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For Gagging on food I would start with very small bites of banana - or

strawberry cut really small I don't know how old the child is and I don't

remember the age when you can introduce fruits - but if he is too young then

maybe a piece of cooked rice. Not a spoonful just a single grain. That is

a food that seems not to cause allergies at any age.

Darlene

> the gagging on food.... i'm drawing a blank, but hoping the others can

> help

> me out.......................... I know some of you have talked about your

> children having problems with food TEXTURES, etc. It's definitely NOT

> reflux,

> that happens at the stomach, the sphincter there not functioning properly,

> and then stomach acid/food comes back up. But your son isn't even getting

> the food down.

>

> Sensory disorders....is that what it falls under usually.... some type of

> sensory issue, where the texture of the food is a problem??

>

> anyone? LOL

>

> Angel

>

>

> In a message dated 9/5/2008 7:04:11 A.M. Mountain Daylight Time,

> Darleneand@... <Darleneand%40gmail.com> writes:

>

> Jenni -

>

> Are you in AL? Huntsville was the clue. I would definitely go to the

> closest major city and go to the Children's Hospital located there - here

> in

> PA - I have to travel an hour+ to get to Children's Hospital of

> Philadelphia

> - but there specialists are worth it - You may need to see a GI specialist,

> a Genetic Specialist and get blood work done. Not in that order - GI, blood

> work then Genetic.

>

> Darlene - Mom to (11) and (9)

>

> On Fri, Sep 5, 2008 at 8:51 AM, Kristy Colvin

<kristy@...<kristy%40imdsa.org>>

> wrote:

>

> > Jenni

> > You can also go to our site

> http://www.imdsa.org/Information/develop.htmfor the MDS developmental

> chart. This will help you and your doctor see if

> > he is following the MDS development or the typical development. Of

> course,

> > this chart is not absolute for every single child because each are

> different

> > and do their own thing!

> >

> > I don't know if the doctor was lying to you or if he was just plain

> stupid.

> > (sorry...can't come up with a better word) But either way, this is

> totally

> > not necessary and in fact, if he doesn't have the extra cells in that

> area

> > of the body the test would be inaccurate.

> >

> > Keep trying! It will all work out!

> > Kristy

> >

> > Randal <r9thomas@... <r9thomas%40bellsouth.net><r9thomas%

> 40bellsouth.net>> wrote:

> > WOW! I cannot believe this Dr told me this. He sent us to the hospital

> for

> > blood work for a CBC. After my husband told him that my last pregnancy

> ended

> > at 18 weeks because the baby had either trisomy 18 or 's syndrome

> and

> > that my sister had a trisomy 13 baby (the geneticist called it a

> 'fluke'),

> > he said he would do a karotype with the bloodwork. I said 'will MDS show

> up

> > this way' and he said it would have to be drawn thru his testicles. Then

> > last night, I started thinking back to the appt. Most of it, he talked

> about

> > his developmental delays and said that he is still within the norm. When

> he

> > examined him, he looked in his eyes, his ears and listened to his heart.

> He

> > didn't put him on the table to look at his flexibility. He never picked

> him

> > up! We only have a few pediatricians in this town-I think I will go to

> > Huntsville and get a second opinion. So, is there some type of genetic

> > syndrome where you would have to go thru his testicles? I will send some

> > complaint to somewhere if I find out he just plain lied to us.

> > thanks again-

> > Jenni

> >

> >

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What a crock I have never never heard of anything so terrible. Sorry that was my

reaction. And yes insurace will pay for the test A regular blood draw is where

you atart OH MY GOD ttalk to Kristy you need some serious adviceĀ 

Subject: Re: Re: A few more questions

To: MosaicDS

Date: Thursday, September 4, 2008, 10:32 PM

Thankyou for the information. When you say gagging is a normal part of learning

how to chew, what do you mean? My other children never gagged like he does.

Whatever is on his stomach, he will gag up. Can he aspirate his food? I don't

know and I'm scared to give him anything more than crunched up food (like

crackers).

I took him to the dr today and the dr thinks that he is just late on things. He

said he wants to see him at 12 months and if he is still late, then pursue more

testing. He said that they have to draw blood through a needle in his testicles

to determine if it is MDS and that it costs 12,000 dollars. Is this true? Will

insurance NOT pay?

