Re: antibodies to mold and new member

[Guest guest]

I had genetic testing to see if I carry the mold gene. I was told that I

carry both mold genes. Currently I am being tested for Lyme disease because

I was bitten by a tick in June and became ill shortly after. In my

research, I find that Lyme and mold illness symptoms are nearly identical.

I have all wood flooring in my house and found that moisture from ground

water is wicking up through my cement slab and to the moisture barrier

beneath the plywood subfloor. My floors and subfloor are not wet or warping

and appear to be fine. We were told to put in French drains to drain the

water away from the house and install dehumidifiers on our central heat/air

system.

I guess I have two questions. In solving my home's moisture problem will I

end the mold problem or do all of our floors need to be pulled up? We do

have several air purifiers running at all times. My second question is

regarding my symptoms. I began feeling achy, both muscular and joint,

fatigued, headaches and had a really tight neck. I felt like I had a mild

flu with arthritis. Additionally I took three courses of antibiotics

because of the " Lyme " . Assuming my Lyme tests come back negative and it is

determined that I do not have Lyme, what is treatment for mold illness? Are

there any tests I should run? For what it's worth, Lyme disease is not

prevalent or common where I live.

Thank you for your help!

Kenda

> As I understand shoemaker, those who get sickest to have the HLA

> gene the makes them unable to make antibodies to mold-therefore they

> cannot tag the toxin and evacuate it-therefore they need cholestrymine

> to do this. I do not show any antibodies in testing.

>

> Thanks,

[Guest guest]

Kenda,

According to your description of the flooring, the moisture barrier

is doing it's job by stopping the moisture before it can get to the

floor or inside the house. If you have no other moisture intrusion

or condensation locations you probably don't have a mold

" problem " with the house. I'll leave the medical questions for

others.

Carl Grimes

Healthy Habitats LLC

-----

> I had genetic testing to see if I carry the mold gene. I was told that I

> carry both mold genes. Currently I am being tested for Lyme disease because

> I was bitten by a tick in June and became ill shortly after. In my

> research, I find that Lyme and mold illness symptoms are nearly identical.

>

> I have all wood flooring in my house and found that moisture from ground

> water is wicking up through my cement slab and to the moisture barrier

> beneath the plywood subfloor. My floors and subfloor are not wet or warping

> and appear to be fine. We were told to put in French drains to drain the

> water away from the house and install dehumidifiers on our central heat/air

> system.

>

> I guess I have two questions. In solving my home's moisture problem will I

> end the mold problem or do all of our floors need to be pulled up? We do

> have several air purifiers running at all times. My second question is

> regarding my symptoms. I began feeling achy, both muscular and joint,

> fatigued, headaches and had a really tight neck. I felt like I had a mild

> flu with arthritis. Additionally I took three courses of antibiotics

> because of the " Lyme " . Assuming my Lyme tests come back negative and it is

> determined that I do not have Lyme, what is treatment for mold illness? Are

> there any tests I should run? For what it's worth, Lyme disease is not

> prevalent or common where I live.

>

> Thank you for your help!

>

> Kenda

>

>

> > As I understand shoemaker, those who get sickest to have the HLA

> > gene the makes them unable to make antibodies to mold-therefore they

> > cannot tag the toxin and evacuate it-therefore they need cholestrymine

> > to do this. I do not show any antibodies in testing.

> >

> > Thanks,

>

>

>

> ------------------------------------

>

> FAIR USE NOTICE:

>

>

[Guest guest]

Those are lyme symptoms--and you may have coinfections. After 3

courses of antibiotics, antibody tests could be negative. Since you

apparently can tolerate the antibiotics, you are best off seeing a

lyme specialist who will evaluate you based on symptoms and try other,

appropriate antibiotics, or a blend of antibiotics, for you. It's

still early for you (June bite--September) and if you are aggressive

now can perhaps get rid of it. Don't assume it's mold, it doesn't

sound like it (though whether or not you have a moldy home, I have no

idea). Good luck!

>

> I had genetic testing to see if I carry the mold gene. I was told

that I

> carry both mold genes. Currently I am being tested for Lyme disease

because

> I was bitten by a tick in June and became ill shortly after. In my

> research, I find that Lyme and mold illness symptoms are nearly

identical.

