Neck pain

[Guest guest]

Been there, done that! I have 3 herniated disks in my neck, c3, c4,c5. I just

knew when all my problems started that it was from a car accident I had when I

was 18 yrs old. I got hit by a drunk driver and he broke c2, but the dr

couldnt' fix it or he would paralyze me from the neck down. Well, it has

healed, although it still sits sideways and now the 3 below it are pretty

significant in the bulging area.

Went to the dr yesterday (my 40th birthday) and we had a long discussion of my

pain. He put me on Lyrica for my nerve pain and changed my other pain med to

Ultram. He said if the Ultram isn't enough we will go with a pain patch. I

can't take oxycodone or hydrocodone as they both make me really sick tgo my

stomach. Anyway, he wants me to go back to Neuro and have a spinal tap to find

out of this is MS as this is what my orthopod keeps thinking due to how my

flares happen and how they come in cycles. I'm scared to have a spinal as last

time I had a mylegram I ended up with a spinal headache for 10 days that made me

deathly ill. Also, if this is MS (or fibro or lupus) then it will often times

start a flare.........like I want to do one dang thing to bring me MORE pain!!!

He also suggested I go to the Mayo clinic for a complete work up, but we will

see. I told him I really don't give a rats hiney what is causing the pain, I

just want a way to control it so that I can resume my life. He said, yes we can

control the pain,but we have to find the cause so we can treat the disease and

keep me from flaring and getting so far down in a flare as they really seem to

kick my rump! I've just spent 3 weeks not being able to use my left are as the

ulnar nerve was severely inflamed. Not one thing I was taking (amitriptiline,

methlyprednesone, tylenol 3, muscle relaxers, and Celebrex) even came close to

stopping the pain. It would take the edge off, so that I could rest a little

but most of the time, it would get so bad, I'd just sit with tears running down

my face. I've got a high tolerance for pain, but after the first 10 days, I was

done, I just couldn't take it much longer!!

Poor dr yesterday, I ended up crying (he'd never seen me do that) as I am just

so frustrated as this affects every single aspect of my life, my husband, my

kids, my business. I should be at the best time of my life, but no, I " m like

some dang old lady who can barely get around!!

Sorry, didn't mean to vent, better sign off for now!

Hugs

[Guest guest]

In a message dated 7/11/06 4:23:10 PM Central Daylight Time,

Bickfordla@... writes:

> Went to the dr yesterday (my 40th birthday

HAPPY BELATED 40th BiRTHDAY

hope you were able to blow out all those candles

peace,

Gayle

[Guest guest]

Thanks Gail! I was lucky my son, who will be 9 on Fri, only put one for each

decade! rofl So I could manage 4! Hugs

[Guest guest]

, you can vent here anytime. I'm sorry that you are having such a

tough time and that you had to spend part of your birthday with your

physician.

I hope your problems are diagnosed very soon, so you can get some relief.

Best wishes for a healthier, happier year!

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] neck pain

>

> Been there, done that! I have 3 herniated disks in my neck, c3, c4,c5. I

> just knew when all my problems started that it was from a car accident I

> had when I was 18 yrs old. I got hit by a drunk driver and he broke c2,

> but the dr couldnt' fix it or he would paralyze me from the neck down.

> Well, it has healed, although it still sits sideways and now the 3 below

> it are pretty significant in the bulging area.

> Went to the dr yesterday (my 40th birthday) and we had a long discussion

> of my pain. He put me on Lyrica for my nerve pain and changed my other

> pain med to Ultram. He said if the Ultram isn't enough we will go with a

> pain patch. I can't take oxycodone or hydrocodone as they both make me

> really sick tgo my stomach. Anyway, he wants me to go back to Neuro and

> have a spinal tap to find out of this is MS as this is what my orthopod

> keeps thinking due to how my flares happen and how they come in cycles.