Thanks-

Jenni

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I am very interested in this " gagging " topic. Molly is almost 3 and will only

eat pureed foods and will gag and choke on lumpy things. She will have nothing

to do with lumpy foods and does not feed herself. She has never had the hicups,

just gagging. It is very scary so we tend to avoid thick foods. Is gagging a

symptom of reflux? We just hope that some day she will try thicker foods.

Thank you for your posting.

To: MosaicDS@...: r9thomas@...: Fri, 5 Sep 2008

07:49:51 -0500Subject: Re: Re: A few more questions

When he gags, the food is usually about 1/3 back on this tongue. He just

continues to gag and then whatever he has eaten, comes up. Sometimes, it is

mucousy looking, sometimes it is just baby food. It seems if you put something

under his tongue, he is able to handle it better. Yesterday, I gave him soft

cheerios from my other child's cereal. He ate two of them and the third one, he

started gagging on. This dr also told me that it wasn't reflux. If it isn't

reflux, then what is it? because it is not normal. I have 6 other children and

they never had hiccups after every meal and throughout the day and night at

other times. Now that he is older, he doesn't get hiccups all of the time, but

he still gets them.Thanks again-Jenni Re: A few more questionsGeez Jenni- that info about the blood

work sounds weird. We had Zoe tested in the hospital the first day and I never

got a bill like that. I'm not sure how accurate that is... Kristy would know

more about that. As far as the gagging. I meant when he has food in his mouth

and he makes gagging sounds while trying to eat. Yours sounds more like

refluxing food which Zoe does do too but she doesn't gag on it... just comes up

like spitting up / vomiting. We have her on Prevacid which has done great once

we were able to give her the tablet (broken up) directly in her mouth. We used

to use a seringe with water but I don't think it worked as well.I'm wondering

how thick the food is when your son is gagging it up. Zoe's is like mucus when

it does come up but not thick enough to aspirate her. I'd ask the doctor about

reflux meds if he isn't already on them.- Suzanne>> Thankyou for

the information. When you say gagging is a normal part of learning how to chew,

what do you mean? My other children never gagged like he does. Whatever is on

his stomach, he will gag up. Can he aspirate his food? I don't know and I'm

scared to give him anything more than crunched up food (like crackers).> > I

took him to the dr today and the dr thinks that he is just late on things. He

said he wants to see him at 12 months and if he is still late, then pursue more

testing. He said that they have to draw blood through a needle in his testicles

to determine if it is MDS and that it costs 12,000 dollars. Is this true? Will

insurance NOT pay?> Thanks-> Jenni> > > > [Non-text portions of this message

have been removed]>

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Yep- you're right, not normal. Definitely talk to a GI specialist

about this one. That doesn't sound like reflux. The food coming up

sounds more like it happens as a result of the continuous gagging. I

have a friend whose daughter would make herself vomit on table food

by continuously gagging just because she didn't want to eat it! She

had a hard time getting her to stop! Has anyone else heard of a baby

doing that on purpose?

> >

> > Thankyou for the information. When you say gagging is a normal

part

> of learning how to chew, what do you mean? My other children

never

> gagged like he does. Whatever is on his stomach, he will gag up.

Can

> he aspirate his food? I don't know and I'm scared to give him

> anything more than crunched up food (like crackers).

> >

> > I took him to the dr today and the dr thinks that he is just

late

> on things. He said he wants to see him at 12 months and if he is

> still late, then pursue more testing. He said that they have to

draw

> blood through a needle in his testicles to determine if it is MDS

and

> that it costs 12,000 dollars. Is this true? Will insurance NOT

pay?

> > Thanks-

> > Jenni

> >

> >

> >

> >

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CBC= Complete Blood Count.....just an FYI

Ā 

Blessings Abound,

(Becky) Rowe

Mom to Trey (8 ADHD) & Austin (5 MDS)

________________________________

Family Assistance Coordinator

Ā www.imdsa.orgĀ or becky@...

