Re: 5 year old daughter with neck pain

[Guest guest]

Some thoughts..

Are you getting fresh air now, all of the time?

Its so important to be sure that your current lodgings are

free of mold, and that there are no " toxic air conditioners " etc..

Even if you think so, please double check that any coils are kept

clean, (a filter on the intake

is the best way, you need one that is much more effective at removing

dust than the ones that come with them,

because otherwise dust will stick to the coils and become mold food..)

Also, air conditioned dwellings still need some air exchange..

make sure that even when/if an air conditioner is running, you are

getting some fresh air

circulation.. (never use the air conditioner's vent - use other

windows cracked slightly open..)

Now that the fall is coming, outdoor mold levels increase - last fall

was hard on me, I'm doing much

better this year so far but I'm still afraid of the fall..

Try to get lots of antioxidants.. Vitamins C, E, A, selenium, zinc,

they help.. also Omega 3 oils like fish oil and flaxseed oil lower

inflammation... Take as much fish oil as

you can tolerate....

Many people will try to promote one brand over another, but the truth

is that most of the nationally sold brands are good quality.. and have

low, almost undetectable levels of heavy metals.. (far less than ocean

fish.. )

With fish oil, the smaller brands have a higher chance of not being

healthy.. IMO.

Many of us take cholestyramine. If you go to Dr. Shoemaker's websites at

biotoxin.info moldwarriors.com and chronicneurotoxins.com there is

information there on cholestyramine.. See if your doctor can be

convinced to read it.

It helps a great many people.. Of all the things I have taken to

reduce mold's impact on me its been the most effective..

Good luck...

On Wed, Sep 10, 2008 at 11:47 AM, healthyhayashis <amhayashi@...> wrote:

> I wanted to thank all of you for your advice. Here is the

> background.. Our mold exposure was breif compared to most others.

> We purchased a brand new RV in the state of Arkansas. From the day we

> drove off in it to make our way back to California, I was sick. After

> 4 weeks of complaining about a " musty " smell to my husband I asked

> him to pull the carpet back, just to see if we could find the source

> of the odor. Under the carpet was covered in Black Mold. It went up

> the wall (behind the wall paper) behind the electrical panel. So,

> our exposure was for 4 weeks. My husband myself and our 2 youngest

> children slept in it for 3 nights, and obviously made the drive back

> to california. The rest of my children were exposed daily. We

> bought the RV to be my everyday car (it's a small RV about 21 feet

> long), we have 6 children. So daily they were exposed, when ever we

> went anywhere. The levels of mold were tested and they were

> aspergillius/penicillium 21507- Cladosporium 5092- Stachybotrys 804

>

> Even though our exposure was somewhat breif, 3 of us have suffered

> constant symptoms, all vary.

>

> My 5 year old with the neck pain...she is perfect in every other

> way. No complaints of headache, earache, nose issues. Just the

> constant neck pain at the base of her skull, numbness in her limbs

> and sharp pain in her eye. The symptoms come and go, except the neck

> pain, she says that it never goes away. She has had x-rays taken

> twice now and both were " normal " . She is seeing an orthopedic

> sergon/sports medicine doctor today. I'll keep eveyone posted as to

> what this doctor says. I hate to say it but I don't think that he

> will have any answers.

>

>

[Guest guest]

gee, thats high,time makes little difference at those

levels.exspecially in thay small of closed in area. I'm so sorry your

family has been put throw this. I've had the same symptoms you've

discribed. I dont know if it could be pressure to the BBB but you may

also want to get her checked for vasculitis and get her blood tested

for these molds.

[Guest guest]

Live and list members,

Would it be helpful if they got the air duct coils, air handler and air ducts

cleaned? Is it true that as long as they don't have a fiberglass type plenum and

have a metal one that this can be done? How would she know if the coils are

clean or dirty? Are there any anti-microbials that could work that don't off-gas

voc's? What are the best protocols for hvac cleaning? Just a thought.

Sam

> Even if you think so, please double check that any coils

> are kept clean, (a filter on the intake

> is the best way,

[Guest guest]

Once a 2 min. exposure took over a year to recover-with bad molds

such as stacky-this is not uncomon. If she has continued to be

exposed to items that where in the RV-the exposure continues-even one

piece of clothing is enough. It spreads the toxin around. Mold

illiterate Drs. will not help.

go to Dr Shoemaker in MD if you are lucky enough to live near there.

Read his web site also-chronicnuerotoxins. MY neck pain never goes

away if I am exposed. Eye pain and neck pain are my first symptoms

[Guest guest]

is right. This is THE concept that so many people don't get.