>

> I have all wood flooring in my house and found that moisture from ground

> water is wicking up through my cement slab and to the moisture barrier

> beneath the plywood subfloor. My floors and subfloor are not wet or

warping

> and appear to be fine. We were told to put in French drains to

drain the

> water away from the house and install dehumidifiers on our central

heat/air

> system.

>

> I guess I have two questions. In solving my home's moisture problem

will I

> end the mold problem or do all of our floors need to be pulled up?

We do

> have several air purifiers running at all times. My second question is

> regarding my symptoms. I began feeling achy, both muscular and joint,

> fatigued, headaches and had a really tight neck. I felt like I had

a mild

> flu with arthritis. Additionally I took three courses of antibiotics

> because of the " Lyme " . Assuming my Lyme tests come back negative

and it is

> determined that I do not have Lyme, what is treatment for mold

illness? Are

> there any tests I should run? For what it's worth, Lyme disease is not

> prevalent or common where I live.

>

> Thank you for your help!

>

> Kenda

>

>

> > As I understand shoemaker, those who get sickest to have the HLA

> > gene the makes them unable to make antibodies to mold-therefore they

> > cannot tag the toxin and evacuate it-therefore they need cholestrymine

> > to do this. I do not show any antibodies in testing.

> >

> > Thanks,

>

[Guest guest]

It's fine to get an Igenex test and they are the best lab, but you

don't need it. You had a tickbite, and you fell ill after with classic

lyme symptoms--athritis, stiff neck, etc. Lyme is not easily treated.

You have been undertreated, likely with some courses of doxycycline,

am I correct? Doxycycline--you need about 600 mg a day to get into the

CNS. Your tight neck indicates CNS invasion, for one. You need an

LLMD, not a mold expert, imo. One who has dealt with many hundreds or

thousands of lyme patients, and can recommend an aggressive regimen of

antibiotics. Usually you are put on several. High dose amoxicillin can

be effective (6-10 grams a day or more).

I suggest you to go to www.lymenet.com and register, and go onto

medical questions, ask questions, and go onto seeking a doctor and ask

for a specialist in your area.

Whether or not Igenex is positive, you have a screaming clinical

diagnosis of lyme that has not been adequately treated. Once you have

lyme, mold problems can bother you much more, but taking care of lyme,

is urgent.

>

> Thank you! I am waiting for the IgeneX test to arrive so I can send

it off.

> They claim it is 90 to 95% accurate at detecting Lyme and other

> co-infections. I did have a tick bite but not rash.

>

> I guess the thing that made me think it could be mold related is our

outdoor

> air here has been extremely moldy this year, I have been very dizzy and

> developed asthma in the last 12 months.

>

> What about my symptoms screams tick rather than mold?

>

> Thanks again for your help, I really appreciate it!!

>

> Kenda

>

>

>

[Guest guest]

Live, what's you talking about? I wish it was less of a problem outside.

--- In , LiveSimply <quackadillian@...>

wrote:

>

> Concentrations outdoors may be high but unless there has been massive

> flooding in your area, I don't think that its possible for you to get

> that much unless you live in New Orleans or Houston or someplace

> similar where you have both been flooded with dirty water and there is

> lots of sodden wallboard growing big mats of stachybotrys and

> bacterial endotoxins around..

>

> In that situation, indeed, 24% of people get sick.. The percentage is

> based on the genetics at that point, if the sample is large enough its

> fairly constant.

>

> Indoor mold is a different story, though, because people close

> windows.. Broken air conditioners can also do it.

>

[Guest guest]

It could easily be that you have both--but mold you can get away from,

and lyme migrates into your tissues and organs and is best treated

aggressively in the early months. I was undertreated...I had no clue

what I was in for and did not believe the dire warnings of chronic

lymies, chose to go with the recommendations of the infectious disease

specialist for which I am sorry now, although I'm not sure I could

have treated it aggressively and withstood that treatment over many

months.

Chronic candida problems since a teen may be due to mercury poisoning

from amalgams? Certainly because mold and lyme both create toxins and

those toxins must be detoxified by the same pathways in the body,

having lyme can make mold susceptibility greater, or so I believe.

