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Wow, we have a lot of new people to welcome! Isn't that fantastic!? I know I

just introduced myself a week ago or so, but for all our " newbies " I wanted to

be sure to get the information out there again.

My name is and I'm the Newsletter Editor for IMDSA. I'm also a

mom to 4 kids, my oldest diagnosed with MDS at the age of 2. Our quarterly

newsletter for IMDSA members is filled with tips, information and personal

stories from professionals, family members and individuals living with MDS.

Among many other things, included in your membership is access to our archives

of newsletters filled with even MORE information. I hope you consider becoming a

member and start receiving the newsletter. You'll find it to be a useful asset,

for whatever stage of life your loved one with MDS happens to be in.

If you have any questions feel free to email me at slpbjones@....

To become a member of IMDSA go to www.imdsa.com.

 

Welcome to our group! I hope you're able to find the support you need and make

some lifelong friends along the way!

IMDSA Newsletter Editor

Mom to Aidan (MDS) 6, a 4, 2, Evan 4 months

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  • 2 months later...

Welcome to all the new families and friends!

My name is Sylvia Wormley and I am the IMDSA Family Connect Coordinator. My

husband Mark and I live in Arizona with our 2 boys. is 15 years old.

is 9 years and has MDS. is in high school and is an amazing

artist! is in 2nd grade in a public elementary school. He is in full

inclusion with an assistant. I would like to invite you to join the Family

Connect Program if you would like to be connected with other families in

your area or with children around the same age as your child. You can go

to the form directly by clicking on the following link:

https://imdsa.dabbledb.com/page/imdsa/0cf18f89-a719-43fd-b262-304294f36bb1.

Feel free to email me directly if you have any questions at

Sylvia@.... I hope to hear from you soon!

Sylvia Wormley

IMDSA Family Connect Coordinator

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