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stuff like this comes up every few months on the autism lists, then

fades way pretty rapidly.

I have seen fads for NDF and PCA-Rx, both of were " backed up " by semi-

convincing gumph in much the same way zeolite is. But NDF and PCA-Rx

both faded away due to lack of positive results.

Chlorella and cilantro pop up at regular intervals, depsite lack of

positive results and a plethora of negative results

At least zeolite seems to be harmless. I doubt that it will actually

help anyone, but if you are not short of cash, please try it and keep

an objective record of what you see.

But the MLM marketing stuff really bugs me as it exacerbates the

inevitable hype that comes with such products.

I would ask the johnny-come-latelies and get-rich-quick merchants who

back this product and other like it to at least recognise Andy

Cutler's track record and expertise. Unlike you, he has helped very

many autistic people, including my son, and he is not doing this for

commmercial gain.

Steve

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just putting info out there my sir. If it is of no use to you , please don't

use it. As for looking at andy's track record, no need, I am not here to put

someone down or lift them on high. Only to relate what might be of use. Time

will tell about the truth as I intendt to do facts not opinion or doubts will I

give you.

AS of this writing, I personaly now of several people that have been help by

using NCD. Can I give you that info, no, for I have not been given their

permission. I won't without it. For those of you that think this is just

another ploy, It is not and I expect permission with more detail .

AS for the hype, I will try my best to keep my cheerleading in the closet and my

head in the sand so I can visit with some of you more often. (no offense meant)

Bill

mywaiora.com/932231

steve_rotherham <steve.rotherham@...> wrote: stuff like this comes up

every few months on the autism lists, then

fades way pretty rapidly.

I have seen fads for NDF and PCA-Rx, both of were " backed up " by semi-

convincing gumph in much the same way zeolite is. But NDF and PCA-Rx

both faded away due to lack of positive results.

Chlorella and cilantro pop up at regular intervals, depsite lack of

positive results and a plethora of negative results

At least zeolite seems to be harmless. I doubt that it will actually

help anyone, but if you are not short of cash, please try it and keep

an objective record of what you see.

But the MLM marketing stuff really bugs me as it exacerbates the

inevitable hype that comes with such products.

I would ask the johnny-come-latelies and get-rich-quick merchants who

back this product and other like it to at least recognise Andy

Cutler's track record and expertise. Unlike you, he has helped very

many autistic people, including my son, and he is not doing this for

commmercial gain.

Steve

=======================================================

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  • 5 months later...

In a message dated 07/10/2006 06:56:41 GMT Daylight Time,

krr1007@... writes:

can someone recommend a website to order this from? I dont want to order

from just anywhere. are their different brands and if so, what is recommended

based on personal experience? my son has chelated with dmsa but im looking to

try this. do dosage recommendations come with this or are they different in

our kids case. my son is 6 and weighs 77 lbs. i appreciate anyone's response.

>>>Join the Autism NCD list - many parents including me have signed up as

distributors to get the reduced price but don;t 'actively' sell the product.

The way it works SOMEBODy will have you in the downline - it might as well be

another parent IMHO (and many of us use the small commission to give the

product away to low income families)

_AutismNCD/_

(AutismNCD/)

HTH

Mandi in UK

PS the links to parent NCD sites are the in files section fo that list

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  • 8 months later...
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There have been lots of posts on this list about it, many by someone who is

selling the stuff, so please check the archives, but take into consideration the

financial interests of those posting. I've never tried the product and plan to

stick with ALA and DMSA about which much more is known.

Quick question:

I have been thinking of trying zeolite. Does it work? Is it a scam? Is

it harmful? Any input welcome.

Thanks,

Sue

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Thanks, I did do a search and what came up wasn't specific, or it

talked about PCA- and other things.

I have not used anything for chelation and I was just wondering if

anyone had and noticable effect from zeolite.

I am/was afraid it was a scam but if not I am/was willing to give it

a shot.

I don't have a doctor or insurance for my son and getting the

tests/topicals is cost prohibitive.

