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At 01:25 PM 8/9/99 -0500, you wrote:

>From: " Lee Ann Walter " <SAWalter@...>

>There is a lot of research going on right now with DHA and Efflax

>for children with Downs syndrome. They are finding that the

>fatty acids are very important to brain development. We have our

>two children on this program. I do not understand the how's and

>whys of it all but I do know it has benefited our children.

>

>Lee Ann

How very intriguing! That's great that it's helping them!! After I read that

about ADD children, I checked out the baby formula I'm giving my baby and

found out there are *no* EFAs in it at all. They're all " bad " fats. So I

asked her doctor if it was okay to add a little to her formula once a day --

1/4 tsp. I've been surprised to find that it helps her sleep at night! From

what I read, apparently the formula manufacturers put EFAs in formula sold

in Europe, but they don't do it in the US. Gee, and I thought they were so

concerned about their formulas being as good as mother's milk! ;-/

I keep telling myself to just bite the bullet and take a couple of teaspoons

of it myself, but I just can't bring myself to do it (the flax seed oil, not

the formula). I need to get one of those meal-in-a-shake things and add it

to that. Such a wimp. ;-) Some new acquaintences I've made since this

diagnosis are treating their RA nutritionally and say using an EFA oil is a

must. Same with a CoQ10 supplement, along with antioxidants of course.

Glucosamine isn't suppose to be helpful with inflammatory arthritises

though. I've been wanting to ask if anyone's been taking a glucosamine

product and if they're deriving any benefit from it. It's expensive and I

don't see wasting money on it if it can't help with PA. Anyone finding it

helpful for them?

Kathy Fowkes

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  • 2 years later...
Guest guest

What is this for?

Lynne Austin <lynne@...> wrote: My dietition has my son on a

product called COROMEGA. It is found in any

Health food Store. It comes in little packets and you/your children can take 1

per day. It tastes gross but my son will take it. You can put it on a cracker

etc... I put it on a spoon and he takes it straight. It is better cold so I

refridgerate it. It tastes like fish flavored Creamsicles with baby aspirin.

(I think thats a pretty good description!)

*Lynne A.

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  • 2 months later...

Hi! Steve, your story sounds so familiar, that is the same problems

we ran into and exactly how we got out of it! We tried the

bethanchol/cod-liver oil, with just temporary benefits, then

he had a meltdown, so we went with Bodybio, and oh! six months

of incredible progress, until we tried to detox him with DMSA,

and he lost all the skills that he gained from the previous

six months, it wasn't until I started giving him live culture

yogurt drink that he has finally turned around again. Yes,

those fatty acids have been in his diet every since, and they

will continue to be there. They make sense, and I can see where

they are helping him. And we cut back on his carbohydrates,too.

The potatoes, noodles, bread, and rice. It has been hard, he

isn't casein free, and we are substituting almond flour in the

place of other flours. Dr. Kane knows her stuff, we just

didn't follow her diet like we should have, she told us to keep

him carbonhydrate low, only we didn't know just how important

that was until now.

Best, Carlton

steve_rotherham wrote:

>

> I've noticed several queries re fatty acids posted over the last few

> weeks.

>

> I'm no expert but I think I have stumbled across some important info

> that many parents/carers of ASD kids aren't aware of.

>

> Three-and-a-half months ago we became aware that our son, Callum, had

> ASD. We immediately began phasing into a GFCF diet, then once that

> was in place began introducing other changes one by one.

>

> Removing casein delivered immediate results. Removing gluten and

> adding B6 also seemed to make a difference. Next we introduced cod

> liver oil and flaxseed oil. Soon after, Callum began deteriorating.

>

> In a panic, I spent 2 almost nights surfing the internet. And I came

> across a webpage that made a diffrence for us.

>

> Biochemist Dr Kane has found that there is a sequence to

> repleting essential lipids. Omega 6 (evening primrose, sunflower oil,

> safflower oil) must be stabilized before Omega 3 (fish oil or flax

> oil) is added. If you do not follow the sequence, the omega 3/omega 6

> lipids compete and you create further derangement.

