Thank you so much! What a wonderful group!

[Guest guest]

Now if I could only figure out how to navigate it! I'm not familiar

with yahoo groups and cannot figure out how to reply to my responses.

I'm sure I can figure it out eventually. I apologize if I'm not

following the proper protocol!

Sally - I'm in Bethlehem PA too! Lower Nazareth to be exact. I've

recently started going to LVH, mostly Muhlenberg. Thought the

consistent network would help. It does SOME, but clearly not enough

Interesting all the posts on Vit D deficiency. I was just tested and

found to have a severe Vit D deficency. I'll have to read more on that.

I'm not opposed to making the trip to NY, but finances would prevent

me from having treatment there. Sad that they won't participate in any

insurance plans! I have GREAT health insurance that covers nearly

every single thing I have done without question. But to handle

something like this out of network just isn't possible for us.

I DO have my MRI films - on disc. I have an appointment with my

headache specialist next week and plan to spell it out for him.

Unfortunately, he has been SO gung ho on me participating in the PFO

study that he has focused solely on that. Since the govn. closed

funding to that though, I am hoping that he can " refocus " . I also do

NOT plan on having any epidurals until I speak with him. but I am SO

desperate to get out of this pain!!!

I am so happy to have found this group!!! I feel like a lunatic

sometimes. At least since I found out about chiari I don't feel like

such a nut. Falling apart at 36 is VERY depressing and I hate that I

can't keep up with my 5 year old