Sue

>

> Quick question:

> I have been thinking of trying zeolite. Does it work? Is it a scam?

Is it harmful? Any input welcome.

> Thanks,

> Sue

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> _______________________________________________

> Join Excite! - http://www.excite.com

> The most personalized portal on the Web!

>

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We have seen some very good gains with it. We use the Natural Cellular

Defense brand. I buy it from www.brainchildnutritionals.com. I already

use their vitamins and minerals, and they sell it pretty cheap.--Tod

wrote:

>

> Thanks, I did do a search and what came up wasn't specific, or it

> talked about PCA- and other things.

> I have not used anything for chelation and I was just wondering if

> anyone had and noticable effect from zeolite.

> I am/was afraid it was a scam but if not I am/was willing to give it

> a shot.

> I don't have a doctor or insurance for my son and getting the

> tests/topicals is cost prohibitive.

> Sue

>

>

> >

> > Quick question:

> > I have been thinking of trying zeolite. Does it work? Is it a scam?

> Is it harmful? Any input welcome.

> > Thanks,

> > Sue

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > _______________________________________________

> > Join Excite! - http://www.excite.com

> > The most personalized portal on the Web!

> >

>

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Sue,

Zeolites do something but noone is sure of what. Zeolites will not chelate out

heavy metals but they have caused improvements with some kids.

For chelation choose something more proven like dmsa/ala or dmps/ala.

[ ] Re: zeolite

Thanks, I did do a search and what came up wasn't specific, or it

talked about PCA- and other things.

I have not used anything for chelation and I was just wondering if

anyone had and noticable effect from zeolite.

I am/was afraid it was a scam but if not I am/was willing to give it

a shot.

I don't have a doctor or insurance for my son and getting the

tests/topicals is cost prohibitive.

Sue

>

> Quick question:

> I have been thinking of trying zeolite. Does it work? Is it a scam?

Is it harmful? Any input welcome.

> Thanks,

> Sue

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> _______________________________________________

> Join Excite! - http://www.excite.com

> The most personalized portal on the Web!

>

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Thanks to all for the help. After years of trying whatever I heard

about (my son is 14) I have tried to become more consumer savvy and

sought advice from other parents before spending the money.

Sue

>

> Sue,

>

> Zeolites do something but no one is sure of what. Zeolites will not

chelate out heavy metals but they have caused improvements with some

kids.

>

> For chelation choose something more proven like dmsa/ala or dmps/ala.

>

>

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As wrote, this stuff does something (it has here) but I am

not sure what and that makes me uncomfortable. The fact that it is

aluminum is what really bothers me. I am not currently using it

much, but it has helped in the past.

Anne

> >

> > Quick question:

> > I have been thinking of trying zeolite. Does it work? Is it a

scam?

> Is it harmful? Any input welcome.

> > Thanks,

> > Sue

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > _______________________________________________

> > Join Excite! - http://www.excite.com

> > The most personalized portal on the Web!

> >

>

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Oral ALA and DMSA are available without a prescription. Many of us here chelate

without a doc.

S S

From: suezieman [mailto: suezieman@...]

Date: Thu, 14 Jun 2007 15:54:28 -0000

Subject: [ ] Re: zeolite

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<p>Thanks, I did do a search and what came up wasn't specific, or it

<br>

talked about PCA- and other things. <br>

I have not used anything for chelation and I was just wondering if <br>

anyone had and noticable effect from zeolite.<br>

I am/was afraid it was a scam but if not I am/was willing to give it <br>

a shot. <br>

I don't have a doctor or insurance for my son and getting the <br>

tests/topicals is cost prohibitive.<br>

Sue <br>

<br>

<br>

> <br>

> Quick question:<br>

> I have been thinking of trying zeolite. Does it work? Is it a scam? <br>

Is it harmful? Any input welcome.<br>

> Thanks, <br>

> Sue<br>

> <br>

> <br>

> <br>

> <br>

> <br>

> <br>

> <br>

> <br>

> <br>

> <br>

> <br>

> <br>

> <br>

> <br>

> <br>

> <br>

> <br>

> <br>

> <br>

> ____________<wbr>_________<wbr>_________<wbr>_________<wbr>________<br>

> Join Excite! - <a

href= " http://www.excite.com " >http://www.excite.<wbr>com</a><br>

> The most personalized portal on the Web!<br>

><br>

<br>

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Was it the entire feet/hands, or the palm and pad? I don't know what