>

> We switched Callum to evening primrose (Efamol seems to be the best

> brand) and cold-pressed sunflower oil. We also switched his rice milk

> to brands that incorporated either sunflower or safflower oil. We

> also got rid of anything with canola oil in it as canola has some

> very long chanin fatty acidss that ASD people can't cope with.

>

> As with all things ASD, this will not help everyone. But if your

> child has not responded to Omega 3s or if CLO/bethanocol treatment

> made no difference or only a temporary difference, then please think

> about switching to Omega6 for a few months.

>

> Once the Omega 6 has been repleted (after 2-4 months) you can move on

> to add Omega 3s and then really gain the benefit of all the faty

> acids.

>

> For more info, please see:

> http://www.mercola.com/1999/nov/21/vitamin_a_cod_liver_oil.htm

>

> and

>

> http://www.bodybio.com/p_article1.html

>

> These articles aren't easy read, but they may help you.

>

> Steve

>

>

>

>

>

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Steve,

I for one really, really appreciate your information. You are right

in that it is common enough for someone to introduce the cod liver

oil or flaxseed and things fall apart for some unknown reason. This

may be the reason.

Did you ever get around to putting the Omega-3 back into the diet?

If so, how long did you do the Omega-6 first?

There is also the situation that some people had terrible reactions

to the omega-3s alone, added enzymes, and then did the omega-3s

again only this time, they saw wonderful improvement. Do you have

any insight on this and what the enzymes might be doing?

Thank you again,

.

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The whole thing about fats seems soooo complicated in our kids. I read the

post Thursday about fats and neurotoxins, and felt overwhelmed. This level

of understandingof biochemical and metabolic processes - let alone mum

knowing how to intervene - is virtually beyond me. But I know that the

metabolising of fats and neurotoxicity are huge underlying issues for my son

and that they are deeply involved in any prospect of recovery. The drs all

agree that it is a multi-factorial disability, but fats seem to come into

every " factor " one way or another and they seem to be linked. Anyone have

any light to shed on this?

Thanks!

Gillian

> Steve,

>

> I for one really, really appreciate your information. You are right

> in that it is common enough for someone to introduce the cod liver

> oil or flaxseed and things fall apart for some unknown reason. This

> may be the reason.

>

> Did you ever get around to putting the Omega-3 back into the diet?

> If so, how long did you do the Omega-6 first?

>

> There is also the situation that some people had terrible reactions

> to the omega-3s alone, added enzymes, and then did the omega-3s

> again only this time, they saw wonderful improvement. Do you have

> any insight on this and what the enzymes might be doing?

>

> Thank you again,

> .

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Hi

I only found out this info about six weeks ago, so Callum has been on

Omega 6 and off Omega 3 for that long. He needs at least another six

weeks on Omega 6 only before we reintroduce Omega 3.

But I can tell you that as soon as we switched the oils he stopped

regressing and within a few days he started making progress again.

Callum is only two, so supplementing him is easy. We put four caps of

eveing primrose in his bottles of rice milk (one first thing in the

morning, one just before bed) and keep cold-pressed sunflower oil in

an oil drizzler like those used in Italian restaurants. We use the

sunflower oil on his gluten-free toast instead of butter and drizzle

it over other food too.

We will reintroduce Omega 3 as it is a very important part of any

treatment, but the trick is to get the sequence right.

Sorry, I have no insight into how enymes react with omega 3s.

Steve

> Steve,

>

> I for one really, really appreciate your information. You are right

> in that it is common enough for someone to introduce the cod liver

> oil or flaxseed and things fall apart for some unknown reason. This

> may be the reason.

>

> Did you ever get around to putting the Omega-3 back into the diet?

> If so, how long did you do the Omega-6 first?

>

> There is also the situation that some people had terrible reactions

> to the omega-3s alone, added enzymes, and then did the omega-3s

> again only this time, they saw wonderful improvement. Do you have

> any insight on this and what the enzymes might be doing?

>

> Thank you again,

> .

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Gillian, I thought so too, that is why we went with Bodybio,

mostly because Forrest's MRI showed delayed myelin, and we

were afraid that he might have something more serious wrong with

him other than autism, we feared ALD! He doesn't have ALD the KK lab

could tell us for sure, but the great thing that came along with

getting him tested through Bodybio, was that Dr. Kane,

worked out a whole diet for him, with all the oils, fats, and

foods that he needed. He was doing great for six months, until

we tried to detox him with DMSA, and he lost all the skills that

he had gained, but we started him on Kefir, yogurt, and included

(or we are trying to) the SCDiet, along with his Bodybio diet,

and he is gaining back his skills again, and even some speech.

