Guest guest Posted January 16, 2005 Report Share Posted January 16, 2005 Hi everyone ... I don't post that often and am rather newly diagnosed with RA (but have suffered for several years). I read your posts and just want to tell you that I am inspired by each of you! What a wonderful community this is! I so admire the courage, the knowledge and the inspiration found here. I just wanted to weigh in on the anger and outburst stuff. For me, I am generally much more sad about this condition rather than angry. Sometimes I just get so fatigued and overwhelmed -- like the other night when my daughter told me we were out of cat litter and I had to go back out to get some for our cat. Grrrrrr. I felt the flash of anger as I was so looking forward to getting comfortable and settled in for the evening! Then horror among horrors, I felt my eyes well up with tears! What the heck??!! All this because I needed to get in the car and run less than 2 miles up the road to get cat litter! This is NOT who I am! I do a lot of personal development work and one of the things that I am working on now is recognizing and naming the anger when it shows up. As a person who has a biz professionally in the people-helping business, as I see many others are here, we tend to deny our own pain, needs, anger, etc. Anyhow, once I pinpoint the anger, I have been working with a distinction that has helped me and it may help some of you too. When I feel the anger, I can consciously choose to continue to be angry or I can choose to be compassionate. When I am angry, I have NO CONTROL over the feelings or what is happening. I am just REACTIVE. However, when I CHOOSE to be compassionate (toward others, myself, my body, God, etc.) instead of angry, that is something I am controlling. It is a chosen RESPONSE and it feels much better to me to have more control over my situation, even if it is just a little bit. Please understand that like everyone here, I am most definitely a work in progress and I certainly have not had some of the experiences that others have, however, this is just one small thing that may be helpful. Sometimes I am good at it and frankly, sometimes I suck at it. But the other thing is, our RA-riddled bodies are already angry and in pain -- perhaps when we show a little more compassion and kindness to our bodies, they heal even in the tiniest ways. This may sound too " woo-wooish " to some, but, for me, I certainly would rather focus on the good and possibilities rather than be stuck and at war with m y body. You may want to try the technique and see how it works for you. At the very least, it may help our blood pressures!!! :-) Love and Prayers to all! Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2005 Report Share Posted January 16, 2005 beth, very well said... i, too sometimes feel so tired and hurt so bad, that i just can't handle it... i have had many talks with my husband and we are still working out things... he helps me so much... i find that it is comunication that helps the most.... i sometimes can't even get my gas cap off so i cna get gas... grrrrr.. how embarrassing, i think... people look at ya like you are nuts because you look ok... well... off to read more e-mails.. rae [ ] Re: Anger Hi everyone ... I don't post that often and am rather newly diagnosed with RA (but have suffered for several years). I read your posts and just want to tell you that I am inspired by each of you! What a wonderful community this is! I so admire the courage, the knowledge and the inspiration found here. I just wanted to weigh in on the anger and outburst stuff. For me, I am generally much more sad about this condition rather than angry. Sometimes I just get so fatigued and overwhelmed -- like the other night when my daughter told me we were out of cat litter and I had to go back out to get some for our cat. Grrrrrr. I felt the flash of anger as I was so looking forward to getting comfortable and settled in for the evening! Then horror among horrors, I felt my eyes well up with tears! What the heck??!! All this because I needed to get in the car and run less than 2 miles up the road to get cat litter! This is NOT who I am! I do a lot of personal development work and one of the things that I am working on now is recognizing and naming the anger when it shows up. As a person who has a biz professionally in the people-helping business, as I see many others are here, we tend to deny our own pain, needs, anger, etc. Anyhow, once I pinpoint the anger, I have been working with a distinction that has helped me and it may help some of you too. When I feel the anger, I can consciously choose to continue to be angry or I can choose to be compassionate. When I am angry, I have NO CONTROL over the feelings or what is happening. I am just REACTIVE. However, when I CHOOSE to be compassionate (toward others, myself, my body, God, etc.) instead of angry, that is something I am controlling. It is a chosen RESPONSE and it feels much better to me to have more control over my situation, even if it is just a little bit. Please understand that like everyone here, I am most definitely a work in progress and I certainly have not had some of the experiences that others have, however, this is just one small thing that may be helpful. Sometimes I am good at it and frankly, sometimes I suck at it. But the other thing is, our RA-riddled bodies are already angry and in pain -- perhaps when we show a little more compassion and kindness to our bodies, they heal even in the tiniest ways. This may sound too " woo-wooish " to some, but, for me, I certainly would rather focus on the good and possibilities rather than be stuck and at war with m y body. You may want to try the technique and see how it works for you. At the very least, it may help our blood pressures!!! :-) Love and Prayers to all! Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2005 Report Share Posted January 16, 2005 beth thanks for posting your email..i am glad you wrote it..i go from being angry to mad, to getting depressed but i have realized that i still got to keep the house going..i really dont have any family except my husband and i have two teenagers..my son is a senior this year and i have to keep going even tho their are times when i want to just stay in bed and never get up...smile.. jan in alabama --- Rae Sandberg <Raes_Yorkies@...> wrote: > beth, very well said... i, too sometimes feel so > tired and hurt so bad, that i just can't handle > it... i have had many talks with my husband and we > are still working out things... he helps me so > much... i find that it is comunication that helps > the most.... i sometimes can't even get my gas cap > off so i cna get gas... grrrrr.. how embarrassing, i > think... people look at ya like you are nuts because > you look ok... > > well... off to read more e-mails.. > > rae > > > [ ] Re: Anger > > > Hi everyone ... I don't post that often and am > rather newly diagnosed with > RA (but have suffered for several years). I read > your posts and just want to > tell you that I am inspired by each of you! What > a wonderful community this > is! I so admire the courage, the knowledge and > the inspiration found here. > > I just wanted to weigh in on the anger and > outburst stuff. For me, I am > generally much more sad about this condition > rather than angry. Sometimes I > just get so fatigued and overwhelmed -- like the > other night when my daughter > told me we were out of cat litter and I had to go > back out to get some for our > cat. Grrrrrr. I felt the flash of anger as I was > so looking forward to > getting comfortable and settled in for the > evening! Then horror among horrors, I > felt my eyes well up with tears! What the > heck??!! All this because I needed > to get in the car and run less than 2 miles up > the road to get cat litter! > This is NOT who I am! > > I do a lot of personal development work and one of > the things that I am > working on now is recognizing and naming the anger > when it shows up. As a person > who has a biz professionally in the people-helping > business, as I see many > others are here, we tend to deny our own pain, > needs, anger, etc. > > Anyhow, once I pinpoint the anger, I have been > working with a distinction > that has helped me and it may help some of you > too. When I feel the anger, I > can consciously choose to continue to be angry or > I can choose to be > compassionate. When I am angry, I have NO CONTROL > over the feelings or what is > happening. I am just REACTIVE. However, when I > CHOOSE to be compassionate (toward > others, myself, my body, God, etc.) instead of > angry, that is something I am > controlling. It is a chosen RESPONSE and it > feels much better to me to have > more control over my situation, even if it is > just a little bit. > > Please understand that like everyone here, I am > most definitely a work in > progress and I certainly have not had some of the > experiences that others have, > however, this is just one small thing that may be > helpful. Sometimes I am > good at it and frankly, sometimes I suck at it. > But the other thing is, our > RA-riddled bodies are already angry and in pain -- > perhaps when we show a > little more compassion and kindness to our bodies, > they heal even in the tiniest > ways. > > This may sound too " woo-wooish " to some, but, for > me, I certainly would > rather focus on the good and possibilities rather > than be stuck and at war with m > y body. You may want to try the technique and see > how it works for you. At > the very least, it may help our blood pressures!!! > :-) > > Love and Prayers to all! > Beth > > > [Non-text portions of this message have been > removed] > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 Thanks Rae and Jan for your comments on being overwhelmed. My husband is great too -- very helpful and supportive. I like to tell him that everyday I am giving him a chance to be a " hero. " Fortunately, most men like to feel like heroes to their wives and so he does more than his share ... I am grateful. However, like you and probably most women (no disrespect intended to Larry or househusbands), things still have to be done. I have teenagers 19, 17 and 15. I also try to keep up with the house, groceries, etc. In addition, I am self employed and keep my business running in spite of the diagnosis of RA. It's a LOT, even if one is completely healthy. One thing I am learning is that sometimes it is just one MINUTE at a time. The better I take care of myself, the more I can give to others, house, business, etc. Warmly, Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 nicely said, beth... i too am self employed and keep everyting up.. i also noe have