Re: well, I got the CSM

[Guest guest]

Is this your first time taking cholestyramine? If so, the first few

days, especially can be hard because SO much toxic stuff is being

sucked out.

You may want to take a laxative too.. I use a generic metamucil.. Not

at the same time, but at least once a day..

Try to get exercise too. It helps.

What is Lamisil for? Do you have a fungal infection too?

On Sat, Aug 2, 2008 at 2:33 PM, who <jeaninem660@...> wrote:

> my daughter just went to get my prescrip's filled,

> but they had to order the other two,lamisil and whatever.

> not sure I want to start on the CSM without the others.?

> I hope a brita filtered pitcher will help with the water hear because I

> just cant afford to by my more water and I have a felling I'll be

> drinking like a fish.

>

>

[Guest guest]

Im so happy to hear that your going to start on these meds. Please please please

keep us updated on your recovery during the course of this treatment. God Bless

Eli

p.s. I only took one med at a time, while i was taking CSM i would not take

anti-fungals and vice versa

From: who <jeaninem660@...>

Subject: [] well, I got the CSM

Date: Saturday, August 2, 2008, 11:33 AM

my daughter just went to get my prescrip's filled,

but they had to order the other two,lamisil and whatever.

not sure I want to start on the CSM without the others.?

I hope a brita filtered pitcher will help with the water hear because I

just cant afford to by my more water and I have a felling I'll be

drinking like a fish.

[Guest guest]

yes, my first time. Dr. Shoemaker said he didn't think I would suffer

the heximyer reaction because I've been in a fairly decent apartment

and practiced advoidence but the way I'm felling I may still fell

pretty bad at least a few days. the lamusil is for the liver problems

with the bile going into the stomach (not sure if thats the correct

name,will have to check my daughter on that) well let you know. I

cant remember the name of the other but it's for the constapation and

it sucks alot of water out of your system so I'll be even more

thirsty. I was not given antifungals. maybe later depending on test

results or something ??

I did get a copy of the MRI/SPECTROMETRY images. and I thought they

were gonna take all my blood but they left me a little,lol's.

oh, they also did EEG'S and some breathing tests. some pojeing around

on my stomach and my ankles that were swollen.

[Guest guest]

Thanks Eli, I will, as long as my stomach can tolerate it I'm hopeful

it well help with several symptoms.

[Guest guest]

Congratulations on making that big trip successfully. I hope the CSM

helps you. From knowledge of the way it acts, the CSM should be help

with or without antifungals. There are toxins already in your body

waiting to go. There always is since we live in toxic times more than

ever.

As for the water, I use a Brita and I really like it. If you want to

go the trouble, you can get your water tested and see just what is in

it and get the filter to fit your particular situation. Most all

filters will get chlorine out and lead, but some filters are better at

getting some things out than others. I did not go to the trouble of

doing that, so many other things to do. I've seen information about it

online, as for which filters do best job of getting 'what' out. Your

water company may even be able to steer you to water testors.

>

> my daughter just went to get my prescrip's filled,

> but they had to order the other two,lamisil and whatever.

> not sure I want to start on the CSM without the others.?

> I hope a brita filtered pitcher will help with the water hear because

I

[Guest guest]

Jeanine, You went to Dr Shoemaker, right? Did he tell you whether to

take CSM with antifungals or not. I can't see the rationale behind

taking them separately as when the antifungals kill toxins, the toxins

need to come out.

EE, Why did you decide to keep the CSM separate from the antifungals?

Just curious.

>

> Eli

> p.s. I only took one med at a time, while i was taking CSM i would

not take anti-fungals and vice versa

[Guest guest]

Isn't Lamusil an antifungal Jeanine?

>

> pretty bad at least a few days. the lamusil is for the liver problems

> with the bile going into the stomach (not sure if thats the correct

> name,will have to check my daughter on that) well let you know.

[Guest guest]

Barb, I cant see and I wasn't brain functioning the greatest when he

told me the names, so I;ll have to ask my daughter about the names of

the other two prescriptions. I do know one was to help with

constapation and the other was for the effects of bile in the

stomach, also to hopefully help me tolerate the CSM treatment and I

dont want to start until I have all 3. I didn't get to ask as many

questions as I would have liked to, we had to catch our flight back

and most of that time was spent review medical history. I did get a

answer to one question that's been on my mind. mycotoxins do not

suppress the immune system and yes, these is a innate immune system

disease. inflamation is the main problem here. not to be confused

eith infection. regardless, and I didn't ask Shoemaker this but have

been thinking this myself for awhile and have posted about this but

probaly didn't explain it very well, but it accured to me one day

that a fungal infection may not be possable if the toxons that molds

produce were taken away and the medical information on fungal

infections is the effects of mold and it's toxins bevause these were

not seperated. at's all the same thing. fungal means mold/myco's.

