Re: Prescription meds and Shoemaker

[Guest guest]

No, he does not.

> From: dianebolton52 <dianebolton@...>

> Subject: [] Prescription meds and Shoemaker

>

> Date: Thursday, September 25, 2008, 11:41 AM

> I read all these posts about Dr. Shoemakers protocal with

> much interest

> because I am considering seeing him. I do see however that

> so many of

> you are having trouble with his protocal. My body (liver

> specifically)

> does not do well with presciption medication, therefore I

> dont know if

> I should even bother to go to land. I have pretty much

> done a

> holistic protocal in Dallas. If you cannot tolerate Dr.

> Shoemakers

> meds, does he have an alternative treatment?? Thanks-

[Guest guest]

If I were you I would try it yourself.

I hate to say this, and I am sure that there are people who get

constipated, etc, from cholestyramine,

but also, these days, one who has enough money can also pay firms to

hire people to cast doubt -

On Thu, Sep 25, 2008 at 12:41 PM, dianebolton52 <dianebolton@...> wrote:

> I read all these posts about Dr. Shoemakers protocal with much interest

> because I am considering seeing him. I do see however that so many of

> you are having trouble with his protocal. My body (liver specifically)

> does not do well with presciption medication, therefore I dont know if

> I should even bother to go to land. I have pretty much done a

> holistic protocal in Dallas. If you cannot tolerate Dr. Shoemakers

> meds, does he have an alternative treatment?? Thanks-

>

[Guest guest]

I could not tolerate the CSM, had a very bad reaction to it. The only other

mediation he

uses, which he says does not work well is welchor. I cannot take welchor

because of my

trigliceride levels which elevated to dangerous levels using the CSM. If

constipation was

the only reaction I had to CSM, I could have dealt with it.

So, no, he doesn't have anything else to use except what I just explained. He

would have

offered it.

I am not paid by anyone to cast doubts and have the medical bills to prove it.

>

> I read all these posts about Dr. Shoemakers protocal with much interest

> because I am considering seeing him. I do see however that so many of

> you are having trouble with his protocal. My body (liver specifically)

> does not do well with presciption medication, therefore I dont know if

> I should even bother to go to land. I have pretty much done a

> holistic protocal in Dallas. If you cannot tolerate Dr. Shoemakers

> meds, does he have an alternative treatment?? Thanks-

>

[Guest guest]

cast dought about what? Live, weither or not you can get constipated,

or weither or not you can tolerate it.

casting dought, interesting you brought that up Live. dought can work

2 ways.

--- In , LiveSimply <quackadillian@...>

wrote:

>

> If I were you I would try it yourself.

>

> I hate to say this, and I am sure that there are people who get

> constipated, etc, from cholestyramine,

> but also, these days, one who has enough money can also pay firms to

> hire people to cast doubt -

>

[Guest guest]

Aren't people allowed to tell the truth on this forum? Is anyone allowed to say

that Dr.

Shoemaker's treatment did not work for them? If not, then why not?

Different treatments work for different people and vice versa. This is pretty

standard in

the medical field whether you are dealing with a controversal subject as mold

sickness or

more common problems like broken bones.

I see some people posting on here who have been to Dr. Shoemaker with success

and I

see others recommend and post Dr. Shoemaker's name who have never been treated

by

him. I see other's never mention his name.

Livesimply, have you been TREATED by Dr. Shoemaker?

> >

> > If I were you I would try it yourself.

> >

> > I hate to say this, and I am sure that there are people who get

> > constipated, etc, from cholestyramine,

> > but also, these days, one who has enough money can also pay firms to

> > hire people to cast doubt -

> >

>

[Guest guest]

I dont know what all this talk is aboput casting doubt is but I guess I am going

to cast some questions that need to be answered. I will doubt they will be

answered by those who could because they are not getting paid to share with any

of us to give the answers we seek.

I would state that there has been statements made about people who have an

ongoing colonization and dont know it and/or are not being told how to find out.

These people are takeing CSM which again I understand is " pissing in the wind "

so to speak but in reality makeing things worse and possibly causing more

damage. That may or may not be why some can tolerate it and cannot?? This is one

of those things no one seems to talk abnout, bring up or tell the truth about

and I for one am tired of keeping my mouth shut.

I feel there is being a great deal of dishonor by some in this field about this

question and its all about money. Yup, money.

