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Happy Holidays everyone!

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Hi guys!

I hope everyone had a Merry Christmas and things are going well for you and

your kids. I just got on my email after being gone for about 8 days. I am so

sorry to hear that some of you are in the hospital-a place that is never

fun, but especially not during the holidays.

na and Berkeley, will include you in his prayers every night!

Amy, I'm sorry tohear about your fire, but I'm glad you're back and it

sounds like things are doing better for you. You seem to have a great spirit

and attitude!

, you had mentioned that someone asked you if you smoked to cause the

CHARGE? With being adopted, it is so interesting and it ticks me off

cause people always say, " Did the birthmom do drugs? " Then when I tell them

no, they ask if it was cause of her age (she was only 14) and I say I don't

know anyone else who is a teen mom of a CHARGEr and they can hardly believe

it. I " m telling you, I'm going to write that book of dumb things people say.

BTW, Casey, I'd love to hear how that guy said hypnosis can cure

CHARGE-that's a new one! HAHAHA

We have had a great success w/sign language. has seemed to not even

acknowledge our signing to him, and suddenly, he has started to sign I love

you and sleepy! He can almost get his fingers perfect for I love you, but

not quite, but who cares?! To us, it's perfect.

I was so excited-I went to church today and the librarian told me that they

were going to order the Primary (the kids organization in our church)songs

in sign language on a videotape! They are going to start teaching the other

kids the songs in sign language so will feel right at home! It is

nice to get that support from our church and our neighbors.

Thank you all also for all of your support and great ideas. You are

wonderful and I know that God loves and is very mindful of you and your

children and your needs. Happy New Year!

Ruth

Mom to CHARGEr 18mos. and wife to

PS Jelena-I have an appt. w/Dr. , but not until March!!

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Ruth

How great about and signing! That's how Logan does things too....

he absorbs things we're teaching him but doesn't let on- then suddenly, it

all comes out :) I'm so happy that he is getting support from the church s

well.

Dr was supposed to put tubes in the first week of December, but we

have to wait until Jan 4 th because they forgot to schedule it. grrrr.

then we can get back to his hearing tests. He's had negative pressure in

one ear and fluid behind the other for quite some time. take care and

Happy New Year~

Jelena Salt Lake City UT

Wife to Liam, Mom to Matt 16, Logan 7 (bilateral cleft lip and palate,

partial ACC and SOD: ONH, partial panhypopit, SI disorder and hearing

impaired?), Connor 3 and Duncan 17 months

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Ruth,

Thank you for your kind words of my house fire.

Smoking couldn't cause CHARGE, I never smoked.

Amy

Happy Holidays everyone!

>

>

> Hi guys!

> I hope everyone had a Merry Christmas and things are going well for you

and

> your kids. I just got on my email after being gone for about 8 days. I am

so

> sorry to hear that some of you are in the hospital-a place that is never

> fun, but especially not during the holidays.

> na and Berkeley, will include you in his prayers every night!

> Amy, I'm sorry tohear about your fire, but I'm glad you're back and it

> sounds like things are doing better for you. You seem to have a great

spirit

> and attitude!

> , you had mentioned that someone asked you if you smoked to cause the

> CHARGE? With being adopted, it is so interesting and it ticks me

off

> cause people always say, " Did the birthmom do drugs? " Then when I tell

them

> no, they ask if it was cause of her age (she was only 14) and I say I

don't

> know anyone else who is a teen mom of a CHARGEr and they can hardly

believe

> it. I " m telling you, I'm going to write that book of dumb things people

say.

> BTW, Casey, I'd love to hear how that guy said hypnosis can cure

> CHARGE-that's a new one! HAHAHA

> We have had a great success w/sign language. has seemed to not

even

> acknowledge our signing to him, and suddenly, he has started to sign I

love

> you and sleepy! He can almost get his fingers perfect for I love you, but

> not quite, but who cares?! To us, it's perfect.

> I was so excited-I went to church today and the librarian told me that

they

> were going to order the Primary (the kids organization in our church)songs

> in sign language on a videotape! They are going to start teaching the

other

> kids the songs in sign language so will feel right at home! It is

> nice to get that support from our church and our neighbors.

> Thank you all also for all of your support and great ideas. You are

> wonderful and I know that God loves and is very mindful of you and your

> children and your needs. Happy New Year!

>

> Ruth

> Mom to CHARGEr 18mos. and wife to

>

> PS Jelena-I have an appt. w/Dr. , but not until March!!

>

> > For information about the CHARGE Syndrome Foundation or to become a member

please contact marion@....

>

>

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