>

> Mold symptoms also include a stiff neck? Interesting. Since I know

I have

> the double mold gene, I am more susceptible to mold illness. I have had

> candida issues since I was a teen, I am 48 now. It has been in the last

> year that I have developed asthma which is what lead me to think

mold and

> not necessarily Lyme. I am continuing on with my Lyme testing but would

> like to know if there are tests for mold illness as well that I

should be

> doing. Who knows, maybe I have both.

>

> Thanks for your help!!

>

> Kenda

>

>

[Guest guest]

Thank you. You are right, I was undertreated, 100 mg Doxy twice per day.

Currently I

am taking 200 mg twice per day -- I weigh 95 pounds. I hope I don't need to

take 600

mg, I don't know if I could handle it, I'm struggling with 400 mg now.

I did join Lymenet and was referred to a LLMD a few hours from Oklahoma but he

is

booked until December. If anyone here has a recommendation for an LLMD, I'm

willing

to travel. I can't imagine waiting until December for good treatment.

If I don't do the IgeneX testing, how will I know if I have co-infections?

Kenda

>

> It's fine to get an Igenex test and they are the best lab, but you

> don't need it. You had a tickbite, and you fell ill after with classic

> lyme symptoms--athritis, stiff neck, etc. Lyme is not easily treated.

> You have been undertreated, likely with some courses of doxycycline,

> am I correct? Doxycycline--you need about 600 mg a day to get into the

> CNS. Your tight neck indicates CNS invasion, for one. You need an

> LLMD, not a mold expert, imo. One who has dealt with many hundreds or

> thousands of lyme patients, and can recommend an aggressive regimen of

> antibiotics. Usually you are put on several. High dose amoxicillin can

> be effective (6-10 grams a day or more).

>

> I suggest you to go to www.lymenet.com and register, and go onto

> medical questions, ask questions, and go onto seeking a doctor and ask

> for a specialist in your area.

>

> Whether or not Igenex is positive, you have a screaming clinical

> diagnosis of lyme that has not been adequately treated. Once you have

> lyme, mold problems can bother you much more, but taking care of lyme,

> is urgent.

>

>

> >

> > Thank you! I am waiting for the IgeneX test to arrive so I can send

> it off.

> > They claim it is 90 to 95% accurate at detecting Lyme and other

> > co-infections. I did have a tick bite but not rash.

> >

> > I guess the thing that made me think it could be mold related is our

> outdoor

> > air here has been extremely moldy this year, I have been very dizzy and

> > developed asthma in the last 12 months.

> >

> > What about my symptoms screams tick rather than mold?

> >

> > Thanks again for your help, I really appreciate it!!

> >

> > Kenda

> >

> >

> >

>

[Guest guest]

Thank you, Carl! That's good to know.

Kenda

>

> Kenda,

>

> According to your description of the flooring, the moisture barrier

> is doing it's job by stopping the moisture before it can get to the

> floor or inside the house. If you have no other moisture intrusion

> or condensation locations you probably don't have a mold

> " problem " with the house. I'll leave the medical questions for

> others.

>

> Carl Grimes

> Healthy Habitats LLC

>

> -----

> > I had genetic testing to see if I carry the mold gene. I was told that I

> > carry both mold genes. Currently I am being tested for Lyme disease because

> > I was bitten by a tick in June and became ill shortly after. In my

> > research, I find that Lyme and mold illness symptoms are nearly identical.

> >

> > I have all wood flooring in my house and found that moisture from ground

> > water is wicking up through my cement slab and to the moisture barrier

> > beneath the plywood subfloor. My floors and subfloor are not wet or warping

> > and appear to be fine. We were told to put in French drains to drain the

> > water away from the house and install dehumidifiers on our central heat/air

> > system.

> >

> > I guess I have two questions. In solving my home's moisture problem will I

> > end the mold problem or do all of our floors need to be pulled up? We do

> > have several air purifiers running at all times. My second question is

> > regarding my symptoms. I began feeling achy, both muscular and joint,

> > fatigued, headaches and had a really tight neck. I felt like I had a mild

> > flu with arthritis. Additionally I took three courses of antibiotics

> > because of the " Lyme " . Assuming my Lyme tests come back negative and it is

> > determined that I do not have Lyme, what is treatment for mold illness? Are

> > there any tests I should run? For what it's worth, Lyme disease is not

> > prevalent or common where I live.

