or two to keep an eye on my liver, and my

liver tests were okay while I was taking Lamisil.  I didn't have any negative

side effects.  I have had sinus problems and ear problems since my exposure, but

I haven't had any eye problems.  The main thing that was helped by the Lamisil

was my cognitive problems.  My short-term memory, concentration, anger and

anxiety improved somewhat.  My immune system was damaged by the toxins, but some

of those blood tests also improved after I had taken Lamisil for a while.  I

don't know for sure if I was colonized but one doctor said it was very likely. 

I don't know how Lamisil compares to other antifungals, but I was on Sporanox

for a year and it didn't help at all.  That's part of the reason why I didn't

think Lamisil would help.  Other people have tried Sporanox and Diflucan and

have had no improvement, so I have told them about Lamisil.  I think some of it

depends on

the types of mold and toxins you are exposed to.  Each of us has been exposed

to a different mixture of these poisons, so each of us has to have our own

individualized treatment.  Hope this helps. 

By the way, Jeanine, I admire your courage and determination.  Just so know, I

had to re-write and correct this message several times before I sent it.  It's

very exhausting, so I'm sure your vision problems make it even more difficult.

[Guest guest]

The one thing I remember about Lamisil - is that you may need to stop

if you get a sore throat! I don't remember why, but about 2 1/2

months into my 3 month course of treatment, I got the " sore throat "

and came off right away. It can also affect your eyes, so, it can

help a lot, but it must be used with extreme caution. Maybe someone

here on the board, can explain why one might get a " sore throat " on

Lamisil and what it really means. Thanks.

P.S. I drank a ton of water and stayed " quiet " (not my " activist "

mouth or computer, sorry)resting, resting, resting to let this

precious drug do as much as it could to pull out this " poison " from

my system.

[Guest guest]

Thanks Brain, did you have a diagnoses of fungal infection in the

brain ? any cysts or anything or was it prescribed based on blood tests?

--- In , <brianc8452@...>

wrote:

>

> I actually took Lamisil for several months and my doctor checked my

liver (with blood tests) every month or two.  I knew there was some

risk to my liver, but it made such a big difference with my cognitive

problems that I decided it was worth it to keep using it as long as I

could (and my liver tests were okay during those months that I was

taking it).  Recently, my doctor stopped giving me prescriptions for

it.  I ran out of it a few weeks ago, so I am hoping that my cognitive

problems don't get worse again..  Time will tell.  It still surprises

me that it worked so well--because I had tried to many other things and

never got any relief.  I decided to share my experience in case it will

help others.

>

[Guest guest]

Thanks Brain, yes, I really do try to check my posts, sometimes

forget, but still miss mistakes when I do. sometimes I spend a lot of

time trying to renenber how to spell a word and get aggervated with

it. I have a hard time with soaking some things into my head kuje

DMB, OR WDB, whatever it is. because I have practiced avoidence the

last 3 years and had my few months every year where I do much better

mentally and physically I fell like thats a pretty good indacater of

how well I can be, maybe whats permenant. it's the rest of the year,

laye spring through late winter that are more symptomatic, largely

based on air paricles. I fell that what causes this disease and what

keeps it aggervated, depending of level of organ damage can be a

world full of irritants, toxic or not. and the level of

sinus/olfactory/nerve damage and lung damage are the major factors,

and for me the stomach too. and of corse the liver. a particle disease

because I fell best when the particles in the air are at their lowest.

maybe there loes the difference in some of us have more of toxin

exposure related damage and some haveing more of a mycosis problem,I

dont know. colonization of some types can be very slow growing, so I

dont know if I'm colonized and further exposures aggervate that or if

I'm not colonized and it just the further exposure on their own that

are causeing infections to damaged areas, mainly sinuses,lungs and

sromach, than they go on from there if I cant get control over them.

In , <brianc8452@...> wrote:

>

> My doctor did blood tests every month or two to keep an eye on my

liver, and my liver tests were okay while I was taking Lamisil.  I

didn't have any negative side effects.  I have had sinus problems and

ear problems since my exposure, but I haven't had any eye problems. 

The main thing that was helped by the Lamisil was my cognitive

problems.  My short-term memory, concentration, anger and anxiety

improved somewhat.  My immune system was damaged by the toxins, but

some of those blood tests also improved after I had taken Lamisil

for a while.  I don't know for sure if I was colonized but one doctor

said it was very likely.  I don't know how Lamisil compares to other

antifungals, but I was on Sporanox for a year and it didn't help at

all.  That's part of the reason why I didn't think Lamisil would

help.  Other people have tried Sporanox and Diflucan and have had no

improvement, so I have told them about Lamisil.  I think some of it

depends on

> the types of mold and toxins you are exposed to.  Each of us has

been exposed to a different mixture of these poisons, so each of us

has to have our own individualized treatment.  Hope this helps. 

> By the way, Jeanine, I admire your courage and determination.  Just

so know, I had to re-write and correct this message several times

before I sent it.  It's very exhausting, so I'm sure your vision

problems make it even more difficult.

>

[Guest guest]

That reminds me Jeanine, did he do brain scan for you and if so, what

did he say? When I went to him he was not doing those but I understand

he is doing them now. .

>

> Thanks Brain, did you have a diagnoses of fungal infection in the

> brain ? any cysts or anything or was it prescribed based on blood

tests?

[Guest guest]

Barb, yes, MRI/SPECTROMETRY but had that done agter seeong Shoemaker

and than headed to airport, so I don't know results of that yet. was

given a copy but only thing I can really comment on is that readings of

activity in the hippocampus show quite of bit of difference in the

spoke level of left hippo compared to the right. several readings that

I dont understand. some differences in the right and left frontals but

I'm not up on how to interpit report. mri has many slices from several

different views, I have been trying to find a site online where I could

do some comparasing with normal mri scans, I did this woth the ct scans

I had but it's still hard to know exactually what your seeing and

harder when you cant see to well. so I dont want to comment on it cause

I'm not sure.

> >

> > Thanks Brain, did you have a diagnoses of fungal infection in the

> > brain ? any cysts or anything or was it prescribed based on blood

> tests?

>