basicly for example: fungal vasculitis is toxic vasculitis, in other

words, it's the toxins involved that do all the dirty work and the

rest just goes along for the ride. a few articles on aspergillus in

the lungs makes it pretty clear that without the toxic prepareing the

bed there would be not colonization. I had a pretty good

understamding of the involvement eith the innate immune system and

the inflamation involved but I'm going to have to go back and try to

wrap my brain around all this and sort it out in my own head. but it

stands to reason that this is a biotoxin disease and thats not

infectious. however I think the sinuses, based on the damage there

might be a little different story, but anyway, it seem to me that

maybe the theiry is that CSM and antifungals might accomplish the

same thing, basicly. I for one dont want to take any thing I dont

need to take. but it does seem that if your colonized it would be

better to get rid of the sorce thats in you produceing the toxins but

on the other hand, for some of us with organ damage we may be

fighting this the rest of our lives because theres no where to hide

and you can stop what your breathing in. and I dont think any drug is

good to take long term. could it be that medical science, by not

reacinizeing the toxins involved with these molds, mistaken to some

itstint the difference between inflamation and infection?

as far as actually being colonized, I've felt that maybe I'm not but

instead because of the damage I suffered during exposure that normal

everyday insult that dont affect other people just keep me fighting

this crap constantly and because if the damage even some things that

may just be considered irritants can aggervate my system.

> >

> > pretty bad at least a few days. the lamusil is for the liver

problems

> > with the bile going into the stomach (not sure if thats the

correct

> > name,will have to check my daughter on that) well let you know.

>

[Guest guest]

Thanks for the info. Barb, I trust my water compamy about as far as I

can throw them. I'll look into the different filters.

[Guest guest]

>

> my daughter just went to get my prescrip's filled,

> but they had to order the other two,lamisil and whatever.

> not sure I want to start on the CSM without the others.?

> I hope a brita filtered pitcher will help with the water hear because I

> just cant afford to by my more water and I have a felling I'll be

> drinking like a fish.

>

Jeanine,

Did you remember to ask dr Shoemaker if patients who have had a

duodenal ulcer can safely take CSM?

I had bleeding from a duodenal ulcer in February this year, so had to

be hospitalized for a few days. However, the doctor who performed the

follow-up gastroscopy (in April) said he couldn't see any ulcer. So it

has healed by now.

Here's the info about Questran (CSM) regarding ulcer patients:

http://home.intekom.com/pharm/bm_squib/questran.html

-------------------------------------------------------

QUESTRAN LITE should be used with caution in patients with peptic

ulcers or with a history of peptic ulcer disease as it might aggravate

or activate this condition.

-------------------------------------------------------

So I really don't know if I can take it or not.

[Guest guest]

Do you use a faucet filter or the pitcher filter?

Barth

[Guest guest]

That's interesting. Maybe that is why Dr Shoemaker didn't talk alot

about infection, nor seem to investigate it. I felt that was lacking

and was concerned about possible infection and wondered why would he

not automatically START from there but perhaps his view is what you say

below, that without the toxins, the body could boot the infection. Or

at least that's what I think you are saying.

> stands to reason that this is a biotoxin disease and thats not

> infectious.

[Guest guest]

Branislav, I am so sorry, I forgot, I would have left my head there

if it wasn't attached. I didn't get much of a chance to ask anything

as most of that time was spent reviewing medical records and history.

sorry, I'll let you know how my stomach handkes it sometime next week

it still may not be the same as for you. I don't know if his e-mail

address is at his website or not but you might be able to e-mail him,

I dont know. do you have some CSM? maybe you can try a tiny bit in

some warm water and srr if it bothers you. ??

[Guest guest]

You are right, private water testing services would be better. ProLab

(I can hear the groans) have a water testing kit where you buy their

other kits. I have not used one. However remember the water is tested

for certain things they are looking for, but may have many things they

aren't testing for, so I'm not sure if it is worth doing or not. I try

to get water from various sources, figuring they all are contaminated

to some degree and if I use a variety of sources, I will get a little

of this and little of that pollution wise, maybe better than drinking

from all one source. I really am baffled by the water thing myself,

i.e. what is health source of water. No such thing as pure really.

Called the universal solvent. If it is successfully purified, it

doesn't stay that way long, absorbing from whatever it is in, so into

glass asap is good thing.

>

> Thanks for the info. Barb, I trust my water compamy about as far as I

> can throw them. I'll look into the different filters.