> >

> > Thank you for your help!

> >

> > Kenda

> >

> >

> > > As I understand shoemaker, those who get sickest to have the HLA

> > > gene the makes them unable to make antibodies to mold-therefore they

> > > cannot tag the toxin and evacuate it-therefore they need cholestrymine

> > > to do this. I do not show any antibodies in testing.

> > >

> > > Thanks,

> >

> >

> >

> > ------------------------------------

> >

> > FAIR USE NOTICE:

> >

> >

[Guest guest]

I respectfully have to disagree with you concerning your statement

on mold. " and

> unlike mold, you can't move away from it, it needs to be treated. "

We can't just move away from mold, unfortunately we take the toxic

overload with us no matter where we go. IT DOES affect every organ

in the body. I have been ill from this condition now for 11 yrs and

have seen numerous doctors who specialize in this condition and can

honestly say that every organ in my body has been damaged, many

beyond repair. Do you know what it's like to be eaten from the

inside out? I do.

This is not a comment directed at anyone, just a general statement,

this board is not here to downplay anyones condition, nor is it here

for people who think because they have read alot or done a little

studying to disregard what others are saying. It is not " I know more

than you. " We are here to give support, information, understanding,

explain some of our symptoms, etc. If people do not truly know about

other conditions and yes even mold, please do not make general

statements. WE ARE NOT DOCTORS, even though we may know more about

our condition than many of the doctors, please refrain from

diagnosing someones condition. No one knows 100% what is happening

with this person, nor their true condition, leave that to the

real " experts " in these fields.

Sharon C.

--- In , " jill1313 " <jenbooks13@...>

wrote:

>

> Sorry, but I've had lyme for eight years, I'm a science journalist,

> and I know practically every study that's been written about it

plus

> have followed every news article and many cases personally. She got

> bit by a tick, and immediately after had classic lyme symptoms. It

is

> undertreated by most practitioners esp when it is in the CNS--and

> unlike mold, you can't move away from it, it needs to be treated.

As

> for people getting bitten and not getting it, I " m not sure. That is

> possible but there are many strains and some are actually self

> limiting, whereas according to new research out from Stonybrook a

> highly virulent strain appeared in North America and Northern

Europe

> at the same time and is responsible for what we now call the

epidemic

> which first showed up a couple decades ago and is spreading fast.

>

>

[Guest guest]

I know what you mean, Sharon, and did not mean to minimize mold--only

to emphasize she should get onto lymenet and see a specialist who

doesn't just rely on a test. She is a clear case of tickbite, lyme,

and undertreatment for lyme with classic lyme symptoms. The longer she

goes undertreated the worse her chances. She still has a chance now,

from 3-6 months of aggressive antibiotic treatment at this stage might

do the trick. I know this from hindsight. To dilly dally where lyme is

concerned, unfortunately, is a deadly error. I did not mean to

minimize mold and sorry if it sounded like that.

[Guest guest]

kenda

any good lab will be able to tell you if you have co-infections. the

igenix lab just does the lyme testing differently. wait till you see

you LLMD. he will be the judge. if your lyme is fully diseminated

all the doxy in the world will not help and you will need to be on IV

rocepecen. it was the only thing that helped me and i was on several

rounds of the the stuff over 5 years IV and intramuscular. it was some

trip. then oral antibiotics on and off since then. i will start

taking them again once i get rid of the mold. taking antibiotics with

mold in your system is putting more mold and yeast in your system.

ugh its a vicious cycle. but i feel much better since i got out of

mold hell and started to treat the mold with diet change. there isnt

much else you can do. by then you should be ready for the LLMD.. i

know how you feel. i couldnt get an appointment for 3 months with my

LLMD. when i was at the hight of this mold crises. but it was the

mold not the lyme that was giving me the symptoms. i still have lyme.

and a host of other fun things but that mold was incredible. Doxy

is tough, i was on it this summer for a week and my face has a

terrible sun stain that i cant seem to get rid of. please remember to

stay out of the sun when on doxy. oh, by the way when my LLMD put me

on antibiotics this summer before treating the mold - i got worse. it

wasnt a herx, it was that the mold needs to go.

roe --