Re: New info for patients seeking Dr.in California

[Guest guest]

Good.

But WHY are we still having to TRAVEL for care that we are PAYING for

insurance for?

What we NEED is for the health insurance companies to include things

like Shoemaker's

protocol in the little books they send out of " evidence based medicine " -

(Things that in their opinion, work. Then ALL doctors KNOW that they

will get paid for them, since they WORK.)

Its been four years, how much longer are we going to have to wait?

Hope springs eternal, but it should be REALITY..at this point..

We are not criminals.. we deserve care..

[Guest guest]

Live,

Its frustrating to all of us that this proccess is extremely slow about fixing

what is broken.

The good news is that it is ever so slowly turning it self around.  I think the

next big boom will be enviromental medicine.   The research out there on the on

impacts and tolls its taking on our health is tremendous.  I know a few af us

would love to slap it in there face but thats another story.

Since Dr Marinkovich passed there has been a void in California for getting good

treatment.

I think its exciting to see new Dr's willing to take on patients like us.  You

have to admit we are no small challenge.  There are several people on this group

that are pretty close by Dr Hope and a couple hrs drive is nothing to get proper

a diagnosis. 

 

I am grateful today becuase a few more people will get help that they truly

need.

a

[Guest guest]

I agree, 110%. Are you doing anything about it? I'm not being sarcastic, I'm

really interested, cause I've written letters, and was even doing a performance

art piece about it before I got too sick to perform it-LOL-and I'm not sure what

else to do at this point, so if someone has another idea, I'm really

interested...

> From: LiveSimply <quackadillian@...>

> Subject: Re: [] New info for patients seeking Dr.in California

> , " Sharon Kramer " <snk1955@...>,

" a Townsend " <kmtown2003@...>, quackadillian@...

> Date: Wednesday, August 27, 2008, 5:01 AM

> Good.

>

> But WHY are we still having to TRAVEL for care that we are

> PAYING for

> insurance for?

>

> What we NEED is for the health insurance companies to

> include things

> like Shoemaker's

> protocol in the little books they send out of

> " evidence based medicine " -

>

> (Things that in their opinion, work. Then ALL doctors KNOW

> that they

> will get paid for them, since they WORK.)

>

> Its been four years, how much longer are we going to have

> to wait?

>

> Hope springs eternal, but it should be REALITY..at this

> point..

>

> We are not criminals.. we deserve care..

[Guest guest]

Yay-

It's so nice to hear hope.

Oh my god, her name is Dr. Hope! LOLOLOL!!!

> From: a Townsend <kmtown2003@...>

> Subject: Re: [] New info for patients seeking Dr.in California

>

> Date: Wednesday, August 27, 2008, 8:06 AM

> Live,

> Its frustrating to all of us that this proccess is

> extremely slow about fixing what is broken.

> The good news is that it is ever so slowly turning it self

> around.  I think the next big boom will be enviromental

> medicine.   The research out there on the on impacts and

> tolls its taking on our health is tremendous.  I know a few

> af us would love to slap it in there face but thats another

> story.

> Since Dr Marinkovich passed there has been a void in

> California for getting good treatment.

> I think its exciting to see new Dr's willing to take on

> patients like us.  You have to admit we are no small

> challenge.  There are several people on this group that are

> pretty close by Dr Hope and a couple hrs drive is nothing to

> get proper a diagnosis. 

>  

> I am grateful today becuase a few more people will get help

> that they truly need.

> a

[Guest guest]

)

[Guest guest]

a, the thing that bothers me is that years have gone by and we still

don't have access to decent care locally.

In fact, many (most?) so called environmental doctors (nationally) are often

affiliated with ACOEM..

(So, good luck trying to get real *care*... )

That doesn't make you angry?

You say " It is turning itself around " How? Where?

Lets say that in the last two years, now, we are what, 5%, 10% further along

towards where we need to be, so in 20 years we will be there?

is that what you mean to say?

>Live,

>Its frustrating to all of us that this proccess is extremely slow about

fixing what is broken.

>The good news is that it is ever so slowly turning it self around.

>I think the next big boom

Boom? What do you mean by " Boom " - do you mean students entering the aging

field (in which few students are entering the field now) with doctors being

graduated eight to ten years later?

>will be enviromental medicine. The research out there on the on >impacts

and tolls its taking on our health is tremendous. I know a few af us would

love to slap it in there face but thats another story.