my sister to take care for the rest of our lives... mom passed away of lung cancer, so shellie lives with us... she is 41 yrs and has cerebral palsy with mild retardation.. she is great, she takes full care of her self.. but i still have to make sure meds and everything are ok.... later, rae [ ] Re: Anger Thanks Rae and Jan for your comments on being overwhelmed. My husband is great too -- very helpful and supportive. I like to tell him that everyday I am giving him a chance to be a " hero. " Fortunately, most men like to feel like heroes to their wives and so he does more than his share ... I am grateful. However, like you and probably most women (no disrespect intended to Larry or househusbands), things still have to be done. I have teenagers 19, 17 and 15. I also try to keep up with the house, groceries, etc. In addition, I am self employed and keep my business running in spite of the diagnosis of RA. It's a LOT, even if one is completely healthy. One thing I am learning is that sometimes it is just one MINUTE at a time. The better I take care of myself, the more I can give to others, house, business, etc. Warmly, Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 In a message dated 1/17/2005 3:37:35 P.M. Eastern Standard Time, writes: nicely said, beth... i too am self employed and keep everyting up.. i also noe have my sister to take care for the rest of our lives... mom passed away of lung cancer, so shellie lives with us... she is 41 yrs and has cerebral palsy with mild retardation.. she is great, she takes full care of her self.. but i still have to make sure meds and everything are ok.... Wow, Rae .. you sure do have your hands full. How fortunate your sister is to have you and I imagine you probably feel fortunate to have her too. Just remember to take good care of YOU! Love and Prayers, Beth ~*~*~*~*~*~*~*~* Philippians 4:8 (The Message): Friends, I'd say you'll do best by filling your minds and meditating on things that are true, noble, reputable, authentic, compelling, gracious -- the best, not the worst; the beautiful, not the ugly; things to praise, not things to curse. ~*~*~*~*~*~*~*~* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 I know we discussed anger here on the board a week or so ago, at that time I wasn't too sure where my thoughts were going on this. But after talking to a couple of people I realized that what was happening to me was also happening to them and it is much more extensive than was mentioned here. Hopefully someone else will read this and realize that they are not the only one experiencing this. For the past several months I have been having weekly, sometimes daily boughts of anger. It seems the littlest thing, a wrong look, a tone of voice, or for no apparent reason I will lose it. And when I mean lose it I mean down and out screaming, throwing things, verbally attacking and this can go on for hours and at times days. Not all to the same extent, but dang close to it. I did notice just the other day that just before my " fit " I get very antzy, I couldn't stay in one place, or concentrate on one thing. It was like I was on speed (or at least that is how it looked to others). My insides were all shaking, but nothing that could be seen on the outside. Everything was on attack mode. Can I blame it on fronts coming through, mold plumes, chemical hit, things in my personal life going funky, the brain and neuro damage that this junk has caused, or all of the above or something else all together. It's anyones guess. KC did contact Dr.Singer and asked him and unfortunately anger is part of the symptoms. To what extent, depends on alot of things and not everyone will experience it. Now mind you I have been sick for 11 years from this stuff and this is just now cropping up. I and my family could definately have done without this ugly monster showing up. I'm sure KC can explain to some extent what it is doing to him. He never knows which Sharon he will encounter, or when " pycho _itch " (not sure who coined that name) will show up. Even my joking, which many who know me personally know can be a bit on the sharp side, comes in question as to whether I'm actually joking or getting ready to get fired up again. Normally I don't go into any personal issues concerning myself, don't want anyone to think I'm whinning or wanting attention, but this issue really had me worried, especially when I was hearing more and more people dealing with it, that I felt it was time to bring it up. I am finding that even the strongest family support gets very thin when it comes to this on a constant basis. They don't know what is going on, how to help, what to say or not to say, when to hold and unfortunately when to run for the hills for their own personal, mental or emotional safety. KC has been with me through all of the various symtpoms, but this one has gotten even to him, even to the point of almost dreading to come home and as many of you know that's not him. We are trying to deal with this together, but we are also having to deal with it alone. Sharon C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Like a box of chocoletes,my family never knows who they will get. I've been tring to explain to them for quite a while what I've reconized in that a reaction to even smells they carry on their cloths can cause major mood swings to me, from aggetation