Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 Hi J. McMullen, What does the J stand for ? I believe in Larry's case his A.D.H.D. like symptoms are neurological because the only problem he has with his sight is astigmatism (rectified with glasses) and only has a mild loss (L) and moderate loss ® both conductive loss only and he only wears one aid now and survives very well without it, Larry is getting plenty of input. Mind you I don't think that is the only contributing factor. ie family history of A.D.D., family history of food allergies, family history of hypoglycaemia, malabsorption problem (can't chew food properly because of mouth, jaw and teeth problems) Larry was the most placid baby and child until the age of five when the chronic diarrhea started which coincided with four amalgam filling (since removed) and that is when he became very difficult to manage. I believe that Larry would have always had A.D.D. but somehow it changed to A.D.H.D. and we are in the process of changing it back. Bye Jan Hewitson Mum to Belinda 18 and Larry 16 Perth West Australia behaviors > > > Jan > > Yes, many CHARGErs have ADHD type problems. Whether > it's neurological or secondary to their sensory > impairments though has been debated. Sensory > impairments meaning, if the child is getting > inadequate visual and auditory input do they really > want to sit still doing an activity? > > If it's due to a hearing loss or auditory processing > problem, FM receivers have been recommended. The > teacher (or parent) has a microphone and the kid has > an earphone in the ear. That way the teacher comes > over loud and clear over background noise. If it's > due to visual processing or a visual loss, high > contrast, low clutter, low distractions would be > recommended to improve the child's ability to focus on > the task at hand. > > As far as a neurological standpoint, many CHARGErs > have sensory integration problems which would > contribute to ADHD behaviors. Sensory integration > also includes visual and auditory processing disorders > butalso much more. An occupation therapy would be the > one to consult. She/he may recommend something as > simple as a wearing a weighted vest during tasks to > keep the child focused. My daughter wears a weighted > vest. It works like magic keeping her on task and > improving her fine motor skills. In older kids it can > even improve their handwriting skills. > > I would definitely consider medication as a last > resort because then you have all the side effects to > contend with and also you make the child medication > dependent as opposed to working with the child's to > improve his ability to focus. > > Jeanne mom to Caitlyn age 4 1/2yrs cHaRgEr > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2008 Report Share Posted July 21, 2008 we have gas stove and dad left it on many times, ughhh sharon Subject: Re: behaviors To: LBDcaregivers Date: Monday, July 21, 2008, 3:41 PM Kathy, In reference to letting the water running, my husband has done that numerous times. I even wondered if it was me that left it running at first, until I saw him walk away and it was still running. I really doubt my husband realized he had done that. Lorraine husband, 57 Diagnosed with PD 2002, has many LBD symptoms > > > > I have a few questions and would like everyone's opinion. > > My mom is the main caregiver to my dad, we go over their house quite a bit, myself, sister and brother., but it still is my mom that is the main caregiver. She doesn't like to ask for help (she feels she is inconvieniencing us, we have our own life etc) she did finally get some help through VA. She gets respite and someone to come in and bath him. But the problem is it seems like when my mom gets out of the house my dad gets upsets and I swear he retaliates in some way. Last time she went out he pee'd all over the hallway just outside the bathroom. Last night she went to the movies and dinner and he left the water on all night in the kitchen sink and it flooded the kitchen. When you ask him why he did it, he tells you it wasn't him. THis morning after the incident with the kitchen my mom called my brother and he came over with my brother in law to fix it and my dad was agitated and wanted to know why all these people were there and he was > leaving. When he tried to leave my mom tried to stop him and he acted like he was going to hit her. My brother in law jumped in front of her and he said he was going to hit him. > > My mom feels these things have gotten worse since she started having these respite care workers come in. I know this is taking a toll on my mom and I am not sure what to do. > > Has anyone else had this problem with their loved one. When you go out they get angry at you? When she comes home you can watch him and see that he is pouting. > > Also a question to the caregiver ... Do you feel like you have to hold on as long as you can taking care of your husband or wife because you feel like you are letting your kids down, or that it might upset them. > > Just wondering if this is what my mom is doing. I know I should talk to her about this and asure her that she needs to do what she needs to do. > > Kathy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2008 Report Share Posted July 21, 2008 Dearest Kathy, your last sentence said it all. " She needs to do what she needs to do. " Your dad should be place in a nursing home. He is becoming dangerous. Your mother, nor anyone else, know if or when he will attack her when she is asleep. If he is threating, then eventually he'll act on it.Some patients do become violent with LBD. Do everyone and especially your Mom a favor, and protect your Mom. I know the feeling of devotion and caring as well as anyone, but using one's head instead of the heart may save a life. Love a lot, Imogene > > > > I have a few questions and would like everyone's opinion. > > My mom is the main caregiver to my dad, we go over their house quite a bit, myself, sister and brother., but it still is my mom that is the main caregiver. She doesn't like to ask for help (she feels she is inconvieniencing us, we have our own life etc) she did finally get some help through VA. She gets respite and someone to come in and bath him. But the problem is it seems like when my mom gets out of the house my dad gets upsets and I swear he retaliates in some way. Last time she went out he pee'd all over the hallway just outside the bathroom. Last night she went to the movies and dinner and he left the water on all night in the kitchen sink and it flooded the kitchen. When you ask him why he did it, he tells you it wasn't him. THis morning after the incident with the kitchen my mom called my brother and he came over with my brother in law to fix it and my dad was agitated and wanted to know why all these people were there and he was > leaving. When he tried to leave my mom tried to stop him and he acted like he was going to hit her. My brother in law jumped in front of her and he said he was going to hit him. > > My mom feels these things have gotten worse since she started having these respite care workers come in. I know this is taking a toll on my mom and I am not sure what to do. > > Has anyone else had this problem with their loved one. When you go out they get angry at you? When she comes home you can watch him and see that he is pouting. > > Also a question to the caregiver ... Do you feel like you have to hold on as long as you can taking care of your husband or wife because you feel like you are letting your kids down, or that it might upset them. > > Just wondering if this is what my mom is doing. I know I should talk to her about this and asure her that she needs to do what she needs to do. > > Kathy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2008 Report Share Posted July 22, 2008 <snip> My husband often left the water running, especially in the bathrooms. <snip> When my mom was in the ALF (before the bad reaction to meds that led to NH) she too has left the water running - she told me that she couldn't remember how to shut it off. She kept pushing the nozzle back instead of forward. She also left a pot w/ prunes on the stove in the condo that led to the fire dept. coming b/c of all the smoke (that was right before moving to ALF.) I did find this comical though... My mom used to always put damp shirts in a plastic bag in the freezer before ironing. One time I visited my mom at the ALF where she had one of those mini fridges - in the cupboard above the mini fridge she had one of her blouses in a plastic bag. Anyone else who would have found that would think she was crazy - but I knew she was thinking that top shelf above the mini fridge was the freezer door. Quote Link to comment Share on other sites More sharing options...
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