Help Team Austin @:

http://teambrats08.chipin.com/team-austin

Ā 

Re: Re: A few more questions

WOW! I cannot believe this Dr told me this. He sent us to the hospital for blood

work for a CBC. After my husband told him that my last pregnancy ended at 18

weeks because the baby had either trisomy 18 or 's syndrome and that my

sister had a trisomy 13 baby (the geneticist called it a 'fluke'), he said he

would do a karotype with the bloodwork. I said 'will MDS show up this way' and

he said it would have to be drawn thru his testicles. Then last night, I started

thinking back to the appt. Most of it, he talked about his developmental delays

and said that he is still within the norm. When he examined him, he looked in

his eyes, his ears and listened to his heart. He didn't put him on the table to

look at his flexibility. He never picked him up! We only have a few

pediatricians in this town-I think I will go to Huntsville and get a second

opinion. So, is there some type of genetic syndrome where you would have to go

thru his testicles? I will send

some complaint to somewhere if I find out he just plain lied to us.

thanks again-

Jenni

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My CH has this/did this with a diagnosis of reflux, which may or not

be your child's issue. Gluten allergy or aversion also causes this,

as do other allergies.

See a GI doctor. If it smells like bile or foul-smelling, then it

leans toward Celiac or gluten intolerance.

SUSan

> > >

> > > Thankyou for the information. When you say gagging is a

normal

> part

> > of learning how to chew, what do you mean? My other children

> never

> > gagged like he does. Whatever is on his stomach, he will gag

up.

> Can

> > he aspirate his food? I don't know and I'm scared to give him

> > anything more than crunched up food (like crackers).

> > >

> > > I took him to the dr today and the dr thinks that he is just

> late

> > on things. He said he wants to see him at 12 months and if he

is

> > still late, then pursue more testing. He said that they have to

> draw

> > blood through a needle in his testicles to determine if it is

MDS

> and

> > that it costs 12,000 dollars. Is this true? Will insurance NOT

> pay?

> > > Thanks-

> > > Jenni

> > >

> > >

> > >

> > >

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Hi,

Gagging on food can be a sign of a sensory issue. My son has SID

and he hates the way food feels on his tongue and he will make himself gag.

is 5. Just a thought.

From: MosaicDS [mailto:MosaicDS ] On Behalf

Of Randal

Sent: Thursday, September 04, 2008 11:33 PM

To: MosaicDS

Subject: Re: Re: A few more questions

Thankyou for the information. When you say gagging is a normal part of

learning how to chew, what do you mean? My other children never gagged like

he does. Whatever is on his stomach, he will gag up. Can he aspirate his

food? I don't know and I'm scared to give him anything more than crunched up

food (like crackers).

I took him to the dr today and the dr thinks that he is just late on things.

He said he wants to see him at 12 months and if he is still late, then

pursue more testing. He said that they have to draw blood through a needle

in his testicles to determine if it is MDS and that it costs 12,000 dollars.

Is this true? Will insurance NOT pay?

Thanks-

Jenni

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Is there anything to help them at his age (11 months)?

Thanks-

Jenni

Re: Re: A few more questions

Thankyou for the information. When you say gagging is a normal part of

learning how to chew, what do you mean? My other children never gagged like

he does. Whatever is on his stomach, he will gag up. Can he aspirate his

food? I don't know and I'm scared to give him anything more than crunched up

food (like crackers).

I took him to the dr today and the dr thinks that he is just late on things.

He said he wants to see him at 12 months and if he is still late, then

pursue more testing. He said that they have to draw blood through a needle

in his testicles to determine if it is MDS and that it costs 12,000 dollars.

Is this true? Will insurance NOT pay?

Thanks-

Jenni

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NO! File a complaint through the American Board of Pediatrics.

From: MosaicDS [mailto:MosaicDS ] On Behalf

Of Randal

Sent: Friday, September 05, 2008 8:41 AM

To: MosaicDS

Subject: Re: Re: A few more questions

WOW! I cannot believe this Dr told me this. He sent us to the hospital for

blood work for a CBC. After my husband told him that my last pregnancy ended

at 18 weeks because the baby had either trisomy 18 or 's syndrome and

that my sister had a trisomy 13 baby (the geneticist called it a 'fluke'),

he said he would do a karotype with the bloodwork. I said 'will MDS show up

this way' and he said it would have to be drawn thru his testicles. Then

last night, I started thinking back to the appt. Most of it, he talked about

his developmental delays and said that he is still within the norm. When he

examined him, he looked in his eyes, his ears and listened to his heart. He

didn't put him on the table to look at his flexibility. He never picked him

up! We only have a few pediatricians in this town-I think I will go to

Huntsville and get a second opinion. So, is there some type of genetic

syndrome where you would have to go thru his testicles? I will send some

complaint to somewhere if I find out he just plain lied to us.

thanks again-

Jenni

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It depends, however, this helped for , start with rice pudding and

introduce it slowly. At first would not eat it at all. Every day

I tried a little bit at a time until he ate it. Another thing it tapioca

pudding. You might want to try that first. still has issues with

food. He has a very limited diet. Now he will at least try things. Hope

this helps.

