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HI Nina,

I'm not sure of the dose of seroquel that your mom is taking but how about

splitting up the dose? Half during the day and then the other half in the

evening. Mom was very sensitive to this med and we found that splitting the

dose did the trick, otherwise, she turned into a zombie,

Best to you all,

Courage

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  • 1 year later...
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Hi Everyone

Any suggestion to this problem will be greatly appreciated.

Adam has developed some severe behavior problems over the last few months. It

is growing continually worse as time goes by. He will have screaming tantrums

that last for 20 minutes. During this time he will hit and kick and also hit

himself, bang his head and scratch himself to the point of bleeding. We are

worried that he is going to hurt himself. I am sure communication is a big

issue because he seems frustrated at not being able to get his point across. He

also does this when he can't get his way. If he is in the car and you turn in a

direction he doesn't want to go, he is screaming, removing his seatbelt, etc.

We have made an appointment with a genetic specialist but that is not until

August 19th. His ped is useless, so she is no help. Adam's mom has tried

everything from time out to taking away favorite toys. Nothing works. We need

to get help before school starts. Has anyone else experienced this kind of

behavior?

Donna - gram to Adam 6 mds

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  • 1 year later...
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I think the last couple lines in your message is your best bet. Gluten can cause issues with or without celiac disease; also dairy. Use either flax oil or a very good olive oil for stool softening (maybe a teaspoon twice/three times a day. Also, magnesium (I like Kids Calm) will keep the stool soft.

Help!

My daughter (age 9) has had issues with chronic constipation since she was 3. She's been prescribed miralax a number of times although this is the first time we've had her on it for more than a few days. Foolishly, I was of the belief that fiber/water would be sufficient. Now she's having major soiling problems daily (started about 2 weeks after starting the miralax). She doesn't even feel it come out. She's also getting urinary tract infections rougly 1/month and one recently got up into her kidneys and did some minor damage. Because of the soiling, I've been pushing to find a cause so we can treat. I'm not a fan of having her on any stool softener/laxative long term. We've ruled out neurological issues, nerve damage, anatomical defects in the intestines, celiac disease (at least she tested negative in the tests). The only thing the tests show so far is mild anemia. Her BUN/Creatinine was 41 so need to follow up with her reg. pediatrician. In other words, there is nothing wrong with her except that she poops in her pants without being aware of it and has tacky sticky bowel movements that even I have a hard time getting cleaned up. She ought to have lots of fun when school starts up. One of the tests was a barium enema that did a good job of cleaning out a lot of the backed up stool. However, by the following day, problems got worse and remained that way for about a week. Then we were right back where we started. Even though she has at least 1 bowel movement daily, her intestines are packed with stool. Have any of you experienced this with your children? Any suggestions? I'm tempted to put her on a gluten free diet for a couple of weeks even though she tested negative for Celiac, but would appreciate any other suggestions.Thank you.

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Find a good chiro certfied to trat children that has a lot of pediatric

patients. Icpa international chiro pediatrics association. Get a free eval to

see what is going on in the sacrum. Probability is very high. getting that

back in place will help a ton. Sorry for typo i am on my cell

Re: Help!

I know that this doesn't help you, but this is exactly what I am going through

with my son since he was little!!!! There is someone else out there that has

the same troubles. We have to throw undies out since the stool eats the back

out of them. Gross I know, but if nothing else that shows a problem.

>

> My daughter (age 9) has had issues with chronic constipation since she was 3.

She's been prescribed miralax a number of times although this is the first time

we've had her on it for more than a few days. Foolishly, I was of the belief

that fiber/water would be sufficient. Now she's having major soiling problems

daily (started about 2 weeks after starting the miralax). She doesn't even feel

it come out. She's also getting urinary tract infections rougly 1/month and one

recently got up into her kidneys and did some minor damage. Because of the

soiling, I've been pushing to find a cause so we can treat. I'm not a fan of

having her on any stool softener/laxative long term. We've ruled out

neurological issues, nerve damage, anatomical defects in the intestines, celiac

disease (at least she tested negative in the tests). The only thing the tests

show so far is mild anemia. Her BUN/Creatinine was 41 so need to follow up with

her reg. pediatrician. In other words, there is nothing wrong with her except

that she poops in her pants without being aware of it and has tacky sticky bowel

movements that even I have a hard time getting cleaned up. She ought to have

lots of fun when school starts up.

