Re: Re: Mold hypersensitization/all illnesses caused by WDBs and Lyme Disease are separate issues! (was: Thoughts on the CDC )

[Guest guest]

roe,

I'm so sorry you have gone through all this and I just want to thank you for

reaching out and giving the info you did. I also have Lyme and mold and grew up

and spent the early part of my adult life in NYC. what you said really

resonated with me.

I just discovered you so I hope you don't disappear from the group. But I can

understand that too.

Blessings, Michal

[Guest guest]

no, i'm not live simply.

I just felt for you and had much in common with your situation. I also don't

know where the lyme begins and the mold ends. Last night I was doing so badly

in my head, that is psychologically-I was feeling suicidal and so dark and

depressed and I knew it was not me but one of the culprits as mentioned..and I

felt even more despairing not knowing if I should scrape up (and god knows

how)the money to go to a Lyme Specialist or a mold specialist. And how the hell

do I do that living on disability?!

So I wanted to encourage you to stay in this forum because I wanted more people

to relate to that have Lyme and mold-I suppose it was a little selfish...

Michal

> >

[Guest guest]

Roe,

Roe,

I wasn't trying to insult you in any way. I was just trying to point out to

people who may not understand - say, they are taking

things people say out of context -that mold and lyme are two separate things.

You implied it.. at least that what I thought you might be trying to say..

On Thu, Oct 2, 2008 at 9:26 AM, roe <roe0325@...> wrote:

> most of us are victims of the CDC not once but twice. first due to

> Lyme disease not being taken seriously during the 80's through the

> late 90's. and now with the toxic mold problem.

>

What does my response have to do with anything other than that they

aren't the same thing?

People who have one biotoxin illness are often clobbered badly by

others. Do I deserve being berated for pointing that they aren't the

same thing out? I didn't say " you were an idiot "

I'm just trying to be factual. Its not personal.

People often take things said here out of context.

On Sat, Oct 4, 2008 at 8:36 AM, roe <roe0325@...> wrote:

> -live

>

> i am not an idiot -I have had lyme disease for 10 years and know

> exactly what causes it. i also have positive elisa and igg and igm's

> to prove it - i am not guessing. due to the lyme being mis-diagnosed

> for so long and being told i had empty nest syndrome and all other

> kinds of 40 year old divorced woman syndromes i am left with a

> siezure disorder and too many other problems to bore you with here.

>

> Now i would never suggest the lyme and mold have anything to do with

> each other. in fact the members of the board suggested it to me.

> due to lyme disease damaging our immune system and leaving us more

> sensitive to this stuff. hey i worked 10 years in a cemical plant.

> whatever! the lyme kicked the heck out of me.

>

> and then this mold almost killed me. two other adults lived in my

> apartment. heck, the landlord lived upstars and non of them got as

> sick as i did. non of them came up positive in blood work for stachy

> like i did.

>

> and NO, the courts dont take lyme seriously, and they dont take mold

> seriously, I know first hand. they dont have to. because the

> CDC tells them they dont.

>

> what i am trying to say is that any disease that that will cost

> builders a fortune like mold poisening will take long time before its

> taken seriously. look this happened in NYC. first they found mold

> in an apartment building and we thought this was a breakthough.. but

> do you know what it would mean to a city like NY if they addmitted

> it? if they had to actually clean up buildings that house thousands

> of units of poor people. never gonna happen. they passed some

> legislation recently in NY for people living in units with mold who

> have asthma but its not what betsy gotbaum origionaly wanted - nor

> was it what it should be. and trust me it will be ignored. its not

> taken seriously like the lead crisis was in the 70s. So i dont know

> what to tell you.. and heaven knows how long we lived with lead

> before they did anything about that. You should see how some of

> these people live in these buildings. its horrible. they have no

> clue its mold making them sick when they have rats running accross

> their floors. Most doctors just medicate them and give them asthma

> pumps send them off to do badly in school and have no idea the mold

> might be the problem. It all makes me very sad. every one thinks

> the poor gets a hand out. a piece of the pie. but my God if you

> ever watch the news and see these apartments - i would rather live in

> a box.

>

> I was just trying to say that until the CDC says yes mold is really

> bad,. yes lyme is really really bad if not taken care of early. You

> have a very hard time of proving your case. regardless of what

> happens to you. i never ment that you have to have lyme to have

> mold.

>

> I have been though my own hell for the past 10 years, fighting the

> system while too sick to fight. fighting for sSD and help for

> medication and what i had to do to get antiibiotics in my

> bloodstream, you wouldnt ask why i am pissed at the CDC.. i also lost

> my LTD and have to live with my adult son, i have been called a

> melingerer by my LTD company, and since the introduction of medicare

> D, i have to fight every month for my very expensive siezure

> medication. I worked my entire adult life. but since the lyme

> diagnoses i have fought the system and now with the mold poisen i

> hear more doctors snicker under their breath like i am nuts.

>

> so, look i wish you all good luck but i dont have the energy anymore.

> I thought i could stick around and help some people through some hard

> times like some of you have helped me.

>

> My advice is: depending on the mold = get rid of your fibre board

> stuff. any thing porous (sp) think of it as a fire. you have no

> belongings. as far as clothing. if it can be washed in amonia and

> hot water - good. otherwise i tossed it. i tossed all my books.

>

> i didnt start to feel better until i stopped eating yeast and wheat.

> i eat only rice flour - something like a celiacs diet but NO sugar.

> (i miss cake) but i have to tell you that a weeks worth of anti

> fungles worked well. in fact i now test negative for the stachy.

>

> we are still on this diet, its only been 6 weeks. i am afraid to

> stop. We are going week by week. i am mostly afraid of bread and

> yeast.

>

> my lyme doctor will not re-start antibiotics yet either. antibiotics

> for neurosycological lyme produce yeast so i have to wait.

>

> i am still very sensitive to scents, and other chemicals but i

> always was, its just like i have super nose right now.

>

> nne

>

>