to stuttering to out right crying fits. I cry just as hard at furnerals as I do at weddings, nothing like a mixture of perfumes and colones to really put me in a tail spin. even the tinyest amount of lingering laundry soap or the scent of shampoo coming off of someone,miced with other smells from places they been that day can cause effects on me if they are here very long in my space. I took me a ehile to realize this one but I finally realized it one night when my grandson spent the night and I just kept felling worse and worse and knew something was getting to me by my symptoms and a very tiny effect on my sinuses that kept getting worse. I finally figured out it was his cloths and gave him some of mine and put his in a plastic bag. theres been times I thought I made it through the grocery store without any major effects but by the time I got to the car I was haveing major melt down. I'm constantly telling my daughter I'm sorry and trying to explain that I cant help the emotional rollercoaster that just getting out around all these smells causes me. it's like something flips a switch inside me and turns on a emotion. it has nothing to do with regular run of the mill fellings, it's goverened by smells/chemicals. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 I suspect is kind of like seizure activity--which happens after a kindling effect spreads in the brain. Maybe it is easier to have these " seizure " episodes of anger or crying or whatever, in a brain that is somewhat damaged by toxins or trauma. It is very hard to know what you're reacting to. I still don't know if there were chemical or mold toxins in the sweater in my little washer. I'm also totally horribly stuffed up today with popping ears and I was very very upset about it (beautiful weather--so why????) and then I realized that in recent days I had drunk store bought milk and that's probably what's triggering this sinus inflammation. I can handle raw Amish dairy but if I kept a food diary I'd probably find that store bought milk led to sinus congestion. I'm not sure about it. But I have a strong hunch so no more store bought milk for me. But this points to how nebulous things are when you're sick--and when it is not easily isolated to just mold. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Sounds just like myself!!! I was a teacher so you can imagine my days!!! I have read where TOXIC OVERLOAD causes personality changes, and I can very much agree with that! At the height of my exposure(s) I was absolutly intolorant of everything and became so very much unlike my self, in the way of sarcastic and mean comments or answers to questions. There was a point where I almost became violent with one of my co workers and another co worker had to intercept my attitude and send me off in another direction to cool off. At the same time all of these emotions were taking place, I was also experiencing chest pain, palpatations and skipped beats, hyperactivity, high anxieties, and an inability to tolorate any amount of stress. I was previously very polite and very much a quiet type but also a " Do'er " , a go getter and a no non-sense person. Suddenly I was B*tching about every little thing as if it were the end of the world and it was someones fault, and I became quite mouthy. Yikes! A Personality change for sure! Since I have been away from the TOXIC ENVIRONMENT, It has taken 1 year to realize just how badly I have been affected and changed. I still have bouts of intolorence and irritabilities, but I am able to recognize it and put my self in a diff frame of mind to talk my self out of such rage, which is very hard to do at times. **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Most of my health problems from the toxic mold exposure were cognitive problems, liver problems and immune system damage. I don't know or understand why the Lamisil made such a difference, but I'm glad it did. I am functioning better than I have in a very long time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Sharon, as you have said, you are now aware you are not alone. I dont have an educated answer for this only personal opinion. The liver thing makes sence, but lets be honest. That makes sence for those who do not have damage being done to the brain. Mind over matter right. Well if the mind goes haywire the matter becomes the source of the problem so it seems. I personally believe that whatever it is that is going on in our body that is affecting thwe brain even in the most minute way directly affects our moods. I feel likew I can say this with some sort of authority because I have serious back and neck problems (I have not let the cat out of the bag on this one yet)Â I also have other problems bolth personally and physicly. On my worst days with those problems I can smile be happy and crack a joke or two. Example: A family member and I got into a VERY heated discussion not long ago. I believe even the nicest person would have blown a complete circute. I was so not bothered by it I found this persons behavior so funny I burst out into laughter. (I do not recommend this) another time, same thing same circumstance everything only this time I feel like if I had a hammer in my hand I would have crushed every bone in this persons body and then cused the pile of bones out (Not literaly of course) Â I pay VERY close