> I'm scared to have a spinal as last time I had a mylegram I ended up with

> a spinal headache for 10 days that made me deathly ill. Also, if this is

> MS (or fibro or lupus) then it will often times start a flare.........like

> I want to do one dang thing to bring me MORE pain!!! He also suggested I

> go to the Mayo clinic for a complete work up, but we will see. I told him

> I really don't give a rats hiney what is causing the pain, I just want a

> way to control it so that I can resume my life. He said, yes we can

> control the pain,but we have to find the cause so we can treat the disease

> and keep me from flaring and getting so far down in a flare as they really

> seem to kick my rump! I've just spent 3 weeks not being able to use my

> left are as the ulnar nerve was severely inflamed. Not one thing I was

> taking (amitriptiline, methlyprednesone, tylenol 3, muscle relaxers, and

> Celebrex) even came close to stopping the pain. It would take the edge

> off, so that I could rest a little but most of the time, it would get so

> bad, I'd just sit with tears running down my face. I've got a high

> tolerance for pain, but after the first 10 days, I was done, I just

> couldn't take it much longer!!

> Poor dr yesterday, I ended up crying (he'd never seen me do that) as I am

> just so frustrated as this affects every single aspect of my life, my

> husband, my kids, my business. I should be at the best time of my life,

> but no, I " m like some dang old lady who can barely get around!!

> Sorry, didn't mean to vent, better sign off for now!

> Hugs

>

[Guest guest]

Hi ,

I had one ortho tell me there was nothing wrong with me, and another

wanted to do surgery. Sometimes I wonder who we can trust.

Jodi

>

>

> > > > Have you had an MRI yet? I have a bulging disc in my

neck, but I

> > > > also have bone spurs. Neither of these showed up on an x-

ray.

> > When

> > > > my neck muscles tense, the bone spurs sometimes poke

nerves. It

> > can

> > > > be extremely painful.

>

> I have two " small " herniated disks in my neck, but the radiologist

wrote

> that they were of no " clinical significance. " Yeah, right, that's

why

> my neck pain is so severe that all the muscles are permanently

clenched,

> even with PT. I'm waiting to go see my ortho doc, tho, hopefully

she'll

> be able to help...

>

>

>

[Guest guest]

HI, I have had neck pain for a long time and finally talked to my

rheumie He also sent me to physical therpy. But he also sent me to a neck and

spine specalist who told me that I have a lot of instability in my neck and that

I should not do the therpy because it could hurt things more. Make sure you do

some checking and find the best treatment for you. Hope you can hold your head

up today. By for now. Betty

susan <sasupbin@...> wrote: anybody out there have a nerve

entrapment related to their RA. After a

week of pain in my neck with shooting pain and numbness down my left

arm to my fingers I went to my rheumie today. He said I had a herniated

cervical disk and is sending me for physical therapy. I hadn't seen

any similar posts. Anyone??

---------------------------------

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[Guest guest]

" anybody out there have a nerve entrapment related to their RA. After a

week of pain in my neck with shooting pain and numbness down my left

arm to my fingers I went to my rheumie today. He said I had a herniated

cervical disk and is sending me for physical therapy. I hadn't seen

any similar posts. Anyone?? "

__________________________________

Me! How odd!!! Yesterday, I woke up my neck was very sore and stiff. Down

the left side into the shoulder. There is an " achey " feeling under my left ear.

As for me, the Neuro's noted some time ago that I was showing signs of

stenosis in the cervical spine, which was causing some " raticulopothy? " I don't

know. I was under the impression that there was little that they could do.

I really haven't followed up on the cervical spine issue with my Rhuemy. This

was note by the Neuros treating my migraines over the last 5-6 years. I have

only had this RA diagnosis for 1 year or so. Hmmm...

[Guest guest]

Hi . I do not yet have a diagnosis on what type of arthritis I have, but I

wanted to let you know that you are not alone. I can 100% empathize with you

and your neck/disc issues. I have had 2 neck surgeries at the C5/6 level and I

am still having an extreme amount of pain. I am currently in pain management

and I had my second of 3 steroid epidurals today. I can't say anything is

helping, but I'm trying everything to avoid another surgery.

One thing does concern me though and that is your " rheumy " told you you had a

herniated disc. Without an MRI (and maybe you had one?) it's impossible to tell

if your discs are herniated and if so, to what extent. I've had 3 MRIs in the

last 6 months and I have 1 herniated disc which is compressing my nerve.

Additionally I have 3 more irritated nerves in my neck (from ultrasound and

xrays). Be very careful with physical therapy because if your neck is unstable

they can really, REALLY hurt you. I blindly went into PT the very 1st time I

had problems and ended up in the ER and had to have emergency surgery. The

surgeon told me I should NEVER have gone to PT without having a consultation

first because PT ended up rupturing the disc more causing permanent nerve damage

in my hand.