Thats all I have to say about this for now but chew that up for awhile and think

about it while you attempt to blow bubbles...

 

Chris...

 

 

 

 

 

[Guest guest]

Due to gut inflamation I couldn't tolerate the tiny fibers of CSM and

couldn't hold it down basically. They still irritate my throat alot

which concerns me since I have had constant sore throat after

inhaling, apparently, attic insulation here, so my throat is easily

irritated. However, a year later when I started to feel better I

tried it for a skin rash I suspected was liver connected due to it's

characteristics and tried the CSM and was okay with it. By the time

I finished that can of CSM a year had gone by and I couldn't get

another can of CSM because Dr Shoe needs to see you at least once a

year I was told, so I couldn't get it. However point is that it can

be hard on the gut if gut is in bad shape.

I found a doctor I can get it from now that is here but I only take

it when I have certain symptoms due to the irritation it causes my

throat.

I was also accused at the time of somehow being here for the sole

purpose of disparaging Dr Shoe by one member. I think it is only one

member. Noone else in the group was critical of my post though, so I

don't think there is any ban of saying that.

>

> I could not tolerate the CSM, had a very bad reaction to it. The

only other mediation he

>

[Guest guest]

I would like to take a moment to put in my two cents worth. We are a

community banded together by this horrible affliction, whose goal is

ultimately recovery while sharing information (good and bad) as we

learn it. I have no doubt there are those out there who are paid to

stir up controversy and create chasms within our communities in an

effort to stop the truth (look at all the sick manipulations and games

Dr. Shoe has undergone for our cause.) We are not stupid people - we

all have the intelligence to research anything that may harm or help

us - I don't think any of us just " go along " with the general

concensus. The one thing we can't afford to do is allow any person or

entity to cause a divide in our community - the only way we can succeed

is to work together for the common good. Maybe I'm too paranoid, but

in so many ways, it's " us versus them. " Sincerely,

> >

> > If I were you I would try it yourself.

> >

> > I hate to say this, and I am sure that there are people who get

> > constipated, etc, from cholestyramine,

> > but also, these days, one who has enough money can also pay firms to

> > hire people to cast doubt -

> >

>

[Guest guest]

So after you could not tolerate the CSM, did you contact his office?

>

> Due to gut inflamation I couldn't tolerate the tiny fibers of CSM and

> couldn't hold it down basically.

[Guest guest]

exactly, I tried to get those who's read Shoemalers book to answer

questions because I can't see to read the pages, I also cant see nuch

on his site because of light sensitivity and I told him that when I

was there. this hasn't been easy for me, when I first came to this

group I couldn't get any answers, just everyone saying " go to

Shoemaker " thats why I started researching and if anyone thinks that

came easy for me they are wrong. now I purposely didn't bring up much

on the allergy part because we were fighting to get mycotoxin

exposure reconized, but you really have to look at it all together

and so should our doctors. I have total allergic

syndrome/mcs/intolerances and toxic encephalopathy, and I don't agree

that TE and MCS are the same thing because they don't cover all the

same organ damage. I also may be colonized and at this point I've

heard enough about lamisil that I'd be interested in trying it.

anything that helps, and I try to post a verity of info. for how ever

wants to read it. the MHC/HLA is a deep complacated subject, I've

read that it's role is less than 50 percent involvement in

contributing to this illness, no dought it also depends on what types

and how many of the dreaded types you have, but b cells are not the

only cells that reconize foreign invaders. and t cells make those

desisions, and I just posted a article about how glucan with Candida

A. basicly stops t cells from activating. so theres obviously many

things that can happen here. I was exposed in my first home to what I

very much believe was straight mycotoxins, mainly, and it was much

different than in my second home where no dought bacteria and many

tyoes of allergy causeing molds, chemicals, and some very toxic

mycotoxins were. how these exposures effect us is basicly dependent

on what were exposed to and how much. people that didn't get their

guts ripped out may be able to tolerate csm, others may not,

allergies and intolerances can interfer. we can all learn much from

each other. like I said I respect Dr. Shoemaker and what he does, I

understand he's probably had some nut's in there and probably some

there fore other purposes and maybe he's developed his attitude to

weed out those types, however I've been through hell myself and even

though in retrospect I understand his attitude, however he still made

me cry and I cry when I get angry. after 6+ years of bs, I was

finally going to see a doctor that understood the illness, and if you

think it was easy getting there with my lawyer,think again. now I

didn't expect to get drilled and after the trip there I wasn't in the

shape to play 20 questions, my mind wasn't connecting and even when I

fell decent my mind can not quickly bring up those answers, it's

called delayed thought process. now I realize Dr. Shpemaker knew this

and did this for a reason, I have no problem with that. am I upset

that I drug my butt there and still have no med's to help me? hell

yes.

as far as Shoemakers testing, it's a part of what I am dealing with

and was good to have done.