>

> One of the tests was a barium enema that did a good job of cleaning out a lot

of the backed up stool. However, by the following day, problems got worse and

remained that way for about a week. Then we were right back where we started.

Even though she has at least 1 bowel movement daily, her intestines are packed

with stool. Have any of you experienced this with your children? Any

suggestions? I'm tempted to put her on a gluten free diet for a couple of weeks

even though she tested negative for Celiac, but would appreciate any other

suggestions.

>

> Thank you.

>

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I know that this doesn't help you, but this is exactly what I am going through

with my son since he was little!!!! There is someone else out there that has

the same troubles. We have to throw undies out since the stool eats the back

out of them. Gross I know, but if nothing else that shows a problem.

>

> My daughter (age 9) has had issues with chronic constipation since she was 3.

She's been prescribed miralax a number of times although this is the first time

we've had her on it for more than a few days. Foolishly, I was of the belief

that fiber/water would be sufficient. Now she's having major soiling problems

daily (started about 2 weeks after starting the miralax). She doesn't even feel

it come out. She's also getting urinary tract infections rougly 1/month and one

recently got up into her kidneys and did some minor damage. Because of the

soiling, I've been pushing to find a cause so we can treat. I'm not a fan of

having her on any stool softener/laxative long term. We've ruled out

neurological issues, nerve damage, anatomical defects in the intestines, celiac

disease (at least she tested negative in the tests). The only thing the tests

show so far is mild anemia. Her BUN/Creatinine was 41 so need to follow up with

her reg. pediatrician. In other words, there is nothing wrong with her except

that she poops in her pants without being aware of it and has tacky sticky bowel

movements that even I have a hard time getting cleaned up. She ought to have

lots of fun when school starts up.

>

> One of the tests was a barium enema that did a good job of cleaning out a lot

of the backed up stool. However, by the following day, problems got worse and

remained that way for about a week. Then we were right back where we started.

Even though she has at least 1 bowel movement daily, her intestines are packed

with stool. Have any of you experienced this with your children? Any

suggestions? I'm tempted to put her on a gluten free diet for a couple of weeks

even though she tested negative for Celiac, but would appreciate any other

suggestions.

>

> Thank you.

>

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My son use to have stains in his underwear from the time he was 2 until a year ago. I can't say it enough, but the olive oil, Benefiber combination has beat that problem. Deanna

To: miralax Sent: Tuesday, July 28, 2009 6:37:20 AMSubject: Re: Help!

I think the last couple lines in your message is your best bet. Gluten can cause issues with or without celiac disease; also dairy. Use either flax oil or a very good olive oil for stool softening (maybe a teaspoon twice/three times a day. Also, magnesium (I like Kids Calm) will keep the stool soft.

Help!

My daughter (age 9) has had issues with chronic constipation since she was 3. She's been prescribed miralax a number of times although this is the first time we've had her on it for more than a few days. Foolishly, I was of the belief that fiber/water would be sufficient. Now she's having major soiling problems daily (started about 2 weeks after starting the miralax). She doesn't even feel it come out. She's also getting urinary tract infections rougly 1/month and one recently got up into her kidneys and did some minor damage. Because of the soiling, I've been pushing to find a cause so we can treat. I'm not a fan of having her on any stool softener/laxative long term. We've ruled out neurological issues, nerve damage, anatomical defects in the intestines, celiac disease (at least she tested negative in the tests). The only thing the tests show so far is mild anemia. Her BUN/Creatinine was 41 so need to follow up with her reg. pediatrician. In other

words, there is nothing wrong with her except that she poops in her pants without being aware of it and has tacky sticky bowel movements that even I have a hard time getting cleaned up. She ought to have lots of fun when school starts up. One of the tests was a barium enema that did a good job of cleaning out a lot of the backed up stool. However, by the following day, problems got worse and remained that way for about a week. Then we were right back where we started. Even though she has at least 1 bowel movement daily, her intestines are packed with stool. Have any of you experienced this with your children? Any suggestions? I'm tempted to put her on a gluten free diet for a couple of weeks even though she tested negative for Celiac, but would appreciate any other suggestions.Thank you.

