Re: I put that Millie died of Lewy Body Disease in the obituary!

[Guest guest]

Dear Carol,

Good for you - on so many counts! LBD will sure generate buzz, and the more

that ask, the more opportunities for education. I hope someone around me at my

end will be as clever - and as feeling - as you. I can only hope Millie is now

not LBD'd and is laughing about the marbles. Please don't contain yourself - we

all need you!

Lin

adhd5464 wrote:

I figured few would know what it is, but, it may generate some buzz

and curiosity. I did not put dementia, only because I wanted to

leave some mystery and dignity.

Since LBD took almost all of Millie's marbles, what I am putting in

her purse inside the casket is a bag of marbles.

I will copy the obit and add to a post.

I got the call as my alarm clock went off this a.m., I had little

time to adjust before greeting my students at 7:15.

We clipped a bit of Millie's hair to have buried at the family plot

where Millie's sibs and parents are buried. We listed that event as

an informal ceremony in a north Florida cemetery.

I am having her former caregiver clean her house tomorrow just in

case any nieces and nephews show up and need a place to stay.

We are burying Millie in silk pajamas. They are very pretty, and she

liked them when she had an opinion.

I will keep reading and jump in when I just can't contain myself

anymore.

Carol

Welcome to LBDcaregivers.

[Guest guest]

I had also put Lewy Body Disease as cause of my dad's death. I wanted to

generate some type of awareness, curiosity, and hoped that if someone else was

going through what I had gone through they could get a hold of me. That

happened. A man near where I live had been diagnosed shortly before my dad

passed away and (daughter) gave a few weeks for me to grieve then called.

She explained the story of her dad and we found we had a lot more in common.

Her mom worked for Pioneer of which I worked for the catering company that

catered to the building her mom worked at. Also, 's mom and dad lived in a

town my parents had friends with when I was growing up. I had the honor to meet

Irwin (pictured in the photo's section) and was able to visit him regularly even

while in Hospice. I took them Hershey's Hugs to have hugs while I wasn't there.

Irwin always remembered me even when he struggled with his memory. Irwin passed

away in May while I was at my cousin's funeral. Two days after my cousin's

funeral I attended Irwin's funeral. I was able to stop in to see Sue each time

her office (or nearby office) ordered a catered lunch. Each time I was

introduced to her co-workers - she is so sweet.

So, again, a bittersweet time yet without LBD I wouldn't have been able to meet

such a sweet family and share their journey with them.

Carol, you may reach more people than you think by stating Millie's passing from

LBD.

Take care of yourself. You and your family are in my prayers daily and will

remain there-

Sandie

Des Moines, IA

dad, Merle, passed from LBD 9-20-02, age 65

mum, (MIL), Jo, passed from LBD 4-29-07, age 78

-- " adhd5464 " wrote:

I figured few would know what it is, but, it may generate some buzz

and curiosity. I did not put dementia, only because I wanted to

leave some mystery and dignity.

Since LBD took almost all of Millie's marbles, what I am putting in

her purse inside the casket is a bag of marbles.

I will copy the obit and add to a post.

I got the call as my alarm clock went off this a.m., I had little

time to adjust before greeting my students at 7:15.

We clipped a bit of Millie's hair to have buried at the family plot

where Millie's sibs and parents are buried. We listed that event as

an informal ceremony in a north Florida cemetery.

I am having her former caregiver clean her house tomorrow just in

case any nieces and nephews show up and need a place to stay.

We are burying Millie in silk pajamas. They are very pretty, and she

liked them when she had an opinion.

I will keep reading and jump in when I just can't contain myself

anymore.

Carol

Welcome to LBDcaregivers.

[Guest guest]

Carol

It all sounds perfect. I think Millie would agree.

Dena in SoCal

Mother (85)Existing with LBD in NH

--- adhd5464 wrote:

> I figured few would know what it is, but, it may

> generate some buzz

> and curiosity. I did not put dementia, only because

> I wanted to

> leave some mystery and dignity.

>

> Since LBD took almost all of Millie's marbles, what

> I am putting in

> her purse inside the casket is a bag of marbles.

>

> I will copy the obit and add to a post.

>

> I got the call as my alarm clock went off this a.m.,

> I had little

> time to adjust before greeting my students at 7:15.

>

>

> We clipped a bit of Millie's hair to have buried at

> the family plot

> where Millie's sibs and parents are buried. We

> listed that event as

> an informal ceremony in a north Florida cemetery.

>

> I am having her former caregiver clean her house

> tomorrow just in

> case any nieces and nephews show up and need a place

> to stay.

>

> We are burying Millie in silk pajamas. They are very

> pretty, and she

> liked them when she had an opinion.

>

> I will keep reading and jump in when I just can't

> contain myself

> anymore.

>

> Carol

>

>

>

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