attention to my moods, what I am feeling, what is wrong when. I feel I have to because like you said. The last thing you want to do is be a pain in everyones body, mind or soul. I know the very moment when this mood shift happens almost everytime. I could label it bipolar, manic or some other term but horse *^$ & @. All this stuff I am learning about the damage done to my brain tells me I am stupid (Im kidding) there just seems to be those moments in time when you just cant hold up the whole Im ok thing. I know that is not much of an explanation but I am not sure there is one really. I supose it is better to be aware of and embrace these moments. By embrace I can only mean now that they are going to happen and have a evacuation plan for the rest of the household. (ok, another joke) What seems to work best for me is a hot bath with epsome salt and then to be just left alone unless I ring my bell. Â Again, not much of an explination and maybe not much help other than to say once again, your not alone with this problem. While most of the time it sucks that I am staying with my parents, but at times like this it is a godsend because I close my door and am left alone. They have even left the house for the weekend to avoid me. So yes, it is much harder in your situation where it doesnt work like that. Hopefully somewhere in all this there will be a time when someone will have a bright idea, and we will have an answer or better yet a solution, but for now this is all I can offer. I hope it is of some comfort as you smack KC in the head with a skillet. Â Luv you guys, really Chris... From: tigerpaw2c <tigerpaw2c@...> Subject: [] Anger Date: Thursday, August 28, 2008, 11:08 AM I know we discussed anger here on the board a week or so ago, at that time I wasn't too sure where my thoughts were going on this. But after talking to a couple of people I realized that what was happening to me was also happening to them and it is much more extensive than was mentioned here. Hopefully someone else will read this and realize that they are not the only one experiencing this. For the past several months I have been having weekly, sometimes daily boughts of anger. It seems the littlest thing, a wrong look, a tone of voice, or for no apparent reason I will lose it. And when I mean lose it I mean down and out screaming, throwing things, verbally attacking and this can go on for hours and at times days. Not all to the same extent, but dang close to it. I did notice just the other day that just before my " fit " I get very antzy, I couldn't stay in one place, or concentrate on one thing. It was like I was on speed (or at least that is how it looked to others). My insides were all shaking, but nothing that could be seen on the outside. Everything was on attack mode. Can I blame it on fronts coming through, mold plumes, chemical hit, things in my personal life going funky, the brain and neuro damage that this junk has caused, or all of the above or something else all together. It's anyones guess. KC did contact Dr.Singer and asked him and unfortunately anger is part of the symptoms. To what extent, depends on alot of things and not everyone will experience it. Now mind you I have been sick for 11 years from this stuff and this is just now cropping up. I and my family could definately have done without this ugly monster showing up. I'm sure KC can explain to some extent what it is doing to him. He never knows which Sharon he will encounter, or when " pycho _itch " (not sure who coined that name) will show up. Even my joking, which many who know me personally know can be a bit on the sharp side, comes in question as to whether I'm actually joking or getting ready to get fired up again. Normally I don't go into any personal issues concerning myself, don't want anyone to think I'm whinning or wanting attention, but this issue really had me worried, especially when I was hearing more and more people dealing with it, that I felt it was time to bring it up. I am finding that even the strongest family support gets very thin when it comes to this on a constant basis. They don't know what is going on, how to help, what to say or not to say, when to hold and unfortunately when to run for the hills for their own personal, mental or emotional safety. KC has been with me through all of the various symtpoms, but this one has gotten even to him, even to the point of almost dreading to come home and as many of you know that's not him. We are trying to deal with this together, but we are also having to deal with it alone. Sharon C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 lol's,well allrighty than,, good luck KC. anyway I think just like theres a immedite and delated reaction. immedite is the nose to the brain and delayed or for those that dont suffer the nose>brain route theirs the liver>brain route. but maybe it's also a lower body>brain route. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Joe,? I take it that you didn't suffer any organ damage and never leave your home? > > Sharon, > I also had the identical anger reactions, which you describe, during > my periods of mold/mycotoxin, and chemical sensitivity exposures. > But, my anger reactions disappeared within days or weeks of my > eliminating the sources of mold and chemical off-gassing from my > environment. > > I have wondered, since I joined this health board, why people are > complaining of symptoms, such as yours, long after they claim to have > removed themselves from their sources of toxic exposure. I have come > to the conclusion, based on my personal experience, that, no matter > how hard the sufferers have worked to remove themselves from the > toxic triggers of their illness, those toxic triggers HAVE RETURNED > to their environment. > > There are no benchmark objective tests to validate the degree of our > suffering, to doctors and non-moldies. We are left with only > one " proof " of our suffering. That " PROOF " is the " suffering itself " . > If we are STILL suffering; then we are STILL exposed to the toxic > causes of our suffering. We MUST listen to our body. Even if we don't > like what our body is saying. IMHO, if you are still sick, Sharon, > then you are STILL exposed. > > The good news is, from my personal experience, the very FIRST > horrible symptom that disappears, after leaving the toxic exposure, > is the ANGER. I was amazed at how fast my anger disappeared, after > leaving mold environments, and after throwing out chemical off- > gassing sources. > > The most recent source of MY anger, was the purchase of two new > EXPENSIVE, T.V. sets. The off-gassing was driving me insane and > insanely angry. Within 2 or 3 days of getting rid of the T.V.'s, MY > ANGER DISAPPEARED. Sharon, did you buy any new T.V.'s or other > electronic equipment, several months ago, at about the same time that > your anger began? > > .................................................... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 this is a pretty great example of not even our own understanding the depths of organ and system damage these exposures can cause, I've been realizeing for a while that theres considerable differences between even the levels of sinus/olfactory>>> damage for one, and who people precieve the illness only from their point of view and what they were exposed to and are now reactive to. I'm difenitly seeing where level of organ and system damage play a hudge role on recovery or not, I suppose thats why some die with or without fast medical treatment. --- In , LiveSimply <quackadillian@...> wrote: > > Joe, > > I think that there are a lot of things going on and they can easily > explain people's reactions > if you give it a little thought. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Joe, I'm happy for you that the anger was a short-lived problem. There are many of us who have to fight the toxic effects on our brains for weeks, months or years. As I have said before---this is a very individualized problem. Each of us was exposed to different molds and mycotoxins and each of us has our own medical history and genetic predisposition. If Lamisil (an anti-fungal) can help some of us regain at least part of our health and maybe reduce the cognitive effects of these fungi and toxins, shouldn't we try it? Sharon, I know you and KC have endured much for many years and have helped so many others. I hope you will try Lamisil even if only for a month or two. Maybe it will help you and you will be more like yourself again. [] Re: Anger Sharon, I also had the identical anger reactions, which you describe, during my periods of mold/mycotoxin, and chemical sensitivity exposures. But, my anger reactions disappeared within days or weeks of my eliminating the sources of mold and chemical off-gassing from my environment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 I am more mystified than ever. I agree with Joe if you react you still have exposures. Could be secondary offgassing? I don't know how small or large the mold problem in my apartment is and as we've discussed it would not be easy as a renter to figure out (can't go into the wall cavities, break into walls etc). I do know that I washed some sweaters in my until then PURE, clean avanti eco-egg which holds two pounds of clothes, and when I opened the lid to smell them the cashmere camisole smelled awful and I instantly threw it out. But I was reacting to the matching cardigan. I felt like I was going to scream. In fact I tensed my whole body and scrunched my eyes just to get the anger out. I found myself reacting to the washer and to another piece of clothing I put in the washer after. Even being near it I felt like I would *scream*. The reaction subsided and it seemed like over a day or two I could go in the bathroom (the washer is under the sink, a small appliance) without any problem. Today I asked my bf to clean my bathroom for me (my left knee is injured and so I can't easily clean it). I told him not to touch/move the little washer but he didn't understand, and he did move it and cleaned under the sink. He came into the room and I felt that same feeling like I was going to scream. To get all the tension out I scrunched up my entire body like tensing all my muscles and told him I'm having the exact same reaction and he'd better take the washer and leave and be sure to wash the clothes he was wearing. He got out of here fast, I don't know if he thinks I'm nuts . What I think is inexplicable and I totally cannot figure out is, that sweater set was hanging in my closet. What the HECK was in it/on it that would stay in that area and make me react like that? I've been told that stachy spores can make one react like that