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So its been a very long time since I have given a update for my

nephew. Conner is now 3 and doing quite well now. It has been a long

long up hill struggle. For those that do not know. His mom was using

drugs when she was pregnant with him as well as drinking all the time

even thought she was only 19 when he was born. She and my brother

were not married and split up while she was still pregnant. The year

before my brother and her got together she was pregnant with a little

girl that was steel born at 8 1/2 months she was later told that the

little girl had downs as well as many other complications. When

Conner was born all the test were done and he was diagnosed MDS. My

brother then spent months trying to see his son before he filed at

the ages office for child support and visitations, he was given

supervised visitation for 6 months by the courts so that he could

learn to care for his son, he spent 3 days supervised visits when she

told him she didn't have time to watch him take care of Conner so she

told him he could take him and go. So for the next few months when

she had time and wanted to go out she would call my brother for him

to come get him. after the 6 months of " supervised visits " when she

was available for visits my brother was able to get his son more

times then not he wasn't able to cause she was out of reach having

her phone turned off or not be home when she said she would be or

just not open the door when he would come to get the baby. so over

the next year or so Conner was in therapies when ever she would

answer the door or wouldn't call and cancel his sessions. every year

in about april may she would call my brother and tell him to come get

Conner, my brother would have him for a month or two when she would

come back and want him back and my brother wanting his son to have

both his mother and father in his life returned his son, while my

brother had him in these months hw would developmentally progress in

many ways at a little over a year he was almost walking and babbling

sounds when he when back to his mother he digressed back in to a

child a that would not even set up on his own and in weeks time he

would not even crawl or try to babble any longer. finally this past

February when she called and wanted my brother to take him for a few

months my brother took the right steps and went back to court and

received temporary custody, while they were gathering information it

was found out that the mother had not done all that she was support

to do for Conner. out of the 92 therapy visits that Conner was

support to have in the 2 years of appointments he had actually had

23. that while she had him she would sit him in a highchair and at 2

years old we was still not walking or even crawling, he was still on

the bottle and not eating solid foods. Since February my brother has

had Conner he's is not only walking but running and keeping up with

his cousins. he's in speech therapy where he's not only learning

signs language but he is also learning to talk his word vocabulary is

growing by the day. he's now eating and feeding him self, he's off

the bottle and has gained 10 pounds. he will be starting school this

month. his mother now has supervised visitation pending the out come

of a drug test that was ordered in april that she has yet to take.

Conner is a happy and healthy 3 year old, he has slight facial

fetters and other then the speech delays he has no other trades of

mds . we all treat him like hes any other child in the family.

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Hi

Thank you so much for giving us this update. I have often wondered about

Conner and how all of you were doing. It is sad that Conner has had to endure

all of this in his short life, but I am glad to hear his dad has him now and he

is doing so well!

Please keep in touch!

Kristy

JULIE wrote:

So its been a very long time since I have given a update for my

nephew. Conner is now 3 and doing quite well now. It has been a long

long up hill struggle. For those that do not know. His mom was using

drugs when she was pregnant with him as well as drinking all the time

even thought she was only 19 when he was born. She and my brother

were not married and split up while she was still pregnant. The year

before my brother and her got together she was pregnant with a little

girl that was steel born at 8 1/2 months she was later told that the

little girl had downs as well as many other complications. When

Conner was born all the test were done and he was diagnosed MDS. My

brother then spent months trying to see his son before he filed at

the ages office for child support and visitations, he was given

supervised visitation for 6 months by the courts so that he could

learn to care for his son, he spent 3 days supervised visits when she

told him she didn't have time to watch him take care of Conner so she

told him he could take him and go. So for the next few months when

she had time and wanted to go out she would call my brother for him

to come get him. after the 6 months of " supervised visits " when she

was available for visits my brother was able to get his son more

times then not he wasn't able to cause she was out of reach having

her phone turned off or not be home when she said she would be or

just not open the door when he would come to get the baby. so over

the next year or so Conner was in therapies when ever she would

answer the door or wouldn't call and cancel his sessions. every year

in about april may she would call my brother and tell him to come get

Conner, my brother would have him for a month or two when she would

come back and want him back and my brother wanting his son to have

both his mother and father in his life returned his son, while my

brother had him in these months hw would developmentally progress in

many ways at a little over a year he was almost walking and babbling

sounds when he when back to his mother he digressed back in to a

child a that would not even set up on his own and in weeks time he

would not even crawl or try to babble any longer. finally this past

February when she called and wanted my brother to take him for a few

months my brother took the right steps and went back to court and

received temporary custody, while they were gathering information it

was found out that the mother had not done all that she was support

to do for Conner. out of the 92 therapy visits that Conner was

support to have in the 2 years of appointments he had actually had

23. that while she had him she would sit him in a highchair and at 2

years old we was still not walking or even crawling, he was still on

the bottle and not eating solid foods. Since February my brother has

had Conner he's is not only walking but running and keeping up with

his cousins. he's in speech therapy where he's not only learning

signs language but he is also learning to talk his word vocabulary is

growing by the day. he's now eating and feeding him self, he's off

the bottle and has gained 10 pounds. he will be starting school this

month. his mother now has supervised visitation pending the out come

of a drug test that was ordered in april that she has yet to take.

Conner is a happy and healthy 3 year old, he has slight facial

fetters and other then the speech delays he has no other trades of

mds . we all treat him like hes any other child in the family.

Kristy Colvin

IMDSA President

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

International Mosaic Down Syndrome Association

PH:

Toll Free: 1-888-MDS-LINK

http://www.imdsa.org

http://www.mosaicmoments.today.com

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