With all that said, I hope you find out what works for you to help with the

pain. Just please be careful!

[ ] neck pain

anybody out there have a nerve entrapment related to their RA. After a

week of pain in my neck with shooting pain and numbness down my left

arm to my fingers I went to my rheumie today. He said I had a herniated

cervical disk and is sending me for physical therapy. I hadn't seen

any similar posts. Anyone??

[Guest guest]

I do, also. In fact, neck pain that started 10 years ago started my

downhill slide into RA. I also have herniated disks in the cervical

spine and significant bone mineral loss in my neck (osteoporosis).

And I agree with whoever it was that said DON'T just blindly go into

PT. Make sure they know exactly what your problem is or they will

make it much worse.

Take care,

another

>

> " anybody out there have a nerve entrapment related to their RA.

After a

> week of pain in my neck with shooting pain and numbness down my

left

> arm to my fingers I went to my rheumie today. He said I had a

herniated

> cervical disk and is sending me for physical therapy. I hadn't seen

> any similar posts. Anyone?? "

> __________________________________

> Me! How odd!!! Yesterday, I woke up my neck was very sore and

stiff. Down the left side into the shoulder. There is an " achey "

feeling under my left ear.

>

> As for me, the Neuro's noted some time ago that I was showing

signs of stenosis in the cervical spine, which was causing

some " raticulopothy? " I don't know. I was under the impression that

there was little that they could do.

>

> I really haven't followed up on the cervical spine issue with my

Rhuemy. This was note by the Neuros treating my migraines over the

last 5-6 years. I have only had this RA diagnosis for 1 year or so.

Hmmm...

>

>

>

[Guest guest]

Hi everyone, Thanks for your responses, And to ; No I didn't

have the MRI yet but based on my symptoms and sudden onset the

rheumie said it is a classic C5 C6 impingement. I go tomorrow to the

Physical medicine and rehab doc before starting any actual PT. I do

trust these guys and don't think they would steer me wrong. I am a

physician Assistant and have worked with both of them at my hospital

for years before I became their patient. So far the RA had been

under good control and I had been able to keep working full time

untill this neck thing this week. Hopefully this will improve

quickly!

Thanks again

PS. He did say he will order an MRI if 2 weeks of " gentle " PT doesn't

help.

>

> Hi . I do not yet have a diagnosis on what type of arthritis

I have, but I wanted to let you know that you are not alone. I can

100% empathize with you and your neck/disc issues. I have had 2 neck

surgeries at the C5/6 level and I am still having an extreme amount

of pain. I am currently in pain management and I had my second of 3

steroid epidurals today. I can't say anything is helping, but I'm

trying everything to avoid another surgery.

>

> One thing does concern me though and that is your " rheumy " told you

you had a herniated disc. Without an MRI (and maybe you had one?)

it's impossible to tell if your discs are herniated and if so, to

what extent. I've had 3 MRIs in the last 6 months and I have 1

herniated disc which is compressing my nerve. Additionally I have 3

more irritated nerves in my neck (from ultrasound and xrays). Be

very careful with physical therapy because if your neck is unstable

they can really, REALLY hurt you. I blindly went into PT the very

1st time I had problems and ended up in the ER and had to have

emergency surgery. The surgeon told me I should NEVER have gone to

PT without having a consultation first because PT ended up rupturing

the disc more causing permanent nerve damage in my hand.

>

> With all that said, I hope you find out what works for you to help

with the pain. Just please be careful!

>

> [ ] neck pain

>

>

> anybody out there have a nerve entrapment related to their RA.

After a

> week of pain in my neck with shooting pain and numbness down my

left

> arm to my fingers I went to my rheumie today. He said I had a

herniated

> cervical disk and is sending me for physical therapy. I hadn't

seen

> any similar posts. Anyone??

>

>

>

>

>

>

[Guest guest]

>

> I had a stomach virus all weekend. Mainly a constant headache and

> feeling nauseated. Last night I started having pain in the back of my

> neck if I tried to turn my head even a little bit. Do you think this

> could be related to RA or something else? I have RA in my hands,

feet,

> and knees. I don't think my doctor has ever x-rayed my neck before.

> This is the first time this has ever happened. Thanks for any help

you

> can give me on this.