Best,

Gig Moon wrote:

>

> The whole thing about fats seems soooo complicated in our kids. I read the

> post Thursday about fats and neurotoxins, and felt overwhelmed. This level

> of understandingof biochemical and metabolic processes - let alone mum

> knowing how to intervene - is virtually beyond me. But I know that the

> metabolising of fats and neurotoxicity are huge underlying issues for my son

> and that they are deeply involved in any prospect of recovery. The drs all

> agree that it is a multi-factorial disability, but fats seem to come into

> every " factor " one way or another and they seem to be linked. Anyone have

> any light to shed on this?

> Thanks!

> Gillian

>

> > Steve,

> >

> > I for one really, really appreciate your information. You are right

> > in that it is common enough for someone to introduce the cod liver

> > oil or flaxseed and things fall apart for some unknown reason. This

> > may be the reason.

> >

> > Did you ever get around to putting the Omega-3 back into the diet?

> > If so, how long did you do the Omega-6 first?

> >

> > There is also the situation that some people had terrible reactions

> > to the omega-3s alone, added enzymes, and then did the omega-3s

> > again only this time, they saw wonderful improvement. Do you have

> > any insight on this and what the enzymes might be doing?

> >

> > Thank you again,

> > .

>

>

>

>

>

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linda this sounds great. sorry for the dumbe question. what is ald?

is that alzhimer disease? is forrest your son? i think maybe emma

needs help- form some one like doctor kane. i thoght i could learn

wahat will help her but it is way to confusing. i rather have an

expert tll me what to do. i wont go to her reglar doctor because she

wants to give more shots. does doctor kane give shots? can she teach

me about enzymes to? wear is her office. i want emma to talk like

other kids. what kinda tests will she need? i know what yogurt is ha

ha!! what is kefir and scd? and bodybio diet.

thanks

nancy.

> >

> > The whole thing about fats seems soooo complicated in our kids. I

read the

> > post Thursday about fats and neurotoxins, and felt overwhelmed.

This level

> > of understandingof biochemical and metabolic processes - let

alone mum

> > knowing how to intervene - is virtually beyond me. But I know

that the

> > metabolising of fats and neurotoxicity are huge underlying issues

for my son

> > and that they are deeply involved in any prospect of recovery.

The drs all

> > agree that it is a multi-factorial disability, but fats seem to

come into

> > every " factor " one way or another and they seem to be linked.

Anyone have

> > any light to shed on this?

> > Thanks!

> > Gillian

> >

> > > Steve,

> > >

> > > I for one really, really appreciate your information. You are

right

> > > in that it is common enough for someone to introduce the cod

liver

> > > oil or flaxseed and things fall apart for some unknown reason.

This

> > > may be the reason.

> > >

> > > Did you ever get around to putting the Omega-3 back into the

diet?

> > > If so, how long did you do the Omega-6 first?

> > >

> > > There is also the situation that some people had terrible

reactions

> > > to the omega-3s alone, added enzymes, and then did the omega-3s

> > > again only this time, they saw wonderful improvement. Do you

have

> > > any insight on this and what the enzymes might be doing?

> > >

> > > Thank you again,

> > > .

> >

> >

> >

> >

> >

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, Ever heard of the movie Lorenzo's oil, a parent's struggle

to save her son with adrenoleukodysrophy? My son Forrest's Mri

looked frightenly close to someone with adrenoleukodysrophy.

The lab that Bodybio uses, is a research lab, that is used

for the detection of rare metabolic diseases. I wasn't sure

at the time we needed dietary help or the help of a nutritionist,

but I am convinced of it now, I needed a lot of help!!