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I'd get her off. This medication causes urinary refulx where the urine goes back up into the kidney's the burning stinging and itching is caused from the oxalate crystals that the PEG breaks down into. Read the FDA adverse reactions in the files section. This happened to MANY of us here and we're glad you found us! The soiling still happens to my dd 10 years later and she develped tics and It crosses the blood barrier of the brain in which I believe it caused brain damage. Have you doc or a obgyn look under a microscope that's all it takes, I guarantee they're there!

Jeanie

Subject: Help!To: miralax Date: Tuesday, July 28, 2009, 8:46 AM

My daughter (age 9) has had issues with chronic constipation since she was 3. She's been prescribed miralax a number of times although this is the first time we've had her on it for more than a few days. Foolishly, I was of the belief that fiber/water would be sufficient. Now she's having major soiling problems daily (started about 2 weeks after starting the miralax). She doesn't even feel it come out. She's also getting urinary tract infections rougly 1/month and one recently got up into her kidneys and did some minor damage. Because of the soiling, I've been pushing to find a cause so we can treat. I'm not a fan of having her on any stool softener/laxative long term. We've ruled out neurological issues, nerve damage, anatomical defects in the intestines, celiac disease (at least she tested negative in the tests). The only thing the tests show so far is mild anemia. Her BUN/Creatinine was 41 so need to follow up with her reg. pediatrician. In other

words, there is nothing wrong with her except that she poops in her pants without being aware of it and has tacky sticky bowel movements that even I have a hard time getting cleaned up. She ought to have lots of fun when school starts up. One of the tests was a barium enema that did a good job of cleaning out a lot of the backed up stool. However, by the following day, problems got worse and remained that way for about a week. Then we were right back where we started. Even though she has at least 1 bowel movement daily, her intestines are packed with stool. Have any of you experienced this with your children? Any suggestions? I'm tempted to put her on a gluten free diet for a couple of weeks even though she tested negative for Celiac, but would appreciate any other suggestions.Thank you.

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Diet is the key, fruits and veggies or benefiber and olive oil

Subject: Re: Help!To: miralax Date: Wednesday, July 29, 2009, 12:21 AM

My son use to have stains in his underwear from the time he was 2 until a year ago. I can't say it enough, but the olive oil, Benefiber combination has beat that problem. Deanna

To: miralax@yahoogroups .comSent: Tuesday, July 28, 2009 6:37:20 AMSubject: Re: Help!

I think the last couple lines in your message is your best bet. Gluten can cause issues with or without celiac disease; also dairy. Use either flax oil or a very good olive oil for stool softening (maybe a teaspoon twice/three times a day. Also, magnesium (I like Kids Calm) will keep the stool soft.

Help!

My daughter (age 9) has had issues with chronic constipation since she was 3. She's been prescribed miralax a number of times although this is the first time we've had her on it for more than a few days. Foolishly, I was of the belief that fiber/water would be sufficient. Now she's having major soiling problems daily (started about 2 weeks after starting the miralax). She doesn't even feel it come out. She's also getting urinary tract infections rougly 1/month and one recently got up into her kidneys and did some minor damage. Because of the soiling, I've been pushing to find a cause so we can treat. I'm not a fan of having her on any stool softener/laxative long term. We've ruled out neurological issues, nerve damage, anatomical defects in the intestines, celiac disease (at least she tested negative in the tests). The only thing the tests show so far is mild anemia. Her BUN/Creatinine was 41 so need to follow up with her reg. pediatrician. In other

words, there is nothing wrong with her except that she poops in her pants without being aware of it and has tacky sticky bowel movements that even I have a hard time getting cleaned up. She ought to have lots of fun when school starts up. One of the tests was a barium enema that did a good job of cleaning out a lot of the backed up stool. However, by the following day, problems got worse and remained that way for about a week. Then we were right back where we started. Even though she has at least 1 bowel movement daily, her intestines are packed with stool. Have any of you experienced this with your children? Any suggestions? I'm tempted to put her on a gluten free diet for a couple of weeks even though she tested negative for Celiac, but would appreciate any other suggestions.Thank you.

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