>

[Guest guest]

PS If you drink really pure water, it will absorb things out of your

body!! Spring water tastes the best to me, so figured my body was

saying it was good for me, but my doctor thinks I should be careful of

spring water, since I don't know the source, but I was buying Gibraltar

from a wholesaler here. Very tasty and fact it was from Canada far

away from industrial areas seemed a good bet. Then I put it in clear

glass coffee pot one day to make coffee, I after boiling it

was 'cloudy', perhaps minerals..hopefully. Anyway I then took plain

tap water, put it through a Brita filter and boiled it, and result was

clear hot water still, so that kind of grossed me out, but perhaps many

of those particles were good things for me, and afterall boiled water

isn't exactly natural source of water for people or animals, but anyway

switched back to tap for most things. Have spring water from source

that sounds good for drinking here and there. I hear there is a trend

back to tap water, so you won't be alone.

[Guest guest]

I have the faucet filter but my daughter has a brita pitcher so I

thought I'd get some filters and use that too.

--- In , Patilla DaHun <glypella@...>

wrote:

>

> Do you use a faucet filter or the pitcher filter?

>

> Barth

>

[Guest guest]

I use the pitcher. I'll tell you why. I think it healthier to keep

the filter in the frig, to help keep down bacteria in it.

--- In , Patilla DaHun <glypella@...>

wrote:

>

> Do you use a faucet filter or the pitcher filter?

>

> Barth

>

[Guest guest]

Branis, I found it irritating at first. I do think the little fibers

could irritate but it's hard to know. Perhaps you could get a sample

to try. If I leave it sit in water longer, the little fibers seem to

soften up a bit.

>

>u remember to ask dr Shoemaker if patients who have had a

> duodenal ulcer can safely take CSM?

>

[Guest guest]

Barb,

Cholestyramine and fiber are different things.

Cholestyramine is pretty unique, actually, chemically. Its not a

functionality that is easy to duplicate.

Cholestyramine is an " anion exchange resin " which is a fancy way of

saying that its molecules hold an electrical charge of sorts that

attracts toxin molecules to it.

Cholestyramine and a few other drugs like it binds bile

- and low-molecular-weight toxicants that collect in bile, like mycotoxins,

and prevents them from being reused by the body.

This (using a bile acid sequestrant like cholestyramine)

appears to be the only way to get the body to shed them rapidly.

Fiber laxatives like metamucil are good to take with cholestyramine

(because by itself, it tends to cause constipation)

But cholestyramine ISN'T A SOURCE OF FIBER.

Also, Fiber DOESN'T bind mycotoxins.

I think we've discussed this several times before, maybe?

Do you remember?

On Sun, Aug 3, 2008 at 10:15 PM, barb1283 <barb1283@...> wrote:

> Branis, I found it irritating at first. I do think the little fibers

> could irritate but it's hard to know. Perhaps you could get a sample

> to try. If I leave it sit in water longer, the little fibers seem to

> soften up a bit.

>

>

>>

>>u remember to ask dr Shoemaker if patients who have had a

>> duodenal ulcer can safely take CSM?

>>

>

[Guest guest]

Branislav,

There is a complex of l-carnosine, " zinc-carnosine " or something like

that, that seems to be an incredible help to healing ulcers..

I've never taken that but I do take carnosine and it helps my GI

issues noticeably..

I've also found arginine helps my GI issues.. But YMMV..

On Sun, Aug 3, 2008 at 3:41 PM, Branislav <arealis@...> wrote:

>

> Did you remember to ask dr Shoemaker if patients who have had a

> duodenal ulcer can safely take CSM?

>

> I had bleeding from a duodenal ulcer in February this year, so had to

> be hospitalized for a few days. However, the doctor who performed the

> follow-up gastroscopy (in April) said he couldn't see any ulcer. So it

> has healed by now.

>

[Guest guest]

>

> Branislav, I am so sorry, I forgot, I would have left my head there

> if it wasn't attached. I didn't get much of a chance to ask anything

> as most of that time was spent reviewing medical records and history.

> sorry, I'll let you know how my stomach handkes it sometime next week

> it still may not be the same as for you. I don't know if his e-mail

> address is at his website or not but you might be able to e-mail him,

> I dont know. do you have some CSM? maybe you can try a tiny bit in

> some warm water and srr if it bothers you. ??

>

It's ok, someone will ask a doctor eventually.

I already have CSM and take it occasionally (about once a week) - it

makes me feel better as far as mold symptoms are concerned, but it

apparently irritates the area where the ulcer used to be, so I am not

sure if it's safe or not.

[Guest guest]

Live, I've taken CSM and it is little fibrous matter in all the meaning

of fibers. It's not like all bran but a fiber is a fiber. A fiber is

something that doesn't dissolve after you digest it.

Also fibers do bind toxins.

--- In , LiveSimply <quackadillian@...>

wrote:

>

> Barb,

>

> Cholestyramine and fiber are different things.

>

>

[Guest guest]

On Mon, Aug 4, 2008 at 5:08 PM, barb1283 <barb1283@...> wrote:

> Live, I've taken CSM and it is little fibrous matter in all the meaning

> of fibers. It's not like all bran but a fiber is a fiber.