Dr.Kane doesn't give shots, but what she will give you is

an excellent dietary program that will target many deficiencies,

not just those of fatty acids, although that is what made her

famous. She does recommend enzymes, and from what I understand

she is now recommending Houston's, or that she is trying them

out. Not sure, I don't want to miss quote her. Her office is

in New Jersey, but since she has a Ph.D., in areas of nutrition,

she goes under a physician's care. She has a list of practitioners

that seek out her consultation in matters of diet, I am sure

that there is a doctor they can recommend in your area, one that

is familiar with her procedures. It is only one blood drawn,

one is shipped off to be tested for fatty acids, and the other

is a blood analysis, sometimes, she can provide a diet from

just the blood analysis, but with an autistic child, we did

both. My son did have some imbalances mostly trans fats, were

really high, but now we know where those bad fats were coming

from, so we can eliminate those problems through diet. Kefir

is a fermented milk product with live cultures, a bit different

than what you will find in yogurt. The SCDiet and the Bodybio

diet, I just learned, are very much alike, and a good thing too,

because I didn't want to have to give up the benefits the

bodybio was providing him. Something about the DMSA caused

massive infections, and I just couldn't seem to get them under

control. Whereas, bodybio had him down for low carbohydrates,

which we hadn't been doing, like we should have, the SCDiet

with total restriction of specific carbohydrates, made me

realize that cutting out those carbohydrates were much more

important than I realized. When I started cutting back on his

carbohydrates, he started eating bananas, and more of the

foods on his bodybio diet, that we never could get him started

on. Best,

nkcellular wrote:

>

> linda this sounds great. sorry for the dumbe question. what is ald?

> is that alzhimer disease? is forrest your son? i think maybe emma

> needs help- form some one like doctor kane. i thoght i could learn

> wahat will help her but it is way to confusing. i rather have an

> expert tll me what to do. i wont go to her reglar doctor because she

> wants to give more shots. does doctor kane give shots? can she teach

> me about enzymes to? wear is her office. i want emma to talk like

> other kids. what kinda tests will she need? i know what yogurt is ha

> ha!! what is kefir and scd? and bodybio diet.

>

> thanks

>

> nancy.

>

> > >

> > > The whole thing about fats seems soooo complicated in our kids. I

> read the

> > > post Thursday about fats and neurotoxins, and felt overwhelmed.

> This level

> > > of understandingof biochemical and metabolic processes - let

> alone mum

> > > knowing how to intervene - is virtually beyond me. But I know

> that the

> > > metabolising of fats and neurotoxicity are huge underlying issues

> for my son

> > > and that they are deeply involved in any prospect of recovery.

> The drs all

> > > agree that it is a multi-factorial disability, but fats seem to

> come into

> > > every " factor " one way or another and they seem to be linked.

> Anyone have

> > > any light to shed on this?

> > > Thanks!

> > > Gillian

> > >

> > > > Steve,

> > > >

> > > > I for one really, really appreciate your information. You are

> right

> > > > in that it is common enough for someone to introduce the cod

> liver

> > > > oil or flaxseed and things fall apart for some unknown reason.

> This

> > > > may be the reason.

> > > >

> > > > Did you ever get around to putting the Omega-3 back into the

> diet?

> > > > If so, how long did you do the Omega-6 first?

> > > >

> > > > There is also the situation that some people had terrible

> reactions

> > > > to the omega-3s alone, added enzymes, and then did the omega-3s

> > > > again only this time, they saw wonderful improvement. Do you

> have

> > > > any insight on this and what the enzymes might be doing?

> > > >

> > > > Thank you again,

> > > > .

> > >

> > >

> > >

> > >

> > >

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linda she sounds awesome!!!! i know that nutrion is not good for her

but i am so happy to here she will get to eat bannannas. she eats a

lot of freaking bannannas. when sh eats tham and hangs from the

swings i cal;l her my little monky girl. did you get your sons name

from the movie? i will find a doctor to get blood tio send to doctor

kane. you said she sends it to the lab can i send it to her or the

lab? can you sned blood in the mail do i fill it with ice? what is

dmsa? you sure use a lot of abrevitaons. i am writing them all down

in a loseleaf note book so i know them. kefir sounds like it stinks

like sour mi;lk. thanks you!! this is carlton the mailman [ ha ha ha]

nancy

> > > >

> > > > The whole thing about fats seems soooo complicated in our

kids. I

> > read the

> > > > post Thursday about fats and neurotoxins, and felt

overwhelmed.