One has to wonder, don't you think, what is going on and WHY ?

[Guest guest]

Live you have no idea at my level of anger and frustration at this whole nasty

situation!

My beautiful 9yr old can no longer function in the real world as she used to

know it.

 

I refuse to give them my power!!

 

The only good thing about anger, it motivates people into action.  At least it

does for me.

Getting angry for my brain I know is also not healthy, so I stay focused on what

I can do and always hope tommororw I can do a little more.  Like so many of us

saving are energy to be able to heal. 

Mandela sat for how long in that prison before the truth came out?  My

Journey is only a 1 and a hlfs years along.  I'm sure it will be a bit longer. 

I don't want to think back and remember how bitter I was.   I want to remember

how couragious we all were and how are determination got us better and thank all

the people who did stop to help us. 

 

We are all mad as hell, the question is what do you do with it?

a 

[Guest guest]

Live, you need to realize that maybe the best care we can get is

learning to help ourself by understanding whats happened to us and

trying hard do what we can. there is no cure as far as I know of and

help is limited depending level of damage and to what organs/systems

are damaged. I'm not into dragging my behind to doctor after doctor,

and theres about 20 different doctors I'd need to see and getting

them to communicate would be impossable. every doctors office I've

been in makes me ill from perfumes,mold,bright lights, you name it,

always something. Shoemakers office didn't bother me but getting

there did and like always I end mostly in bed for 2 weeks after any

attempts to get medical help. the inflammation scares me, I dont need

anymore than I already deal with. alieve or ibprofen may not be the

greatest thing to take but preferable to cancer. advoidence as best I

can and sinus washing, the " allergy " and stomach/bowel even further

limiting.I know whats wrong,more tests are for lawsuits, testing does

nothing to cure. I am haveing problems with takeing csm but will

continue to try to find ways around it. some are beyond repair, not

fun to have to realize this. still, never give up hope. what needs to

be reconized is getting reconized. stop the exposures before they

cause health problemss, get out asap, if you cant get to a expert

immeditly do the next best things, advoidence and other detox

methoids. linit grains,vegetables grown underground,fruits once they

have have completely rippened because they start growning mold,overly

processed foods, greasy foods. and weither your sinuses have been

damaged or not wash them regularly. and no matter what you think

you've been exposed to or not exposed to it good to advoid all

chemicals and toxins asap/amap. some of us are basicly in the

MS,DIABETES,HIV-1,CANCER, OR CLOSE TO IT CATAGORIES, THERES NO CURE

FOR THEM EITHER.

[Guest guest]

a, I know the anger, I've got a 14 year old grandson who lived

the first years of his life in my first home and spent alot of time

with me in both homes and he's suffering for it. I see effects on my

daughters and other grandchildren and know that even though some may

appear now to be doing better, it's not over. theres days I really

just want to * & ^%%$##@@! some people over it so they best be praying

I dont lose that control and gain some energy cause yes, I'm mad as

hell myself.

>

> Live you have no idea at my level of anger and frustration at this

whole nasty situation!

> My beautiful 9yr old can no longer function in the real world as

she used to know it.

>  

> I refuse to give them my power!!

>  

> The only good thing about anger, it motivates people into action. 

At least it does for me.

> Getting angry for my brain I know is also not healthy, so I stay

focused on what I can do and always hope tommororw I can do a little

more.  Like so many of us saving are energy to be able to heal. 

> Mandela sat for how long in that prison before the truth

came out?  My Journey is only a 1 and a hlfs years along.  I'm sure

it will be a bit longer.  I don't want to think back and remember how

bitter I was.   I want to remember how couragious we all were and how

are determination got us better and thank all the people who did stop

to help us. 

>  

> We are all mad as hell, the question is what do you do with it?

> a 

>

[Guest guest]

I hate to say this, and I am not trying to belittle a mothers or

spouses anger, but the

situation for people when somebody else's health is involved, even

one's child, is different than when its their OWN

immediate health and survival. I am sure its still an extremely

important, immediate issue to you, you its still NOT YOU

who is falling out of your life and struggling to explain or understand..

You know this in the abstract sense. But consider this. Our society is

unraveling and there is no sympathy or help in this world for the weak

or sick. People who are directly effected have to fight for their

rights BECAUSE *OTHERS* WILL NOT.

