Re: Re: I am new to this group

June 22, 2008

Thank you so much. I feel very welcome here. I have a found a few other Down

Syndrome groups at Cafemom.com. They do not talk to each other like this one.

Re: I am new to this group

Hi , Welcome to the group. I have a little girl who is 5 also.

She is the joy of our lives too. Hailey has had eating issues since

birth. She has sensory issues and they say it is a texture thing with

her. At the moment there are about 5 things she will eat. Its really

hard to deal with at times. But we get by. She also has severe ADHD and

DS maybe MDS. She is mildly autistic and has SID. She is very active

and very funny. I almost cant get on to her when she miss behaves

because she turns around and makes this funny face at me when she knows

she is in trouble. I have to turn and walk away....I still make her do

what ever it was I started but I have to hide my face so she doesnt see

me laughing. She is a little mess. Oh well once again welcome and enjoy

all the wonderful ladies in here as I have. Its never a dull moment in

here. Its great. The ladies are great and funny too.

>

> I am the stay at home mom of 3 sons. Felipe is 15 years old, Adam is 7

> years old and is 5 years old. has Mosaic Down Syndrome.

> I consider my gift from God. We knew before he was born there was a

> chance that he might have Down Syndrome. We knew he had a kidney

> problem from the ultrasounds and the extra fluid on the back of the

> neck. I did not know how I would handle having a Down Syndrome child.

> I have a cousin who is 43 with Down Syndrome. I fell in love with

> when I heard his heart beat for the first time and saw him on the

> ultrasounds. We did not want the amnio test done to see if he had DS

> because of the risks. We both love this little boy so much. He makes

> our lives so much more brighter, filled with so much love and

> laughter. When he was younger he used to make this snooty face that

> made us laugh so much. Now he does this funny little dance. My oldest

> son has ADD and Adam has ADHD. We have feeding issues with . He

> does not like lumps or chunks in his food.

>

June 23, 2008

I also belong to cafemom and I agree there is not nearly as much information

there as there is here. I only go on there and post if I find something

interesting. Although the moms on there did help me find this group when

Isabella was first diagnosed. We are all glad you found this group.

Sue

Ascencio wrote:

Thank you so much. I feel very welcome here. I have a found a few

other Down Syndrome groups at Cafemom.com. They do not talk to each other like

this one.