From: MosaicDS [mailto:MosaicDS ] On Behalf

Of Randal

Sent: Friday, September 05, 2008 10:37 PM

To: MosaicDS

Subject: Re: Re: A few more questions

Is there anything to help them at his age (11 months)?

Thanks-

Jenni

Re: Re: A few more questions

Thankyou for the information. When you say gagging is a normal part of

learning how to chew, what do you mean? My other children never gagged like

he does. Whatever is on his stomach, he will gag up. Can he aspirate his

food? I don't know and I'm scared to give him anything more than crunched up

food (like crackers).

I took him to the dr today and the dr thinks that he is just late on things.

He said he wants to see him at 12 months and if he is still late, then

pursue more testing. He said that they have to draw blood through a needle

in his testicles to determine if it is MDS and that it costs 12,000 dollars.

Is this true? Will insurance NOT pay?

Thanks-

Jenni

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That is a good idea !

Green wrote: NO! File a complaint through

the American Board of Pediatrics.

From: MosaicDS [mailto:MosaicDS ] On Behalf

Of Randal

Sent: Friday, September 05, 2008 8:41 AM

To: MosaicDS

Subject: Re: Re: A few more questions

WOW! I cannot believe this Dr told me this. He sent us to the hospital for

blood work for a CBC. After my husband told him that my last pregnancy ended

at 18 weeks because the baby had either trisomy 18 or 's syndrome and

that my sister had a trisomy 13 baby (the geneticist called it a 'fluke'),

he said he would do a karotype with the bloodwork. I said 'will MDS show up

this way' and he said it would have to be drawn thru his testicles. Then

last night, I started thinking back to the appt. Most of it, he talked about

his developmental delays and said that he is still within the norm. When he

examined him, he looked in his eyes, his ears and listened to his heart. He

didn't put him on the table to look at his flexibility. He never picked him

up! We only have a few pediatricians in this town-I think I will go to

Huntsville and get a second opinion. So, is there some type of genetic

syndrome where you would have to go thru his testicles? I will send some

complaint to somewhere if I find out he just plain lied to us.

thanks again-

Jenni

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She's right! We have sensory integration issues as well. But

CH " enjoys " his food and only spits out gluten products.

SUSan

>

> Hi,

>

>

>

> Gagging on food can be a sign of a sensory issue. My son

has SID

> and he hates the way food feels on his tongue and he will make

himself gag.

> is 5. Just a thought.

>

>

>

>

>

>

>

> From: MosaicDS [mailto:MosaicDS ] On

Behalf

> Of Randal

> Sent: Thursday, September 04, 2008 11:33 PM

> To: MosaicDS

> Subject: Re: Re: A few more questions

>

>

>

> Thankyou for the information. When you say gagging is a normal part

of

> learning how to chew, what do you mean? My other children never

gagged like

> he does. Whatever is on his stomach, he will gag up. Can he

aspirate his

> food? I don't know and I'm scared to give him anything more than

crunched up

> food (like crackers).

>

> I took him to the dr today and the dr thinks that he is just late

on things.

> He said he wants to see him at 12 months and if he is still late,

then

> pursue more testing. He said that they have to draw blood through a

needle

> in his testicles to determine if it is MDS and that it costs 12,000

dollars.

> Is this true? Will insurance NOT pay?

> Thanks-

> Jenni

>

>

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No,syndromes are tested thru the blood and tissues...not testes. I

was trying to say the DR. was confused...

Report him...to the " Medical Board " ...that is where he holds his

license. (Your state licensing board).

SUSan

>

> NO! File a complaint through the American Board of Pediatrics.