Often, others are juggling many conflicting interests, some (many?) of

which are fairly irrelevant to the issue.

Lets just look at one issue, the importance of the medical community

listening and making this a priority FOR A CURE.

People who come forward as having mold illness are frequently accused

of lying, etc, and not only do they NOT

get treatment, not only are their THOUSANDS OF DOLLARS LOOKING FOR ONE

ESSENTIALLY FLUSHED DOWN THE DRAIN.. THEN, they also find it hard to

get health insurance or indeed, jobs in the future.

THEY ARE DAMAGED GOODS..

In this economy, it is an extremely difficult position to be in to

have an injury of ANY kind, even if it is mild. Even the mildly

chronically ill find themselves 'uninsurable' and are unable to

purchase insurance outside of a corporate group. That is all of us who

hope to be able to work again, because we wont get corporate jobs, we

will be self employed.

We are in their databases as 'damaged goods'. People more likely to

get sick. People who companies don't want to insure (if they are

forced to, they charge an arm and a leg.. That is the best we can hope

for under any kind of political changing of the guard..)

This whole situation would change IF THERE WAS A CURE.. But until

there is PRESSURE there wont be. MOST PEOPLE DON'T EVEN KNOW WHY THEY

ARE SICK.. MOST PEOPLE KEEP BUYING MEDICINES THAT TREAT SYMPTOMS, NOT

THE CAUSE..

The kind of injuries that people who have been through severe mold

situations have, often cost them, relative to

their uninjured peers, hundreds of thousands of dollars over the

course of a lifetime. That's the cost of being sick.

In essence, we are subsidizing people who are being irresponsible with

our lives.

We are the sacrifice - whose lives are to be sacrificed

to avoid telling all of us the truth.

Children above the age of infant (whose brains are particularly

sensitive to mold) have inherently low inflammatory status, and also,

have their lives ahead of them. It may take a while, but often, they

can and do recover.

Any adult who receives one of these setbacks probably won't ever

recover, economically.

Often, they end up homeless. Because of that, often, they end up dead.

Most (99% PLUS)

never realize WHY or HOW they got sick, or WHAT happened.. I am

guessing, this happens to MILLIONS of people.

We - all of us - are that other LESS THAN ONE PERCENT.. the ones who

figured it out - what it was..

On Wed, Aug 27, 2008 at 4:28 PM, a Townsend <kmtown2003@...> wrote:

> Live you have no idea at my level of anger and frustration at this whole

> nasty situation!

> My beautiful 9yr old can no longer function in the real world as she used to

> know it.

>

> I refuse to give them my power!!

>

> The only good thing about anger, it motivates people into action. At least

> it does for me.

> Getting angry for my brain I know is also not healthy, so I stay focused on

> what I can do and always hope tommororw I can do a little more. Like so

> many of us saving are energy to be able to heal.

> Mandela sat for how long in that prison before the truth came out?

> My Journey is only a 1 and a hlfs years along. I'm sure it will be a bit

> longer. I don't want to think back and remember how bitter I was. I want

> to remember how couragious we all were and how are determination got us

> better and thank all the people who did stop to help us.

>

> We are all mad as hell, the question is what do you do with it?

> a

>

>

[Guest guest]

I'm sure all of us have had to deal with the anger at many different

levels and all of it is severe. Either from firsthand effects of

mold exposure or your spouce or child that is suffering. There is no

sense trying to compare what is worse.We know there is no cure, but

if these conditions concerning our health or the structures that

caused our condition were addressed immediately and properly we

wouldn't have had to worry about a cure. This is not our fault, (the

patients) it is on the shoulders of local, state and federal

authorities that know better and should have informed the general

public of the serious conditions and affects these toxins can have

on human life.

I can not explain how I or several others feel when a life is lost

due to mold contamination. But, you don't have to die to lose your

life. This is what they don't understand and what all of us continue

to deal with in our daily lives.

I have lost 10 people to this, that I have worked with over the

years and it DOESN'T get any easier especially when you yourself, a

family member or your spouce continues to deteriate. I remember

losing one close friend that wouldn't listen to what I had to say

concerning Sharon's condition, completely ignored it and didn't want

to discuss it, they were not interested. At the same time I did not

realize they were being exposed themselves at extremely high levels

and had fallen ill. They still didn't believe it. My last contact is

when they were being rushed to the hospital, they didn't make it.