NCD is, but I had my palms and bottoms of my feet blister up and then

all my fingertips peeled to the last layer of skin. I had to wear

bandaids on each finger for weeks. It was scarlet fever, which I was

lucky enough to have at the same time as rheumatic fever, right after

strep throat. :-)

Darla

[ ] Re: zeolite

Thanks for the info! Wow, that is quite a reaction, interesting.

Sue

>

> Sue,

>

> The NCD gave my son blisters all over his hands and then caused his

feet to completely peel. He didn't seem bothered by any of it. I'm

still not sure what was going on, but I think it was having some sort

of effect on viruses.

>

> I wish I knew more to tell you, but do start low if you use it. My

son had these things happen when I moved him to 3 drops a day. He

would have weighed 38 pounds at the time.

>

> Anita

>

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Guest guest

Sue,

The NCD gave my son blisters all over his hands and then caused his

feet to completely peel. He didn't seem bothered by any of it. I'm

still not sure what was going on, but I think it was having some sort

of effect on viruses.

I wish I knew more to tell you, but do start low if you use it. My

son had these things happen when I moved him to 3 drops a day. He

would have weighed 38 pounds at the time.

Anita

>

> Thanks, I did do a search and what came up wasn't specific, or it

> talked about PCA- and other things.

> I have not used anything for chelation and I was just wondering if

> anyone had and noticable effect from zeolite.

> I am/was afraid it was a scam but if not I am/was willing to give

it

> a shot.

> I don't have a doctor or insurance for my son and getting the

> tests/topicals is cost prohibitive.

> Sue

>

>

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My son had the same reaction with our first 10 or so rounds of DMSA

chelation, then it cleared and we never saw it again.

In a message dated 6/15/2007 6:41:01 P.M. Eastern Daylight Time,

suezieman@... writes:

> The NCD gave my son blisters all over his hands and then caused his

feet to completely peel. He didn't seem bothered by any of it. I'm

still not sure what was going on, but I think it was having some sort

of effect on viruses.

>

> I wish I knew more to tell you, but do start low if you use it. My

son had these things happen when I moved him to 3 drops a day. He

would have weighed 38 pounds at the time.

************************************** See what's free at http://www.aol.com.

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Thanks for the info! Wow, that is quite a reaction, interesting.

Sue

>

> Sue,

>

> The NCD gave my son blisters all over his hands and then caused his

feet to completely peel. He didn't seem bothered by any of it. I'm

still not sure what was going on, but I think it was having some sort

of effect on viruses.

>

> I wish I knew more to tell you, but do start low if you use it. My

son had these things happen when I moved him to 3 drops a day. He

would have weighed 38 pounds at the time.

>

> Anita

>

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Wow, that almost sounds like the old " Pink's disease, " the mercury poisoning

symptoms from teething powders!

Barb

[ ] Re: zeolite

Thanks for the info! Wow, that is quite a reaction, interesting.

Sue

>

> Sue,

>

> The NCD gave my son blisters all over his hands and then caused his

feet to completely peel. He didn't seem bothered by any of it. I'm

still not sure what was going on, but I think it was having some sort

of effect on viruses.

>

> I wish I knew more to tell you, but do start low if you use it. My

son had these things happen when I moved him to 3 drops a day. He

would have weighed 38 pounds at the time.

>

> Anita

>

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The same thing happened to my husband when he was a child because he

had Kawasaki disease.

Carolyn

> >

> > Sue,

> >

> > The NCD gave my son blisters all over his hands and then caused

his

> feet to completely peel. He didn't seem bothered by any of it. I'm

> still not sure what was going on, but I think it was having some

sort

> of effect on viruses.