>

> Pam

>

Hello Pam.

So sorry to hear about your new symptoms.

Would like to make a couple of hopefully helpful suggestions, but

although I am recently retired doc, of course I am not giving direct

medical advice, and would strongly suggest you contact your own

physician if symptoms dont settle promptly.

My thoughts are 1: neck pain could be directly related to your recent

virus. This can be quite common with some GI viruses, even without the

RA.Advice re seeing doc would be doubly important if this pain on

movement worsens

2 Neck pain could be from RA, which quite commonly

involves the cervical spine. Ditto re advice for 1

3 Could it be related to any ongoing RA treatment you

are having?

Will be out for next few hours so wont be able to add until later.

PS Just let me explain why I joined this group

I am here as friend/supporter of someone with very active RA, who is

trying to cope in early stages and doesnt have access to a computer.

Best wishes and good luck

[Guest guest]

Pam,

I am sorry you had such a horrible weekend. Hopefully you begin feeling

better soon.

Peace and fabulous smellies!

Katrina

[Guest guest]

,

Thanks for the suggestions about my neck pain. As far as treatments for RA, I've

been on the same meds for years now. I take Plaquenil, Celebrex, MTX, and Folic

Acid and glucosamine. I've been on MTX and Folic Acid for about 2 years now. The

other meds for about 7 years. If I'm not better by tomorrow, I think I will try

to see my family doctor. It would take a couple of months to get a appointment

with my RA doctor, plus a 45 minute drive one way and gas is so high right now.

I'm already on a antibiotic because of a infected tooth that will require a root

canal to save it. Don't they usually put you on a antibiotic for a GI virus

anyway.

Pam

chris65peth <chris65peth@...> wrote:

>

> I had a stomach virus all weekend. Mainly a constant headache and

> feeling nauseated. Last night I started having pain in the back of my

> neck if I tried to turn my head even a little bit. Do you think this

> could be related to RA or something else? I have RA in my hands,

feet,

> and knees. I don't think my doctor has ever x-rayed my neck before.

> This is the first time this has ever happened. Thanks for any help

you

> can give me on this.

>

> Pam

>

Hello Pam.

So sorry to hear about your new symptoms.

Would like to make a couple of hopefully helpful suggestions, but

although I am recently retired doc, of course I am not giving direct

medical advice, and would strongly suggest you contact your own

physician if symptoms dont settle promptly.

My thoughts are 1: neck pain could be directly related to your recent

virus. This can be quite common with some GI viruses, even without the

RA.Advice re seeing doc would be doubly important if this pain on

movement worsens

2 Neck pain could be from RA, which quite commonly

involves the cervical spine. Ditto re advice for 1

3 Could it be related to any ongoing RA treatment you

are having?

Will be out for next few hours so wont be able to add until later.

PS Just let me explain why I joined this group

I am here as friend/supporter of someone with very active RA, who is

trying to cope in early stages and doesnt have access to a computer.

Best wishes and good luck

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Oh Pam, think you are right about seeeing your doc if things don't improve.

With you all the way in your effortful struggles work.etc.......

Thinking of you X

PS Feel bad about how we medics dont fit the bill where people try to live with

on going illness and fit it in with 'normal'demands of work etc. So

hard.............

Re: [ ] Re: Neck Pain

,

Thanks for the suggestions about my neck pain. As far as treatments for RA, I've

been on the same meds for years now. I take Plaquenil, Celebrex, MTX, and Folic

Acid and glucosamine. I've been on MTX and Folic Acid for about 2 years now. The

other meds for about 7 years. If I'm not better by tomorrow, I think I will try

to see my family doctor. It would take a couple of months to get a appointment

with my RA doctor, plus a 45 minute drive one way and gas is so high right now.

I'm already on a antibiotic because of a infected tooth that will require a root

canal to save it. Don't they usually put you on a antibiotic for a GI virus

anyway.

Pam

chris65peth <chris65peth@ .co. uk> wrote:

>

> I had a stomach virus all weekend. Mainly a constant headache and

> feeling nauseated. Last night I started having pain in the back of my

> neck if I tried to turn my head even a little bit. Do you think this

> could be related to RA or something else? I have RA in my hands,

feet,

> and knees. I don't think my doctor has ever x-rayed my neck before.