[Guest guest]

Good discussion. I read Dr. Shoemaker's book, it was very good. I am

sure I have the genetic problem. The thing I have always wondered and

was afraid to talk about is it seems like those taking this medication

take it for ever. I don't think I could stand it for a short period and

some here have taken it for five years or longer. I know Dr. Shoemaker

and Dr. Johanning have done a lot of good for people sick. I tried Dr.

Johanning and he resigned right after my long journey, all the tests,

and still didn't get treatment. At this point I suppose it is too late.

My main problem as far as I know is the candida. They said I had

systematic fungal disease and have the chemical problem. I have moved

so many times trying to get safe. I do eat oatmeal most days and it has

helped with constipation. We are all different and most don't have the

money for these doctors after a while. You would think someone would be

interested in testing all of us just for research and proof of the

general similarities. I did try anti fungals after a long journey

trying to get a doctor to prescribe them, I took Diflican, had sinus

surgury, did all asthma medications, tried allergy shots, candida diet.

Just giving my opinion, I respect these doctors and the people here.

[Guest guest]

,

Have you tried Aloe Vera Gel or pomegranate juice? Several times a day.

Both seem to be helping a lot for me. The aloe vera gel is cheap.

Around $11/gallon.

I buy the aloe vera gel by the gallon and keep it in the fridge. It

doesn't have any added sugar.

It lasts a long time.

The pomegranate juice also made an immediate difference I could feel.

We are looking for a cheaper

source for it. It really is a very strong antifungal/phytonutrient.

But its around $7 for a quart,

which only lasts three or four days.. I am going to try to find concentrate...

Also, quercetin is very good. Its also pretty inexpensive, if you can

buy the raw

powder and vegetable gelatin capsules to make capsules yourself.

Buying vitamins at retail vitamin stores will make you poor quickly,

the mark up is huge.

I think I will probably be taking cholestyramine for a long time. The

climate where I live now

has mold in the air during the fall and late summer. Ive read that as

the weather gets warmer,

mold becomes more of a problem in any given area. At various times of

great natural change,

mold has basically taken over the Earth for long periods. Google " fungal spike "

[Guest guest]

Hey Live, I just noticed something thst I have to ask you. I noticed on this

post that everyone on the board gets already, that you are forwarding the same

message to others on the board as if they will not recieve it already. I dont

mean to put my nose where it does not belong but I am curious to your reasoning

for this.

Again just wondering why the repetativeness.

 

 

 

 

 

[Guest guest]

Thanks Live, Interesting, I have not tried these the juice, etc. I

have been drinking the cranbury no sugar juice but I will check out the

pomegranate juice. I was wondering if any one has checked out this

pearl acedifilis (spell) that they have been advertising on tv? It is a

probiotic ( I think that is what you call it).

--- In , LiveSimply <quackadillian@...>

wrote:

>

> ,

>

> Have you tried Aloe Vera Gel or pomegranate juice? Several times a

day.

> Both seem to be helping a lot for me. The aloe vera gel is cheap.

>

[Guest guest]

As far as probiotics The best I have ever used and still do which is much better

than the pearls. (I gave those to my dogs) is what is called Jerodophalus. I

have thrown the box out so the spelling might be wrong. Nope here it is.

" Jarro-Dophilus " I think I get it from www.newlifevitamins.com I will check that

but is is very in-expensive, like 15.00 for a dox of 90 or something like that.

A doctor in Atlanta recomended them to me. Check em out. Really,

http://www.newlifevitamins.com/jd_geninfo.shtml

Chris...

 

 

 

 

 

[Guest guest]

acidophillus?

That is a general term that refers to a broad class of beneficial

bacteria that dwell in the GI tract and help us digest food..They are

used to make yogurt, kefir, etc. They also are sold as supplements..