> >

> > I wish I knew more to tell you, but do start low if you use it.

My

> son had these things happen when I moved him to 3 drops a day. He

> would have weighed 38 pounds at the time.

> >

> > Anita

> >

>

>

>

>

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  • 2 months later...

In a message dated 27/08/2007 19:26:14 GMT Standard Time, JSJLPB@...

writes:

My son, on the other hand, has shown some major increase in activity

level, easily agitated, inflexible, and we cannot , at all, seem to

reason with him. He will calm down, with great teariness and

remorse, and then, without warning, the behaviors arise yet again. At

first he becomes hyper, then it changes to anger. I am not sure

about whether to continue

>>thats a pretty high dose for a child to start with, my son could only

handle 3 drosp per day to start with (he can cope with 45 now!).

I would stop, let him settle nd then start again much slower. Lots of help

and info on the AutismNCD list

_AutismNCD/_

(AutismNCD/)

Mandi in UK

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be full of care when using diflucan over the long term, ther is some concern

over the effects on the hepatic system with long term diflucan use.

thanks

just concerned

>From: " sonsboyssamj " <JSJLPB@...>

>Reply-

>

>Subject: zeolite

>Date: Mon, 27 Aug 2007 18:23:44 -0000

>

>Hi

>

>

>Well, we started the zeolite on Monday evening. Not sure what to

>take of it.

>I have worked my way up to 10 drops 3x daily and my son is on 5 drops

>3x daily( he is 70lbs).

>I do not feel much of a difference with the exception of some unusual

>fatigue. I have pretty severe metal toxicity(both lead and mercury)

>so hopefully something will happen,

>My son, on the other hand, has shown some major increase in activity

>level, easily agitated, inflexible, and we cannot , at all, seem to

>reason with him. He will calm down, with great teariness and

>remorse, and then, without warning, the behaviors arise yet again. At

>first he becomes hyper, then it changes to anger. I am not sure

>about whether to continue. He is also on diflucan for yeast, however,

>he has been on this for quite some time so I do not see it as an

>issue. He is chewing his clothing again, not as bad as in the past,

>but he is doing it.

>

>I was wondering what results others may be experiencing

>

>Any thoughts greatly appreciated,

>Louise

>

>

>

_________________________________________________________________

See what you’re getting into…before you go there

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  • 5 weeks later...

For $45 you can have a consultation with Dr. Lyn Hanshew who isn't a

distributor. She tested all the brands looking for something cheaper.

Contact her through www.askdrlyn.com.

Sharon

>

> Does anyone know if there is really any difference between the NCD

bent and

> washed zeolite and the less expensive kind that is 1/2 the price?

Multi leve

> marketers need not respond.

>

> Thank you.

>

>

> **************************************

> See what's new at

> http://www.aol.com

>

>

>

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In a message dated 9/29/07 11:30:51 AM Eastern Daylight Time,

hotmocha@... writes:

> For $45 you can have a consultation with Dr. Lyn Hanshew who isn't a

> distributor. She tested all the brands looking for something cheaper.

> Contact her through www.askdrlyn.com.

>

Sharon..do you know which is the best brand?

**************************************

See what's new at http://www.aol.com

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In a message dated 9/30/07 12:38:20 PM Eastern Daylight Time,

vgammill@... writes:

> f you want something cheaper, buy bulk commercial zeolite. Don't

> pay a premium for fancy packaging and scientistic hyperbole.

>

..can you point in the right direction PLEASE?

**************************************

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At 08:29 PM 9/29/2007, you wrote:

>In a message dated 9/29/07 11:30:51 AM Eastern Daylight Time,

><mailto:hotmocha%40telus.net>hotmocha@... writes:

>

> > For $45 you can have a consultation with Dr. Lyn Hanshew who isn't a

> > distributor. She tested all the brands looking for something cheaper.

> > Contact her through www.askdrlyn.com.

