Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Tara... WELCOME! I want to tell you that I love your blog! I'm starting a new fascination with them... all your photo's, etc... " paint " a wonderful picture of your family!! And Emma is beautiful! Glad you found us, Angel Mom to 15 MDS/Hirschsprung's and 5 sibs In a message dated 7/28/2008 9:02:57 A.M. Mountain Daylight Time, kristy@... writes: http://www.emmasage.blogspot.com **************Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Welcome!! Is this the beautiful Emma Sage that graced the Toys R US catalogue last year?? She is too cute and very beautiful!!! Welcome to IMDSA!! Thanks for sharing all of the beautiful pictures. Irene in Tx, soon to be back in my element in IL, wife to Mike 16 years, mom to iel 14 MDS, Luke 12, Emilia 9, Lilly 7, Ikey the Dude 4, and Princess Nessie 17 mo Welcome Tara and Emma Hi Everyone We have a new family joining us this morning! Tara just found out that her daughter Emma has MTDS instead of T21DS. She also has a blog about Emma! You will have to go there and look at the great pictures! Emma is BEAUTIFUL!!! http://www.emmasage .blogspot. com Welcome to our family Tara! I am so glad you have joined us! Please tell us more about Emma and what brought you to this new diagnosis! Feel free to ask any questions you have here! We will all be very happy to share our experiences! Kristy Mom to Arron 26, 23, Tim 22 MDS, Stevan 21 and Garrett 12 Kristy Colvin IMDSA President ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa. org http://www.mosaicmo ments.today. com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Thank you all for the warm welcome and comments about our blog. I started the blog four years ago to share the 'normalacy of difference' with the world. My passion for photography and the love I have for my children were the catalyst for the blog. We just recently found out that Emma Sage has Mosaic T21. Her doctor was the one to suggest to have her karotyping done again, as the one from birth they were unable to gather much blood [Emma Sage was born unexpectedly at home and then we went to the hospital, I have her birth story on our blog] and they were only able to collect 7 cells, which they tested 3. Emma Sage has developed and grown very close to the typcial charts and has no significant delays in any area, so the doctor was curious as to the original test. I actually suspected that she was 'different' than most of the children/adults with T21 that I have met during our journey....and to tell you the truth, I have kinda felt like we 'didn't' fit in. My oldest daughter also suspected it, as she has been a counselor at a camp for teenagers with T21 for the last four years and she would tell me that Emma Sage reminded her a lot of a few of the campers there that she knew had Mosaic. The main reason I started my blog was to be able to celebrate the unique person Emma Sage is without others on the T21 list I belonged to 'feel bad'. It seemd when she was younger and I would comment on what she was up to, it always turned into a thread where someone felt bad because their child was not doing those things.....so I stopped posting. So, basically that is how we came to be here. I have been trying to figure out how to share this new aspect of Emma Sage....on one hand, it doesn't make a difference, she is still the same sweet little girl I love and adore, but on the other hand, it would make sense to many others that have 'compared' through the years......and also, I think if I do share this aspect, it will make me feel like we really don't fit in.....Does that make senses? Any suggestions would be welcomed. And again, thank you for the warm welcome!!! Peace and love, Tara Marie & Emma Sage 7 years old/T21 and her siblings, Katrina 19, Greta 17 and Otto 12 http://www.emmasage.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Hi Tara Almost everyone here knows exactly what you are talking about! There are many who went through the same things when others " compared " their children and then they were made to feel bad when their child was not as delayed as the others! So, just to let you know, you are not alone in this! And, you are always welcome to share all your joys and milestones here and even all your concerns. We are not judgmental what-so-ever and we realize that there is such a broad spectrum with MDS that while one may be at one level the other could be doing something completely different! As for telling everyone.... I would just blog about the testing you did and how you discovered the MDS. Tell your readers how this information helps you to better understand what is going on with Emma and just write out your experience. Then, if you get comments and they aren't nice, feel free to email me and everyone here if you like, and we can