That's not what I meant.. Most of us take cholestyramine because of

its ability to bind mycotoxins.

It would be extremely naccurate to imply that sources of fiber did

anything comparable. They don't.

Many people wish there was some other alternative because

cholestyramine is expensive, for a generic (it can cost >$200 a month)

Thats why people sue... its a nightmare in every possible way...

A fiber is

> something that doesn't dissolve after you digest it.

> Also fibers do bind toxins.

Oatmeal, psillium, etc. have many health benefits..

But they don't bind mycotoxins. Mycotoxins are what makes me sick, so ...

If you insist that is not true, that they do, I am not claiming that I

have read everything.

Pharmaceutical activated charcoal does bind some mycotoxins (and a lot

of other things..)

But its only a fraction as effective as cholestyramine.

But, since you have repeated this a number of times without any

supporting evidence,

is it asking too much for me to ask you if you can document it?

>

>

>

>>

>> Barb,

>>

>> Cholestyramine and fiber are different things.

>>

>>

>

>

[Guest guest]

Barb,yes, on that part but also maybe in part because the innate immune

system(inflamation being part of it) functions are suppose to activate

the aquired immune system (the role of infection) but it's not

happening for some reason, even while we are exposed and afterwards for

some I guess. maybe thats part of this being a innate immune system

disease. ? I think theres a few therories, 1 was that mycotoxins

suppressed the aquired immune system, another one might be the memicing

theory ? but if I recall right when I was trying to research that area

there were supposedly some componants (of th1 or th2,cant recall) that

both the innate and aquired immune system shares and as I understood

may play a role in the innate immune system activateing the aquired

immune system, so it seemed that maybe this process couldn't happen

because the innate immune system was being overtaxed during exposure

and than some of these may be depleted,low or disfunctional somehow.

for example, neutrophils which fight off foriegn invaders and can run

low causeing anemia. I guess also that if mycotoxins dont suppress the

immune system than autoimmunty than seems a very good possablity.

> > stands to reason that this is a biotoxin disease and thats not

> > infectious.

>

[Guest guest]

Live, Read my original post. I did not say cholestyramine = oatmeal

or psyllium or dietary fibers, I said cholestyramine have tiny fibers

that may irritate.

As for removing toxins. Dietary fibers lower cholesterol by binding

to bile acids and removing cholesterol. Dr Shoemaker said he's found

that things that lower cholesterol by binding action, also remove

toxins. Natural products from reputatable sources market liver

cleanse products that rely on natural fibers such as milk thistle and

others to detoxify liver. People who have liver trouble use milk

thistle, a natural fiber, to detoxify liver. I didn't say they are

as good as or better than CSM and in fact didn't even slightly broach

the subject. I only said to Branis that " CSM has tiny fibers that

may irriate his gi tract. "

On the subject though. You know nobody really does exhaustive tests

on what natural products do because there is no money in it for

anyone. Scientific tests are only done on pharmaceutical products so

someone can make a profit on them. That doesn't mean that

pharmaceutical products are the only things that do these things.

Doctors rely on them because they treat by standards of care, none of

which to my knowledge today include any natural substances. Doesn't

mean they don't work.

Many pharmaceutical products are poor spin-offs of natural products,

put out there, inferior, by because the profits are controlled.

Peptol Bismol for example COATS the stomach when it is irritated.

You know what coats the stomach and is better for it than Beptol

Bismol, buttermilk. Coats the stomach but ALSO replaces natural

probiotics upset can cause and improves it and costs ALOT less, and

also happens to be healthy to drink even if you don't have an upset

stomach. Does anyone study with lab mice buttermilk.......I think

not. Women's birth control pills, the kind that seem to cause cancer

in studies, have natural estrogen BUT artificial progesterone. Why

does it have artificial progesterone in it? Is it because that is

only way we can get progesteron? No. Natural progesterone can be

obtained naturally from plant sources that is exactly identical to

type of progesterone women have naturally in their bodies. Natural

estrogens and natural progesterones are both found in plant life and

are identical to that found in women. So why do they use artificial

progesterone? Because then people need an Rx to get it.

Understand? It's highly likely that artificial progesterone could be

what is causing cancer to develope in women who take it, since it

isn't identical to what they should have, but it was put out their so

someone could make some money.

We've discussed this before. There is undeniable evidence that many

natural substances remove toxins in our bodies but I have never said

it is as good as CSM, but it could be. I have no proof that it is,

nor do I ever state it. You have no proof that it isn't.

> > Live, I've taken CSM and it is little fibrous matter in all the

meaning of fibers. It's not like all bran, but a fiber is a fiber.

>

> Barb, Most of us take cholestyramine because of

> its ability to bind mycotoxins.

> It would be extremely naccurate to imply that sources of fiber did

> anything comparable. They don't.

>