>

>

>

>

>

>

>

> From: MosaicDS [mailto:MosaicDS ] On

Behalf

> Of Randal

> Sent: Friday, September 05, 2008 8:41 AM

> To: MosaicDS

> Subject: Re: Re: A few more questions

>

>

>

> WOW! I cannot believe this Dr told me this. He sent us to the

hospital for

> blood work for a CBC. After my husband told him that my last

pregnancy ended

> at 18 weeks because the baby had either trisomy 18 or 's

syndrome and

> that my sister had a trisomy 13 baby (the geneticist called it

a 'fluke'),

> he said he would do a karotype with the bloodwork. I said 'will MDS

show up

> this way' and he said it would have to be drawn thru his testicles.

Then

> last night, I started thinking back to the appt. Most of it, he

talked about

> his developmental delays and said that he is still within the norm.

When he

> examined him, he looked in his eyes, his ears and listened to his

heart. He

> didn't put him on the table to look at his flexibility. He never

picked him

> up! We only have a few pediatricians in this town-I think I will go

to

> Huntsville and get a second opinion. So, is there some type of

genetic

> syndrome where you would have to go thru his testicles? I will send

some

> complaint to somewhere if I find out he just plain lied to us.

> thanks again-

> Jenni

>

>

>

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I am confused, were they just trying to determine if your child has mds?Ā  My

daughter was 10 months old and all they did as a simple blood test.Ā  Not sure

what blood test.Ā  They were so shocked at the result because it came back she

had mds and xxx, they did a second test.Ā  They scraped some skin from the inside

of her mouth with something that looked like a mascara brush and sent that to

the lab.Ā  I have never heard of what that doctor told you.Ā  I certainly would

not wait a YEAR to find out anything.Ā  I was told that children's brains are

very plyable up to the age of 3.Ā  You want to find out if something is wrong

with your child as soon as possible so you can get him into early intervention.Ā 

Ā 

Sue

Isabella 20 months mds

Subject: Re: Re: A few more questions

To: MosaicDS

Date: Friday, September 5, 2008, 6:13 PM

CBC= Complete Blood Count.....just an FYI

Ā 

Blessings Abound,

(Becky) Rowe

Mom to Trey (8 ADHD) & Austin (5 MDS)

____________ _________ _________ __

Family Assistance Coordinator

Ā www.imdsa.orgĀ  or beckyimdsa (DOT) org

Help Team Austin @:

http://teambrats08. chipin.com/ team-austin

Ā 

Re: Re: A few more questions

WOW! I cannot believe this Dr told me this. He sent us to the hospital for blood

work for a CBC. After my husband told him that my last pregnancy ended at 18

weeks because the baby had either trisomy 18 or 's syndrome and that my

sister had a trisomy 13 baby (the geneticist called it a 'fluke'), he said he

would do a karotype with the bloodwork. I said 'will MDS show up this way' and

he said it would have to be drawn thru his testicles. Then last night, I started

thinking back to the appt. Most of it, he talked about his developmental delays

and said that he is still within the norm. When he examined him, he looked in

his eyes, his ears and listened to his heart. He didn't put him on the table to

look at his flexibility. He never picked him up! We only have a few

pediatricians in this town-I think I will go to Huntsville and get a second

opinion. So, is there some type of genetic syndrome where you would have to go

thru his testicles? I will send

some complaint to somewhere if I find out he just plain lied to us.

thanks again-

Jenni

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Share on other sites

My 3 year old. He can stare you right in the eye gag twice then throw-up

anything in his stomach. He still eats babyfood. Thoug I know he can eat other

foods because he loves chicken nuggets, chips, peanut butter & jelly, eggos, and

cereal. But offer him anything else and he will fight, kick, and scream, just

when you finally think you have won... He will let you put the food in his mouth

stare at you make a couple of gag noises then up comes everything. Some like it

was still on the plate some mucus like. My husband has spoiled him rotten.

Dinner should be the time when our family can celebrate together instead it is

an all out war with the 3 year old (not mds) and trying to feed the 9 month old

(mds) and the 9 month old eats better!!

Often I have wished that we had gotten tested when was diagnosed with

mds, just so we could rule out (3 yr old). Now I think I need to have

him evaluated for other issues but I don't know how to go about doing it. Maybe

he is just spoiled. But he just doesn't seem to listen and everything is no.

UGH! I need more help with him than !!!

