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Re: retching

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:

Thanks for asking. I have asked several times and have been told,

" no " . Yes, you are right. You would think with all of the advances in

medicine, we would be able to reverse something like this. Does anyone

know if I have been given incorrect information?

Shaunie

Mom to , Brendon and Cailla=ean

Graeme & Weir wrote:

> Shaunie,Can they un-do a pylorplasty? Close it back up some at all?

> You'd think with everything else they could do, they could do

> that...

> Mom to Kennedy 22 mos old CHARGEr, 10, 8, and wife to Graeme

>

> New Brunswick, Canada

> Visit the " Weir homepage " at:

> http://www.geocities.com/SunsetStrip/Palms/5716

> ICQ #1426476

>

> Re: retching

> Hi Tricia:

> My son has " Dumping " When they did his first

> fundoplycation the old thought was to automatically do a

> pylorisplasty (sp?). Well, that was the wrong thing to do.

> The pyloris was made too wide (as I recall) and so when

> is fed in anything but tiny amounts of formula it

> " dumps " out of his stomach into his intestinal tract which

> then cramps up. It is very painful. Also accompanied by

> cold sweats and needing to sleep. Meg could probably tell

> you more.

> Shaunie

> Mom to , Brendon and Caillean

>

> Howell wrote:

>

> > Steffi,Could you please explain dumping syndrome to me as

> > you have mentioned this in your last two messages? My

> > daughter Shanae also suffers from bile reflux.Thanking

> > YouTricia Brisbane Australia

>

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  • 2 weeks later...

Thank you----silver nitrate----I couldn't remember what it was called!!!!

I was surprised to hear that it does sting, since had no reaction to

it at all. (Thank goodness for small things-right?) I am sorry Aubrie had a

bad time with that.

My docs said not to use them more than once in a month and to make sure you

stay away from the good skin. We used k-y jelly to protect the good skin

when we did it.

Steffi

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Silver nitrate. has had that done several times over the years but it

keeps coming back.

Shaunie

SteffiJill@... wrote:

> From: SteffiJill@...

>

> <<<<Do you mean that red soft tissue that grows out from the tube site?>>>>>

>

> Yes I do. If there is excess tissue there, it can cause leakage. I forget

> what it is called, but it looks like a giant match stick and it is black on

> the end, anyway, they put it on the tissue and it goes away. Nicky had to

> have this done about 3-4 times and now we never have any more growth. By the

> way, it does not hurt!

>

> Steffi

>

> > For information about the CHARGE Syndrome Foundation or to become a member

please contact marion@....

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