help you with your answers! Great to have you here with us! Kristy Tara Marie wrote: Thank you all for the warm welcome and comments about our blog. I started the blog four years ago to share the 'normalacy of difference' with the world. My passion for photography and the love I have for my children were the catalyst for the blog. We just recently found out that Emma Sage has Mosaic T21. Her doctor was the one to suggest to have her karotyping done again, as the one from birth they were unable to gather much blood [Emma Sage was born unexpectedly at home and then we went to the hospital, I have her birth story on our blog] and they were only able to collect 7 cells, which they tested 3. Emma Sage has developed and grown very close to the typcial charts and has no significant delays in any area, so the doctor was curious as to the original test. I actually suspected that she was 'different' than most of the children/adults with T21 that I have met during our journey....and to tell you the truth, I have kinda felt like we 'didn't' fit in. My oldest daughter also suspected it, as she has been a counselor at a camp for teenagers with T21 for the last four years and she would tell me that Emma Sage reminded her a lot of a few of the campers there that she knew had Mosaic. The main reason I started my blog was to be able to celebrate the unique person Emma Sage is without others on the T21 list I belonged to 'feel bad'. It seemd when she was younger and I would comment on what she was up to, it always turned into a thread where someone felt bad because their child was not doing those things.....so I stopped posting. So, basically that is how we came to be here. I have been trying to figure out how to share this new aspect of Emma Sage....on one hand, it doesn't make a difference, she is still the same sweet little girl I love and adore, but on the other hand, it would make sense to many others that have 'compared' through the years......and also, I think if I do share this aspect, it will make me feel like we really don't fit in.....Does that make senses? Any suggestions would be welcomed. And again, thank you for the warm welcome!!! Peace and love, Tara Marie & Emma Sage 7 years old/T21 and her siblings, Katrina 19, Greta 17 and Otto 12 http://www.emmasage.blogspot.com Kristy Colvin IMDSA President ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa.org http://www.mosaicmoments.today.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 Tara, How old is Emma now? I think she is about 's age (9?) we have some very special girls here. Welcome to the IMDSA e-group. Darlene > Hi Everyone > We have a new family joining us this morning! Tara just found out that her > daughter Emma has MTDS instead of T21DS. She also has a blog about Emma! You > will have to go there and look at the great pictures! Emma is BEAUTIFUL!!! > http://www.emmasage.blogspot.com > > Welcome to our family Tara! I am so glad you have joined us! Please tell us > more about Emma and what brought you to this new diagnosis! Feel free to ask > any questions you have here! We will all be very happy to share our > experiences! > > Kristy > Mom to Arron 26, 23, Tim 22 MDS, Stevan 21 and Garrett 12 > > Kristy Colvin > IMDSA President > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > International Mosaic Down Syndrome Association > PH: > Toll Free: 1-888-MDS-LINK > http://www.imdsa.org > http://www.mosaicmoments.today.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 Thank you Darlene, She was seven in May [but she thinks she is a teenager as she has teenage sisters] I am looking forward to getting to know everyone. I started reading the personal stories sections on one of the links provided in my introduction. Peace and love, Tara Marie & Emma Sage 7 T21 and her siblings Katrina 19, Greta 17 and Otto 12 http://www.emmasage.blogspot.com > Hi Everyone > We have a new family joining us this morning! Tara just found out that her > daughter Emma has MTDS instead of T21DS. She also has a blog about Emma! You > will have to go there and look at the great pictures! Emma is BEAUTIFUL!!! > http://www.emmasage .blogspot. com > > Welcome to our family Tara! I am so glad you have joined us! Please tell us > more about Emma and what brought you to this new diagnosis! Feel free to ask > any questions you have here! We will all be very happy to share our > experiences! > > Kristy > Mom to Arron 26, 23, Tim 22 MDS, Stevan 21 and Garrett 12 > > Kristy Colvin > IMDSA President > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~ > International Mosaic Down Syndrome Association > PH: > Toll Free: 1-888-MDS-LINK > http://www.imdsa. org > http://www.mosaicmo ments.today. com > > Quote Link to comment Share on other sites More sharing options...
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