Again, if they proper information, warnings were released to the

public on mold contamination in homes, place of employment or

schools and were addressed properly and in a timely manner we would

not be here today and no one would have to worry about the serious

conditions these toxins cause through inhalation. Yes, we all know

that are medical community needs to get on board, but it's the

people that Sharon Kramer and the rest of us are fighting that has

kept this from happening.

KC

>

> a, I know the anger, I've got a 14 year old grandson who

lived

> the first years of his life in my first home and spent alot of

time

> with me in both homes and he's suffering for it.

[Guest guest]

Live, do you have some magic ball that tells you kids recover because

you better throw it away because it's not working. there recovery is

based on their levels of injury just like ours and even at a level

where they appear to recover it's pretty obvious that a further

exposure or age will cause it to come back and bite them in the butt.

I personally would give my life to protect my children and I could

give a rats ass about insurance,bla,bla,bla. if your so worried about

insurance give up your pride and get on disability and welfare! quit

complaining about something you can do something about! and don't

ever compare childrens welfare to your insurance needs again.

[Guest guest]

What is Kilburns Nero Testing?

Thanks! Jackie

>

>

> Good news,

> For all you folks in California who can't afford to travel.

>  

> Her name is Dr. Hope and she is in the Santa Barbabra area.   I spoke with her

personally

about how she treats.  She is getting herself very familiar with all the

protocols,

Shoemakers, Grays, Ziem's.  Kilburns Nero testing.  She knows that everyone is

different

and not everyone needs the same treatment.  Plus since the AAEM conference in

Dallas last

June she now has the connections to get assistance when needed,  She has a small

practice.  There is no large dollar amount upfront , her rates are very

reasonable.  

>  

> I have her phone number, Ill e-mail it to those interested.

> God speed

> a 

>  

>  

>

>

>

>

>

[Guest guest]

Tests that are done in the office for cognitive functioning.  Memory,

balance,executive skills testing.  Things that help diagnose Toxic

encephalopathy. 

a

From: Jackie <jackiedevries@...>

Subject: [] Re: New info for patients seeking Dr.in California

Date: Wednesday, August 27, 2008, 5:14 PM

What is Kilburns Nero Testing?

Thanks! Jackie

--- In , a Townsend <kmtown2003@ ...>

wrote:

>

>

> Good news,

> For all you folks in California who can't afford to travel.

>  

> Her name is Dr. Hope and she is in the Santa Barbabra area.   I spoke with her

personally

about how she treats.  She is getting herself very familiar with all the

protocols,

Shoemakers, Grays, Ziem's.  Kilburns Nero testing.  She knows that everyone is

different

and not everyone needs the same treatment.  Plus  since the AAEM conference in

Dallas last

June she now has the connections to get assistance when needed,  She has a small

practice.  There is no large dollar amount upfront , her rates are very

reasonable.  

>  

> I have her phone number, Ill e-mail it to those interested.

> God speed

> a 

>  

>  

>

>

>

>

>

[Guest guest]

Amen, a!

And during all those years Mandela was in jail he had meetings and wrote the

plans and outlines for the government he would come to lead...

> From: a Townsend <kmtown2003@...>

> Subject: Re: [] New info for patients seeking Dr.in California

>

> Date: Wednesday, August 27, 2008, 1:28 PM

> Live you have no idea at my level of anger and frustration

> at this whole nasty situation!

> My beautiful 9yr old can no longer function in the real

> world as she used to know it.

>  

> I refuse to give them my power!!

>  

> The only good thing about anger, it motivates people into

> action.  At least it does for me.

> Getting angry for my brain I know is also not healthy, so I

> stay focused on what I can do and always hope tommororw I

> can do a little more.  Like so many of us saving are energy

> to be able to heal. 

> Mandela sat for how long in that prison before the

> truth came out?  My Journey is only a 1 and a hlfs years

> along.  I'm sure it will be a bit longer.  I don't

> want to think back and remember how bitter I was.   I want

> to remember how couragious we all were and how are

> determination got us better and thank all the people who did

> stop to help us. 

>  

> We are all mad as hell, the question is what do you do

> with it?

> a 

[Guest guest]

I have been to Dr. Kilburn and feel that his testing is helpful, but only in

conjunction with other treatments.