> This is the first time this has ever happened. Thanks for any help

you

> can give me on this.

>

> Pam

>

Hello Pam.

So sorry to hear about your new symptoms.

Would like to make a couple of hopefully helpful suggestions, but

although I am recently retired doc, of course I am not giving direct

medical advice, and would strongly suggest you contact your own

physician if symptoms dont settle promptly.

My thoughts are 1: neck pain could be directly related to your recent

virus. This can be quite common with some GI viruses, even without the

RA.Advice re seeing doc would be doubly important if this pain on

movement worsens

2 Neck pain could be from RA, which quite commonly

involves the cervical spine. Ditto re advice for 1

3 Could it be related to any ongoing RA treatment you

are having?

Will be out for next few hours so wont be able to add until later.

PS Just let me explain why I joined this group

I am here as friend/supporter of someone with very active RA, who is

trying to cope in early stages and doesnt have access to a computer.

Best wishes and good luck

------------ --------- --------- ---

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Yes, the neck pain is almost gone now. It mainly hurts when I have to turn my

head to back my truck down the driveway. Since the reverse gear is coming out of

my truck I have to let it roll down the driveway into the carport instead of

backing it out of the carport until I can afford to get the transmission fixed.

But I still have nausea everyday off and on. If I don't have nausea and I eat

something I get nausea every time. I've had this (whatever it is) for 11 days

now and I've lost 13 pounds from not eating. I haven't actually had to throw up

but it's been very close. I am anemic and my arthritis doctor told me that it

was probably what was causing me to have shortness of breath. My doctor did a

blood test to check for complications of anemia. She was supposed to call me

with the results on Friday but didn't call until yesterday. Before she said that

she didn't know what was wrong with me. Yesterday she said it was probably a

viral infection. She wants me to go on a

clear diet for a few days. What exactly is that anyway? I think it means clear

broth and jello. Is there anything else I can eat? I probably can't eat saltine

crackers either. Sometimes I feel shaky too. Taking my meds on a empty stomach

only makes the nausea worse. I am on a iron prescription for the anemia. I had

to work all weekend. It was hard but I made it. The shortness of breath was

really bad on Sunday night. Do you think it could be food poisoning? I ate a

sandwich for breakfast from Mc's two hours before I got sick. I think I've

told you everything I can think of. If anyone can think of anything that could

be causing my symptoms, please let me know. Thanks a lot.

Pam

angels mother <motherswithangels@...> wrote: Pam,

How are you? I kept your email so I could check back on you. Did the neck pain

ever go away? Let me know.

DrMom

Pamela Hunt <pamhunt56@...> wrote:

Yes, I can touch my chin to my chest, barely. But that's mainly because I'm

overweight and I have a double chin. My neck mainly hurts when I try to move it

from side to side. Thanks for the help. I'm SO glad I don't have meningitis. At

least I hope not.

Pam

angels mother <motherswithangels@...> wrote: Can you bend your neck

and touch your chin to your chest? If not go immediately to the ER. You may have

meningitis. A stiff neck is nothing to ignore.

DrMom

motherswithangels@...

www.angelfire.com/hi2/motherswithangels/

" When someone you love becomes a memory, that memory becomes a treasure! "

---------------------------------

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---------------------------------

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motherswithangels@...

www.angelfire.com/hi2/motherswithangels/

" When someone you love becomes a memory, that memory becomes a treasure! "

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

Pamela Hunt

---------------------------------

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[Guest guest]

Hi everyone... I'm wondering if anyone that has been exposed to

Stachybotrys, Apergillus penicillium and or Cladisporim have

experienced neck pain at the base of the skull? My 5 year old has been

suffering from constant neck pain for over 4 weeks now. She's gone for

x-rays twice now... " normal " . She is to see an orthopedic specialist on

Wednesday. BUT I can't help but be suspicious of our mold exposure.

TOO many coincidences. I can only hope it's some kid growing

pain...but I have 6 children 2 that are older than my 5 year old, and

have never had them complain of constant pain of anything for more that

3 days tops. Any advice or thoughts...or person experiences???

Thanks!!!!