> > This level

> > > > of understandingof biochemical and metabolic processes - let

> > alone mum

> > > > knowing how to intervene - is virtually beyond me. But I know

> > that the

> > > > metabolising of fats and neurotoxicity are huge underlying

issues

> > for my son

> > > > and that they are deeply involved in any prospect of recovery.

> > The drs all

> > > > agree that it is a multi-factorial disability, but fats seem

to

> > come into

> > > > every " factor " one way or another and they seem to be linked.

> > Anyone have

> > > > any light to shed on this?

> > > > Thanks!

> > > > Gillian

> > > >

> > > > > Steve,

> > > > >

> > > > > I for one really, really appreciate your information. You

are

> > right

> > > > > in that it is common enough for someone to introduce the cod

> > liver

> > > > > oil or flaxseed and things fall apart for some unknown

reason.

> > This

> > > > > may be the reason.

> > > > >

> > > > > Did you ever get around to putting the Omega-3 back into the

> > diet?

> > > > > If so, how long did you do the Omega-6 first?

> > > > >

> > > > > There is also the situation that some people had terrible

> > reactions

> > > > > to the omega-3s alone, added enzymes, and then did the

omega-3s

> > > > > again only this time, they saw wonderful improvement. Do you

> > have

> > > > > any insight on this and what the enzymes might be doing?

> > > > >

> > > > > Thank you again,

> > > > > .

> > > >

> > > >

> > > >

> > > >

> > > >

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, You have to get a prescription from your doctor to have blood

drawn, it needs to go into a special package, and shipped overnight.

Bodybio will have to ship the packing material to the lab technician

that draws the blood sample from your daughter. DMSA is the name

of a drug that is used to remove heavy metals from the body. Lifeway's

kefir actually tastes very good, that is if you like yogurt, it

tastes like yogurt, only it is a drink. Probiotic is another

word that is good to know, that is what kefir really is about.

No, Forrest got his name, after I borrowed a name book, opened

up the pages, shut my eyes and pointed, it was pot luck! But

then I changed my mind, but after that I keep seeing the name

Forrest everywhere I went, that I got suspicious, and decided

I better give him that name. Laying in the recovery room after

his birth, they had no place to put me, except for the file

cabinet room, and there as I looked to my side was Dr.Forrest

something, it was too creepy! Too many signs to ignore!

Good Luck! ! Best,

nkcellular wrote:

>

> linda she sounds awesome!!!! i know that nutrion is not good for her

> but i am so happy to here she will get to eat bannannas. she eats a

> lot of freaking bannannas. when sh eats tham and hangs from the

> swings i cal;l her my little monky girl. did you get your sons name

> from the movie? i will find a doctor to get blood tio send to doctor

> kane. you said she sends it to the lab can i send it to her or the

> lab? can you sned blood in the mail do i fill it with ice? what is

> dmsa? you sure use a lot of abrevitaons. i am writing them all down

> in a loseleaf note book so i know them. kefir sounds like it stinks

> like sour mi;lk. thanks you!! this is carlton the mailman [ ha ha ha]

>

> nancy

>

>

> > > > >

> > > > > The whole thing about fats seems soooo complicated in our

> kids. I

> > > read the

> > > > > post Thursday about fats and neurotoxins, and felt

> overwhelmed.

> > > This level

> > > > > of understandingof biochemical and metabolic processes - let

> > > alone mum

> > > > > knowing how to intervene - is virtually beyond me. But I know

> > > that the

> > > > > metabolising of fats and neurotoxicity are huge underlying

> issues

> > > for my son

> > > > > and that they are deeply involved in any prospect of recovery.

> > > The drs all

> > > > > agree that it is a multi-factorial disability, but fats seem

> to

> > > come into

> > > > > every " factor " one way or another and they seem to be linked.

> > > Anyone have

> > > > > any light to shed on this?

> > > > > Thanks!

> > > > > Gillian

> > > > >

> > > > > > Steve,

> > > > > >

> > > > > > I for one really, really appreciate your information. You

> are

> > > right

> > > > > > in that it is common enough for someone to introduce the cod

> > > liver

> > > > > > oil or flaxseed and things fall apart for some unknown

> reason.

> > > This

> > > > > > may be the reason.

