Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 Several members have indicated that a time may come for weaning off Sinemet. Others have suggested that maintaining a small dose might be wise. Naturally each case is different and caregivers will make changes in consultation with physicians. From my perspective, I would ask a lot of questions if it was suggested that stop it entirely. In 2002 he had a parkinsons meds honeymoon. He was weaned off all his PD meds in an inpatient setting and it almost killed him. Not to mention his dementia went off the charts because he was hospitalized and ende dup needing lots of antibiotics. His muscles became so rigid he was in great physical distress. He could not move his bowels because the natural contractions that move stool stopped, and he contracted pneumonia. The medicines for pneumonia led to renal failure, and also killed all the good intestinal flora so that his constipation was followed by a botulism related diahrrea that almost killed him. Note that all this was under the care of neurologists who gradually returned him to his sinemet, with less comtan and added seroquel. I will consider lessening his dopamine producing and dopamine agonist drugs again if a doctor advises, but I will have many more questions in advance, and will question dropping it completely. I will need to be convinced that akinesia with it's bad effects will not be a result. Kathy Quote Link to comment Share on other sites More sharing options...
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