Many people don't understand that what would ONCE not have been AT ALLl

problematic for people

becomes dangerously inflammatory after that very strong exposure puts them

over the top.

Then, it has to be FIXED COMPLETELY... or they get sicker and sicker.. even

if its fixed say, 90%. Thats not enough.

In my case, I have to be really careful because there are a huge number of

situations that make me ill, and one of the most common symptoms I have is

major joint, back, and neck pain. That is one of many warning signs for me

that I am getting exposed to mold.

The crucial thing needed to heal is to get into an environment where there

is NO mold at all. And then avoid mold -

You never lose the hypersensitivity, but you can get better while you are

not being exposed..

(re-exposure though, is very obvious)

Then when you are away from mold completely, the damage stops getting worse

and eventually, starts to heal.

But if you continue to get even small exposures,

those small exposures are like bad exposures in that you then, keep getting

worse.

And, you can't go back to a moldy place. Your body wont let you.

This is why remediations need to make a building FAR CLEANER than it was

before the " incident " .

Cleaner than is possible without agressive efforts to find all the mold,

wherever its hidden.. (typically insides of walls, attics and basement

walls)

Its similar to how medical personnel are at high risk for latex

sensitization, and IF they get it, then they have to CHANGE CAREERS because

latex is everywhere in hospitals and doctors offices. Nature doesn't care

about their student loans. Being allergic to latex and ignoring it can be

life threatening.

Latex can become life threatening for people who had no problem with it UP

UNTIL SOMETHING SNAPPED.

Many people don't understand this. They REFUSE to understand this.

On Thu, Sep 11, 2008 at 1:58 PM, <kdeanstudios@...> wrote:

> Once a 2 min. exposure took over a year to recover-with bad molds

> such as stacky-this is not uncomon. If she has continued to be

> exposed to items that where in the RV-the exposure continues-even one

> piece of clothing is enough. It spreads the toxin around. Mold

> illiterate Drs. will not help.

> go to Dr Shoemaker in MD if you are lucky enough to live near there.

> Read his web site also-chronicnuerotoxins. MY neck pain never goes

> away if I am exposed. Eye pain and neck pain are my first symptoms

>

>

>

[Guest guest]

Yes, Yes, Yes, not to cleaning ducts-but to remember being there,

cleaning the ducts will only help if that is where the mold is growing!

10 to one it is in the wall someplace-invisible to all-spuing its toxin

and making the little girl have clasic mold symptoms. I remember doing

the same -endless workmen to clean the ducts-check for gas leaks-does

anyone feel what I feel????? No, I just kept getting sicker-and by the

way please don't recomend air cleaners-I have had everyone known to man

in 3 different houses-and they don't do squat.!!!!!!

> Live and list members,

> Would it be helpful if they got the air duct coils, air handler and

air ducts cleaned? Is it true that as long as they don't have a

fiberglass type plenum and have a metal one that this can be done? How

would she know if the coils are clean or dirty? Are there any anti-

microbials that could work that don't off-gas voc's? What are the best

protocols for hvac cleaning? Just a thought.

> Sam

>

>

>

> > Even if you think so, please double check that any coils

> > are kept clean, (a filter on the intake

> > is the best way,

>

[Guest guest]

I know an excellent company in southern MD who came highly recommended. If

you're in the area let me know.

Sue

Yes, Yes, Yes, not to cleaning ducts-but to remember being there,

cleaning the ducts will only help if that is where the mold is growing!

10 to one it is in the wall someplace-invisible to all-spuing its toxin

and making the little girl have clasic mold symptoms. I remember doing

the same -endless workmen to clean the ducts-check for gas leaks-does

anyone feel what I feel????? No, I just kept getting sicker-and by the

way please don't recomend air cleaners-I have had everyone known to man

in 3 different houses-and they don't do squat.!!!!!!

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[Guest guest]

Hi Sue,

Sure would like that info. Could you email directly with that, please?

Thanks,

Sam

> I know an excellent company in southern MD who came highly

> recommended.

[Guest guest]

I think they are in Waldorf, MD but I can't remember for sure. Company is

Environ Air and they were recommended by Steinmetz(environmentally based

health inspector) who I trust and respect completely. I believe they do

cleaning for hospitals. We had them here to do ours and were VERY happy with

the

work. They spent 5 hrs. here and did an excellent job.

Owner is Steve (can't remember has last name, Compoze may be sp.) and can be

reached at 410-320-7515.

Hope that helps.

Sue

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