---- suezanw13 wrote:

> Yep- you're right, not normal. Definitely talk to a GI specialist

> about this one. That doesn't sound like reflux. The food coming up

> sounds more like it happens as a result of the continuous gagging. I

> have a friend whose daughter would make herself vomit on table food

> by continuously gagging just because she didn't want to eat it! She

> had a hard time getting her to stop! Has anyone else heard of a baby

> doing that on purpose?

>

>

>

> > >

> > > Thankyou for the information. When you say gagging is a normal

> part

> > of learning how to chew, what do you mean? My other children

> never

> > gagged like he does. Whatever is on his stomach, he will gag up.

> Can

> > he aspirate his food? I don't know and I'm scared to give him

> > anything more than crunched up food (like crackers).

> > >

> > > I took him to the dr today and the dr thinks that he is just

> late

> > on things. He said he wants to see him at 12 months and if he is

> > still late, then pursue more testing. He said that they have to

> draw

> > blood through a needle in his testicles to determine if it is MDS

> and

> > that it costs 12,000 dollars. Is this true? Will insurance NOT

> pay?

> > > Thanks-

> > > Jenni

> > >

> > >

> > >

> > >

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-I would definitely have some food allergy testing just to make sure.

In the foods you just named here, there are three of them that contain

common allergens in regards to food.

You never know. We are allergic to nuts and I am 42 and just found

out.

-- In MosaicDS , wrote:

>

> My 3 year old. He can stare you right in the eye gag twice then

throw-up anything in his stomach. He still eats babyfood. Thoug I

know he can eat other foods because he loves chicken nuggets, chips,

peanut butter & jelly, eggos, and cereal. But offer him anything else

and he will fight, kick, and scream, just when you finally think you

have won... He will let you put the food in his mouth stare at you

make a couple of gag noises then up comes everything. Some like it

was still on the plate some mucus like. My husband has spoiled him

rotten. Dinner should be the time when our family can celebrate

together instead it is an all out war with the 3 year old (not mds)

and trying to feed the 9 month old (mds) and the 9 month old eats

better!!

> Often I have wished that we had gotten tested when was

diagnosed with mds, just so we could rule out (3 yr old). Now

I think I need to have him evaluated for other issues but I don't

know how to go about doing it. Maybe he is just spoiled. But he just

doesn't seem to listen and everything is no. UGH! I need more help

with him than !!!

>

> ---- suezanw13 wrote:

> > Yep- you're right, not normal. Definitely talk to a GI

specialist

> > about this one. That doesn't sound like reflux. The food coming

up

> > sounds more like it happens as a result of the continuous

gagging. I

> > have a friend whose daughter would make herself vomit on table

food

> > by continuously gagging just because she didn't want to eat it!

She

> > had a hard time getting her to stop! Has anyone else heard of a

baby

> > doing that on purpose?

> >

> >

> >

> > > >

> > > > Thankyou for the information. When you say gagging is a

normal

> > part

> > > of learning how to chew, what do you mean? My other children

> > never

> > > gagged like he does. Whatever is on his stomach, he will gag

up.

> > Can

> > > he aspirate his food? I don't know and I'm scared to give him

> > > anything more than crunched up food (like crackers).

> > > >

> > > > I took him to the dr today and the dr thinks that he is

just

> > late

> > > on things. He said he wants to see him at 12 months and if he

is

> > > still late, then pursue more testing. He said that they have

to

> > draw

> > > blood through a needle in his testicles to determine if it is

MDS

> > and

> > > that it costs 12,000 dollars. Is this true? Will insurance

NOT

> > pay?

> > > > Thanks-

> > > > Jenni

> > > >

> > > >

> > > >

> > > >

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I have to disagree with the food allergy idea (respectfully to susan) If a 3 yr

old had an allergy he wouldn't immediately gag on the food. More than likely

what is happening here is a sensory problem and he isnt liking the textures in

his mouth. I would suggest that you speak with your OT and ask her if she could

evaluate him and see if he is having sensory issues with textures.

Kristy

wrote:

I would definitely have ome food allergy testing just to make sure.

In the foods you just named here, there are three of tem that contain

common allergens in regards to food.

You never know. We are allergic to nuts and I am 42 and just found

out.