> > > > > >

> > > > > > Did you ever get around to putting the Omega-3 back into the

> > > diet?

> > > > > > If so, how long did you do the Omega-6 first?

> > > > > >

> > > > > > There is also the situation that some people had terrible

> > > reactions

> > > > > > to the omega-3s alone, added enzymes, and then did the

> omega-3s

> > > > > > again only this time, they saw wonderful improvement. Do you

> > > have

> > > > > > any insight on this and what the enzymes might be doing?

> > > > > >

> > > > > > Thank you again,

> > > > > > .

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

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all of doctors are creepy [not kane ha ha]its funny they stuckyou in

acloset to rest after the baby. i had a porto rico girl that played

the spanish chanel all night. the nurses lieked her more then me. it

was like sleeping at ricky rickardos bar. i left erly. im glad i dont

have to send the blood in the mail.i get dizy at the meat store whhen

they are all bloody. i will by kefir yogart at the store when i go

shopping tusday. i wrote probiotic in my book dmsa sounds awesome!!!

can i by that from the doctor in huston? he said the enzyme vitamins

will help alergy. we had a big fat himlain that was 4 and we left her

at the doctor to sleep.it was making the kids sick with her hair.[and

scrtached]do you have pets linda ithink you like birds or hamster. i

got bit by a german when i was 10 dogs suck!!! its gross when you

step in crap to[can i say that]the dog on tv is nice but i

bye

nancy

> > > > > >

> > > > > > The whole thing about fats seems soooo complicated in our

> > kids. I

> > > > read the

> > > > > > post Thursday about fats and neurotoxins, and felt

> > overwhelmed.

> > > > This level

> > > > > > of understandingof biochemical and metabolic processes -

let

> > > > alone mum

> > > > > > knowing how to intervene - is virtually beyond me. But I

know

> > > > that the

> > > > > > metabolising of fats and neurotoxicity are huge underlying

> > issues

> > > > for my son

> > > > > > and that they are deeply involved in any prospect of

recovery.

> > > > The drs all

> > > > > > agree that it is a multi-factorial disability, but fats

seem

> > to

> > > > come into

> > > > > > every " factor " one way or another and they seem to be

linked.

> > > > Anyone have

> > > > > > any light to shed on this?

> > > > > > Thanks!

> > > > > > Gillian

> > > > > >

> > > > > > > Steve,

> > > > > > >

> > > > > > > I for one really, really appreciate your information.

You

> > are

> > > > right

> > > > > > > in that it is common enough for someone to introduce

the cod

> > > > liver

> > > > > > > oil or flaxseed and things fall apart for some unknown

> > reason.

> > > > This

> > > > > > > may be the reason.

> > > > > > >

> > > > > > > Did you ever get around to putting the Omega-3 back

into the

> > > > diet?

> > > > > > > If so, how long did you do the Omega-6 first?

> > > > > > >

> > > > > > > There is also the situation that some people had

terrible

> > > > reactions

> > > > > > > to the omega-3s alone, added enzymes, and then did the

> > omega-3s

> > > > > > > again only this time, they saw wonderful improvement.

Do you

> > > > have

> > > > > > > any insight on this and what the enzymes might be doing?

> > > > > > >

> > > > > > > Thank you again,

> > > > > > > .

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

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  • 2 years later...
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I just visited the first link. And interesting there is a product called

Calcium AEP. It is supposed to help bind fatty acids to cells.

Thought some of you might find this useful.

Liz D.

> [Original Message]

> From: <kristinalcpa@...>

> < >

> Date: 6/28/2005 10:07:09 AM

> Subject: Re: [ ] Re: stomach gastritis/Liz

>

>

> In a message dated 6/28/2005 9:50:17 AM Pacific Standard Time,

> Rabbitbrain@... writes:

>

> am not sure if I can take the DGL but

> will give it a try. Time changes you.

>

>

>

> I had very good luck with a product called cease fire from vitamin

research

> products (_www.vrp.com_ (http://www.vrp.com) can also get

cheaper i

> think at _www.illnessisoptional.com_ (http://www.illnessisoptional.com) )

..

> It has DGL and mastic gum in it. It really helped soothe my stomach.

>

> Kris

>

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