but that they are odorless. I cannot see a rationale for this-----I really can't. If something that drastic got into the washer from my sweater, my sweater should have been offgassing. If something that drastic only came out when wet, and got into the washer and was that bad, my reactions should not have subsided. Could just moving the washer out from under the sink and cleaning around it have done something? I just can't understand it. It isn't making any sense even as a mold or toxic exposure as it is so erratic. But it's real. And it happened. Anyway, I told him to throw the mini washer out, as I now have a really nice size washer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Not quite sure different opinions of it, you'll have to google it, all i know is they do exist in the air, my interpretation of it is gvt project meant to control either the weather or people. Sensitive people (like me) react big time to it. Anyone else run ins with scalar waves? Carol > > My emotions are not triggered by > > smells but > > they are triggered by potatoes and/or scalar waves. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Never heard of them and any other time I might think something like " ya, right " I wonder this though. Does anyone else remember when the Olympic began China said that if the weather was not good for opening cerimonys they had a plan to change it? Now I let that go in one ear and out the other but all of these post about moods, anger and no answers. I find myself feelinf wierd saying this, but I wonder how much of the unknown can be connected to stuff like that and not just toxins, chemicals and stuff like that. Â I find myself thinking really deep about it for a moment and then like most I assume thoughts wonder off knowing even if it is true, theres nothing I can do so think happy thoughts. Â Where is the line of sanity and Ko ko...? Or is it that I just need to end this day and try another one later? From: wildman350smom <carolb@...> Subject: [] Re: Anger Date: Friday, August 29, 2008, 8:38 PM Not quite sure different opinions of it, you'll have to google it, all i know is they do exist in the air, my interpretation of it is gvt project meant to control either the weather or people. Sensitive people (like me) react big time to it. Anyone else run ins with scalar waves? Carol > > My emotions are not triggered by > > smells but > > they are triggered by potatoes and/or scalar waves. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Jill, maybe a chemical affecting the trigiminal nerve.? seems a mycotoxin effects would last longer. --- In , " jill1313 " <jenbooks13@...> wrote: > > I am more mystified than ever. I agree with Joe if you react you still > have exposures. Could be secondary offgassing? > > I don't know how small or large the mold problem in my apartment is > and as we've discussed it would not be easy as a renter to figure out > (can't go into the wall cavities, break into walls etc). > > I do know that I washed some sweaters in my until then PURE, clean > avanti eco-egg which holds two pounds of clothes, and when I opened > the lid to smell them the cashmere camisole smelled awful and I > instantly threw it out. But I was reacting to the matching cardigan. I > felt like I was going to scream. In fact I tensed my whole body and > scrunched my eyes just to get the anger out. I found myself reacting > to the washer and to another piece of clothing I put in the washer > after. Even being near it I felt like I would *scream*. > > The reaction subsided and it seemed like over a day or two I could go > in the bathroom (the washer is under the sink, a small appliance) > without any problem. Today I asked my bf to clean my bathroom for me > (my left knee is injured and so I can't easily clean it). I told him > not to touch/move the little washer but he didn't understand, and he > did move it and cleaned under the sink. He came into the room and I > felt that same feeling like I was going to scream. To get all the > tension out I scrunched up my entire body like tensing all my muscles > and told him I'm having the exact same reaction and he'd better take > the washer and leave and be sure to wash the clothes he was wearing. > > He got out of here fast, I don't know if he thinks I'm nuts . > > What I think is inexplicable and I totally cannot figure out is, that > sweater set was hanging in my closet. What the HECK was in it/on it > that would stay in that area and make me react like that? I've been > told that stachy spores can make one react like that but that they are > odorless. > > I cannot see a rationale for this-----I really can't. If something > that drastic got into the washer from my sweater, my sweater should > have been offgassing. If something that drastic only came out when > wet, and got into the washer and was that bad, my reactions should not > have subsided. Could just moving the washer out from under the sink > and cleaning around it have done something? I just can't understand > it. It isn't making any sense even as a mold or toxic exposure as it > is so erratic. But it's real. And it happened. > > Anyway, I told him to throw the mini washer out, as I now have a > really nice size washer. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 I think that some who dont live alone have to consider what their spouses/kids may be bringing home on their cloths. maybe something you allways would of reacted to be it wasn't in your space before. --- In , <brianc8452@...> wrote: > > Joe, I'm happy for you that the anger was a short-lived problem. There are many of us who have to fight the toxic effects on our brains for weeks, months or years. As I have said before---this is a very individualized problem. Each of us was exposed to different molds and mycotoxins and each of us has our own medical history and genetic predisposition. If Lamisil (an anti-fungal) can help some of us regain at least part of our health and maybe reduce the cognitive effects of these fungi and toxins, shouldn't we try it? > > Sharon, I know you and KC have endured much for many years and have helped so many others. I hope you will try Lamisil even if only for a month or two. Maybe it will help you and you will be more like yourself again. > > > > [] Re: Anger > > > Sharon, > I also had the identical anger reactions, which you describe, during > my periods of mold/mycotoxin, and chemical sensitivity exposures. > But, my anger reactions disappeared within days or weeks of my > eliminating the sources of mold and chemical off-gassing from my > environment. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 who knows these days, it seems that maybe mother nature shouts back when the air is gagging her too. wish I could make the air clear before I step outside. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Jill, thats just based on my own experiences and what I thought of while reading your post. for me a fast acting chemical assult is whay I relate more to the aggitated/anger trigiminal nerve effects that with a bad exposure like new offgassing carpet that I can't get quickly away from can set my nerves on fire. a steroid nasal spray also cause this effect. those are more severe but after you notice a few of those you also start noticeing the lesser ones that still make you fell like jumping out of your skin. I've alsi noticed that once this starts happening it hurts to be touched. pns and cns nerve damage. the trigiminal nerve is considered 1 of the cranial nerves but it's endings or part of it is in the nose with only a thin tissue protecting it.forget, well have to refresh my memory on that. > > Jill, maybe a chemical affecting the trigiminal nerve.? seems a > mycotoxin effects would last longer. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2008 Report Share Posted September 3, 2008 I would just like to thank everyone that had responded both on and off the board. I have also received some very nice emails, that I have not had a chance to respond to, along with several posts. I still would like to when I have the chance because I know some of you have asked some quesitons. This just goes to show the capabilities that these mycotoxins have on human health and how many have been affected AGAIN in the same way. Not realizing there are so many of us experiencing the same results. KC --- In , " tigerpaw2c " <tigerpaw2c@...> wrote: > > I know we discussed anger here on the board a week or so ago, at > that time I wasn't too sure where my thoughts were going on this. > But after talking to a couple of people I realized that what was > happening to me was also happening to them and it is much more > extensive than was mentioned here. Hopefully someone else will read > this and realize that they are not the only one experiencing this. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 I have been reading this thread with interest. My CMT is mild and I don't have children with CMT (both my children are adopted), so I am not at this point having to deal with alot of the issues so many of you face. I do, however, deal with another disorder which distorts my face (facial spasms), and have definitely dealt with people's stares and rude comments for over 20 years. I do feel it is important to express anger. Keeping it bottled in doesn't work for long- eventually it works its way out and usually by then in an explosive and destructive way. This group is a great place, in my opinion, to be able to vent those frustrations with those who can relate to what we are going through, and where we can find encouragement and support. I also feel that when we deal with those people with whom we are having " issues " (work, school, insurance, the general public, etc) it is better to use a calmer approach. If it is a new situation, I think It is best to approach the person with the attitude that they don't know about CMT and how it affects my ability to function. I need to educate them in the hope that a better understanding of CMT will change their mind and attitude about what they see happening or concerning any special requests I may be making. And it is always better to speak to the person involved first. If you don't get anywhere with them, then take it a step further and go to their immediate supervisor. It's okay to be firm and determined, but being angry and accusatory usually gets me nowhere fast. If you start out angry and aggressive with most people, they will respond by getting angry and defensive in return. In most cases, honey attracts flies better than vinegar does. Just my opinion. Blessings, Barb Quote Link to comment Share on other sites More sharing options...
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