> > > >

> > > > Thankyou for the information. When you say gagging is a

normal

> > part

> > > of learning how to chew, what do you mean? My other children

> > never

> > > gagged like he does. Whatever is on his stomach, he will gag

up.

> > Can

> > > he aspirate his food? I don't know and I'm scared to give him

> > > anything more than crunched up food (like crackers).

> > > >

> > > > I took him to the dr today and the dr thinks that he is

just

> > late

> > > on things. He said he wants to see him at 12 months and if he

is

> > > still late, then pursue more testing. He said that they have

to

> > draw

> > > blood through a needle in his testicles to determine if it is

MDS

> > and

> > > that it costs 12,000 dollars. Is this true? Will insurance

NOT

> > pay?

> > > > Thanks-

> > > > Jenni

> > > >

> > > >

> > > >

> > > >

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I was simply recomending that in addition to seeing an ENT and GI

doctor, that she might want to get allergy testing as well. For my

son, he will refuse foods that he is allergic to or has a sensitivity

to and gag and spit them back out (hence we learned to read labels).

The gagging itself would not be caused from an allergy, ususally, but

the offensive substance might be causing your child to gag

purposefully. The list she gave for foods that were his favorites

contained some high allergens, especially for those with MDS. Peanuts

in peanut butter, and egg and gluten in the eggo waffles. (Just from

memory without scrolling down thru the messages again). Just for the

record, I recommend that everyone has allergy testing these days, and

moreso if they have issues with vomitting (or other GI issues), any

rashes, or anything else that is unexplained. It really is a good

idea in our families because of the overexpression of the genes.

Without actually seeing your child and running some tests to rule out

causes, no one will really be able to tell you what is wrong. We are

all just tring to arm you with ideas to pursue. Good luck to you and

let us know the outcome.

> > > > >

> > > > > Thankyou for the information. When you say gagging is a

> normal

> > > part

> > > > of learning how to chew, what do you mean? My other children

> > > never

> > > > gagged like he does. Whatever is on his stomach, he will gag

> up.

> > > Can

> > > > he aspirate his food? I don't know and I'm scared to give him

> > > > anything more than crunched up food (like crackers).

> > > > >

> > > > > I took him to the dr today and the dr thinks that he is

> just

> > > late

> > > > on things. He said he wants to see him at 12 months and if he

> is

> > > > still late, then pursue more testing. He said that they have

> to

> > > draw

> > > > blood through a needle in his testicles to determine if it is

> MDS

> > > and

> > > > that it costs 12,000 dollars. Is this true? Will insurance

> NOT

> > > pay?

> > > > > Thanks-

> > > > > Jenni

> > > > >

> > > > >

> > > > >

> > > > >

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I have often wondered about a texture thing. Nothing I can specifically point to

but instict has always been strong. We are just now being evaluated by OT, PT,

and ST. I'll let you know what they say.

---- Kristy Colvin wrote:

> I have to disagree with the food allergy idea (respectfully to susan) If a 3

yr old had an allergy he wouldn't immediately gag on the food. More than likely

what is happening here is a sensory problem and he isnt liking the textures in

his mouth. I would suggest that you speak with your OT and ask her if she could

evaluate him and see if he is having sensory issues with textures.

>

> Kristy

>

> wrote:

> I would definitely have ome food allergy testing just to make sure.

> In the foods you just named here, there are three of tem that contain

> common allergens in regards to food.

> You never know. We are allergic to nuts and I am 42 and just found

> out.

>

> > > > >

> > > > > Thankyou for the information. When you say gagging is a

> normal

> > > part

> > > > of learning how to chew, what do you mean? My other children

> > > never

> > > > gagged like he does. Whatever is on his stomach, he will gag

> up.

> > > Can

> > > > he aspirate his food? I don't know and I'm scared to give him

> > > > anything more than crunched up food (like crackers).

> > > > >

> > > > > I took him to the dr today and the dr thinks that he is

> just

> > > late

> > > > on things. He said he wants to see him at 12 months and if he

> is

> > > > still late, then pursue more testing. He said that they have

> to

> > > draw

> > > > blood through a needle in his testicles to determine if it is

> MDS

> > > and

> > > > that it costs 12,000 dollars. Is this true? Will insurance

> NOT

> > > pay?

> > > > > Thanks-

> > > > > Jenni

> > > > >

> > > > >

> > > > >

> > > > >

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