Guest guest Posted May 17, 2007 Report Share Posted May 17, 2007 HI Nina, I'm not sure of the dose of seroquel that your mom is taking but how about splitting up the dose? Half during the day and then the other half in the evening. Mom was very sensitive to this med and we found that splitting the dose did the trick, otherwise, she turned into a zombie, Best to you all, Courage Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2008 Report Share Posted July 19, 2008 Hi Everyone Any suggestion to this problem will be greatly appreciated. Adam has developed some severe behavior problems over the last few months. It is growing continually worse as time goes by. He will have screaming tantrums that last for 20 minutes. During this time he will hit and kick and also hit himself, bang his head and scratch himself to the point of bleeding. We are worried that he is going to hurt himself. I am sure communication is a big issue because he seems frustrated at not being able to get his point across. He also does this when he can't get his way. If he is in the car and you turn in a direction he doesn't want to go, he is screaming, removing his seatbelt, etc. We have made an appointment with a genetic specialist but that is not until August 19th. His ped is useless, so she is no help. Adam's mom has tried everything from time out to taking away favorite toys. Nothing works. We need to get help before school starts. Has anyone else experienced this kind of behavior? Donna - gram to Adam 6 mds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2009 Report Share Posted July 28, 2009 I think the last couple lines in your message is your best bet. Gluten can cause issues with or without celiac disease; also dairy. Use either flax oil or a very good olive oil for stool softening (maybe a teaspoon twice/three times a day. Also, magnesium (I like Kids Calm) will keep the stool soft. Help! My daughter (age 9) has had issues with chronic constipation since she was 3. She's been prescribed miralax a number of times although this is the first time we've had her on it for more than a few days. Foolishly, I was of the belief that fiber/water would be sufficient. Now she's having major soiling problems daily (started about 2 weeks after starting the miralax). She doesn't even feel it come out. She's also getting urinary tract infections rougly 1/month and one recently got up into her kidneys and did some minor damage. Because of the soiling, I've been pushing to find a cause so we can treat. I'm not a fan of having her on any stool softener/laxative long term. We've ruled out neurological issues, nerve damage, anatomical defects in the intestines, celiac disease (at least she tested negative in the tests). The only thing the tests show so far is mild anemia. Her BUN/Creatinine was 41 so need to follow up with her reg. pediatrician. In other words, there is nothing wrong with her except that she poops in her pants without being aware of it and has tacky sticky bowel movements that even I have a hard time getting cleaned up. She ought to have lots of fun when school starts up. One of the tests was a barium enema that did a good job of cleaning out a lot of the backed up stool. However, by the following day, problems got worse and remained that way for about a week. Then we were right back where we started. Even though she has at least 1 bowel movement daily, her intestines are packed with stool. Have any of you experienced this with your children? Any suggestions? I'm tempted to put her on a gluten free diet for a couple of weeks even though she tested negative for Celiac, but would appreciate any other suggestions.Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2009 Report Share Posted July 28, 2009 Find a good chiro certfied to trat children that has a lot of pediatric patients. Icpa international chiro pediatrics association. Get a free eval to see what is going on in the sacrum. Probability is very high. getting that back in place will help a ton. Sorry for typo i am on my cell Re: Help! I know that this doesn't help you, but this is exactly what I am going through with my son since he was little!!!! There is someone else out there that has the same troubles. We have to throw undies out since the stool eats the back out of them. Gross I know, but if nothing else that shows a problem. > > My daughter (age 9) has had issues with chronic constipation since she was 3. She's been prescribed miralax a number of times although this is the first time we've had her on it for more than a few days. Foolishly, I was of the belief that fiber/water would be sufficient. Now she's having major soiling problems daily (started about 2 weeks after starting the miralax). She doesn't even feel it come out. She's also getting urinary tract infections rougly 1/month and one recently got up into her kidneys and did some minor damage. Because of the soiling, I've been pushing to find a cause so we can treat. I'm not a fan of having her on any stool softener/laxative long term. We've ruled out neurological issues, nerve damage, anatomical defects in the intestines, celiac disease (at least she tested negative in the tests). The only thing the tests show so far is mild anemia. Her BUN/Creatinine was 41 so