" probiotics " . There are many different species.. lactobacillus,

bifudus, etc. (I think the spelling is right on most of these but it

might not be)

Aloe vera gel isn't a probiotic, its the juice of the aloe vera plant

- it contains many different things. I think the best thing for me to

do is point you towards PubMed and encourage you to type in " aloe

vera " or " aloe vera gel " as a search term and then scan the abstracts

of the papers that you see that have interesting titles.. It has a

number of interesting properties ..It helps heal the GI tract and

supports the beneficial microorganisms as well as killing some of the

bad ones.. Its highly antiinflammatory.

Pomegranate has a similar, highly beneficial profile of benefits.. in

some respects they are similar to blueberries..blueberry juice.. I

know very little about cranberry juice in that context.. except that

people have been using it against yeast for a very long time.. Its

probably similar in many respects.. You can also search on ellagic

acid, one of the ingredients in pomegranate.

Quercetin, which occurs in many of these fruit contexts, is also very

highly beneficial in many diseases. Its highly antiinflammatory.. It

occurs in apples and many other fruits.

On Sat, Sep 27, 2008 at 1:23 PM, ldelp84227 <ldelp84227@...> wrote:

> Thanks Live, Interesting, I have not tried these the juice, etc. I

> have been drinking the cranbury no sugar juice but I will check out the

> pomegranate juice. I was wondering if any one has checked out this

> pearl acedifilis (spell) that they have been advertising on tv? It is a

> probiotic ( I think that is what you call it).

>

>

>>

>> ,

>>

>> Have you tried Aloe Vera Gel or pomegranate juice? Several times a

> day.

>> Both seem to be helping a lot for me. The aloe vera gel is cheap.

>>

>

>

[Guest guest]

Smeco. Sorry. I did not see your post.

Re: calling Dr Shoe about my intolerance. No, I didn't. I thought it

was heart of his program and used to thing not working for me, also not

even sure it was mold or toxic mold. I knew it was coming from my own

house and hadn't found out what it was at that time. Indoor air people

couldn't find anything wrong with air. Eventually found that air was

leaking down from attic so it was probably mixture of mold, bacteria,

breathing in dirty insulation. Long story, won't go into it, but to

answer your question, no, I didn't call him about it. I much later had

a very bad burning rash I couldn't get rid of and so tried it and I

tolerated it okay and rash seemed to respond, so I used the can and

when I went for refill, a year had passed and couldn't get it. Now I

have a doctor who has filled a Rx for me a couple of times.

> >

> > Due to gut inflamation I couldn't tolerate the tiny fibers of CSM

and

> > couldn't hold it down basically.

>

[Guest guest]

Dr Tiedlebaum treats chronic fatigue syndrome with antifungals and

says he has much success. He said he got interested in it because he

had it and cured himself. Unfortunately he charges a small fortune

to see patients since he makes more money on his speaking

engagements, book and products now. However he gives test online

questionaire and then for a rather small fee gives a 'plan' that is

advised by input of your answers but includes antifungals frequently

that then doctor has to prescribe for you. I've always felt I had

fungal infection on some level and that's another reason I don't feel

like anyone has really got to what I think is needed but then maybe

there is hesitation with their affect on liver, etc. I really felt

that should have been tried first because if limiting your sugar has

big affect on how you feel, I think that means there is fungus

responding to that. I feel awful if I indulge in sugar or refined

carbs, more than just a nibble here or there occasionally. I guess

that is where Dr Shoe lost my confidence. I felt he didn't even

address it as possibility but then perhaps he feels as you say

jeanine that he addresses the toxicity with aim that that heals your

immune system and then your immune system attacks any fungal

infection but he didn't say that, didn't mention fungal infection at

all despite topic is exposure to mold. It seems everyone wants to

stay away from fungal infections really. I'd like to try the Lamasil

or Difflucan...but then sometimes I am afraid since I have feeling my

liver is not in good condition but liver enzymes figures are okay

doctor says.

>

> Hi I understand your conserns, you know I do. sometimes it

> becaomes very hard to know who to trust when theres so much bs

going

[Guest guest]

Thanks guys, I will check out these sites.