[Guest guest]

fungal or bacteria menningitis maybe? csf pressure? possable

inrercranial pressure? possable lung infection/inflammation. a mri

might show more or a 3d cat scan maybe. with or without headackes.

spinal taps for fungal are difficult, csf pressure is important because

of menningitis can breakdown brain barriors. lung

infections/inflammation can go into the spinal cord and or CNS. sont

want to scare you but I would diffenitly get it checked out. hope

everythings ok. if it comes and goes testing of pressure may not show

inless it's done while it's happening, ask alot of questions about

fungal and bacterial testing with csf, there may be new better ways

available. less invasive testing for lung infection or inflammmation

might be best first step. this is what I relate this pain with. look

for head and neck/spinal doc.

>

> Hi everyone... I'm wondering if anyone that has been exposed to

> Stachybotrys, Apergillus penicillium and or Cladisporim have

> experienced neck pain at the base of the skull? My 5 year old has

been

> suffering from constant neck pain for over 4 weeks now. She's gone

for

> x-rays twice now... " normal " . She is to see an orthopedic specialist

on

> Wednesday. BUT I can't help but be suspicious of our mold exposure.

> TOO many coincidences. I can only hope it's some kid growing

> pain...but I have 6 children 2 that are older than my 5 year old, and

> have never had them complain of constant pain of anything for more

that

> 3 days tops. Any advice or thoughts...or person experiences???

> Thanks!!!!

>

[Guest guest]

Do you ever feel little, painful, pockets of fluid at your joints, like your

elbows, knees, etc. that go away and then return?

[Guest guest]

I think that many doctors treating mold - sickened people have mentioned

that they have noticed that, in a mold situation, (some? all?) steroids and

the like can unwittingly trigger or worsten hypersensitization.. (something

that most of us have that unsensitized people really want to avoid..because

it makes your life miserable.)

I am pretty sure that Dr. Shoemaker says this - that with mold, steroids

are like putting gasoline on a fire, or something like that.. in his

(important) book, Mold Warriors.

Most doctors don't understand mold, at all. Very few do.

There was an issue (the MCS issue) of the EPA's EHP (Environmental Health

Perspectives http://www.ehponline.org ) journal in the 90s that gave a

really good overview of sensitization..and how it developed, from a number

of different perspectives.. (for example, I think lays out

her TILT hypothesis piece by piece.. I think in that issue..)

What a difference a decade makes.. huh?

A number of things, as I remember, can worsten sensitization.. (Perhaps

drugs that treat SYMPTOMS of exposure don't treat the underlying toxic issue

that is making your immune system respond so aggressively.. lulling you into

a sense of false security - lulling you to stay when you really needed to

go?)

What are the triggers that turn people hypersensitive? This is a very

important question.

You should ask Dr. Shoemaker or someone of similar caliber who understands

this better...

Maybe someone knows of a good doctor in your area?

[Guest guest]

The neck pain I described is suffered by my 5 year old daughter.

That being said, she has not complained of joint pain, just numbness

in her left arm, left leg, and acute and sharp pain in her left eye.

I just want to say....mold makes me want to cry. Or perhaps it's

really not the mold, it's the lack of understanding that is

associated with mold exposure.

--- In , LiveSimply <quackadillian@...>

wrote:

>

> I think that many doctors treating mold - sickened people have

mentioned

> that they have noticed that, in a mold situation, (some? all?)

steroids and

> the like can unwittingly trigger or worsten hypersensitization..

(something

> that most of us have that unsensitized people really want to

avoid..because

> it makes your life miserable.)

>

> I am pretty sure that Dr. Shoemaker says this - that with mold,

steroids

> are like putting gasoline on a fire, or something like that.. in his

> (important) book, Mold Warriors.

>

> Most doctors don't understand mold, at all. Very few do.

>

> There was an issue (the MCS issue) of the EPA's EHP (Environmental

Health

> Perspectives http://www.ehponline.org ) journal in the 90s that

gave a

> really good overview of sensitization..and how it developed, from a

number

> of different perspectives.. (for example, I think

lays out

> her TILT hypothesis piece by piece.. I think in that issue..)

>

> What a difference a decade makes.. huh?

>

> A number of things, as I remember, can worsten sensitization..

(Perhaps

> drugs that treat SYMPTOMS of exposure don't treat the underlying

toxic issue

> that is making your immune system respond so aggressively.. lulling

you into

> a sense of false security - lulling you to stay when you really

needed to

> go?)

>

> What are the triggers that turn people hypersensitive? This is a

very

> important question.