need to follow up with her reg. pediatrician. In other words, there is nothing wrong with her except that she poops in her pants without being aware of it and has tacky sticky bowel movements that even I have a hard time getting cleaned up. She ought to have lots of fun when school starts up. > > One of the tests was a barium enema that did a good job of cleaning out a lot of the backed up stool. However, by the following day, problems got worse and remained that way for about a week. Then we were right back where we started. Even though she has at least 1 bowel movement daily, her intestines are packed with stool. Have any of you experienced this with your children? Any suggestions? I'm tempted to put her on a gluten free diet for a couple of weeks even though she tested negative for Celiac, but would appreciate any other suggestions. > > Thank you. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2009 Report Share Posted July 28, 2009 I know that this doesn't help you, but this is exactly what I am going through with my son since he was little!!!! There is someone else out there that has the same troubles. We have to throw undies out since the stool eats the back out of them. Gross I know, but if nothing else that shows a problem. > > My daughter (age 9) has had issues with chronic constipation since she was 3. She's been prescribed miralax a number of times although this is the first time we've had her on it for more than a few days. Foolishly, I was of the belief that fiber/water would be sufficient. Now she's having major soiling problems daily (started about 2 weeks after starting the miralax). She doesn't even feel it come out. She's also getting urinary tract infections rougly 1/month and one recently got up into her kidneys and did some minor damage. Because of the soiling, I've been pushing to find a cause so we can treat. I'm not a fan of having her on any stool softener/laxative long term. We've ruled out neurological issues, nerve damage, anatomical defects in the intestines, celiac disease (at least she tested negative in the tests). The only thing the tests show so far is mild anemia. Her BUN/Creatinine was 41 so need to follow up with her reg. pediatrician. In other words, there is nothing wrong with her except that she poops in her pants without being aware of it and has tacky sticky bowel movements that even I have a hard time getting cleaned up. She ought to have lots of fun when school starts up. > > One of the tests was a barium enema that did a good job of cleaning out a lot of the backed up stool. However, by the following day, problems got worse and remained that way for about a week. Then we were right back where we started. Even though she has at least 1 bowel movement daily, her intestines are packed with stool. Have any of you experienced this with your children? Any suggestions? I'm tempted to put her on a gluten free diet for a couple of weeks even though she tested negative for Celiac, but would appreciate any other suggestions. > > Thank you. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2009 Report Share Posted July 28, 2009 My son use to have stains in his underwear from the time he was 2 until a year ago. I can't say it enough, but the olive oil, Benefiber combination has beat that problem. Deanna To: miralax Sent: Tuesday, July 28, 2009 6:37:20 AMSubject: Re: Help! I think the last couple lines in your message is your best bet. Gluten can cause issues with or without celiac disease; also dairy. Use either flax oil or a very good olive oil for stool softening (maybe a teaspoon twice/three times a day. Also, magnesium (I like Kids Calm) will keep the stool soft. Help! My daughter (age 9) has had issues with chronic constipation since she was 3. She's been prescribed miralax a number of times although this is the first time we've had her on it for more than a few days. Foolishly, I was of the belief that fiber/water would be sufficient. Now she's having major soiling problems daily (started about 2 weeks after starting the miralax). She doesn't even feel it come out. She's also getting urinary tract infections rougly 1/month and one recently got up into her kidneys and did some minor damage. Because of the soiling, I've been pushing to find a cause so we can treat. I'm not a fan of having her on any stool softener/laxative long term. We've ruled out neurological issues, nerve damage, anatomical defects in the intestines, celiac disease (at least she tested negative in the tests). The only thing the tests show so far is mild anemia. Her BUN/Creatinine was 41 so need to follow up with her reg. pediatrician. In other words, there is nothing wrong with her except that she poops in her pants without being aware of it and has tacky sticky bowel movements that even I have a hard time getting cleaned up. She ought to have lots of fun when school starts up. One of the tests was a barium enema that did a good job of cleaning out a lot of the backed up stool. However, by the following day, problems got worse and remained that way for about a week. Then we were right back where we started. Even though she has at least 1 bowel movement daily, her intestines are packed with stool. Have any of you experienced this with your children? Any suggestions? I'm tempted to put her on a gluten free diet for a couple of weeks even though she tested negative for Celiac, but would appreciate any other suggestions.Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 I'd get her off. This medication causes urinary refulx where the urine goes back up into the kidney's the burning stinging and itching is caused from the oxalate crystals that the PEG breaks down into. Read the FDA adverse reactions in the files section. This happened to MANY of us here and we're glad you found us! The soiling still happens to my dd 10 years later and she develped tics and It crosses the blood barrier of the brain in which I believe it caused brain damage. Have you doc or a obgyn look under a microscope that's all it takes, I guarantee they're there! Jeanie Subject: Help!To: miralax Date: Tuesday, July 28, 2009, 8:46 AM My daughter (age 9) has had issues with chronic constipation since she was 3. She's been prescribed miralax a number of times although this is the first time we've had her on it for more than a few days. Foolishly, I was of the belief that fiber/water would be sufficient. Now she's having major soiling problems daily (started about 2 weeks after starting the miralax). She doesn't even feel it come out. She's also getting urinary tract infections rougly 1/month and one recently got up into her kidneys and did some minor damage. Because of the soiling, I've been pushing to find a cause so we can treat. I'm not a fan of having her on any stool softener/laxative long term. We've ruled out neurological issues, nerve damage, anatomical defects in the intestines, celiac disease (at least she tested negative in the tests). The only thing the tests show so far is mild anemia. Her BUN/Creatinine was 41 so need to follow up with her reg. pediatrician. In other words, there is nothing wrong with her except that she poops in her pants without being aware of it and has tacky sticky bowel movements that even I have a hard time getting cleaned up. She ought to have lots of fun when school starts up. One of the tests was a barium enema that did a good job of cleaning out a lot of the backed up stool. However, by the following day, problems got worse and remained that way for about a week. Then we were right back where we started. Even though she has at least 1 bowel movement daily, her intestines are packed with stool. Have any of you experienced this with your children? Any suggestions? I'm tempted to put her on a gluten free diet for a couple of weeks even though she tested negative for Celiac, but would appreciate any other suggestions.Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 Diet is the key, fruits and veggies or benefiber and olive oil Subject: Re: Help!To: miralax Date: Wednesday, July 29, 2009, 12:21 AM My son use to have stains in his underwear from the time he was 2 until a year ago. I can't say it enough, but the olive oil, Benefiber combination has beat that problem. Deanna To: miralax@yahoogroups .comSent: Tuesday, July 28, 2009 6:37:20 AMSubject: Re: Help! I think the last couple lines in your message is your best bet. Gluten can cause issues with or without celiac disease; also dairy. Use either flax oil or a very good olive oil for stool softening (maybe a teaspoon twice/three times a day. Also, magnesium (I like Kids Calm) will keep the stool soft. Help! My daughter (age 9) has had issues with chronic constipation since she was 3. She's been prescribed miralax a number of times although this is the first time we've had her on it for more than a few days. Foolishly, I was of the belief that fiber/water would be sufficient. Now she's having major soiling problems daily (started about 2 weeks after starting the miralax). She doesn't even feel it come out. She's also getting urinary tract infections rougly 1/month and one recently got up into her kidneys and did some minor damage. Because of the soiling, I've been pushing to find a cause so we can treat. I'm not a fan of having her on any stool softener/laxative long term. We've ruled out neurological issues, nerve damage, anatomical defects in the intestines, celiac disease (at least she tested negative in the tests). The only thing the tests show so far is mild anemia. Her BUN/Creatinine was 41 so need to follow up with her reg. pediatrician. In other words, there is nothing wrong with her except that she poops in her pants without being aware of it and has tacky sticky bowel movements that even I have a hard time getting cleaned up. She ought to have lots of fun when school starts up. One of the tests was a barium enema that did a good job of cleaning out a lot of the backed up stool. However, by the following day, problems got worse and remained that way for about a week. Then we were right back where we started. Even though she has at least 1 bowel movement daily, her intestines are packed with stool. Have any of you experienced this with your children? Any suggestions? I'm tempted to put her on a gluten free diet for a couple of weeks even though she tested negative for Celiac, but would appreciate any other suggestions.Thank you. Quote Link to comment Share on other sites More sharing options...
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