>

> As far as probiotics The best I have ever used and still do which is

much better than the pearls. (I gave those to my dogs) is what is

called Jerodophalus. I have thrown the box out so the spelling might be

wrong. Nope here it is. " Jarro-Dophilus " I think I get it from

www.newlifevitamins.com

[Guest guest]

, I've used the pearls but did some research and found one called

Suprema Dophilus that contains 4 billion viable cells per capsule. Contain no

added salt, yeast, wheat, gluten, corn, soy, perservatives, artificial colors

of

flavors. I was told by the pharmacist to take one daily. If I ever have to

take an antibiotic then take one 3X a day but an hr. apart from the other. I

bought mine at a local health food store. Manufacture is Rosell Institue of

Montreal, Canada. See if you can find a health food store near you. There are

others brands that are good. From all I have read they are very good for you

to take.

Sue

Thanks Live, Interesting, I have not tried these the juice, etc. I

have been drinking the cranbury no sugar juice but I will check out the

pomegranate juice. I was wondering if any one has checked out this

pearl acedifilis (spell) that they have been advertising on tv? It is a

probiotic ( I think that is what you call it).

**************Looking for simple solutions to your real-life financial

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[Guest guest]

IMHO, no one may have a cure all for everyone. For those who take csm and Dr.

Shoemaker's other protocols, and have had success from it; we can only be glad.

Some others may have mitigating health issues that make it difficult to follow

these protocols. If we can share in an objective way and learn from each other

that would be the best situation. But I think because we can't neccesarily " see "

one another and that at times there have been less scrupulous people who have

made their way to the list, it tends to cast doubt on the intention of the

person writing. I have a friend who went to Dr. Shoemaker for years and had some

progress, but eventually had to stop because she couldn't handle the meds (liver

issues, etc.). She eventually found another doctor who did the 10th paradigm

protocols and for her that worked out much better. But that in no way denigrates

the great contribution of Dr. Shoemaker, nor does it make the 10P protocols any

better. As Carl

has often referred to the complexity of dealing with mold remediation and

testing, (most recently referring to it very aptly as a " kingdom " ); if we

recognise that those kingdoms/mycotoxins/chemicals have contributed in some way

to our own illness-- the solution may not be a one size fits all. Plus many may

have pre-existing conditions or make-up(genetic or otherwise) which predispose

to one treatment or another or some combination. I guess this is my longwinded

way of saying we need to try and go the extra distance to listen to one another.

I think if the intention of anyone writing is indeed not sincere, the truth will

eventually " out " and will be made plain. There are too many wise and experienced

people on this list, both professional and lay for it to go on.

Thanks,

Sam

[Guest guest]

Sam,

This is by far one of the best post I have read. There is no one fits all cure

or treatment.

Everyone is different. What works for one, may not work for another. And I

feel the same

way you do. Sharing our experiences and what works for different people is the

only way

we can help each other try to get out of this mold mess we are all in.

Bravo. Please post more often.

>

> IMHO, no one may have a cure all for everyone. For those who take csm and Dr.

Shoemaker's other protocols, and have had success from it; we can only be glad.

Some

others may have mitigating health issues that make it difficult to follow these

protocols. If

we can share in an objective way and learn from each other that would be the

best

situation. But I think because we can't neccesarily " see " one another and that

at times

there have been less scrupulous people who have made their way to the list, it

tends to

cast doubt on the intention of the person writing. I have a friend who went to

Dr.

Shoemaker for years and had some progress, but eventually had to stop because

she

couldn't handle the meds (liver issues, etc.). She eventually found another

doctor who did

the 10th paradigm protocols and for her that worked out much better. But that in

no way

denigrates the great contribution of Dr. Shoemaker, nor does it make the 10P

protocols

any better. As Carl

> has often referred to the complexity of dealing with mold remediation and

testing,

(most recently referring to it very aptly as a " kingdom " ); if we recognise that

those

kingdoms/mycotoxins/chemicals have contributed in some way to our own illness--

the

solution may not be a one size fits all. Plus many may have pre-existing

conditions or

make-up(genetic or otherwise) which predispose to one treatment or another or

some

combination. I guess this is my longwinded way of saying we need to try and go

the extra

distance to listen to one another. I think if the intention of anyone writing is

indeed not

sincere, the truth will eventually " out " and will be made plain. There are too

many wise and

experienced people on this list, both professional and lay for it to go on.

> Thanks,

> Sam

>

[Guest guest]

What is the 10th paradigm

protocol? Who uses this please?

[Guest guest]

Yes Bravo Sam!!

All opinions need to be heard from those effected by toxic mold. All!

Eli

[Guest guest]

Sam,  I agree with Semco.  Your message was well-written.  Good job.