>

> You should ask Dr. Shoemaker or someone of similar caliber who

understands

> this better...

>

> Maybe someone knows of a good doctor in your area?

>

>

>

[Guest guest]

Also, the neck pain is pin pointed to the base of her skull.

--- In , LiveSimply <quackadillian@...>

wrote:

>

> Do you ever feel little, painful, pockets of fluid at your joints,

like your

> elbows, knees, etc. that go away and then return?

>

>

>

[Guest guest]

does she complain of any sinus pain, facial pain, mees with her nose

or blow it alot? darkness under eyes? you may want to have a sinus

culture and sinuses washed. both sinus cultures and caughed up lung

mucus could be tested. she doesn't have slurred speach or loss of

balance does she?

a " aaem.org,doctors list " search may list a doctor in your state.

>

> Also, the neck pain is pin pointed to the base of her skull.

>

[Guest guest]

The neck pain and numbness needs to be evaluated by a doctor.. Make

sure she sees a doctor, soon.. ASAP.. Please make the call now.

Some other things that come to mind..

I know we all can't just move out of mold.. Often, we cant even see it

but we have to try to get rid of the mold, safely, and in the

meantime, are you doing your best to maximize fresh air?

That means open windows 24/7. Many air conditioners get filthy and

filled with mold..They need to be cleaned regularly..

Fans in windows are the best cheap way to keep a constant airflow from

outside going through a home. (The best window fans are the ones that

have a balanced ventilation mode, where you can run one as an intake

and another as an exhaust in the same unit..that way you dont either

depressurize or pressurize your space..)

Have you seen doctor, and please try to also see an opthamologist and

- if your primary doctor recommends it - a neurologist-

Are you taking cholestyramine? Many people (24%) build up the low

molecular weight mycotoxins in enterohepatic recirculation.. which

means that a bad mold situation will kick them into hypersensitivity

more quickly..

cholestyramine - which removes those toxins that build up in the bile

and cause inflammation all over the body, helped me a lot..

Also, make sure that your home doesn't have problems with lead paint,

etc. I would recommend testing the paint in the kitchen, bathroom,

closets, etc.. also..

[Guest guest]

I'm sorry, I did not see that she is already in medical care..

The advice about the fresh air is important.. is it possible for you

to buy a window

fan that has a 'circulate' mode (one in, one out) and use it in your

bedroom so that you get constant fresh air?

If you must use a fan only blowing one way, try to put another fan in

another room blowing the other way and make sure to run both at the

same time.. Don't use exhaust fans without opening a window too at the

same time..

Don't depressurize your home and draw mold into your rooms from inside

the walls..

Where do you think the mold is.. please tell us a bit more about your

situation..

When I get that serious back/neck pain I take d-l phenylalanine (an

amino acid) or " DLPA " which relieves pain also..

I don't know if it will help.. but its worth trying. i.e. Your

mileage may vary..

On Tue, Sep 9, 2008 at 3:00 AM, healthyhayashis <amhayashi@...> wrote:

> Hi everyone... I'm wondering if anyone that has been exposed to

> Stachybotrys, Apergillus penicillium and or Cladisporim have

> experienced neck pain at the base of the skull? My 5 year old has been

> suffering from constant neck pain for over 4 weeks now. She's gone for

> x-rays twice now... " normal " . She is to see an orthopedic specialist on

> Wednesday. BUT I can't help but be suspicious of our mold exposure.

> TOO many coincidences. I can only hope it's some kid growing

> pain...but I have 6 children 2 that are older than my 5 year old, and

> have never had them complain of constant pain of anything for more that

> 3 days tops. Any advice or thoughts...or person experiences???

> Thanks!!!!

>

[Guest guest]

Healthy,

I've had pain in the same area and for a few months had serious vertigo. It all

but vanished a couple of months after leaving our moldy home. Numerous tests

like your daughter had showed all things were " normal " . The neurologist couldn't

rule out mold, but had no experience to verify it. He also thought that it might

have been structeral neck problems and recommended chiropractic. Chirorpactic

was good, but didn't really help. The main thing that helped was being out of

the environment.

I'd be interested to hear how things go with your little girl. She is too young

for this kind of health crisis.

Wishing you well,

Sam

> Also, the neck pain is pin pointed to the base of her skull.