> >

Lynn Hanshew is/was a promoter for Waiora. She gave presentations at

their revivals. Harve Kaufman did this too until the product started

changing and he had a parting of ways with Waiora. Harve spent eight

years developing his solubilized zeolite for health purposes and

patented the product. Waiora started the marketing craziness and

then all the con guys, greedheads, and me-too marketers came out of

the woodwork like they always do. Everyone became an expert on a

product that has virtually no science behind it.

If you want something cheaper, buy bulk commercial zeolite. Don't

pay a premium for fancy packaging and scientistic hyperbole.

It is amazing how faddish these things are. The marketing of

aluminum silicate (zeolite) is almost identical to the marketing of

the colloidal minerals a few years ago. The marketeers are so

effective at their trade that desperate people become just about as

sensible in their decision making as a stampeding herd. Any health

product that works does not require promotion and marketing

incentives. Harve's product probably has merit to it, but we'll

never know until after the herd moves on.

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At 09:47 AM 9/30/2007, you wrote:

>In a message dated 9/30/07 12:38:20 PM Eastern Daylight Time,

><mailto:vgammill%40adelphia.net>vgammill@... writes:

>

> > f you want something cheaper, buy bulk commercial zeolite. Don't

> > pay a premium for fancy packaging and scientistic hyperbole.

>

>..can you point in the right direction PLEASE?

Sorry, I can't/won't do that. I've said about all I can to help

everyone from making common mistakes. If I said, " Take product

XXXX, " then a month from now I might hear, " killed my dog !!!!! "

There was a time when I was far more bold than I now am. About ten

years ago a fellow called me as he needed a vaccine for his aunt who

had liver cancer. Vaccines take a while to work. The fellow was

insistent in his pursuit of the vaccine and he told me that his

aunt's physician told him that she had six months left to live. I

told him to call me in the morning as I wanted to think about it

first. He called the next morning and reported that his aunt died

during the night.

All I could do was take that as a warning. What if I had sent her

the vaccine and she died ten minutes later? It would have had

nothing to do with me, but even I couldn't be sure. I do know that

there would have been Draconian legal consequences.

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" For those who are comfortable with chemistry and want to try a form of

zeolite similar to Harve's, all you have to do is buy commercial

zeolite, digest in a mineral acid (e.g., sulfuric) and then neutralize

with an alkali with a sensible cation. If Mg++ is used then you have the

additional benefit of Epsom salt. "

Uh, , with ALL due respect, " comfortable " and " all you have to

do " may be a little bit of an understatement. I don't know if I would

want to encourage people to try this in their kitchen -- I mean you're

talking about some highly caustic materials there, AND the potential for

highly exothermic reactions. Granted that people pour these things down

their drain (to undo clogs), and they're found in car batteries, but I

would recommend some caution playing around with them on one's counter

top. Among other things, eye protection would be a MUST.

I've seen electricians wire ceiling fixtures while HOT, too, but, again,

the average person would be well advised to exercise caution in matters

involving electricity OR strong chemicals.

Just a thought.

RB

        Posted by: " VGammill " vgammill@...  

Date: Sat Sep 29, 2007 9:28 pm ((PDT))

Zeolite can be a useful tool. I do think that most of the commercial

product is a waste of money. Harve Kaufman, who has the patent, has long

ago distanced himself from Waiora -- for reasons that can be best

explained by Harve. He does produce his own product now which he should

certainly have done in the first place.

For those who are comfortable with chemistry and want to try a form of

zeolite similar to Harve's, all you have to do is buy commercial

zeolite, digest in a mineral acid (e.g., sulfuric) and then neutralize

with an alkali with a sensible cation. If Mg++ is used then you have the

additional benefit of Epsom salt.

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Gee ,

Where is your sense of adventure....?

I wire most things hot and never think twice about that. Nothing like a

little jolt of electricity to spice up your day.

All kidding aside, someone with adequate chemistry background could quite

easily do it at home, but if you have doubts as to your abilities, then you

are not in that group.

Regards,

Bruce Guilmette, Ph.D.

http://survivecancerfoundation.org

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